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    • 51 minutes ago
      Kris Sykes-David likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 1 hour, 11 minutes ago
      beth nelson likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 1 hour, 58 minutes ago
      Mick Martin likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      Echo Mick Martin. Gastroparesis? Try ondonestron (sp?) one of the 10 best medicines ever invented. Also, "a forever learning curve" and "If in doubt, pull it out."
    • 17 hours, 55 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 18 hours, 2 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 18 hours, 27 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 4 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 24 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 23 hours, 24 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 44 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 18 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
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    Have you ever experienced elevated ketones without high blood glucose levels?

    Home > LC Polls > Have you ever experienced elevated ketones without high blood glucose levels?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Mick Martin

      Many years ago I used to be a bit of a fitness ‘freak’, and one of the sports that I used to participate in was boxing. I used to ‘starve’ myself purposely to keep my weight down so that I could meet the requirements for the weight category that I used to box in. This resulted in ketone production as my body would deliberately break down fat reserves in order to ‘feed’ me.

      1
      2 years ago Log in to Reply
    2. Abraham Remson

      I have never had a problem with ketones. I was even given ketone sticks to test. Even when my sugar was high for a few days. This was an indication that I had some kind of virus or some other infection

      2 years ago Log in to Reply
    3. Bonnie kenney

      I was on Jardiance…while on a pump…I am type 1. I started spilling ketones after taking it a few years. My Dr took me off immediately.

      2 years ago Log in to Reply
    4. Henry McNett

      Yes, it is called nutritional ketosis resulting from a low carbohydrate diet.

      3
      2 years ago Log in to Reply
      1. Christina Trudo

        isnt this what killed karen carpenter?

        2 years ago Log in to Reply
      2. KarenM6

        Hi Christina –
        No. What killed Karen Carpenter was Anorexia – which is, basically, not eating at all… no or too low of a caloric intake.
        A low carb diet does not preclude caloric intake from non-starchy vegetables or meat or fat.
        A low carb diet means the person is avoiding breads, fruits, starches and pastas also.
        I hope this information helps!

        2 years ago Log in to Reply
    5. Sharon Lillibridge

      i would not know….not something I am concerned with.

      2 years ago Log in to Reply
    6. Ernie Richmann

      I just don’t know.

      1
      2 years ago Log in to Reply
    7. Christina Trudo

      Not without any kind of high, but the one time I had ketones that landed me in the hospital my sugar was not super high, high 200s.

      2 years ago Log in to Reply
    8. Sahran Holiday

      My endocrinologist told me not to bother testing for ketones even from an occasional high blood glucose. Probably on my lab tests. No one ever said anything.

      2 years ago Log in to Reply
    9. Dave Barden

      Don think. Been a long while since I’ve checked for ketones. At what bs reading do people check for ketones.

      2 years ago Log in to Reply
      1. AnitaS

        I know many people have been told to test if sugar levels go above 250, but not sure if that is what the people who are answering in this survey do.

        2 years ago Log in to Reply
    10. Bob Durstenfeld

      I’ve never had high ketones, regardless of BG level.

      2 years ago Log in to Reply
    11. Tina Roberts

      I have no idea. I don’t test for them.

      2
      2 years ago Log in to Reply
    12. Chrisanda

      I’ve never tested for ketones. So far my doctor has not required it.

      2
      2 years ago Log in to Reply
    13. Natalie Daley

      My endo never asked me to test or provided me with an Rx for test strips.

      1
      2 years ago Log in to Reply
    14. Carol Meares

      I put no, but I don’t ever measure ketones so I don’t really know.

      2
      2 years ago Log in to Reply
    15. Francisco Varea

      I answered other. I have only tested for them a couple of times and found normal levels. The strips are usually expired whenever I try to test. It is sort of useless in my opinion, unless your glucose levels are really out of of control.

      1
      2 years ago Log in to Reply
    16. Kate Hayes

      This question is automatically and inherently biased, though, because we Type 1s are taught to not even check ketones unless glucose levels are above 250 mg/dL. So – One of the answer choices should be “I don’t know”.

