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  • Activity
    • 15 hours, 16 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 17 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 32 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 42 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 17 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 25 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 33 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 35 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Home > LC Polls > If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    In addition to T1D, how many other autoimmune diseases do you have?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    47 Comments

    1. Cheryl Seibert

      My paternal grandmother had Type 2 and was on insulin, but no T1Ds.

      11 months ago Log in to Reply
    2. LizB

      One of my sisters also has Type 1.

      11 months ago Log in to Reply
    3. Barbara Bubar

      One nephew and one great nephew.

      11 months ago Log in to Reply
    4. mojoseje

      My brother has T1 and several first and second cousins on my mother’s side.

      11 months ago Log in to Reply
      1. mojoseje

        And my nephew.

        11 months ago Log in to Reply
    5. Tom Caesar

      I’m the only lucky one it my family,relatives!!!

      11 months ago Log in to Reply
    6. Lyn McQuaid

      My dad had T1D so I was sent home with him immediately after diagnosis at age 19. My dad gave me all of my injections for several weeks before I learned to do it on my own. I often wonder if I would have learned more with the formal education most newly diagnosed people get but, 30 years later, I am doing well.

      11 months ago Log in to Reply
    7. Phyllis Biederman

      My aunt developed T1D later in life (I think her 40’s). She contacted me about it since I’d had it since I was 7 years old.

      11 months ago Log in to Reply
    8. KCR

      My dad was diagnosed in the 1990s as Type 2 but looking back at his symptoms and behavior, I do wonder if he might have had adult-onset Type 1.

      11 months ago Log in to Reply
    9. Nevin Bowman

      1 niece, 1 nephew, 1 son of a niece. No other relatives or siblings were diagnosed.

      11 months ago Log in to Reply
    10. Annie Wall

      No diabetes in my family going back on both sides as far back as my parents’ generation knew. Just me.

      By the time I answered and there were about 160 answers, just over 50% had no relatives with T1D.

      11 months ago Log in to Reply
    11. William Bennett

      One second cousin (my first cousin’s daughter). I have probably around 100 relatives at that degree of kin affiliation and afaik she’s the only one. No one else in her immediate family has it.

      11 months ago Log in to Reply
    12. Janice B

      1 great aunt

      11 months ago Log in to Reply
    13. Melinda Lipe

      I usually say None, but I had a great grandmother who died in 1941 at 60+ and reportedly took. Insulin injections.

      11 months ago Log in to Reply
    14. Mary Ann Sayers

      NONE with T1D. But my mother’s 80 yr old aunt (1 of 8) was dx with T2 7yrs AFTER I was diagnosed with T1D. No one else, so far.

      11 months ago Log in to Reply
    15. lis be

      One cousin on the paternal side

      11 months ago Log in to Reply
    16. Henry Renn

      1 younger sister; 1 maternal 1st cousin, 2 daughters of different maternal 1st cousin; 1 son of paternal 1st cousin.

      11 months ago Log in to Reply
    17. Janis Senungetuk

      My maternal grandfather was dx “diabetic” as an adult and took insulin injections before “type” was listed. Other extended family members on my maternal side were dx and died before insulin became available.

      11 months ago Log in to Reply
    18. Marty

      Two cousins, that know of, one each on my mother’s and father’s side.

      11 months ago Log in to Reply
    19. Marcia Pulleyblank

      I have two first cousins, one on either side. My parents were second cousins

      11 months ago Log in to Reply
    20. Lynn Smith

      I went ahead and put my sister down because she had Graves Disease, which is an autoimmune disorder. But, I never knew whether her diabetes was Type I or Type II. She started taking insulin as an adult so if she was Type I, it was adult onset Type I. I just know that she seemed to be very insulin resistant, which I associate with Type II. The last I knew she took close to 3 times as much insulin as I do. Having said that, I also know she did not take care of herself and was very resistant to getting on an insulin pump and CGM. She finally did, but by then it was too late. She already had so many other diabetic complications, her quality of life was severely affected. She died before her 70th birthday after having lived a very sad life for over 20 years. TMI, I know, but an explanation I felt needed to be shared. A case study in stubborn rebellion.

      1
      11 months ago Log in to Reply
      1. Patricia Dalrymple

        Thank you for sharing.

        1
        11 months ago Log in to Reply
      2. Lawrence S.

        Definitely not TMI. Thank you.

        1
        11 months ago Log in to Reply
    21. Mary Coleman

      My Mother had T1D, diagnosed in the 1930’s when she was a young girl. I have a first cousin who was diagnosed when he was 6. I was diagnosed in my 30’s.

      11 months ago Log in to Reply
    22. Bill Williams

      My maternal grandmother became insulin dependent at age 33 in 1932. We’ve always assumed that she was Type 1 but I don’t know for sure.

