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  • Activity
    • 3 hours, 56 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 56 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 52 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 7 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 10 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 52 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 52 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 54 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 59 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 38 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 49 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 1 minute ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 2 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    Do you currently use an insulin pump?

    Home > LC Polls > Do you currently use an insulin pump?
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    When purchasing condiments or dressings (i.e. ketchup, BBQ sauce, mustard, etc.) do you ever buy the products labeled ā€œsugar-freeā€?

    Sarah Howard

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    43 Comments

    1. Vivian Moon

      I Never buy anything ā€œsugar free!ā€
      Translation: ā€œloaded with chemicals!ā€

      1
      4 months ago Log in to Reply
    2. Vivian Moon

      Yes

      4 months ago Log in to Reply
      1. Vivian Moon

        NO—not sure how this showed up!
        See comment below!

        4 months ago Log in to Reply
    3. ellencherry

      Once in a while – pancake syrup is great. Most others are too sweet for me. I’d rather use a little regular ketchup.

      4 months ago Log in to Reply
    4. kilupx

      Funny you should ask. I have had T1D for 7 years and my order for a Tandem pump is in final review with insurance providers. It should be shipping next week. So the next time you ask this question my answer will be Yes not No.

      1
      4 months ago Log in to Reply
    5. Janice Bohn

      Switched from Tandem x2 with control IQ to OmniPod 5 in June.

      4 months ago Log in to Reply
    6. pru barry

      Much as I complain, I can’t imagine not having a pump. Wish my four-shots-a-day labradoodle could have one, too!

      2
      4 months ago Log in to Reply
    7. Lawrence S.

      Yes, since 1998. Used Medtronic pumps until approx 2016. Now using Tandem X2, plus Dexcom G2 Control IQ CGM.

      4 months ago Log in to Reply
      1. Mary Grocott

        Same here I used the Medtronic for several years. Now using the Tandem and I absolutely hate it!!

        4 months ago Log in to Reply
    8. Joan Benedetto

      Yes. My son started pumping at age 20 mos, two months post dx. He’s ten now.

      4 months ago Log in to Reply
    9. Trisha Oldenkamp

      Omnipod with Loop. Insurance won’t cover the intro kit for Omnipod 5 or I would switch to it.

      4 months ago Log in to Reply
    10. Jeff Balbirnie

      Far too expensive at the moment, not possible even if I wanted…..

      1
      4 months ago Log in to Reply
    11. Bonnie kenney

      I did for 25 years…my Insurance changed and I no longer could afford it. I kinda like not having to worry about the pump.

      2
      4 months ago Log in to Reply
    12. Mary Grocott

      tslim

      4 months ago Log in to Reply
    13. jpowarz86@gmail.com

      I am working on getting an Omnipod 5, but insurance is being difficult…Medicare…

      1
      4 months ago Log in to Reply
      1. Jane Cerullo

        Had an omnipod Medicare says part D. Copay with donut hole cost prohibitive. Happy on MDI. Had an Medtronic’s pump but hated it.

        4 months ago Log in to Reply
    14. eherban1

      I’m currently on a ā€œpump vacationā€ after nearly 25 years of using one. I just extended my vacation b/c my a1c has not changed under MDI & I’m enjoying not being tethered.

      2
      4 months ago Log in to Reply
    15. Richard Vaughn

      I did not know about pumps until the late 1990s. That was more than 50 years after my diagnosis in 1945. I thought I had good control in the 1990s, and my doctor (a GP) agreed. I did notr start pumping until 2007. Then I discobvered what good control really was! I have a picture of a lady using an old pump in 1978.

      3
      4 months ago Log in to Reply
      1. eherban1

        I knew a lady who used a ā€œpumpā€ in 1983. At the time, she was one of my best friend’s aunts. My friend moved away and we drifted apart- no interweb back then.

        4 months ago Log in to Reply
    16. Linda Zottoli

      Have used a pump since 1998, insulin since 1955. Since I had been giving numerous correction boluses the last couple days to stay in range, before deciding I had to raise my basal rates for my current hopefully-temporary increased insulin need situation (simple activation on already programmed menu of basal rate profiles), I have been really appreciating avoiding extra injections. CIQ will help when the need for lowering comes, and I will able to do it with just the quick acting without having to deal with long-acting insulin.

      1
      4 months ago Log in to Reply
    17. Bob Durstenfeld

      Tandem x2 with Control IQ and Dexcom G6. They help me stay 80% time in range and an A1c of 5.9. Better than I could do manually.

