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    • 13 hours, 29 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 15 hours, 27 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 20 hours, 2 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 20 hours, 2 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 21 hours, 51 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 21 hours, 57 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 22 hours, 33 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 16 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 19 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 20 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 22 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 22 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 22 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 22 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 13 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 8 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 20 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 21 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 22 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 22 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 22 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 9 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 19 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days, 19 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 5 days, 19 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. 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    35 Comments

    1. Ahh Life

      No. 72 years T1D and have the exact opposite–acute awareness.

      I am ready to eat lions, tigers, bears, crow bars, thumb tacks, table legs — anything! — to relieve the symptoms. Needless to say, I am very poor at the 15 carbs wait 15 minutes rule. Otherwise, I am quite disciplined. Sigh! 🙃

      6
      3 years ago Log in to Reply
      1. mojoseje

        Same. How is that even possible? Lol

        3 years ago Log in to Reply
      2. Kristine Warmecke

        @Ahh Life I wish I had that keen alertness. I’m only 40 years into it.

        3 years ago Log in to Reply
    2. Jordan Harshman

      I go through phases where I’m too low too often and get desensitized to it (about a month) followed by another month where I’m really sensitive to lows as I’ve brought my time in range back to (more) ideal

      2
      3 years ago Log in to Reply
    3. Jane Cerullo

      Always feel but I tolerate pretty low readings. Just because 😼 don’t run high a lot.

      1
      3 years ago Log in to Reply
      1. Lyn McQuaid

        Same here. I don’t really feel low until I’m in the 50’s so I’m not sure if that means I’m “unaware” if I don’t feel anything until then?

        1
        3 years ago Log in to Reply
    4. Barbara Bubar

      After 72 years, yes, like Ahh Life, my eyesight changes and I see a sort of yellow shape when I’m around 55 or lower. It’s actually handy that it happens in case the Dexcom is not quite there yet.

      3
      3 years ago Log in to Reply
    5. Mike Plante

      Was 61 on Dexcom and 51 on Contour Next last night, but I just felt normal.

      1
      3 years ago Log in to Reply
    6. Steve Rumble

      It used to be a problem before I started using a CGM

      1
      3 years ago Log in to Reply
    7. mojoseje

      I have to be in my 40s and my vision going dark before I feel low. A lot of times I feel normal and CGM is the only way I know I’m going low.

      1
      3 years ago Log in to Reply
    8. Sherolyn Newell

      In the last couple weeks, I’ve noticed feeling the lows sooner. I don’t know why, it will probably change back. That’s the way T1D seems to work, likes to keep you guessing.

      1
      3 years ago Log in to Reply
    9. Lawrence S.

      I have occasional unawareness. Usually, when my blood glucose drops quickly.
      Other times I feel light headedness, occasionally a “hole” in my vision. Usually, by the time I’m sweating profusely, it’s too late. I’m deep into it.

      1
      3 years ago Log in to Reply
    10. Rick Martin

      Yes I have complete unawareness. AND, I thank God everyday for my CGM.

      5
      3 years ago Log in to Reply
    11. Joan Fray

      I wear my Dexcom all the time so I very rarely go low. Only when exercising. Then I just get more tired than warranted, so I check if I’m low. Glucose tabs and some food do the trick. Lows aren’t my problem. My ‘icky’ stomach is my problem. Eat to live, 15 units of humalog for 24 hours, plus .3 basal all the time. Is that a lot?

      3 years ago Log in to Reply
    12. Judy Hampton

      Until I started using a cgm I was very aware of dropping blood sugar. Now it seems my body depends on the cgm to alert me. I really wish I could still recognize LBS without the cgm.

      3 years ago Log in to Reply
    13. Daniel Bestvater

      T1D for about 45 years, I seem to feel a low BG around 3(54).
      I have been down to 1.8(34) recently before detecting any symptoms. I don’t think my stomach works properly after 45 years! Some days are normal and other days it seems only liquid carbohydrates are absorbed.

      3 years ago Log in to Reply
    14. Claude Laforest

      No, because my CGM alerts have replaced my symptoms, alerts are much more reliable than symptoms and less variable!

