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    • 59 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2023?

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    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. KIMBERELY SMITH

      I am allergic to like cows milk and white bread also yellow mustard

      3 years ago Log in to Reply
    2. Lawrence S.

      YES. I have celiac disease. Celiac disease makes T1D multiple times more difficult to handle. There are so many simple dietary delights that are off limits. It seems that wheat, rye, barley, and sometimes oats are in many, many foods. I was diagnosed approximately 15 years ago, and have (tried) to avoid gluten 100% of the time. Eating at restaurants is a big risk. Even gluten free food, especially in Italian restaurant and pizza shops is not really gluten free from cross contaminations. I go to restaurants seldom, but go because my wife deserves dinner out every once in a while.

      2
      3 years ago Log in to Reply
    3. Marty

      I can say definitively that I don’t have celiac disease because I was just tested to rule it out as the cause of a rapid loss of bone density. Evidently, people with diabetes are prone to acquiring celiac disease and the symptoms can be subtle.

      3 years ago Log in to Reply
    4. Patricia Kilwein

      Ther wasn’t a selection for I don’t know. I’ve never been tested for it.

      3 years ago Log in to Reply
    5. Tina Roberts

      I have no clue.

      3 years ago Log in to Reply
    6. Melinda Lipe

      No Celiac disease, just gut problems. I have had tests for everything by my gastroenterologist, but they did not show anything.

      3 years ago Log in to Reply
    7. Wanacure

      So there is a link between my bone loss and my recent diagnosis of celiac disease? I was already eating low carb diet, so giving up gluten was no biggie. My T1D sibling was diagnosed years ago with celiac but I thought he was just following another fad diet. Come to think of it he lost all his teeth and had to wear dentures. My new dentist said I had bone loss in my jaw and have a couple of loose teeth which I hadn’t noticed. I’ve always flossed and brushed and regularly seen dentists for routine cleaning and polishing.

      1
      3 years ago Log in to Reply
      1. Marty

        I think celiac disease makes it harder for your gut to absorb minerals, like calcium and magnesium, that are needed to maintain your bones.

        3 years ago Log in to Reply
    8. Henry Renn

      A disease specialist & an immunologist have both dx me with unnamed autoimmune disease. Many sx of but not quite Sjorgen’s. Chronic fatigue & low grade fevers are biggest pain in posterior. For 4 years I’ve taken Plaquenel which has held down low grade fevers about 90% of the time. Prescribed by Rheumatologist/Immunologist bc it helped some of her patients dx with Lupus. Also dx with Diabetic Arthropathy as well as Connective Tissue disease. The latter has remained stable since taking Plaquenel.

      3 years ago Log in to Reply
    9. Carolann Hunt

      No my daughter has the gene for celiac so we are on the lookout for it. You have to have the gene to get it; it’s linked to T1D

      3 years ago Log in to Reply
    10. Melissa Childers

      I have what the doctor called “generic” generic markers, but I get so sick from eating gluten that I refuse to do the gluten challenge to confirm.

      3 years ago Log in to Reply
    11. Twinniepoo74

      I’m being tested now for it since my mom and sister have it but not type 1 diabetes but the doctors have me on a gluten free diet since finding out I have gasteroparesis

      3 years ago Log in to Reply
    12. mbulzomi@optonline.net

      No! Not much to discuss.

      3 years ago Log in to Reply
    13. PamK

      I don’t have Celiac, but my son does. The gastro told him he got it because of me!

      3 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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