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  • Activity
    • 55 minutes ago
      Kris Sykes-David likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 1 hour, 16 minutes ago
      beth nelson likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 2 hours, 3 minutes ago
      Mick Martin likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      Echo Mick Martin. Gastroparesis? Try ondonestron (sp?) one of the 10 best medicines ever invented. Also, "a forever learning curve" and "If in doubt, pull it out."
    • 17 hours, 59 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 18 hours, 6 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 18 hours, 32 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 8 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 8 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 28 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 23 hours, 29 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 49 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 18 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
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    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?

    Home > LC Polls > For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?
    Previous

    Did you add, remove, or change T1D devices in 2022? Select all that apply!

    Next

    If you use a CGM, where do you most prefer to view your sensor readings?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. Jen Farley

      I tried Medtronic closed loop system. What a nightmare. The CGM I was told could have a + or – 70 variation. I was also not told about the calibration, I thought insulin would stop. Training on the new system would have fixed it all. I had 2 car accidents, lost my license and kept asking questions with different explanations to explain defects with the equipment. I hear the CGM is no longer used and and keeps getting recalled. I threw it away when I found out I paid cash for the junk and my insurance would cover my Tandem pump which has greatly improved.

      1
      5 months ago Log in to Reply
      1. Deyait Watson-Irvine

        Im sorry to hear about you issues with your pump! I had Medtronic and switched to Tandem because of my new Endocrinologist preference. I have not been disappointed. You are correct in the training aspect. If you don’t understand the equipment it’s just a worthless device. I hope you can find a good diabetes educator to help adjust your pump settings so you can feel more confident. I am still making adjustments to my settings as well. Just know you are not alone in feeling frustrated or confused. We are all doing the best we can to stay on top of this disease. Stay well!

        3
        5 months ago Log in to Reply
    2. C B

      Libre 3 is not on my drug formulary

      1
      5 months ago Log in to Reply
      1. MT

        Same here. Paying cash for the 3 and checking weekly to see if it’s been added.

        5 months ago Log in to Reply
    3. Lawrence S.

      I had to wait for Medicare to approve the Dexcom G6 before I could order it. I don’t remember how long I waited. Seemed like a year or two.

      5 months ago Log in to Reply
    4. TEH

      I answered other since I am going through the process of switching from Medtronic to Omnipod/Dexcom system.
      Medtronics would call and email me asking how many sensors I had left before they would send more. This I believe is a Medicare requirement. We’ll see what Dexcom process is like. Comments welcome.

      5 months ago Log in to Reply
      1. Tom Caesar

        Get my D6 covered by Medicare through US Med, easy and painless. Medicare does require having a 10 day supply before reordering, supplier is on top of it and sends 90 day supply promptly with very little efforts on my part.

        5 months ago Log in to Reply
    5. Steve Rumble

      The first and only time I started using a CGM a Dexcom G6 was provided so I could participate in a study. Through the study I learned to rely on the CGM and started purchasing them after the 6-month study ended. I now get the supplies through the VA.

      5 months ago Log in to Reply
    6. trisha

      Switched to Dexcom before I was allowed by insurance to switch pumps (from Medtronic). It was night and day. Doing something through insurance is never easy. I kept being reminded dexcom would not work with Medtronic by medical staff. I appreciated that- but the part they couldn’t understand from lack of excess was that Medtronic’s cgm was the pits.

      3
      5 months ago Log in to Reply
      1. trisha

        *experience

        5 months ago Log in to Reply
    7. Meghan Larson

      It was easy for me- the CGM I wanted was the only one covered by my insurance at the time.

      5 months ago Log in to Reply
    8. Daniel Bestvater

      No problem! I pay cash so I just ordered it and paid.

      5 months ago Log in to Reply
    9. KCR

      When I originally got my Dexcom G5 several years ago, the process went pretty smoothly. The supplier worked with my provider when the G6 became available and I really didn’t have to do anything.

