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    • 3 hours, 30 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 3 hours, 36 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 3 hours, 42 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 4 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 7 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 1 hour ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 1 hour ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Home > LC Polls > If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    In addition to T1D, how many other autoimmune diseases do you have?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    47 Comments

    1. Cheryl Seibert

      My paternal grandmother had Type 2 and was on insulin, but no T1Ds.

      4 years ago Log in to Reply
    2. LizB

      One of my sisters also has Type 1.

      4 years ago Log in to Reply
    3. Barbara Bubar

      One nephew and one great nephew.

      4 years ago Log in to Reply
    4. mojoseje

      My brother has T1 and several first and second cousins on my mother’s side.

      4 years ago Log in to Reply
      1. mojoseje

        And my nephew.

        4 years ago Log in to Reply
    5. Tom Caesar

      I’m the only lucky one it my family,relatives!!!

      4 years ago Log in to Reply
    6. Lyn McQuaid

      My dad had T1D so I was sent home with him immediately after diagnosis at age 19. My dad gave me all of my injections for several weeks before I learned to do it on my own. I often wonder if I would have learned more with the formal education most newly diagnosed people get but, 30 years later, I am doing well.

      4 years ago Log in to Reply
    7. Phyllis Biederman

      My aunt developed T1D later in life (I think her 40’s). She contacted me about it since I’d had it since I was 7 years old.

      4 years ago Log in to Reply
    8. KCR

      My dad was diagnosed in the 1990s as Type 2 but looking back at his symptoms and behavior, I do wonder if he might have had adult-onset Type 1.

      4 years ago Log in to Reply
    9. Nevin Bowman

      1 niece, 1 nephew, 1 son of a niece. No other relatives or siblings were diagnosed.

      4 years ago Log in to Reply
    10. Annie Wall

      No diabetes in my family going back on both sides as far back as my parents’ generation knew. Just me.

      By the time I answered and there were about 160 answers, just over 50% had no relatives with T1D.

      4 years ago Log in to Reply
    11. William Bennett

      One second cousin (my first cousin’s daughter). I have probably around 100 relatives at that degree of kin affiliation and afaik she’s the only one. No one else in her immediate family has it.

      4 years ago Log in to Reply
    12. Janice B

      1 great aunt

      4 years ago Log in to Reply
    13. Melinda Lipe

      I usually say None, but I had a great grandmother who died in 1941 at 60+ and reportedly took. Insulin injections.

      4 years ago Log in to Reply
    14. Mary Ann Sayers

      NONE with T1D. But my mother’s 80 yr old aunt (1 of 8) was dx with T2 7yrs AFTER I was diagnosed with T1D. No one else, so far.

      4 years ago Log in to Reply
    15. lis be

      One cousin on the paternal side

      4 years ago Log in to Reply
    16. Henry Renn

      1 younger sister; 1 maternal 1st cousin, 2 daughters of different maternal 1st cousin; 1 son of paternal 1st cousin.

      4 years ago Log in to Reply
    17. Janis Senungetuk

      My maternal grandfather was dx “diabetic” as an adult and took insulin injections before “type” was listed. Other extended family members on my maternal side were dx and died before insulin became available.

      4 years ago Log in to Reply
    18. Marty

      Two cousins, that know of, one each on my mother’s and father’s side.

      4 years ago Log in to Reply
    19. Marcia Pulleyblank

      I have two first cousins, one on either side. My parents were second cousins

      4 years ago Log in to Reply
    20. Lynn Smith

      I went ahead and put my sister down because she had Graves Disease, which is an autoimmune disorder. But, I never knew whether her diabetes was Type I or Type II. She started taking insulin as an adult so if she was Type I, it was adult onset Type I. I just know that she seemed to be very insulin resistant, which I associate with Type II. The last I knew she took close to 3 times as much insulin as I do. Having said that, I also know she did not take care of herself and was very resistant to getting on an insulin pump and CGM. She finally did, but by then it was too late. She already had so many other diabetic complications, her quality of life was severely affected. She died before her 70th birthday after having lived a very sad life for over 20 years. TMI, I know, but an explanation I felt needed to be shared. A case study in stubborn rebellion.

      1
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Thank you for sharing.

        1
        4 years ago Log in to Reply
      2. Lawrence S.

        Definitely not TMI. Thank you.

        1
        4 years ago Log in to Reply
    21. Mary Coleman

      My Mother had T1D, diagnosed in the 1930’s when she was a young girl. I have a first cousin who was diagnosed when he was 6. I was diagnosed in my 30’s.

      4 years ago Log in to Reply
    22. Bill Williams

      My maternal grandmother became insulin dependent at age 33 in 1932. We’ve always assumed that she was Type 1 but I don’t know for sure.

