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    • 1 hour, 20 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 20 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 35 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 36 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 57 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 6 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 6 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 3 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 19 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Home > LC Polls > Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?
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    If you have never participated in a T1D research study that tested out a potential new device, drug, process, or other intervention, what stops you from participating? Select all that apply to you.

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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Sarah Howard

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    30 Comments

    1. Larry Martin

      Burnout is not the word!! Frustration, sure, but life isnt a bowl of cherries. Most frustration would be for everyone if non diabetics were looking at their glucose every 5 minutes. Someone whose not a diabetic does not have glucose at 120 all the time. They go up and down also. I know people who have only lived in the era of social media think that, but it is not human.

      4
      7 months ago Log in to Reply
      1. sweet charlie

        YES!!

        7 months ago Log in to Reply
    2. Mary Dexter

      None of these really describe me. I try to be as conscientious as I can, and when my blood sugar is erratic and I decide I might as well let my husband order pizza, I do what needs to be done to fix any problems. I do not feel one iota of guilt about my blood sugar. What is wearing me down is the continued ignorance and pig headedness, not the checking blood sugar and taking insulin. If I can accept that I will always have LADA, why can’t doctors and nurses? Why do they keep rewriting my chart to say T2? Why do I have to repeatedly fight to maintain access to insulin and CGM? 18 years and I am sick of this crap. I am spending this week fighting again to make sure an insulin prescription is on file.

      1
      7 months ago Log in to Reply
    3. Joan Fray

      I just get tired of the same old stuff, all the energy I have to put into it, every damn day. I am managing it quite well, , but some days the prospect of a long life -after 60 years of it already, seems pointless. So I go out and rake leaves, or play with the dog.

      8
      7 months ago Log in to Reply
      1. Megan Farrell

        Your sentiment about thinking of the prospect of living (& dealing!) with it forever really stood out to me. I often find myself thinking of that and feeling hopeless (then I just bring myself back and think “one day at a time”)—thanks for sharing!

        2
        7 months ago Log in to Reply
    4. Patricia Kilwein

      I have multiple health issues to deal with along with T1D. So the tiredness is something I deal with daily. I just have to decide what I’m going to spend my energy on daily. Burnout? I just take a nap! 😁

      3
      7 months ago Log in to Reply
    5. Jane Cerullo

      It’s a royal pain in the butt

      7
      7 months ago Log in to Reply
      1. sweet charlie

        so is brushing and flossing my 90 year old teeth!!

        7 months ago Log in to Reply
    6. Lawrence S.

      Every once in a while I get down about the daily grind of constant awareness of my diabetes. I can’t just drop everything, and go out and do something at a moment’s notice as a non-diabetic would. I have to consider blood sugar levels; do I have enough carbs and proteins in my system to do this activity?;
      Gastroparesis – how long will it take to get my blood sugar to the level I need it to be?;
      Celiac Disease – no sense in going out to eat … Does this item gluten in it?
      Asthma – Can I do this activity without struggling with my breathing?

      It’s just continuous, 24/7. No breaks.
      But, we all just push it to the back of our minds and keep moving on. I try not to think about everything and just keep pushing myself forward. It’s not bad if I don’t spend time thinking about it.

      LIFE IS GOOD. It beats the alternative.

      3
      7 months ago Log in to Reply
      1. sweet charlie

        YES !!

        7 months ago Log in to Reply
    7. Lyn McQuaid

      It’s been 30 years and I don’t remember life before it so it just seems like a part of my normal, everyday existence.

      2
      7 months ago Log in to Reply
      1. sweet charlie

        69 years for me and I feel the same as you..

        7 months ago Log in to Reply
    8. Karington Johnston

      When I experience burnout, I usually keep a handle on my management, I just also break down and cry because I can’t be perfect

      3
      7 months ago Log in to Reply
    9. Edward Geary

      My self-assessment comes after a prolonged period of frustration and disappointment. Frankly, CGM and Control IQ have finally allowed me to achieve A1Cs of <7.0 without the realistic fears of lows. I would add that this comes just in time, as the challenges of “aging” and surviving diabetes for over 48 years requires intensive health maintenance and medical interventions: eyes, kidneys, teeth and gums, neuropathy and more. To my fellow diabetics, never give up and push your care teams for creative remedies. We survive because we are tough and more importantly because we are smart. Best wishes.

      8
      7 months ago Log in to Reply
    10. Kim Murphy

      Right now I have a planter plate tear so moving is hard which definitely makes my diabetes hard because I can’t get the exercise I need to help with Blood Sugar control.

      7 months ago Log in to Reply
    11. Donal Conway

      I now have T1 Diabetes for fifty two years and I have been using the Freestyle Libre 1 for the last two years or so and it makes living with Diabetes a good bit easier with my BG Hba1c improving from 7.0 to 6.7 and I also have improved my intake of foods with a lot with a lot of antioxidant laden items included in the diet. I am very active also with many physical work exercises to do I plan ahead with gardening, walking and I am part of a harmony singing group that involes competition singing also. So with four grandchildren visiting me every so often my life i a happy one, I dont allow any negative thoughts or feelings to let or get ‘Diabetes Burnout’ in my life, I don’t have time on my hands to entertain that kind of thing.

