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  • Activity
    • 7 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 9 hours, 18 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 9 hours, 20 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 12 hours, 12 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 12 hours, 28 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 25 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 46 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 12 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    For how many years have you been going to the health care practice where you currently receive your T1D care?

    Home > LC Polls > For how many years have you been going to the health care practice where you currently receive your T1D care?
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    If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    31 Comments

    1. LizB

      I was forced by insurance to switch in 2021. The hospital where my previous team was went out of network. In 2022 they went back in network but my old endo retired. I didn’t feel like switching back because it would be a new doctor all over.

      3 months ago Log in to Reply
    2. Molly Jones

      I have been going to a University hospital for neurological care for about thirty years and decided to move all of my doctors to this location about fifteen years ago.

      3 months ago Log in to Reply
      1. Teresa Schnoor

        I’m also constantly trying to get all of my doctors in one place. I’d get that done and then my Endo would move. 🙄

        3 months ago Log in to Reply
    3. Mary Ann Sayers

      My mom recognized something wasn’t right because I was constantly thirsty. I was only 7years old when DX.

      3
      3 months ago Log in to Reply
      1. mojoseje

        Me too!

        3 months ago Log in to Reply
    4. Mick Martin

      I’ve been using the same hospital, which is local to myself, for the past 43 years, ever since I was diagnosed. I will add, however, that it’s not the same endocrinologist/diabetes consultant/Diabetes Specialist Nurse(s)/dietitians, etc. as many have changed over the years.

      1
      3 months ago Log in to Reply
    5. Teresa Schnoor

      Not the same clinic but I’ve followed my endocrinologist across four different practices over the years.

      3 months ago Log in to Reply
    6. Mark Schweim

      First 5 years post diagnosis, from 1991 to almost the end of 1996. Then I lived in southern Alabama for 22 years, and am now back in my home town and going to the same practice I was seeing 22 years before I returned to this area almost 5 years ago.

      Same practice for 10+ years, with a 22 year gap between years 5 and 6.

      3 months ago Log in to Reply
    7. Annie Wall

      Too bad you didn’t ask this one year ago. I would have answered 21-30 years with same practice but my benevolent endo retired so I moved to a new practice. So far so good I’m happy to say.

      3 months ago Log in to Reply
    8. Jane Cerullo

      I always say it took me six years to train my Endo. He listens to my opinions and we discuss treatment options. I try to keep up with latest diabetes news.

      3 months ago Log in to Reply
    9. Tina Roberts

      3-5 but she schedules 6 months out so I’m looking again!!

      1
      3 months ago Log in to Reply
    10. Bob Durstenfeld

      I said more than 30 years and I dread the
      Day he decides to retire. He has been both progressive and comprehensive in his treatment. I have visited other Endo’s in the area and I would not like to be their patient.

      1
      3 months ago Log in to Reply
    11. Abigail Elias

      I started with this practice in 1996, but went to a different practice for about 4 years when my endocrinologist left. However, when my new endocrinologist left her practice to join the practice I’d been with, I came back.

      3 months ago Log in to Reply
    12. mbulzomi@optonline.net

      About 5 years, my original Endo. retired.

      3 months ago Log in to Reply
    13. Karen DeVeaux

      Less than a year because I moved last August.

      3 months ago Log in to Reply
    14. Amanda Barras

      I finally stopped moving every 2 -3 years and now have been with the same provider 6 years.

      3 months ago Log in to Reply
    15. KIMBERELY SMITH

      Long time

      1
      3 months ago Log in to Reply
    16. Vicki Andersen

      Before retiring I went to Dr. Cathcart for more than 23 years. After retiring we moved to another area of the country. Now I’ve gone to the same provider for over a year.

      3 months ago Log in to Reply
    17. Kristine Warmecke

      Other – I began seeing my current endocrinologist in the summer of 1989. Due to positions in different healthcare systems I’ve been forced to see other’s because of the health insurance through them. This would have been okay if I would have been able to find ONE of all the other’s I’ve seen, that would have been a team member and not my way or the highway. So I’ve always gone back to that one from 1989; when I was made to move to an adult endocrinologist from my pediatric team.

      3 months ago Log in to Reply
    18. lis be

      I may have to switch again.. Due to the high number of people that are now seeing endocrinologists to try out a Libre or Dexcom as a non-diabetics, but just out of curiosity to achieve better fitness.. , and also the number of people trying to get an Ozempic/ Wegovy prescription for weight loss, My Endo cannot see me for 8 months. (Though I need to go every 3 to qualify for durable medical supplies).
      My cardiologist said the same, he has had a surge of people that don’t actually need to see him, but they are concerned because their smart watches show something that makes them (perhaps irrationally) nervous.

      3 months ago Log in to Reply
    19. Gary Rind

      have been with the same endo since diagnosis 20 years ago. he’s frustrating me some lately, like not approving Afrezza. we’ll see what happens.

      3 months ago Log in to Reply
    20. KarenM6

      I’ve been going to my health care practice for diabetes issues for 27 years! They treat me well and as a person and I truly appreciate their help.

      3 months ago Log in to Reply
    21. Georgina Sokol

      Moved to Florida four years ago and can’t find a knowledgeable doctor anywhere. Had one ask me what interstitial fluid was and no ability to read pumps. This state is very scarey and sad.

      3 months ago Log in to Reply
      1. Eve Rabbiner

        I’m in Florida too and have found some great docs. Guess it depends where you are in this big state.

        3 months ago Log in to Reply
    22. Eve Rabbiner

      Same doc, though he’s been part of five different practices. Finally found a good fit. Happy for him and for me.

      3 months ago Log in to Reply
    23. sweetcharlie

      I currently do not see any one for T1D care….

      3 months ago Log in to Reply
    24. Zziwa Ashraf

      for 16years

      3 months ago Log in to Reply
    25. Wanacure

      I was with Group Health a local non-profit HMO that emphasized preventative health care, like the Cleveland Clinic and Mayo. By a close vote members decided to merge with Kaiser Permanente, a for-profit that does not provide original Medicare, only Medicare Advantage plans. Sadly I’ve learned that for-profit so-called “advantage” plans charge the Social Security Administration exorbitant rates way above Original Medicare. Every year I think of opting for Original Medicare, but this would mean new doctors, new pharmacy, new specialists. I’m in a quandary. Fortunately there are at least 2 other choices nearby offering as good or better care that do accept Original Medicare.

      3 months ago Log in to Reply
    26. Melissa Childers

      I have been with the same provider for 20-25 years, however, my procider has changed practices.

      2 months ago Log in to Reply
    27. ChrisW

      The minute my insurance plan adds a 3rd endo to my “in network” list I’m changing.

      2 months ago Log in to Reply
    28. Jeff Balbirnie

      Endo suddenly retired. Primary literally left town, without warning. The “white coats” I now see are literally brand new, but the practice(s) I attended for a while. In TRUTH I have absolutely ZERO usage for any medical doctor at this point, they have nothing of value to offer. I do not consider being blackmailed 4 times a year for a mandatory medications check a medication I have taken for decades and decades A-N-Y value, merely a forced business transaction of which I am NOT a “voluntary” participant. The nurse practitioner at the endo, I would gladly walk through fire for… her slightest whisper is my immediate command

      2 months ago Log in to Reply

    For how many years have you been going to the health care practice where you currently receive your T1D care? Cancel reply

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