      2
      4 months ago Log in to Reply
      1. Ahh Life

        Bob — Ditto for me for all things you said except the A1c. Mine is 6.4 and trying to achieve 7.0 because of instability issues (imbalance and falling over). 惄

        4 months ago Log in to Reply
    18. Thomas Cline

      No. Although I hear good things about pumps, it just doesn’t seem worth the nuisance (expense would be covered by insurance so it’s not a factor), AND being in California I always travel with extra insulin supplies in case of earthquake. If I’ve got to have the insulin kit with me at all times (and available for MDI), it is just easier not to also have to bother with a pump. Moreover, with a CGM (which is wonderful), I’d have to have two devices stuck to me all the time if I had a pump. So long as I can keep my A1c where it is supposed to be for someone my age (and the CGM certainly helps), the expense and nuisance of a pump just doesn’t seem worth it. If they ever manage to come out with a truly fast-acting insulin for pumps, I might reconsider, but even the fastest now is so far from the behavior of pancreas-produced-and-delivered insulin that a pump seems a very far cry from being non-diabetic. And of course they can clog.

      1
      4 months ago Log in to Reply
      1. sweet charlie

        My feelings exactly!!! 70 years on syrings, and doing fine!!

        4 months ago Log in to Reply
    19. Jane Cerullo

      In January changed to MDI via InPen. Also have IPort so one injection site changed every 3 days. Working well for me. Just came back from two weeks in Italy. No problems. Use Frio paks for travel. So happy not to be tethered to a pump.

      1
      4 months ago Log in to Reply
      1. KarenM6

        Thank you for commenting! Your set up sounds very interesting to me. I will have to research the IPort! šŸ™‚

        4 months ago Log in to Reply
    20. Sherrie Johnson

      33 years for me one of the first Medtronic users very futuristic then. This changed my life from upwards of 9 injections a day to a more normal existence.

      4 months ago Log in to Reply
    21. Leslee Wientjes

      My daughter wears omnipod. I am a CDCES and familiar with several insulin pumps.

      4 months ago Log in to Reply
    22. Randell Cole

      I started using a pump before they were available in USA, I believe it was made in Britain also used, filled a special glass syringe, fitted with screw drive plunger and you turned a dial on exterior of pump 1/2 turn for .5 units a full turn for 1 unit. next was Auto Syrenge, I believe the next was made by Lilly, not much bigger than my current Tandem X2. the first pumps, you had to dilute insulin with saline to the strength you needed. I may have missed one, not sure right now.
      The Tandem is so far advanced from those pumps of old and getting even more so.
      Pumps have certainly come a long way from those old days as have the different insulins available

      4 months ago Log in to Reply
    23. Randell Cole

      Already answered at top

      4 months ago Log in to Reply
    24. Marty

      I was diagnosed in 1992, started with a Minimed 506 pump and Velosulin in 1993. It was quite a battle getting insurance to cover it. The insurance agent told me if I couldn’t give myself injections because both my hands were amputated, they would send a nurse to my house every day to give me my injections because that would be cheaper. Before I got my pump, I was a slave to NPH, which had me crashing during my commute almost every day. I’m sure today’s insulins make injections much easier, but I still love being able to modulate basal rates with my Tandem t:slim.

      2
      4 months ago Log in to Reply
      1. Marty

        BG crashing, not car, that is šŸ™‚

        2
        4 months ago Log in to Reply
    25. Lee Johnson

      Neither my wife and I, T1d for over 45 yrs each, never the desire to use a pump.

      4 months ago Log in to Reply
    26. LizB

      Diagnosed April 1985. Started my first pump in May 2005 and it changed my life and probably saved my life. I had a number of severe lows prior to getting the pump. Living alone, the ones that happened as I slept were terrifying. After getting that first pump, even though CGMs weren’t around yet, I finally felt secure going to bed each night. When Medtronic introduced their CGM that used the pump as the receiver I got it and that was even better. I have not been off a pump for over 17 years now, not ever for a day.

      4 months ago Log in to Reply
    27. Louise Robinson

      Dx’d in 1976 and resisted using a pump until 2011….so sorry I waited so long! It’s been a game-changer and I NEVER want to return to MDI! Started with Medtronic and switched to Tandem T:slim X2 with Control IQ in October 2020. Last A1c was the lowest EVER at 5.8. Life is GOOD!

      1
      4 months ago Log in to Reply
    28. TEH

      Been pumping since 2001. I’m on my 5th Minimed pump and cant wait for the 780G

      4 months ago Log in to Reply
      1. Randell Cole

        Yes, many years ago , when they first came out.

        4 months ago Log in to Reply
    29. mbulzomi@optonline.net

      Once in a while, depending on where /what I’ll be using it.

      4 months ago Log in to Reply
    30. Randell Cole

      Been using pumps since they first came out, they have gotten better and better over the years. I am now using a Tandem X2, soon to change from Basal IQ to Control IQ

      4 months ago Log in to Reply
    31. Iggy1066

      not currently but i have ordered one and it is on the way

      4 months ago Log in to Reply
    32. lis be

      oops, i said “other”, but I was answering the wrong question. Yes, I use the medtronic 630

      4 months ago Log in to Reply
    33. Bea Anderson

      Yes. 16 yrs with Medtronic. Medicare only covered Dexcom for me. Just switched to omnipod 5 with Dexcom.

      4 months ago Log in to Reply
    34. Brent Boyd

      No. 50 years on MDI. I do use a Libre for CGM.

      4 months ago Log in to Reply

    Do you currently use an insulin pump? Cancel reply

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