Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
My dad had T1D so I was sent home with him immediately after diagnosis at age 19. My dad gave me all of my injections for several weeks before I learned to do it on my own. I often wonder if I would have learned more with the formal education most newly diagnosed people get but, 30 years later, I am doing well.
One second cousin (my first cousin’s daughter). I have probably around 100 relatives at that degree of kin affiliation and afaik she’s the only one. No one else in her immediate family has it.
My maternal grandfather was dx “diabetic” as an adult and took insulin injections before “type” was listed. Other extended family members on my maternal side were dx and died before insulin became available.
I went ahead and put my sister down because she had Graves Disease, which is an autoimmune disorder. But, I never knew whether her diabetes was Type I or Type II. She started taking insulin as an adult so if she was Type I, it was adult onset Type I. I just know that she seemed to be very insulin resistant, which I associate with Type II. The last I knew she took close to 3 times as much insulin as I do. Having said that, I also know she did not take care of herself and was very resistant to getting on an insulin pump and CGM. She finally did, but by then it was too late. She already had so many other diabetic complications, her quality of life was severely affected. She died before her 70th birthday after having lived a very sad life for over 20 years. TMI, I know, but an explanation I felt needed to be shared. A case study in stubborn rebellion.
My Mother had T1D, diagnosed in the 1930’s when she was a young girl. I have a first cousin who was diagnosed when he was 6. I was diagnosed in my 30’s.
With today’s DNA testing, I found out I have monogenic T1D. It is quite dominant in my family, Dad, 2 siblings, one of three sons and one granddaughter (first female to develop T1D).
My brother at 23 becameT1D, but my grandmother was in her early 40s and they diagnosed her as Type 2 and gave her “sugar pills.” Because it was the 1930s and the Depression was impoverishing the family, she didn’t even get the pills that wouldn’t have helped anyway. She died of gangarine at 45.
I chose “Other” because growing up I had one uncle with T1, and one uncle with T2. However, my mother was diagnosed with LADA 25 years after I was diagnosed. Not sure how you would count that on this question!
I had been the only one with T1D for 40 years, until after my Dad had gone through cancer treatments and lost the love of his life, my Mom. Less than 6 weeks after her passing, he tested positive for T1D (Never had been T2D!). If it hadn’t been for that sequence of events for my Dad, I believe I would still be the only one on both sides of the family with T1D.
I am Type 1 for 30 years. My nephew and 5 out of 9 first cousins on my fathers side all have Type 1. Except for myself, no one has diabetes in my immediate family (2 brothers and parents )
I wonder how many of our past relatives living in rural areas were never correctly diagnosed? Many living now have expressed how they were misdiagnosed. How many more of our past generations were misdiagnosed or were too poor to even get medical care?
My 2 sisters and I are all T1D; 2 brothers are not, although both suffer from other autoimmune diseases. Neither of our parents or any grandparents had T1D.
In addition to my dad, his baby sister and older brother have T1D. My aunt was diagnosed at 5 within months of my dad being diagnosed at 9. There were many in the neighborhood who also were diagnosed within a 6 month time frame of my aunt & dad. My dad’s older brother was diagnosed when he was 33. That was over 35 years ago. 3 out of 4 kids in my dad’s immediate family were diagnosed with T1D. I am the only grandchild & there are no great grandchildren diagnosed as of yet. I hope and pray the buck stops with me and no one else in our family reaches the same fate. We’ve had more than our fair share to say the least
My paternal grandmother had Type 2 and was on insulin, but no T1Ds.
One of my sisters also has Type 1.
One nephew and one great nephew.
My brother has T1 and several first and second cousins on my mother’s side.
And my nephew.
I’m the only lucky one it my family,relatives!!!
My dad had T1D so I was sent home with him immediately after diagnosis at age 19. My dad gave me all of my injections for several weeks before I learned to do it on my own. I often wonder if I would have learned more with the formal education most newly diagnosed people get but, 30 years later, I am doing well.
My aunt developed T1D later in life (I think her 40’s). She contacted me about it since I’d had it since I was 7 years old.
My dad was diagnosed in the 1990s as Type 2 but looking back at his symptoms and behavior, I do wonder if he might have had adult-onset Type 1.
1 niece, 1 nephew, 1 son of a niece. No other relatives or siblings were diagnosed.
No diabetes in my family going back on both sides as far back as my parents’ generation knew. Just me.
By the time I answered and there were about 160 answers, just over 50% had no relatives with T1D.
One second cousin (my first cousin’s daughter). I have probably around 100 relatives at that degree of kin affiliation and afaik she’s the only one. No one else in her immediate family has it.
1 great aunt
I usually say None, but I had a great grandmother who died in 1941 at 60+ and reportedly took. Insulin injections.
NONE with T1D. But my mother’s 80 yr old aunt (1 of 8) was dx with T2 7yrs AFTER I was diagnosed with T1D. No one else, so far.
