Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 44 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 18 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 21 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 1 hour ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 2 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 2 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 3 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 3 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 21 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 21 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 23 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 4 days, 1 hour ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Does your health insurance offer benefits or cover services that adequately meet your needs? Share more about your health insurance benefits in the comments!

    Home > LC Polls > Does your health insurance offer benefits or cover services that adequately meet your needs? Share more about your health insurance benefits in the comments!
    Previous

    What advice would you give to a caregiver of a teenager with T1D?

    Next

    If you use an insulin pump that comes with a clip to use on your clothing, how often do you have your pump clip attached to your pump?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 3 days ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 1 month ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    41 Comments

    1. Molly Jones

      I am very happy with my current health coverage, but I don’t take it for granted.

      1
      2 years ago Log in to Reply
    2. Mark Schweim

      Hard to say. My insurance from my last job covered almost everything under the Pharmacy Benefits, but this year I’m unemployed with new insurance that’s supposed to be terrific, but I haven’t had it long enough to know if, or how well it meets my needs yet.

      2 years ago Log in to Reply
    3. Patrick Burner

      It used too but with rising costs of healthcare and prescriptions the 20% I am responsible for continues to rise too.

      2 years ago Log in to Reply
    4. Kathy Hanavan

      I have Medicare, a supplement and Part D. I’m restricted to Lilly insulins which I don’t prefer, but it’s working ok. Pump, CGM, strips for backup all are covered well once my deductible is met. All of the insurances are pretty spendy per month (approx $400) however.

      1
      2 years ago Log in to Reply
      1. ELYSSE HELLER

        Thanks for your comment. I will loose my federal employee health insurance when I turn 65 and go on medicare and am terrified. I know that I will need a good supplement but am dreading the time that I will have to put into researching all the different plans out there. I wish that the USA would have a national health care system.

        2 years ago Log in to Reply
      2. Derek West

        This is for Elysse Heller.
        The government and maybe your State has a website where you can put in your conditions and medications and they will identify the costs of the plans available in your area. Through that I found an advantage plan that covers all my needs with no copay or deductibles.

        2 years ago Log in to Reply
    5. ELYSSE HELLER

      I am covered by the Blue Cross Blue Shield federal employee program and have been for many years without any problems. However, when Insulet came out with the Omnipod 5 automatic insulin delivery system I was on the phone for months trying to get the Omnipod 5 on the covered durable medical supply list. I even contacted my representatives in the house and senate for their assistance. Finally, Ater about 5 months they approved the Omnipod 5. It’s a shame, but without a national health care service in the USA we T1Ds have to keep fighting.

      2 years ago Log in to Reply
      1. TEH

        Omnipod is covered under some pharmacy plans. I tried to get it under DME on Medicare. I ended up calling on iPod and the marketing guy told me they targeted youger users that were still employed.

        2 years ago Log in to Reply
      2. James Cheairs

        Hello Elysse. So are you saying you are now able to get Omnipod pumps through DME rather than the pharmacy? I ask because that has not been my experience. I am forced to go through my Part D plan as Insulet chose to use the pharmacy supply chain for distribution. I complained directly to Insulet because they advertise on their website that this as an advantage by avoiding the hassles of Part B (which is BS). I would be interested in hearing more about how you accomplished this because getting Omnipod through the pharmacy supply chain is quite expensive when using traditional medicare – Thanks. jimche@gmail.com.

        1
        2 years ago Log in to Reply
    6. Kevin Stephani

      It covers what I need but the costs are still significant. My pumps, insulin and CGM are hundreds a month, that is like a car payment…

      2 years ago Log in to Reply
    7. Kristen Clifford

      I’m grateful to have insurance, but I still pay way too much for insulin and test strips :/

      2
      2 years ago Log in to Reply
    8. Kristi Warmecke

      My medicare advantage plan covers all my diabetic supplies 100% except for my Novolog – not on formulary, but I’m allergic to the one that is – my copay started out as $1500 to $2000 a month. AFTER my endocrinologist had peer to peer phone calls, wrote letters, etc. Finally last year they said I could go to the local Walmart pharmacy and get a month of Novolog for $79. Thank goodness! When I got my first month’s this year, it was only $47.59. I’ll take it, because it’s closer to what I can actually afford.

      1
      2 years ago Log in to Reply
    9. TEH

      I am satisfied. I have Medicare A&B and a gap plan with Blue Cross/Blue shield. They cover 100% of my DME, and my Part D covers my Fiasp insulin to $35/vial.