      3
      2 years ago Log in to Reply
      1. Ceara Glasgow

        When I was first diagnosed I was told to check for keytones every so often. And when I tried a somewhat ketogenic diet I had to test my levels everyday to make sure I wasn’t making way to many keytones. I think the healthcare for type 1 diabetes is so… in progress that different professionals have different understandings of treatment.

        2 years ago Log in to Reply
    17. Cheryl Seibert

      My husband was in post-op after surgery and nursing care was thin. I wasn’t on the pump at the time and had BGs in the 150-170s for several hours. Waiting on training for wound care delayed my meal so I was very dehydrated after waiting all day at the hospital. That evening, I went into ketoacidosis even though my BGs were still in the 170s.

      1
      2 years ago Log in to Reply
    18. Ken Raiche

      Happens almost everyday due to the current diet that I’m on.

      1
      2 years ago Log in to Reply
      1. AnitaS

        Ooh, that doesn’t sound good. Maybe the diet needs to change in some way.

        2 years ago Log in to Reply
      2. Ceara Glasgow

        Whenever I go low carb I make keytones too, people always think keytones are bad but they aren’t they are also a sign that your body is burnin fat for fuel instead of carbs or sugar.

        1
        2 years ago Log in to Reply
    19. Eve Rabbiner

      Why would I even check for ketones unless my BG was high? Maybe it I was feeling dreadful, but so far that hasn’t happened.

      2
      2 years ago Log in to Reply
      1. Ceara Glasgow

        Some people produce keytones more easily than others. I think mostly due to diet, hydration,and activity. I did a somewhat ketogenic diet for awhile and produced a lot of keytones most of the time, my blood sugars were always on the lower side tho.

        2 years ago Log in to Reply
    20. M C

      Only once – it was after surgery – My body didn’t ‘like’ the anesthesia, so had to be kept overnight after a ‘day surgery’ as my heart rhythm became erratic…. I couldn’t eat due to extreme nausea, and thus ketones made an appearance (as explained by the doctor).

      1
      2 years ago Log in to Reply
    21. Steve Rumble

      Back in the test tape days I tested for ketones when my urine tested very high glucose. Haven’t tested for ketones since I first started using a blood glucose meter in the early 80s.

      1
      2 years ago Log in to Reply
    22. Patricia Dalrymple

      I said other because I’ve never felt sick enough to check for ketones and my Endo never says anything about it.

      2 years ago Log in to Reply
    23. Jneticdiabetic

      I put No, but I’ve also never checked unless my BG is high and I’m feeling unwell.

      1
      2 years ago Log in to Reply
      1. Bea Anderson

        N/a…in 15 yrs it has never come up. Never checked. Is treatment for high ketones different than treating high blood glucose? When high I try to quickly correct to low normal. Assumed that was all that was needed. That said I do use Keto diet at times.

        2 years ago Log in to Reply
    24. John Dowd

      I don’t really know what ketones are, so I put “other”

      2 years ago Log in to Reply
    25. AnitaS

      While in the hospital recovering from surgery, I had keto acidosis. My sugars were high the whole time I was in the hospital and I kept telling them I needed more but they just didn’t seem to listen. My sugars weren’t astronomically high, but even staying between 200 and 250 the whole week I was there was enough to put me over the edge into keto acidosis.

      2 years ago Log in to Reply
    26. Ceara Glasgow

      Yea I actually went into dka without having a high blood sugar. It was frustrating in the hospital a lot of the doctors and nurses didn’t understand that dka happens when you don’t have any insulin in your body regardless of blood glucose levels. I was luck my endocrinologist was on a shift at the hospital and was able to come in and lay down some education not just for me but also for the other medical staff.

      2 years ago Log in to Reply
    27. Kevin McCue

      The wording doesn’t allow answers like having never experienced ketones or measuring ketones even though having T1d for 3 decades

      2 years ago Log in to Reply
    28. Wanacure

      I was breathing out and urinating ketones when I first became T1D. Within a week my observant mom had me seeing an endocrinologist. That’s the only time. And I have checked for ketones over the years. I felt so much better after starting insulin. But I’m on a low carb diet now and may go ketogenic. Keto acidosis from high bg = very bad. But keto acidosis from ketogenic diet may not be so harmful & there may be some real advantages. I’m open to trying it.

      2 years ago Log in to Reply

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