Peter Richardson – T1D Exchange

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- 3 months, 1 week ago
  
  Richard Wiener likes your comment at
  Does your health insurance offer benefits or cover services that adequately meet your needs? Share more about your health insurance benefits in the comments!
  I feel you Ed. I hope you are able to maintain your health!
- 9 months, 1 week ago
  
  Ahh Life likes your comment at
  If you use a CGM and share your real-time glucose levels with other people using an app (e.g., Dexcom Share, Carelink Connect, Nightscout, etc.), with whom have you shared your live CGM data? Select all that apply!
  I also share with my wife verbally when she asks. I typically say things like "it's perfectly balanced" which means somewhere between high and low or "it's a bit low" which means anything below 65, or "a bit high" which typically means over 200.
- 1 year, 2 months ago
  
  Katrina Mundinger has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Someday, maybe, they'll cure T1D! ;)
- 1 year, 2 months ago
  
  Karen Taylor has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I switched to the Tandem t-slim IQ and Dexcom 5 months ago. I use to use the OmniPod but it was costing me too much out of pocket. I love the Tandem but totally dislike the tubing. I do miss the tubeless but now that I see you're having so many issues with the OmniPod I'll continue dealing with the tubing for now. Hopefully Tandem will become tubeless some day --- soon.
- 1 year, 2 months ago
  
  Jneticdiabetic has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Please don't stop believing in a cure T1D friends! I too was told by well-intended nurses at diagnosis that a cure was right around the corner (27 years ago). For the past 20+ years, I've had the benefit of working with a team diabetes researchers who are trying to solve this puzzle. I've gained an ever-growing appreciation for how complicated this disease is and the important regulatory requirements in place to make sure ideas are thoroughly vetted before they can be tested on us. I attend an annual diabetes research conference and there are dozens of new, genetic factors, subtle molecular and immune cell irregularities discovered each year. Frankly, it a miracle anyone in this world has normal blood sugar!! Each discovery helps identify new clues for how T1D develops and potential new targets for curing it. It can feel like we've been working to solve a 1,000 piece jigsaw puzzle, and then discovered it's actually 10,000 pieces. One discovery I'm particularly excited about: it used to be thought that by the time T1D is diagnosed we had little to no beta cells left, but studies of T1D pancreases donated after death have found in many cases there are still lots of beta cells present, even many decades after diagnosis; they're just not working (see nPOD study). That opens up exciting new pathways for potentially curing T1D. Maybe we don't have to replace the beta cells, but can revive the ones we have left! My hunch is T1D has been challenging to cure because it's a disease of many subtypes. We all don't make enough insulin, but the mechanisms that got us there and the challenges each of us face after vary. Some of us were diagnosed very young and were fine one day and in DKA the next. Others developed T1D well into adulthood and some even managed to survive years misdiagnosed as T2D. What it takes to finally cure each us will likely vary as well. Not a one cure fits all, but more likely a variety of combination approaches tailored for different based on disease stage and subtle. I remain optimistic and I hope you all will too. ♥️
- 1 year, 2 months ago
  
  Lynn Smith has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I gave mine a three. I am currently on the Omnipod 5 and have been very disappointed. Their algorithm is so bad that you have to put in abnormal Insulin to Carb and Correction factors to not run really high all the time. Of course, during the 2 hour downtime when Dexcom is warming up and you have to turn on Manual Delivery, those factors don’t work; they are too high. In addition, I have had regular problems with the receiver not communicating with the pod, even though I have the receiver right next to the pod. What ends up happening is I have to turn the receiver off and turn it back on and the problem goes away. But that’s a ridiculous amount of hassle. Bottom line is I don’t use the Automated Mode at all. I will keep waiting until either they get it working more efficiently or someone comes up with a better algorithm for a tubeless pump. I will never go back to a pump with tubes. 😬
- 1 year, 2 months ago
  
  JeremyW has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Check out InPen!
- 1 year, 2 months ago
  
  Brian Vodehnal has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I would put 5, but I'm waiting on my Inhalable insulin.
- 1 year, 2 months ago
  