      1
      2 years ago Log in to Reply
    10. Justin

      Usually, but not without jumping through hoops. I’m covered under a Marketplace plan. The benefits change every year and I need to keep an eye on what supplies they move where (DME , pharmacy, deductible paywalls, etc.).

      1
      2 years ago Log in to Reply
    11. Daniel Bestvater

      I live in Canada. So all doctor visits are covered by the government insurance. Unfortunately with a pre-existing condition (T1D) I can’t get coverage for anything else. So I must pay for my cgm, insulin, medication, dental……

      2 years ago Log in to Reply
    12. Jane Cerullo

      Not happy about $70/month for insulin. Am thinking of going back to pump and then Medicare will cover insulin. Other than that most services are met. New Medicare advantage plan i switched to does not have specialist co pay. So that can add up nicely.

      2 years ago Log in to Reply
    13. Edward Geary

      Co-pays and co-insurance are rising incrementally so the term “cover” is relative. At 50 years out, my diabetes care involves a growing team of medical professionals: eye, kidney, neurological, cardiology and physical therapy. “Aging in place” with long term T1D is expensive.

      4
      2 years ago Log in to Reply
      1. Peter Richardson

        I feel you Ed. I hope you are able to maintain your health!

        0
        2 years ago Log in to Reply
    14. Bob Durstenfeld

      I have great disdain for insurance company formulates. They can be quite random, my most recent was no coverage for basic asthma inhalers. The stuff is crazy expensive.

      3
      2 years ago Log in to Reply
    15. Steve Rumble

      My health insurance covers most of my needs and adequately covered my diabetic needs but not my diabetic wants. They did not cover CGMs. Fortunately I am eligible for Veterans Administration care for my T1D and the VA provides me with Dexcom G7 sensors and possibly an insulin pump, still in evaluation process.

      2 years ago Log in to Reply
    16. Marty

      I have Medicare parts A, B, and D with a Blue Shield supplement that completely covers all of my diabetes needs, although it’s not cheap. I had dental and vision benefits under my previous employer’s insurance that I no longer have but I wish I did. I could buy dental and vision coverage but the cost of the insurance is higher than the cost of paying for these services directly.

      2 years ago Log in to Reply
    17. Sondra Mangan

      Thankful daily that my husband’s military service qualify us for Tricare for Life as our Medicare supplement. Doesn’t cover Afrezza, but copays are reasonable and my Omnipod and Dex supplies are covered.

      2 years ago Log in to Reply
    18. rick phillips

      I have Medicare and. They do pretty good job. Kid like a new pump every 4 years instead of 5 but to be fair it is fine.

      2 years ago Log in to Reply
    19. Joan Benedetto

      We are required by our insurance to use Express Scripts which can present challenges, but with the supplement we have, we have very good coverage.

      2 years ago Log in to Reply
    20. Eva

      The usual appointments (endo., physical, and eyes) are well covered. When I went to a cardio to get my stress test, and echo. – that wasn’t well covered.
      Insurance formulary’s change every year and this year, they won’t cover my Fiasp. I won’t consider anything else cause it doesn’t aggravate my skin. So, I called Novo Nordisk and they sent a card for 2024 where I don’t have to pay more than $35 for a vial. It’s important for the manufacturers not to price themselves out of the market. What really gets me is that I just can’t believe that my life depends on a manufacturing process and associated competitive price for their intellectual property & patent. How messed up is that?? If only I go back in time.

      2 years ago Log in to Reply
    21. cynthia jaworski

      I have federal BCBS, and currently the diabetic supplies are being covered well, especially with the mail-pharmacy.However, a few years back the cost of my insulins had skyrocketed to stunning levels. It seems the company is trying to be more caring towards diabetic needs, and offers all kinds of coaching programs, etc. I signed up for the livongo program, mainly to get a new and free glucose meter as a back-up for my cgm. If I don’t use the meter, I get phone calls! I wish the money spent on feel-good counseling would be put to providing better and broader medical cost benefits.

      2
      2 years ago Log in to Reply
    22. Donna Condi

      Yes. I’m on original Medicare and a good Supplemental plan and together everything has been paid for that I need. The only problem is that there are delays in getting my insulin and Dexcom’s (using Medicare Part B) because of the prior authorization process that is required every three months.—But everything is always covered.

      2 years ago Log in to Reply
      1. maria prel

        the only expense that I have with a similar plan is for the expensive GVoke pen.
        I never experience delays, my doctor’s office takes care of sending the information to Medicare and I am not involved. I do have to see my endocrinologist every 4 months.

