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    • 3 hours, 3 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I really think it just depends on the person who needs help. Some people may find it extremely useful and others may not find them of much help.
    • 3 hours, 3 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I said helpful because unless they actually have first hand knowledge of your health condition they can't really know.
    • 3 hours, 8 minutes ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      Back in the 80's I was in an NIH study. But I think now my age (72) ages me out) and my A1C's (5.4-5.8 for the past 20 years or so) exclude me.
    • 3 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I am the only one in my household who has T1D, but both husband and I live with it.
    • 3 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I always find questions like this one intriguing. I am the one and only T1D in my family, both sides, going up, down, and wide on my family tree. Then there are T1D warriors in this group (and others on social media) where the T1D with whom I'm interacting has children with T1D, parents, and aunts and uncles as well. In a sense, the data like this are suggesting more than one cause for T1D, possibly multiple conditions that result in T1D.
    • 3 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      ALL of them are forced, given a seat at my T1D "table" whether they wish to be or not. They endure my experiences, their after-effects, the events themselves. Living with us, they are unwilling voyeurs/particip[ents This appears to be a badly worded question. If you meant, does anybody living with you ALSO have the disease T1D as well, you should have asked it that way. The question you kids wrote asks a far different question, by semantic accident it appears....?
    • 3 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 4 hours, 3 minutes ago
      KCR likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 4 hours, 22 minutes ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 21 hours, 42 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 21 hours, 42 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 21 hours, 43 minutes ago
      KarenM6 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 23 hours, 4 minutes ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 23 hours, 5 minutes ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 1 hour ago
      Deborah Wright likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 2 hours ago
      Alyne Branson likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 3 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 4 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 20 hours ago
      eherban1 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 1 day, 21 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      No opinion.
    • 1 day, 21 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I have never felt the need to see a mental health professional who has an understanding of lifelong health conditions. I've been T1D for 55 years, but no significant additional diabetic related issues, and have suffered no mental health issues.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 1 day, 22 hours ago
      Pam Hamilton likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How would you rate your overall health?
      My first thought is always Excellent. My A1C hovers around 6.2, TIR around 85%. I do yoga, walk an hour at least 3 times per week, garden, keep my own house very clean, eat pretty healthy, weight is below average, BP excellent. Doctors say my eyes and feet deny I have diabetes. But then, I am insulin dependent, so I always bring it down one notch. Oh! To be able to eat gelato everyday. But even with insulin, there are too many other factors that keep me on the straight and narrow. I will get vertigo if I up my sugar/sweets intake.
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    Have you ever experienced elevated ketones without high blood glucose levels?

    Home > LC Polls > Have you ever experienced elevated ketones without high blood glucose levels?
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    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Mick Martin

      Many years ago I used to be a bit of a fitness ‘freak’, and one of the sports that I used to participate in was boxing. I used to ‘starve’ myself purposely to keep my weight down so that I could meet the requirements for the weight category that I used to box in. This resulted in ketone production as my body would deliberately break down fat reserves in order to ‘feed’ me.

      1
      4 years ago Log in to Reply
    2. Abraham Remson

      I have never had a problem with ketones. I was even given ketone sticks to test. Even when my sugar was high for a few days. This was an indication that I had some kind of virus or some other infection

      4 years ago Log in to Reply
    3. Bonnie kenney

      I was on Jardiance…while on a pump…I am type 1. I started spilling ketones after taking it a few years. My Dr took me off immediately.

      4 years ago Log in to Reply
    4. Henry McNett

      Yes, it is called nutritional ketosis resulting from a low carbohydrate diet.

      3
      4 years ago Log in to Reply
      1. Christina Trudo

        isnt this what killed karen carpenter?

        4 years ago Log in to Reply
      2. KarenM6

        Hi Christina –
        No. What killed Karen Carpenter was Anorexia – which is, basically, not eating at all… no or too low of a caloric intake.
        A low carb diet does not preclude caloric intake from non-starchy vegetables or meat or fat.
        A low carb diet means the person is avoiding breads, fruits, starches and pastas also.
        I hope this information helps!

        4 years ago Log in to Reply
    5. Sharon Lillibridge

      i would not know….not something I am concerned with.

      4 years ago Log in to Reply
    6. Ernie Richmann

      I just don’t know.

      1
      4 years ago Log in to Reply
    7. Christina Trudo

      Not without any kind of high, but the one time I had ketones that landed me in the hospital my sugar was not super high, high 200s.

      4 years ago Log in to Reply
    8. Sahran Holiday

      My endocrinologist told me not to bother testing for ketones even from an occasional high blood glucose. Probably on my lab tests. No one ever said anything.

      4 years ago Log in to Reply
    9. Dave Barden

      Don think. Been a long while since I’ve checked for ketones. At what bs reading do people check for ketones.

      4 years ago Log in to Reply
      1. AnitaS

        I know many people have been told to test if sugar levels go above 250, but not sure if that is what the people who are answering in this survey do.

        4 years ago Log in to Reply
    10. Bob Durstenfeld

      I’ve never had high ketones, regardless of BG level.

      4 years ago Log in to Reply
    11. Tina Roberts

      I have no idea. I don’t test for them.