      5 months ago Log in to Reply
    10. Annie Wall

      When I first started with Dexcom, it hadn’t yet been approved by Medicare so I paid for it. Once it got Medicare approval, it was totally easy obtain it without hassle.

      5 months ago Log in to Reply
    11. Marty

      I had been using the Dexcom G6 system for months when I started on Medicare. Since Medicare was only covering the G5 at the time, I couldn’t get replacement G6 supplies. Dexcom also refused to let me revert to the G5 system. I was trapped in a frustrating run around that lasted weeks. I was finally able to get G6 supplies by complaining directly to a Dexcom rep at a local diabetes conference. I think Dexcom learned a lesson about having enough supplies for everyone before they transition to a new system.

      5 months ago Log in to Reply
    12. betsy valian

      I was given the G5,although the G6 Dexcom was available through other insurers. I have Medicare. They only give the older left over devices to Medicare patients; I suppose this will also be the same when the G7 is available. I did eventually get a G6, but it took over a year plus after they were released. I’m hoping the G7 will be easier. However, bottom line is, I’m just thankful I can get a CGM period!

      1
      5 months ago Log in to Reply
    13. Janis Senungetuk

      At the time I applied for the Dexcom 5 it was the only CGM system approved by my insurance, so I didn’t encounter any problems receiving it. The problems started immediately after that with Dexcom refusing to bill my insurance correctly and lack of adequate training in use of the system.

      5 months ago Log in to Reply
    14. Jane Cerullo

      Started a new Medicare advantage insurance. I was on Dexcom but they only covered FSL. I switched. Was not too bad but did not like other restrictions with this insurance provider. Changed insurance and went back to Dexcom. Have never had any supply problems with either device.

      5 months ago Log in to Reply
    15. cynthia jaworski

      freestyle was easy toget

      5 months ago Log in to Reply
    16. Carol Meares

      I guess I will find out when it comes time to upgrade to the G7

      5 months ago Log in to Reply
    17. Sandra Rosborough

      The problem is always communications with insurance and the CGM companies, not the doctor.

      2
      5 months ago Log in to Reply
    18. Ahh Life

      Humans may not be the smartest creatures God ever created.

      But why did he place so many of the dumber ones in administrative areas?

      1
      5 months ago Log in to Reply
    19. Russell Buckbee

      Very difficult as it was before Medicare approved CGMs. I had to purchase key first one by cash. Then Medicare was difficult. I had to get two tests to prove I wasn’t producing any pancreatic insulin. Then my cost were incorrect and I had to appeal to an administrative law judge to get reimbursed. Now days it is easy. Medicare standard

      5 months ago Log in to Reply
    20. RegMunro

      The process of getting the CGM was simple. Getting it covered as part of my medical aid scheme was impossible. As long as I pay, I can use!

      5 months ago Log in to Reply
    21. qachemist

      I’m on my first one, obtained at first visit to endocrinologist (after referral from PCP who diagnosed). Didn’t know enough to have a preference so went with endocrinologist recommendation. Now I know more and would likely not make that choice.

      5 months ago Log in to Reply
    22. Wanacure

      My Kaiser tech accurately described difference between Dexcom & Free Style Libre. I chose Dexcom for more accuracy. Kaiser & Byram and Medicare all work smoothly together. BUT Kaiser only offers Advantage plans so no Medigap coverage. Only Original Medicare can permit Medigap coverage. No Medicare Advantage plan offered by anybody can let you get Medigap. SHIBA alerted me to this deficiency.

      5 months ago Log in to Reply
    23. Andrea Hultman

      From what I remember, getting the Medtronic devices I wanted and needed have always been easy on Medtronic’s end. I’ve been a customer of theirs (and MiniMed’s) for 26 years. Getting insurance approval has been the obstacle, but I never had to go with a different brand—for which I am thankful.

      5 months ago Log in to Reply

    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use? Cancel reply

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