        2 years ago Log in to Reply
    23. Janis Senungetuk

      This year is a totally new experience and I don’t know what to expect because there’s so much BS regarding actual coverage. On January 1 my coverage became traditional Medicare A & B, Wisconsin SeniorCare for pharmacy and AARP UnitedHealthcare Medicare Supplement. I was told that the supplement would pay the balance of DME after Medicare. Nor sure, yet. I previously had very good dental and vision care under spousal employment benefits. Employment and coverage ended September 1 with retirement. I’ve had to cancel periodontal appointments because, without insurance, the cost is phenomenally expensive. My previous insurance also included excellent coverage for hearing aids. Now my warranty soon expires and replacing what I’ve been using for the past three years will be far beyond my available resources. The same for my very expensive eyeglasses that need to be replaced after nine years. So even if the insurance I signed up for this year actually covers what was promised, I’ll still lack adequate coverage for my needs.

      2 years ago Log in to Reply
      1. Trina Blake

        Just be sure it is a “supplement” plan – not an Advantage Plan. Soi many horror stories about being heavy-ffoted on the claim denial pedal, requiring prior authorizatins for just about everything (including insulin for some folks)< having to rpove you "still have T1D", and there's evidence that the advantage plans overcharge Medicare for the services they provide.

        2 years ago Log in to Reply
    24. Ernie Richmann

      Usually- At times my doctor had to submit additional paperwork before I could get a recommended test.

      2 years ago Log in to Reply
    25. Anita Stokar

      My insurance covers everything 100% I need regarding my diabetes except my insulin, but that is low cost for me per month. However, my copays to see all of my doctors every year adds up, not to mention my monthly premium for health insurance is not cheap. Since I have great coverage for my diabetes supplies, I guess I can’t complain too much about the high monthly insurance cost as pump and CGM supplies are not cheap.

      1
      2 years ago Log in to Reply
      1. Anita Stokar

        As far as other benefits, my insurance has always covered everything that I have needed including surgeries, MRIs, cat scans etc. They also have several benefits that I can do virtually if needed, such as physical therapy.

        2 years ago Log in to Reply
      2. Sherrie Johnson

        Doesn’t insulin go under durable medical equipment becsuse its for the pump

        1
        2 years ago Log in to Reply
      3. Anita Stokar

        @sherriejohnson My insulin has never been covered under durable equipment. I get insulin from a different company than I get my CGM and pump supplies. My endo is generous with the amount of insulin I get from a monthly prescription so my cost per bottle of insulin is usually well below $35 and I generally use 1-1/2 bottle per month

        2 years ago Log in to Reply
    26. Becky Hertz

      So far my insurance has adequately covered my needs and then some.

      2 years ago Log in to Reply
    27. PamK

      I always go with a PPO and not an HMO for my insurance. I had an HMO once, and it was horrible. Too many things I needed were either not covered or required authorization. Plus, I had to prove to them every month that I needed my meds! So, since then PPO has been the way to go!

      2 years ago Log in to Reply
    28. jamesmpii

      I have pretty good insurance for the US. Still I pay 30 a month for insulin and another 15 a month for needles. Another 15 for sensors. There’s also the non covered supplies like alcohol pads, etc. So it’s more than a $100 a month. That’s nothing compared to what many of you pay, I know. I’m lucky. Still, it’s not like I have a choice. They price things like a could live without it.

      2 years ago Log in to Reply
    29. Jian

      I have Medicare Advantage plan, am pretty happy with their coverage. occasionally I may have to pay something that surprises me like part of an ultrasound which may be related to the fact that insurance eyes’ think. indeed it but overall very good. I am privileged without merit.

      2 years ago Log in to Reply
    30. Bonnie Lundblom

      Medicare pays for my Novolog since I use an insulin pump and they also pay for my Dexcom CGM and Tslim insulin pump supplies. I’m very thankful that we chose a great Medicare supplement plan, but the cost of it goes up every year.

      2 years ago Log in to Reply
    31. LizB

      When it comes to diabetes coverage, my insurance is pretty good. Last year they dropped the co-pay for insulin (if it’s their preferred types). I have a $30/month co-pay for my pump supplies & CGM (even the pump itself was only $30 out of pocket) so I don’t have to worry about going through a DME supplier or meeting a deductible.

      2 years ago Log in to Reply

    Does your health insurance offer benefits or cover services that adequately meet your needs? Share more about your health insurance benefits in the comments! Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]