      4 years ago Log in to Reply
    23. Jane Cerullo

      I believe my father had LADA but was treated for dm2. First cousin had juvenile type 1 and died from complications. I have LADA

      4 years ago Log in to Reply
    24. Bob Durstenfeld

      With today’s DNA testing, I found out I have monogenic T1D. It is quite dominant in my family, Dad, 2 siblings, one of three sons and one granddaughter (first female to develop T1D).

      4 years ago Log in to Reply
    25. Pauline M Reynolds

      One uncle died within a year in 1929 because he refused to take injections. One nephew who was diagnosed three months before I was.

      4 years ago Log in to Reply
      1. Pauline M Reynolds

        However, many aunts, uncles, sons, daughters, husband have/had Type ii

        4 years ago Log in to Reply
    26. Yaffa Steubinger

      My son’s two boys, my grandsons, have T1

      4 years ago Log in to Reply
    27. Natalie Daley

      My brother at 23 becameT1D, but my grandmother was in her early 40s and they diagnosed her as Type 2 and gave her “sugar pills.” Because it was the 1930s and the Depression was impoverishing the family, she didn’t even get the pills that wouldn’t have helped anyway. She died of gangarine at 45.

      1
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Oh Natalie. So sorry. It goes to show how thankful many of us should be.

        1
        4 years ago Log in to Reply
    28. Ceolmhor

      Our oldest son (now 51) was diagnosed T1D at age 29. I (now 78) was diagnosed with T1D at age 72. I tell everyone I inherited it from him. 😉

      3
      4 years ago Log in to Reply
      1. AnitaS

        Cute! LOL

        4 years ago Log in to Reply
    29. Natalie Daley

      I was diagnosed Type 2 at 40 and full blown Type 1 by an endocrinologist at 45.

      4 years ago Log in to Reply
    30. PamK

      I chose “Other” because growing up I had one uncle with T1, and one uncle with T2. However, my mother was diagnosed with LADA 25 years after I was diagnosed. Not sure how you would count that on this question!

      4 years ago Log in to Reply
    31. M C

      I had been the only one with T1D for 40 years, until after my Dad had gone through cancer treatments and lost the love of his life, my Mom. Less than 6 weeks after her passing, he tested positive for T1D (Never had been T2D!). If it hadn’t been for that sequence of events for my Dad, I believe I would still be the only one on both sides of the family with T1D.

      4 years ago Log in to Reply
    32. Stuart Green

      I am Type 1 for 30 years. My nephew and 5 out of 9 first cousins on my fathers side all have Type 1. Except for myself, no one has diabetes in my immediate family (2 brothers and parents )

      4 years ago Log in to Reply
    33. Lawrence S.

      I had a cousin with Type 2 diabetes. But, her son had Type 1 diabetes. Otherwise, no other relatives had T1D.

      4 years ago Log in to Reply
    34. Jan Masty

      No parents, grandparents, aunts or uncles had t1d but I had a brother who was and I have a nephew who is.

      4 years ago Log in to Reply
    35. William Rone

      My father had 6 brothers, 2 of 7 brothers had T1D and 5 of 7 had T2D. I suppose I drew a bad hand with 53 years of T1D.

      4 years ago Log in to Reply
    36. sweet charlie

      My Grandpas sister and couisin may have had T2D..

      4 years ago Log in to Reply
    37. AnitaS

      I had one first cousin with type 1. No other type 1s.

      4 years ago Log in to Reply
    38. Wanacure

      I wonder how many of our past relatives living in rural areas were never correctly diagnosed? Many living now have expressed how they were misdiagnosed. How many more of our past generations were misdiagnosed or were too poor to even get medical care?

      4 years ago Log in to Reply
    39. Carol Standish

      My 2 sisters and I are all T1D; 2 brothers are not, although both suffer from other autoimmune diseases. Neither of our parents or any grandparents had T1D.

      4 years ago Log in to Reply
    40. Lenora Ventura

      In addition to my dad, his baby sister and older brother have T1D. My aunt was diagnosed at 5 within months of my dad being diagnosed at 9. There were many in the neighborhood who also were diagnosed within a 6 month time frame of my aunt & dad. My dad’s older brother was diagnosed when he was 33. That was over 35 years ago. 3 out of 4 kids in my dad’s immediate family were diagnosed with T1D. I am the only grandchild & there are no great grandchildren diagnosed as of yet. I hope and pray the buck stops with me and no one else in our family reaches the same fate. We’ve had more than our fair share to say the least

      4 years ago Log in to Reply
    41. Rex Franklin

      My Grandmother was the T1. I am the only other family member thats T1. I have asked other family, cousin….Just me and my Grandmother.

      4 years ago Log in to Reply

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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