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    • 8 hours, 20 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 8 hours, 20 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 9 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 9 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 9 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 9 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 9 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 9 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 9 hours, 40 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 11 hours, 41 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 2 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 25 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 13 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 49 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 4 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours, 5 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 15 hours, 5 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 11 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    For how many years have you been going to the health care practice where you currently receive your T1D care?

    Home > LC Polls > For how many years have you been going to the health care practice where you currently receive your T1D care?
    Previous

    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

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    If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. LizB

      I was forced by insurance to switch in 2021. The hospital where my previous team was went out of network. In 2022 they went back in network but my old endo retired. I didn’t feel like switching back because it would be a new doctor all over.

      3 years ago Log in to Reply
    2. Molly Jones

      I have been going to a University hospital for neurological care for about thirty years and decided to move all of my doctors to this location about fifteen years ago.

      3 years ago Log in to Reply
      1. Teresa Schnoor

        I’m also constantly trying to get all of my doctors in one place. I’d get that done and then my Endo would move. 🙄

        3 years ago Log in to Reply
    3. Mary Ann Sayers

      My mom recognized something wasn’t right because I was constantly thirsty. I was only 7years old when DX.

      3
      3 years ago Log in to Reply
      1. mojoseje

        Me too!

        3 years ago Log in to Reply
    4. Mick Martin

      I’ve been using the same hospital, which is local to myself, for the past 43 years, ever since I was diagnosed. I will add, however, that it’s not the same endocrinologist/diabetes consultant/Diabetes Specialist Nurse(s)/dietitians, etc. as many have changed over the years.

      1
      3 years ago Log in to Reply
    5. Teresa Schnoor

      Not the same clinic but I’ve followed my endocrinologist across four different practices over the years.

      3 years ago Log in to Reply
    6. Mark Schweim

      First 5 years post diagnosis, from 1991 to almost the end of 1996. Then I lived in southern Alabama for 22 years, and am now back in my home town and going to the same practice I was seeing 22 years before I returned to this area almost 5 years ago.

      Same practice for 10+ years, with a 22 year gap between years 5 and 6.

      3 years ago Log in to Reply
    7. Annie Wall

      Too bad you didn’t ask this one year ago. I would have answered 21-30 years with same practice but my benevolent endo retired so I moved to a new practice. So far so good I’m happy to say.

      3 years ago Log in to Reply
    8. Jane Cerullo

      I always say it took me six years to train my Endo. He listens to my opinions and we discuss treatment options. I try to keep up with latest diabetes news.

      3 years ago Log in to Reply
    9. Tina Roberts

      3-5 but she schedules 6 months out so I’m looking again!!

      1
      3 years ago Log in to Reply
    10. Bob Durstenfeld

      I said more than 30 years and I dread the
      Day he decides to retire. He has been both progressive and comprehensive in his treatment. I have visited other Endo’s in the area and I would not like to be their patient.

      1
      3 years ago Log in to Reply
    11. Abigail Elias

      I started with this practice in 1996, but went to a different practice for about 4 years when my endocrinologist left. However, when my new endocrinologist left her practice to join the practice I’d been with, I came back.

      3 years ago Log in to Reply
    12. mbulzomi@optonline.net

      About 5 years, my original Endo. retired.

      3 years ago Log in to Reply
    13. Karen DeVeaux

      Less than a year because I moved last August.

      3 years ago Log in to Reply
    14. Amanda Barras

      I finally stopped moving every 2 -3 years and now have been with the same provider 6 years.

      3 years ago Log in to Reply
    15. KIMBERELY SMITH

      Long time

      1
      3 years ago Log in to Reply
    16. Vicki Andersen

      Before retiring I went to Dr. Cathcart for more than 23 years. After retiring we moved to another area of the country. Now I’ve gone to the same provider for over a year.

      3 years ago Log in to Reply
    17. Kristine Warmecke

      Other – I began seeing my current endocrinologist in the summer of 1989. Due to positions in different healthcare systems I’ve been forced to see other’s because of the health insurance through them. This would have been okay if I would have been able to find ONE of all the other’s I’ve seen, that would have been a team member and not my way or the highway. So I’ve always gone back to that one from 1989; when I was made to move to an adult endocrinologist from my pediatric team.

      3 years ago Log in to Reply
    18. lis be

      I may have to switch again.. Due to the high number of people that are now seeing endocrinologists to try out a Libre or Dexcom as a non-diabetics, but just out of curiosity to achieve better fitness.. , and also the number of people trying to get an Ozempic/ Wegovy prescription for weight loss, My Endo cannot see me for 8 months. (Though I need to go every 3 to qualify for durable medical supplies).
      My cardiologist said the same, he has had a surge of people that don’t actually need to see him, but they are concerned because their smart watches show something that makes them (perhaps irrationally) nervous.

      3 years ago Log in to Reply
    19. Gary Rind

      have been with the same endo since diagnosis 20 years ago. he’s frustrating me some lately, like not approving Afrezza. we’ll see what happens.

      3 years ago Log in to Reply
    20. KarenM6

      I’ve been going to my health care practice for diabetes issues for 27 years! They treat me well and as a person and I truly appreciate their help.

      3 years ago Log in to Reply
    21. Georgina Sokol

      Moved to Florida four years ago and can’t find a knowledgeable doctor anywhere. Had one ask me what interstitial fluid was and no ability to read pumps. This state is very scarey and sad.

      3 years ago Log in to Reply
      1. Eve Rabbiner

        I’m in Florida too and have found some great docs. Guess it depends where you are in this big state.

        3 years ago Log in to Reply
    22. Eve Rabbiner

      Same doc, though he’s been part of five different practices. Finally found a good fit. Happy for him and for me.

      3 years ago Log in to Reply
    23. sweetcharlie

      I currently do not see any one for T1D care….

      3 years ago Log in to Reply
    24. Zziwa Ashraf

      for 16years

      3 years ago Log in to Reply
    25. Wanacure

      I was with Group Health a local non-profit HMO that emphasized preventative health care, like the Cleveland Clinic and Mayo. By a close vote members decided to merge with Kaiser Permanente, a for-profit that does not provide original Medicare, only Medicare Advantage plans. Sadly I’ve learned that for-profit so-called “advantage” plans charge the Social Security Administration exorbitant rates way above Original Medicare. Every year I think of opting for Original Medicare, but this would mean new doctors, new pharmacy, new specialists. I’m in a quandary. Fortunately there are at least 2 other choices nearby offering as good or better care that do accept Original Medicare.

      3 years ago Log in to Reply
    26. Melissa Childers

      I have been with the same provider for 20-25 years, however, my procider has changed practices.

      3 years ago Log in to Reply
    27. ChrisW

      The minute my insurance plan adds a 3rd endo to my “in network” list I’m changing.

      3 years ago Log in to Reply
    28. Jeff Balbirnie

      Endo suddenly retired. Primary literally left town, without warning. The “white coats” I now see are literally brand new, but the practice(s) I attended for a while. In TRUTH I have absolutely ZERO usage for any medical doctor at this point, they have nothing of value to offer. I do not consider being blackmailed 4 times a year for a mandatory medications check a medication I have taken for decades and decades A-N-Y value, merely a forced business transaction of which I am NOT a “voluntary” participant. The nurse practitioner at the endo, I would gladly walk through fire for… her slightest whisper is my immediate command

      3 years ago Log in to Reply

    For how many years have you been going to the health care practice where you currently receive your T1D care? Cancel reply

    You must be logged in to post a comment.




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