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  • Activity
    • 3 hours, 37 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 37 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 34 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 50 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 49 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 51 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 33 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 33 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 36 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 41 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 41 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 43 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 43 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 44 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 20 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 31 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 43 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 44 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 59 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    Did you add, remove, or change T1D devices in 2022? Select all that apply!

    Home > LC Polls > Did you add, remove, or change T1D devices in 2022? Select all that apply!
    Previous

    Happy New Year! Do you have any diabetes-related goals for 2023? Tell us in the comments!

    Next

    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?

    Sarah Howard

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    37 Comments

    1. Jen Farley

      Tandem and Dexcom, hope to upgrade to the new Dexcom model this coming year.

      4
      1 month ago Log in to Reply
      1. AnitaS

        My Tandem T-slim 2x is running out of warranty in 2023. I am not sure if which new model of Tandem is coming out: The mobi or the T-slim3. My warranty expires in August so I hope to know by then which model is coming out and I hope to make a decision then.

        1
        1 month ago Log in to Reply
    2. TEH

      I have used 5 different Minimed pumps. I have grown tired of all the inappropriate alarms waking me up at night with the 670G and the tangles with the tubing. Just got Medicare approval to go to the Omninpod and Dexcom 6. I plan on switching in January. The next step is to arrange a mail order pharmacy. Any recomendations? (Sorry for hijacking this thread.)

      1
      1 month ago Log in to Reply
      1. Sherolyn Newell

        I have Omnipod Dash and Dexcom 6. It’s not a closed loop, but I have been very happy with it.

        1 month ago Log in to Reply
    3. TomH

      I started using Loop-dev in April to connect my Dexcom G6 and Omnipod DASH pump, making them into an AID. It’s worked very, eliminated the need to carry PDM’s for either one, so I only have to carry my iPhone and it links and controls both devices. It will also work with the Dexcom G7 once it gets rolled out in the US.

      1
      1 month ago Log in to Reply
    4. Tb-well

      I switched from the Minimed 770 to the tandem T2. It was the best freaking swap I have ever made. I cannot tell you how horrible the Minimed system is. I pray that they do day get serious about their cgm and design their software to be better. This latest pump is a pos, but in general they have always made better pumps. Their cgm however has always been awful, and nothing has really changed on that front.

      3
      1 month ago Log in to Reply
      1. Katrina Mundinger

        Me too! The pump was always fine for me BUT the CGM has always been subpar no matter how much better they claimed it to be than the previous iteration.

        Within minutes of starting Dexcom I was IN LOVE. Then added Tandem (control iq) to have a pump that works with it.

        3
        1 month ago Log in to Reply
      2. Tom Caesar

        Same experience for me! Tandem so much better

        2
        1 month ago Log in to Reply
      3. PamK

        Same here! I love my Tandem and Dexcom; wouldn’t ever go back to Medtronic!

        1
        1 month ago Log in to Reply
    5. Lyn McQuaid

      I wasn’t sure what to answer as I was on the tslim pump with control IQ and got a new tslim pump, so I technically have the same pump, but went back to basal IQ, which I much prefer. I was so annoyed when Tandem wouldn’t let me go back to basal IQ after I ā€œupgradedā€ to control IQ several years ago but, with a new pump, I could request basal IQ. I had two different people (one from Tandem and one from the medical supply company) call me, though, thinking my endo had made a mistake prescribing the basal IQ pump!

      1
      1 month ago Log in to Reply
      1. Trina Blake

        Like you, I prefer BIQ (I am very aggressive in my T1D mgt – like setting my own range etc). My old Tandem X2 was out of warranty and lost the ability to “receive messages” from my Dexcom G6. So I had to replce it. I made sure the Rx was written for BIQ, and I also made sure at Tandem’s end they knew and acknowledged I wanted BIQ.

        1 month ago Log in to Reply
      2. Lucia Maya

        I remember liking BIQ better too… but now can’t remember why. any specifics you can share? thanks!

        1 month ago Log in to Reply
      3. Lyn McQuaid

        Hi Lucia – BIQ only controls low blood sugars whereas CIQ controls ā€œhighsā€ as well. My issue was that I keep very tight control (my A1cs are in the low 5’s) and CIQ only allows blood sugar to get as low as 110 before it decreases basal rates. I prefer to keep my blood sugars lower than that so would only use it at night. But then my nighttime blood sugars were higher than I prefer, given the 110 target. Hope that helps!

        1 month ago Log in to Reply
    6. Missy Kirchem

      I got a new Tslim because my old one was out of warranty and had an issue with where the charging plug went in

      1
      1 month ago Log in to Reply
    7. Janice B

      I changed from Tandem X2 to OmniPod 5

      1 month ago Log in to Reply
    8. Eva

      Got a new blood glucose meter – much smaller and super accurate (i.e., spot on) with my endo’s machine
      : – )

      1 month ago Log in to Reply
    9. Bob Bowen

      Replaced CGM transmitter with same brand due to warranty expiration.

