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    • 9 hours, 17 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 14 hours, 18 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 14 hours, 19 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 14 hours, 19 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 14 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 12 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 14 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 6 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 6 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 23 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 23 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 6 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Home > LC Polls > For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)
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    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 3 p.m. in your time zone.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Mary Ann Sayers

      ONLY when I haven’t gotten my CGM!!! (Because my pre-approval was delayed 10 days!!!) I tested bgs 12times daily to make up partially from the loss of not having a CGM!!!)

      2
      3 months ago Log in to Reply
    2. AimmcG

      I was in Ireland many years ago and pump broke. The cap that holds the insulin in place broke when I was replacing the cartridge. It was near the end of my trip and they wouldn’t be able to get me a new pump before I left 3 days later. I only had the quick acting insulin and a few needs. I was like a pin cushion for those days. I was anxious and ate very little. It was pre CGM too so my fingers hurt. A new one was at my home when I arrived

      5
      3 months ago Log in to Reply
    3. Lawrence S.

      I’ve been using an insulin pump since 1998. As far as I’m concerned, the pump is best method of insulin delivery that I’ve used. I said, “never.”

      3 months ago Log in to Reply
      1. William Bennett

        You’ve never needed a backup plan in case of a pump failure? I had the notorious “button freeze” with my old Paradigm not long after I started pumping and it took three days for a replacement to arrive. I was very glad I still had Lantus and Novolog injectors in my fridge, and I’ve made sure to get a new set of each every year for contingencies like this.

        1
        3 months ago Log in to Reply
    4. Jian

      Have done it once or twice in years when blood sugar very high and prior to going to the ER for
      some kind of gastritis. I gave some SQ

      3 months ago Log in to Reply
    5. Mick Martin

      I selected “Never”, but that’s not strictly true. It’s just that this was the closest option made available.

      I use an insulin injection whenever I get an unexpected ‘High’ value on my pump. I then look at what might be causing the high and remedy the situation.

      1
      3 months ago Log in to Reply
    6. William Bennett

      I have a script for Lantus and Fiasp injectors to use in case of pump failure. I’ve only rarely needed them for that reason, but I find the Fiasp pens very handy at times. Two uses that crop up a few times a year:
      -To bring down a stubborn high due to some issue yet to be determined.
      -To bolus for a meal when my reservoir is getting low but the timing for changing it is inconvenient

      I know some insurance carriers won’t cover injectors for pump patients, which sucks. Pumps are great, but they have FAR more failure points than MDI, and having a backup is critical.

      4
      3 months ago Log in to Reply
    7. Patricia Kilwein

      Recently had a code after an alarm on my insulin pump. Auto basal delivery stopped. Gave myself injection of insulin to cover, called medtronic helpline and they were able to walk me through getting it working properly again.

      3 months ago Log in to Reply
    8. Joan Benedetto

      My son, age eleven, has been on a pump for 9.5 years. If we have a stubborn BG over 200, we give a syringe correction. It’s just part of our management style, and our son prefers that as he does not like being “high”. We do this 2-3 times per month.

      3 months ago Log in to Reply
    9. ConnieT1D62

      I answered one or twice a year because that was kinda the best answer for my experience …
      Truth be told, it varies because I take injected insulin when pump catheter occludes or when I take a pump vacation, which I often do during the month of July. Right now I went off the pump about a week ago due to scar tissue build-up in my lower abdomen sites and have been using Tresiba and Fiasp pens with Dexcom on my phone. All is going well and I am injecting in my upper arms and thighs that provide “fresh flesh” territory.

      3 months ago Log in to Reply
    10. Lynn Smith

      I wear a pump for my basal. But for all meals, and any highs, I use Afrezza inhaled insulin. Works much better for me.

      3 months ago Log in to Reply
    11. Kathy Hanavan

      I use Humalog in my pump, but if I am high, I will use Lyumjev by injection to come down faster. I tried Lyumjev in the pump, but I developed redness and irritation at all of my sites in about 18 hours. I also have Toujeo for back up in case of pump failure which I have had to use twice now.

      1
      3 months ago Log in to Reply
      1. terrih57@msn.com

        I tried Lyumjev and it also caused a burning and Tandem informed me to only use hu along in the pump.

        3 months ago Log in to Reply
    12. Bob Durstenfeld

      I use Fiasp in a pen when I have a stubborn high. Usually of my own doing.
      Works great.

      1
      3 months ago Log in to Reply
    13. terrih57@msn.com

      I only use a pen or syringe if I think my pump is malfunctioning and I need a ‘quick fix’!

      3 months ago Log in to Reply
    14. Janis Senungetuk

      I’ll use an injection of Novolog to bring down a stubborn high over the 225 level. The Novolog in my pump takes far longer to make the correction.

      3 months ago Log in to Reply
    15. Marty

      I have a backup pen but I’ve never used it. I tend to drink a lot of water and exercise to bring down highs faster. I like the idea of using Afrezza but I’ve never seriously tried to follow through with my endo. I think she would encourage me to leave well enough alone 🙂

      3 months ago Log in to Reply
    16. Sarah Austin

      I will take an injection of Lyumjev to get a stubborn high down quickly. It works so fast while the Humalog in my pump takes forever to kick in

      1
      3 months ago Log in to Reply
    17. Stephen Woodward

      Afrezza works great.

      3 months ago Log in to Reply
    18. TEH

      In 20+ years of pumping I think I used a syringe to inject insulin only two times. The first time was when my 5 series Minimed stopped working and the Minimed overnighted me a new pump. The second time was when I did not have sufficent supplies when I switched from a Minimed 770G to my new T:slim X2 back in Febuary.

      3 months ago Log in to Reply
    19. KIMBERELY SMITH

      I use Dexcom ge

      3 months ago Log in to Reply
    20. Jneticdiabetic

      I’m in pump but inject a few times per month when I suspect site occlusion, have a stubborn high, or reservoir is running low and I don’t have time to change immediately.

      3 months ago Log in to Reply
    21. Mig Vascos

      the answer “occasional” was missing from the choices which would have been my answer.

      3 months ago Log in to Reply
    22. Molly Jones

      On average, I never take insulin with other methods besides my pump. I have a pen for Lantus and syringes in case of pump failure, which came in handy once before, some twelve years ago, but this is not an average occurrence.

      3 months ago Log in to Reply
    23. Amanda Barras

      If my pump is low but I am eating a meal and don’t want to hassle with a refill or if my blood sugar is high and won’t come down with boluses.

      3 months ago Log in to Reply
    24. George Lovelace

      1 Time in 5 years since I’ve been on the Tandem.

      3 months ago Log in to Reply
    25. Cristina Jorge Schwarz

      If I’m spiking due to a bad site, or food nutrition value was not advertised properly, I’ll give an intramuscular injection to quickly come down. I need to avoid migraines!

      3 months ago Log in to Reply
    26. Cheryl Weaver

      Several times a week, because I have absorption issues. I’m 78 now, and I’ve been Type 1 since I was 14 years old.

      3 months ago Log in to Reply
    27. T1D4LongTime

      My method is injected rapid insulin (Lyumjev). I chose multiple times per month, but this week it was multiple times per week. There seemed to be an issue with pump insulin delivery after it was at 60u or less in the cartridge. So weeks, I inject a lot and others not at all. Depends a lot on stress. Once BG goes high, many times even an injection won’t bring it down. Ugh!

      3 months ago Log in to Reply

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.) Cancel reply

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