      2
      4 years ago Log in to Reply
    12. Chrisanda

      I’ve never tested for ketones. So far my doctor has not required it.

      2
      4 years ago Log in to Reply
    13. Natalie Daley

      My endo never asked me to test or provided me with an Rx for test strips.

      1
      4 years ago Log in to Reply
    14. Carol Meares

      I put no, but I don’t ever measure ketones so I don’t really know.

      2
      4 years ago Log in to Reply
    15. Francisco Varea

      I answered other. I have only tested for them a couple of times and found normal levels. The strips are usually expired whenever I try to test. It is sort of useless in my opinion, unless your glucose levels are really out of of control.

      1
      4 years ago Log in to Reply
    16. Kate Hayes

      This question is automatically and inherently biased, though, because we Type 1s are taught to not even check ketones unless glucose levels are above 250 mg/dL. So – One of the answer choices should be “I don’t know”.

      3
      4 years ago Log in to Reply
      1. Ceara Glasgow

        When I was first diagnosed I was told to check for keytones every so often. And when I tried a somewhat ketogenic diet I had to test my levels everyday to make sure I wasn’t making way to many keytones. I think the healthcare for type 1 diabetes is so… in progress that different professionals have different understandings of treatment.

        4 years ago Log in to Reply
    17. Cheryl Seibert

      My husband was in post-op after surgery and nursing care was thin. I wasn’t on the pump at the time and had BGs in the 150-170s for several hours. Waiting on training for wound care delayed my meal so I was very dehydrated after waiting all day at the hospital. That evening, I went into ketoacidosis even though my BGs were still in the 170s.

      1
      4 years ago Log in to Reply
    18. Ken Raiche

      Happens almost everyday due to the current diet that I’m on.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Ooh, that doesn’t sound good. Maybe the diet needs to change in some way.

        4 years ago Log in to Reply
      2. Ceara Glasgow

        Whenever I go low carb I make keytones too, people always think keytones are bad but they aren’t they are also a sign that your body is burnin fat for fuel instead of carbs or sugar.

        1
        4 years ago Log in to Reply
    19. Eve Rabbiner

      Why would I even check for ketones unless my BG was high? Maybe it I was feeling dreadful, but so far that hasn’t happened.

      2
      4 years ago Log in to Reply
      1. Ceara Glasgow

        Some people produce keytones more easily than others. I think mostly due to diet, hydration,and activity. I did a somewhat ketogenic diet for awhile and produced a lot of keytones most of the time, my blood sugars were always on the lower side tho.

        4 years ago Log in to Reply
    20. M C

      Only once – it was after surgery – My body didn’t ‘like’ the anesthesia, so had to be kept overnight after a ‘day surgery’ as my heart rhythm became erratic…. I couldn’t eat due to extreme nausea, and thus ketones made an appearance (as explained by the doctor).

      1
      4 years ago Log in to Reply
    21. Steve Rumble

      Back in the test tape days I tested for ketones when my urine tested very high glucose. Haven’t tested for ketones since I first started using a blood glucose meter in the early 80s.

      1
      4 years ago Log in to Reply
    22. Patricia Dalrymple

      I said other because I’ve never felt sick enough to check for ketones and my Endo never says anything about it.

      4 years ago Log in to Reply
    23. Jneticdiabetic

      I put No, but I’ve also never checked unless my BG is high and I’m feeling unwell.

      1
      4 years ago Log in to Reply
      1. Bea Anderson

        N/a…in 15 yrs it has never come up. Never checked. Is treatment for high ketones different than treating high blood glucose? When high I try to quickly correct to low normal. Assumed that was all that was needed. That said I do use Keto diet at times.

        4 years ago Log in to Reply
    24. John Dowd

      I don’t really know what ketones are, so I put “other”

      4 years ago Log in to Reply
    25. AnitaS

      While in the hospital recovering from surgery, I had keto acidosis. My sugars were high the whole time I was in the hospital and I kept telling them I needed more but they just didn’t seem to listen. My sugars weren’t astronomically high, but even staying between 200 and 250 the whole week I was there was enough to put me over the edge into keto acidosis.

      4 years ago Log in to Reply
    26. Ceara Glasgow

      Yea I actually went into dka without having a high blood sugar. It was frustrating in the hospital a lot of the doctors and nurses didn’t understand that dka happens when you don’t have any insulin in your body regardless of blood glucose levels. I was luck my endocrinologist was on a shift at the hospital and was able to come in and lay down some education not just for me but also for the other medical staff.

      4 years ago Log in to Reply
    27. Kevin McCue

      The wording doesn’t allow answers like having never experienced ketones or measuring ketones even though having T1d for 3 decades

      4 years ago Log in to Reply
    28. Wanacure

      I was breathing out and urinating ketones when I first became T1D. Within a week my observant mom had me seeing an endocrinologist. That’s the only time. And I have checked for ketones over the years. I felt so much better after starting insulin. But I’m on a low carb diet now and may go ketogenic. Keto acidosis from high bg = very bad. But keto acidosis from ketogenic diet may not be so harmful & there may be some real advantages. I’m open to trying it.

      4 years ago Log in to Reply

    Have you ever experienced elevated ketones without high blood glucose levels? Cancel reply

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