      1
      3 years ago Log in to Reply
    15. kenneth brooks

      I used to have hypoglycemic unawareness but in ten years since CGM, my sugar never gets low enough to be a problem

      3 years ago Log in to Reply
    16. Sue Martin

      This is one of the reasons I got a CGM. The other reason is that my symptoms didn’t always manifest the same way.

      3 years ago Log in to Reply
    17. Kathy Morison

      The only time I experienced hypoglycemia unawareness was when I was using humalog insulin

      3 years ago Log in to Reply
    18. Janis Senungetuk

      Yes, both hypo and hyperglycemia unawareness. If I’ve dropped to the low 40’s my vision becomes impaired and I’ll see light yellow amorphous blobs in my central vision. Fortunately that rarely happens now because of CGM alerts.

      3
      3 years ago Log in to Reply
    19. William Bennett

      Important to note that hypo awareness is a threshold thing that changes depending on what your average BG is like. People who run very high–up around 200–can start feeling low at levels a lot of us with tight control would consider high in their own rate. 120-50 e.g. Before getting a CGM, back when I was on MDI, I’d feel trembly and my knees would start locking up in the 70s. Now that I have much tighter control (last A1C was 5.8) I don’t feel low above 60, and even below that if it’s a slow drop I’m now aware of it until I start getting that flash-bulb effect in the center of my vision. Speed of descent also seems to have a lot to do with it. The old insulins could make you crash very hard all of a sudden because of the very long effect curves and the practice of taking both types in one shot. So shaking OMG I’m gonna pass out lows were far more of a fact of life back then than they are for me now.

      1
      3 years ago Log in to Reply
    20. Jneticdiabetic

      Hypo unaware and appreciative of my CGM. Rarely feel symptoms unless I’m dropping quickly. Recently had a middle of the night CGM alarm that I was 80 and dropping. Got up, stumbled and could tell I was already much lower than that. Required a mega carb binge to correct. CGM may lag, but it saved the day again this time.

      1
      3 years ago Log in to Reply
    21. John Williamson

      Prior to going on a pump 14 years ago I had sever hypoglycemia unawareness. After a year on the pump (and much better control than on MDI) I began to detect even low 70’s.

      3 years ago Log in to Reply
    22. LuckyPineapple

      I FEEL every second of being low..that’s why I try so hard not to get that way ever. I have very sever hyper-unawareness though. I can’t even tell if I’m 400+

      3 years ago Log in to Reply
    23. Robert Kovalik

      I wear a CGM.

      3 years ago Log in to Reply
    24. Bob Durstenfeld

      I am thankful CGM alarms.

      3 years ago Log in to Reply
    25. pru barry

      I think my nervous system is losing its mojo. Lots of neuropathy, lots of not feeling highs or lows. So glad to have my Dexcom with the Tandem! I’m making an effort to rely more on this technology.

      3 years ago Log in to Reply
    26. Nancy Burgess

      Since I’ve had T1D since 1960, I’ve lost the ability to feel hypoglycemia. I totally rely on my Dexcom to keep me in the range.

      1
      3 years ago Log in to Reply
    27. Kristine Warmecke

      I’ve been hypo unaware since the early 90’s. It’s not fun. I wish I’d aware, even though it was scary and made me feel like crap. I was made to get Medtronics CMG in July 2007 because I had my first and only car accident due to being unaware of my hypo. I couldn’t stand all the alarms, false low & high’s, need to calibrate it, etc. and stopped using it. I was introduced to Dexcom a couple years later and started with the G4, far more accurate for me and still use Dexcom but it doesn’t catch my fast falling or rising numbers as well my DAD dose now.

      1
      3 years ago Log in to Reply
    28. Carol Meares

      I put “sometimes.” It depends generally on the speed of which I am dropping.

      3 years ago Log in to Reply
    29. Amanda Barras

      Sometimes I can keep on trucking down to the 40s, self treat and keep going on about my day. Other times I feel terrible, super lethargic and irritable and it stops me in my tracks.

      1
      3 years ago Log in to Reply
    30. Donna Condi

      I always feel it but that doesn’t happen until I hit about 42.

      3 years ago Log in to Reply
    31. George Lovelace

      I am surprised sometimes by the Dexcom warning but in combination with Tandem CIQ I have about eliminated All Hypos even with a 5.4 A1c

      3 years ago Log in to Reply
    32. Bonnie Lundblom

      Yes and I’m thankful for having my Dexcom.

      3 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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