One cousin on the paternal side
1 younger sister; 1 maternal 1st cousin, 2 daughters of different maternal 1st cousin; 1 son of paternal 1st cousin.
My maternal grandfather was dx “diabetic” as an adult and took insulin injections before “type” was listed. Other extended family members on my maternal side were dx and died before insulin became available.
Two cousins, that know of, one each on my mother’s and father’s side.
I have two first cousins, one on either side. My parents were second cousins
I went ahead and put my sister down because she had Graves Disease, which is an autoimmune disorder. But, I never knew whether her diabetes was Type I or Type II. She started taking insulin as an adult so if she was Type I, it was adult onset Type I. I just know that she seemed to be very insulin resistant, which I associate with Type II. The last I knew she took close to 3 times as much insulin as I do. Having said that, I also know she did not take care of herself and was very resistant to getting on an insulin pump and CGM. She finally did, but by then it was too late. She already had so many other diabetic complications, her quality of life was severely affected. She died before her 70th birthday after having lived a very sad life for over 20 years. TMI, I know, but an explanation I felt needed to be shared. A case study in stubborn rebellion.
Thank you for sharing.
Definitely not TMI. Thank you.
My Mother had T1D, diagnosed in the 1930’s when she was a young girl. I have a first cousin who was diagnosed when he was 6. I was diagnosed in my 30’s.
My maternal grandmother became insulin dependent at age 33 in 1932. We’ve always assumed that she was Type 1 but I don’t know for sure.
I believe my father had LADA but was treated for dm2. First cousin had juvenile type 1 and died from complications. I have LADA
With today’s DNA testing, I found out I have monogenic T1D. It is quite dominant in my family, Dad, 2 siblings, one of three sons and one granddaughter (first female to develop T1D).
One uncle died within a year in 1929 because he refused to take injections. One nephew who was diagnosed three months before I was.
However, many aunts, uncles, sons, daughters, husband have/had Type ii
My son’s two boys, my grandsons, have T1
My brother at 23 becameT1D, but my grandmother was in her early 40s and they diagnosed her as Type 2 and gave her “sugar pills.” Because it was the 1930s and the Depression was impoverishing the family, she didn’t even get the pills that wouldn’t have helped anyway. She died of gangarine at 45.
Oh Natalie. So sorry. It goes to show how thankful many of us should be.
Our oldest son (now 51) was diagnosed T1D at age 29. I (now 78) was diagnosed with T1D at age 72. I tell everyone I inherited it from him. 😉
Cute! LOL
I was diagnosed Type 2 at 40 and full blown Type 1 by an endocrinologist at 45.
I chose “Other” because growing up I had one uncle with T1, and one uncle with T2. However, my mother was diagnosed with LADA 25 years after I was diagnosed. Not sure how you would count that on this question!
I had been the only one with T1D for 40 years, until after my Dad had gone through cancer treatments and lost the love of his life, my Mom. Less than 6 weeks after her passing, he tested positive for T1D (Never had been T2D!). If it hadn’t been for that sequence of events for my Dad, I believe I would still be the only one on both sides of the family with T1D.
I am Type 1 for 30 years. My nephew and 5 out of 9 first cousins on my fathers side all have Type 1. Except for myself, no one has diabetes in my immediate family (2 brothers and parents )
I had a cousin with Type 2 diabetes. But, her son had Type 1 diabetes. Otherwise, no other relatives had T1D.
No parents, grandparents, aunts or uncles had t1d but I had a brother who was and I have a nephew who is.
My father had 6 brothers, 2 of 7 brothers had T1D and 5 of 7 had T2D. I suppose I drew a bad hand with 53 years of T1D.
My Grandpas sister and couisin may have had T2D..
I had one first cousin with type 1. No other type 1s.
I wonder how many of our past relatives living in rural areas were never correctly diagnosed? Many living now have expressed how they were misdiagnosed. How many more of our past generations were misdiagnosed or were too poor to even get medical care?
My 2 sisters and I are all T1D; 2 brothers are not, although both suffer from other autoimmune diseases. Neither of our parents or any grandparents had T1D.
In addition to my dad, his baby sister and older brother have T1D. My aunt was diagnosed at 5 within months of my dad being diagnosed at 9. There were many in the neighborhood who also were diagnosed within a 6 month time frame of my aunt & dad. My dad’s older brother was diagnosed when he was 33. That was over 35 years ago. 3 out of 4 kids in my dad’s immediate family were diagnosed with T1D. I am the only grandchild & there are no great grandchildren diagnosed as of yet. I hope and pray the buck stops with me and no one else in our family reaches the same fate. We’ve had more than our fair share to say the least
My Grandmother was the T1. I am the only other family member thats T1. I have asked other family, cousin….Just me and my Grandmother.