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    • 15 hours, 1 minute ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 15 hours, 3 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 15 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 15 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 13 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 5 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 17 hours, 6 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 8 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 8 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 10 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 56 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?

    Home > LC Polls > For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?
    Previous

    Did you add, remove, or change T1D devices in 2022? Select all that apply!

    Next

    If you use a CGM, where do you most prefer to view your sensor readings?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Jen Farley

      I tried Medtronic closed loop system. What a nightmare. The CGM I was told could have a + or – 70 variation. I was also not told about the calibration, I thought insulin would stop. Training on the new system would have fixed it all. I had 2 car accidents, lost my license and kept asking questions with different explanations to explain defects with the equipment. I hear the CGM is no longer used and and keeps getting recalled. I threw it away when I found out I paid cash for the junk and my insurance would cover my Tandem pump which has greatly improved.

      1
      3 years ago Log in to Reply
      1. Deyait Watson-Irvine

        Im sorry to hear about you issues with your pump! I had Medtronic and switched to Tandem because of my new Endocrinologist preference. I have not been disappointed. You are correct in the training aspect. If you don’t understand the equipment it’s just a worthless device. I hope you can find a good diabetes educator to help adjust your pump settings so you can feel more confident. I am still making adjustments to my settings as well. Just know you are not alone in feeling frustrated or confused. We are all doing the best we can to stay on top of this disease. Stay well!

        3
        3 years ago Log in to Reply
    2. C B

      Libre 3 is not on my drug formulary

      1
      3 years ago Log in to Reply
      1. MT

        Same here. Paying cash for the 3 and checking weekly to see if it’s been added.

        3 years ago Log in to Reply
    3. Lawrence S.

      I had to wait for Medicare to approve the Dexcom G6 before I could order it. I don’t remember how long I waited. Seemed like a year or two.

      3 years ago Log in to Reply
    4. TEH

      I answered other since I am going through the process of switching from Medtronic to Omnipod/Dexcom system.
      Medtronics would call and email me asking how many sensors I had left before they would send more. This I believe is a Medicare requirement. We’ll see what Dexcom process is like. Comments welcome.

      3 years ago Log in to Reply
      1. Tom Caesar

        Get my D6 covered by Medicare through US Med, easy and painless. Medicare does require having a 10 day supply before reordering, supplier is on top of it and sends 90 day supply promptly with very little efforts on my part.

        3 years ago Log in to Reply
    5. Steve Rumble

      The first and only time I started using a CGM a Dexcom G6 was provided so I could participate in a study. Through the study I learned to rely on the CGM and started purchasing them after the 6-month study ended. I now get the supplies through the VA.

      3 years ago Log in to Reply
    6. trisha

      Switched to Dexcom before I was allowed by insurance to switch pumps (from Medtronic). It was night and day. Doing something through insurance is never easy. I kept being reminded dexcom would not work with Medtronic by medical staff. I appreciated that- but the part they couldn’t understand from lack of excess was that Medtronic’s cgm was the pits.

      3
      3 years ago Log in to Reply
      1. trisha

        *experience

        3 years ago Log in to Reply
    7. Meghan Larson

      It was easy for me- the CGM I wanted was the only one covered by my insurance at the time.

      3 years ago Log in to Reply
    8. Daniel Bestvater

      No problem! I pay cash so I just ordered it and paid.

      3 years ago Log in to Reply
    9. KCR

      When I originally got my Dexcom G5 several years ago, the process went pretty smoothly. The supplier worked with my provider when the G6 became available and I really didn’t have to do anything.

      3 years ago Log in to Reply
    10. Annie Wall

      When I first started with Dexcom, it hadn’t yet been approved by Medicare so I paid for it. Once it got Medicare approval, it was totally easy obtain it without hassle.

      3 years ago Log in to Reply
    11. Marty

      I had been using the Dexcom G6 system for months when I started on Medicare. Since Medicare was only covering the G5 at the time, I couldn’t get replacement G6 supplies. Dexcom also refused to let me revert to the G5 system. I was trapped in a frustrating run around that lasted weeks. I was finally able to get G6 supplies by complaining directly to a Dexcom rep at a local diabetes conference. I think Dexcom learned a lesson about having enough supplies for everyone before they transition to a new system.

      3 years ago Log in to Reply
    12. betsy valian

      I was given the G5,although the G6 Dexcom was available through other insurers. I have Medicare. They only give the older left over devices to Medicare patients; I suppose this will also be the same when the G7 is available. I did eventually get a G6, but it took over a year plus after they were released. I’m hoping the G7 will be easier. However, bottom line is, I’m just thankful I can get a CGM period!

      1
      3 years ago Log in to Reply
    13. Janis Senungetuk

      At the time I applied for the Dexcom 5 it was the only CGM system approved by my insurance, so I didn’t encounter any problems receiving it. The problems started immediately after that with Dexcom refusing to bill my insurance correctly and lack of adequate training in use of the system.

      3 years ago Log in to Reply
    14. Jane Cerullo

      Started a new Medicare advantage insurance. I was on Dexcom but they only covered FSL. I switched. Was not too bad but did not like other restrictions with this insurance provider. Changed insurance and went back to Dexcom. Have never had any supply problems with either device.

      3 years ago Log in to Reply
    15. cynthia jaworski

      freestyle was easy toget

      3 years ago Log in to Reply
    16. Carol Meares

      I guess I will find out when it comes time to upgrade to the G7

      3 years ago Log in to Reply
    17. Sandra Rosborough

      The problem is always communications with insurance and the CGM companies, not the doctor.

      2
      3 years ago Log in to Reply
    18. Ahh Life

      Humans may not be the smartest creatures God ever created.

      But why did he place so many of the dumber ones in administrative areas?

      1
      3 years ago Log in to Reply
    19. Russell Buckbee

      Very difficult as it was before Medicare approved CGMs. I had to purchase key first one by cash. Then Medicare was difficult. I had to get two tests to prove I wasn’t producing any pancreatic insulin. Then my cost were incorrect and I had to appeal to an administrative law judge to get reimbursed. Now days it is easy. Medicare standard

      3 years ago Log in to Reply
    20. RegMunro

      The process of getting the CGM was simple. Getting it covered as part of my medical aid scheme was impossible. As long as I pay, I can use!

      3 years ago Log in to Reply
    21. qachemist

      I’m on my first one, obtained at first visit to endocrinologist (after referral from PCP who diagnosed). Didn’t know enough to have a preference so went with endocrinologist recommendation. Now I know more and would likely not make that choice.

      3 years ago Log in to Reply
    22. Wanacure

      My Kaiser tech accurately described difference between Dexcom & Free Style Libre. I chose Dexcom for more accuracy. Kaiser & Byram and Medicare all work smoothly together. BUT Kaiser only offers Advantage plans so no Medigap coverage. Only Original Medicare can permit Medigap coverage. No Medicare Advantage plan offered by anybody can let you get Medigap. SHIBA alerted me to this deficiency.

      3 years ago Log in to Reply
    23. Andrea Hultman

      From what I remember, getting the Medtronic devices I wanted and needed have always been easy on Medtronic’s end. I’ve been a customer of theirs (and MiniMed’s) for 26 years. Getting insurance approval has been the obstacle, but I never had to go with a different brand—for which I am thankful.

      3 years ago Log in to Reply

    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use? Cancel reply

    You must be logged in to post a comment.




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