      1
      1 month ago Log in to Reply
    10. Csampogna

      Same pump and CGM. Upgraded to Control IQ.

      2
      1 month ago Log in to Reply
    11. Nichole Pleisch

      I changed my cgm from Libre to Dexcom and this week I’m asking about a pump so hopefully I’ll be adding that

      2
      1 month ago Log in to Reply
    12. Nicholas Argento

      Dexcom G6 w Tandem CIQ- works extremely well for me. I would not give up until something better comes along….looking forward to G7 + Tandem combo, ? summer 2023

      2
      1 month ago Log in to Reply
    13. lis be

      switched from libre2 to dexcom. reading have been more accurate for 9 of the 10 days!

      2
      1 month ago Log in to Reply
      1. Donal Conway

        Changed CGM from Libre free style 1 which was not on the list of items sponsored by the Irish government to a newly paid for one Dexcom G7 after four years of me (us) lobbying to one of them on the long term illness list of items. It happened about October of this year. A milestone in the Irish health I have to say and a life changer in my 52 years of T1 Diabetes life.

        1
        1 month ago Log in to Reply
    14. Chris Albright

      Did not change pump mfg or model, but did change to a different infusion set model

      1 month ago Log in to Reply
    15. PamK

      I chose the responses that I did not change my pump or CGM, but I did get a new pump – – the old one was out of warranty, so I was able to get a new one of the same brand/model.

      1 month ago Log in to Reply
    16. anj1832

      I’ve been using the same cgm and pump (Medtronic 670) all year but I bought a new pump (tandem) in October. I haven’t started using the new system yet because insurance wouldn’t let me order supplies for it. My Medtronic pump’s warranty expired in April and my pump had a huge crack down the side. However, insurance said I still had supplies for the old pump so they wouldn’t fill a prescription for the new pump supplies. Even if my old pump quit working, they wouldn’t allow me to get supplies for the new pump until the supply period was over. It’s been a nightmare but thankfully my supplies (and pump) have lasted me this long. Of course I’ll need to switch over in the new year, right when my deductible starts over—of course!! 😔

      1 month ago Log in to Reply
      1. Jen Farley

        I agree with you! Insurance companies need to be a bit more understanding. I have had long conversations with my insurance company about my diabetic needs they could not understand.

        1 month ago Log in to Reply
    17. Lorri McLuckie

      Moved from Omnipod Dash to Omnipod 5 in July and love it! Had to be patient to learn the correct settings and for it to learn my patterns, but noticing that it’s working great now and I’m feeling really wonderful.

      1
      1 month ago Log in to Reply
    18. Sandra Norman

      Switched from Tandem CIQ to Omnipod 5, but am thinking of switching back, was getting better control with the Tandem, but the ease of filling with the POD and no tubing is hard to give up. If Tandem gets the G7 first, that would make me switch back immediately. Both are excellent pumps.

      1 month ago Log in to Reply
    19. Bill Williams

      As soon as the G7 is available, I’m switching from the Libre.

      1 month ago Log in to Reply
    20. mbulzomi@optonline.net

      I have another 3 years before I’m eligible to replace my pump. Remember, it’s five years when on Medicare Part “B”.

      1
      1 month ago Log in to Reply
    21. Kim Davis

      My Tandem x2 w IQ control ran out of warranty. So long before it ended started the process for a new pump. Now my new pump is working, I choose the same manufacturer & exact same pump but now I have a warranty!

      1
      1 month ago Log in to Reply
    22. Carolann Hunt

      Switched to an orange link from Riley link, no big deal

      1 month ago Log in to Reply
    23. Bonnie Lundblom

      Stayed on my Tslimx2 pump and Dexcom CGM6 all year. If the Medicare 5 year rule applies to both devices then it will be a few years until I can do any changes. I’m hoping that Dexcom will stop producing the CGM6 and only have the CGM7’s but I don’t think that will happen.

      1 month ago Log in to Reply
    24. Magnus Hiis

      Charged from FreeAPS to FreeAPS X (Oref1 algoritm)

      1 month ago Log in to Reply
    25. Michael Andrews

      I started using a Cequr Insulin patch in December. It’s like a manually operated pump but more similar in size to a Dexcom and the insertion is similar to a Dexcom or an Omnipod. It’s a 3-day wearable patch. I love it more than I thought I would. It’s not high-tech, but it is attached, making insulin delivery much easier. I have 5 small children and travel a lot for work, so pumps would be harder to deal with. It’s very convenient, and it makes life so much easier

      3 weeks ago Log in to Reply
    26. James Cheairs

      Started back on DYI Loop after a couple of year hiatus. The 3.0 release is quite good.

      2 weeks ago Log in to Reply
    27. Lori Smith

      In 2022, I was in the hospital 3 times, in which they took my pump away and had to wait till i got it back. Have it now and am Happy

      7 days ago Log in to Reply

    Did you add, remove, or change T1D devices in 2022? Select all that apply! Cancel reply

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