      11 months ago Log in to Reply
    23. Jane Cerullo

      I believe my father had LADA but was treated for dm2. First cousin had juvenile type 1 and died from complications. I have LADA

      11 months ago Log in to Reply
    24. Bob Durstenfeld

      With today’s DNA testing, I found out I have monogenic T1D. It is quite dominant in my family, Dad, 2 siblings, one of three sons and one granddaughter (first female to develop T1D).

      11 months ago Log in to Reply
    25. Pauline M Reynolds

      One uncle died within a year in 1929 because he refused to take injections. One nephew who was diagnosed three months before I was.

      11 months ago Log in to Reply
      1. Pauline M Reynolds

        However, many aunts, uncles, sons, daughters, husband have/had Type ii

        11 months ago Log in to Reply
    26. Yaffa Steubinger

      My son’s two boys, my grandsons, have T1

      11 months ago Log in to Reply
    27. Natalie Daley

      My brother at 23 becameT1D, but my grandmother was in her early 40s and they diagnosed her as Type 2 and gave her “sugar pills.” Because it was the 1930s and the Depression was impoverishing the family, she didn’t even get the pills that wouldn’t have helped anyway. She died of gangarine at 45.

      1
      11 months ago Log in to Reply
      1. Patricia Dalrymple

        Oh Natalie. So sorry. It goes to show how thankful many of us should be.

        1
        11 months ago Log in to Reply
    28. Ceolmhor

      Our oldest son (now 51) was diagnosed T1D at age 29. I (now 78) was diagnosed with T1D at age 72. I tell everyone I inherited it from him. 😉

      3
      11 months ago Log in to Reply
      1. AnitaS

        Cute! LOL

        11 months ago Log in to Reply
    29. Natalie Daley

      I was diagnosed Type 2 at 40 and full blown Type 1 by an endocrinologist at 45.

      11 months ago Log in to Reply
    30. PamK

      I chose “Other” because growing up I had one uncle with T1, and one uncle with T2. However, my mother was diagnosed with LADA 25 years after I was diagnosed. Not sure how you would count that on this question!

      11 months ago Log in to Reply
    31. M C

      I had been the only one with T1D for 40 years, until after my Dad had gone through cancer treatments and lost the love of his life, my Mom. Less than 6 weeks after her passing, he tested positive for T1D (Never had been T2D!). If it hadn’t been for that sequence of events for my Dad, I believe I would still be the only one on both sides of the family with T1D.

      11 months ago Log in to Reply
    32. Stuart Green

      I am Type 1 for 30 years. My nephew and 5 out of 9 first cousins on my fathers side all have Type 1. Except for myself, no one has diabetes in my immediate family (2 brothers and parents )

      11 months ago Log in to Reply
    33. Lawrence S.

      I had a cousin with Type 2 diabetes. But, her son had Type 1 diabetes. Otherwise, no other relatives had T1D.

      11 months ago Log in to Reply
    34. Jan Masty

      No parents, grandparents, aunts or uncles had t1d but I had a brother who was and I have a nephew who is.

      11 months ago Log in to Reply
    35. William Rone

      My father had 6 brothers, 2 of 7 brothers had T1D and 5 of 7 had T2D. I suppose I drew a bad hand with 53 years of T1D.

      11 months ago Log in to Reply
    36. sweet charlie

      My Grandpas sister and couisin may have had T2D..

      11 months ago Log in to Reply
    37. AnitaS

      I had one first cousin with type 1. No other type 1s.

      11 months ago Log in to Reply
    38. Wanacure

      I wonder how many of our past relatives living in rural areas were never correctly diagnosed? Many living now have expressed how they were misdiagnosed. How many more of our past generations were misdiagnosed or were too poor to even get medical care?

      11 months ago Log in to Reply
    39. Carol Standish

      My 2 sisters and I are all T1D; 2 brothers are not, although both suffer from other autoimmune diseases. Neither of our parents or any grandparents had T1D.

      11 months ago Log in to Reply
    40. Lenora Ventura

      In addition to my dad, his baby sister and older brother have T1D. My aunt was diagnosed at 5 within months of my dad being diagnosed at 9. There were many in the neighborhood who also were diagnosed within a 6 month time frame of my aunt & dad. My dad’s older brother was diagnosed when he was 33. That was over 35 years ago. 3 out of 4 kids in my dad’s immediate family were diagnosed with T1D. I am the only grandchild & there are no great grandchildren diagnosed as of yet. I hope and pray the buck stops with me and no one else in our family reaches the same fate. We’ve had more than our fair share to say the least

      11 months ago Log in to Reply
    41. Rex Franklin

      My Grandmother was the T1. I am the only other family member thats T1. I have asked other family, cousin….Just me and my Grandmother.

      11 months ago Log in to Reply

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply. Cancel reply

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