  Jan Masty has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I’m a bit torn on this. I’m on the tandem and dexcom like many others. It’s convenient to always have insulin with you but I really don’t feel it’s any better control than I had with mdi. Plus the tandem sometimes ( often ) causes highs because it stops delivering any insulin when I get down to 110. So then the glucose goes up again more than I’d like! Frustrating business. Did not mind mdi but want to keep trying the new tech. Someday maybe they’ll get it right.
- 1 year, 2 months ago
  
  Jan Masty has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  26 years? Try 63 years ago….still waiting….
- 1 year, 2 months ago
  
  AnitaS has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  sorry for the duplicate remark. The first one took awhile to post so I thought it didn't take.
- 1 year, 2 months ago
  
  AnitaS has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
- 1 year, 2 months ago
  
  AnitaS has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Can your doctor prescribe the syringes that have .5 increments of insulin. That is not as helpful as .1 increments, but the .5 increments are better than the 1 unit increments.
- 1 year, 2 months ago
  
  AnitaS has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  They are supposed to. Not exactly sure when but within a year or two from what I have seen? The tandem mobi is set to come out sooner with a short 4" tube and the pump is 50% smaller than the 2x. After that the tubeless mobi is supposed to come out. Time will tell.
- 1 year, 2 months ago
  
  ConnieT1D62 has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  The key is to keep beta cells and other vital pancreatic cells alive and functioning ... and the key hasn't been found yet ... medicine is powerful but it is not the Universal Life Force Creator of all things that live, breathe, and replicate.
- 1 year, 2 months ago
  
  AnitaS has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Wow. I use the steel cannulas and don't feel them when inserting or while wearing. I think only twice did I ever move the infusion site which I couldn't do with the flexible cannulas. Too many bent cannulas was the reason I switched to the Tru-steel type.
- 1 year, 2 months ago
  
  Juha Kankaanpaa has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Satisfied with MDI, using three different insulins. Only thing I would like to add would be some smarts on the pens to automatically send info on taken insulin to a smart phone app.
- 1 year, 2 months ago
  
  Lori Lehnen has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
- 1 year, 2 months ago
  
  Christina Luby has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I have the Tandem Tslim pump and Dexcom CGM. The only issue I really have with the T slim. Is that the cannulas get kinked sometimes. I had the same problem with the Medtronic plastic cannulas as well. The only ones that didn’t get bent were the steel cannulas, but not as comfortable for sure.
- 1 year, 2 months ago
  
  Bill Williams has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  MDI for almost 60 years when I tried Omnipod for a while. I only had two infusion sites that lasted more than about 36 hours, so I’m back on pens. My control isn’t perfect but so what. I’ve been playing with house money for a long, long time.
- 1 year, 2 months ago
  
  Becky Hertz has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Love my pump. My big issues are that it's harder to find good infusion sites, wish Fiasp worked in my pump (t:slim), wishing for a faster insulin in general.
- 1 year, 2 months ago
  
  Jen Farley has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  No system is perfect. Unless it is a pancreas with working insulin producing cells. Tandem pumps are the best pared with Dexcom and the newer updates, I am super happy!
- 1 year, 2 months ago
  
  pru barry has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  When is it time to give up? I've grown deaf to the promises after 70 years, but still want big Pharma to act as if it's working for us instead of solely for their own enrichment. I remember how hopeful I was, decades ago, and I want young people with diabetes to have that same hope. Just not hopelessly! Medical research works wonders these days. Why are we REALLY being left out?
- 1 year, 6 months ago
  
  Steven Gill has commented in the same post you commented in :
  How would you bolus for a ½ cup scoop of plain vanilla ice cream (not reduced fat or sugar)? If you would use multiple strategies, please select all that apply.
  "Inject" for the carbs but like 20-25 minutes before
- 1 year, 7 months ago
  
  Nicholas Aponte has commented in the same post you commented in :
  How would you bolus for a ½ cup scoop of plain vanilla ice cream (not reduced fat or sugar)? If you would use multiple strategies, please select all that apply.
  Try to bolus 5-10 minutes before eating it.
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Peter Richardson

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