      2
      7 months ago Log in to Reply
    12. Janis Senungetuk

      I used what little was left of my savings to pay for a Tandem pump in May, 2020 because I was so tired of the daily glucose roller coaster. The 2+ years of isolation because of the pandemic definitely added to the 24/7 burden, but Control IQ paired with the Dex G6 has prevented a full blown case of burnout. I’m living life, that includes 67 years of T1D, one day at a time.

      6
      7 months ago Log in to Reply
    13. Christina Trudo

      There should be an “other.” so I answered “somewhat”, I have never felt I have a really good handle on control and most of the time I live with that fine; don’t have what I would ever describe as “burnout”

      1
      7 months ago Log in to Reply
    14. Kathy Morison

      Everyday is a challenge for me trying to manage my diabetes. My body refuses to absorb insulin normally on many days and I must force it with sitting with a hot water bottle on the injection site or rubbing vigorously off and on through the 4 hours that it’s viable to make it work. But that being said, I do not allow burnout. I don’t see it as an option, not to be doing my best at all times to manage my sugar. The alternatives are just too scary and unwanted to ever allow myself to get to that point. I used to work in a hospital drawing blood and when I went to the diabetic floors, I saw all the horrors that can happen to people with uncontrolled sugars. I’ve been doing this for 45 years now and I will strive to do my best everyday until the day I die or I’m no longer able to do it myself.

      3
      7 months ago Log in to Reply
    15. Chris Albright

      Needless to say, diabetes management is a constant battle that never allows for a vacation from involvement. While it gets tiring to manage this disease day after day, right now the only option is stay focused on doing the best you can and to live a life that is not limited or diminished by T1D… Stay Strong.

      3
      7 months ago Log in to Reply
    16. persevereT1D52

      THERE WAS NO ANSWER FOR ME. I handle my T1 better than anytime in my 52 years of it due to the great tools available. BUT I have severe mental and emotional burnout. I carry on through it but everyday feel as if I don’t want to go through this one more day. Yes, I have depression and anxiety and complications.

      3
      7 months ago Log in to Reply
      1. persevereT1D52

        I notice there are several long term T1’s. I think there is a gap in care. The daily minute by minute challenge of T1 usually becomes more difficult with the aging process especially those of us who are not fortunate enough to have a partner. The gap lies in WHO IS GOING TO DO ALL OF THIS WHEN I CAN’T? Physically and financially. If you end up in a facility it’s basically 1 injection/day and good luck.

        2
        7 months ago Log in to Reply
    17. sweet charlie

      Started age 21 years… now age 90… NO T1D complications… Have AMD that started about 4 years ago, and that REALY bothers me !!! Takeing insulin and watching diet is NO problem for me!! Started CGM 16 months ago.. Just use syring… no other gadgetss etc.. I guess I am just one of the lucky unlucky T1D’s..

      2
      7 months ago Log in to Reply
      1. Melinda Lipe

        You are amazing!

        7 months ago Log in to Reply
    18. Natalie Daley

      It took over 11 days and 15 phone to the doctor, the insurance, and the only provider to work out the renewal of my CGM sensors that I have had for over a year and am now completely out of in spite of my best efforts and a lot of tears. Delivery will be another two days.

      1
      7 months ago Log in to Reply
    19. Molly Jones

      Burnout does not affect me, although depression in general does at times.
      It does not lead to managing my diabetes in any incomplete ways as I do not want to suffer the consequences of complications as that would only add to feeling worse.

      7 months ago Log in to Reply
    20. Sue Martin

      I usually have about one time a year when I just get overwhelmed with all of it and I don’t want to manage my T1D anymore. It usually lasts a few days up to a week. I then can go back to the low-level annoyance with all of it. The management assistance with technology and better medical staff over the years has helped a lot to make it more of a bother than a daily struggle.

      2
      7 months ago Log in to Reply
    21. Mary Ann Sayers

      After 68+years of T1D, burnout is a natural occurrence from time to time. My frustration usually comes from NOT UNDERSTANDING WHY my body changes its insulin needs so ABRUPTLY when I don’t alter my diet or exercise!
      I was told years ago that diabetes is a messy disease! Why do
      I always have to prove it!!!

      1
      7 months ago Log in to Reply
    22. Melinda Lipe

      I chose the first option, even though I do not feel a “Solid handle” on my diabetes. Most days are ok, and am not affected by burnout on a regular basis, despite having Type 1 for over 50 years.

      7 months ago Log in to Reply
    23. Cheryl Seibert

      My T1D burnout is due to the multiple alarms and the failure of a pump to handle my brittle diabetes stress rises in BG. My major burnout and lack of good control is due to caregiving an elderly relative (not my parent) and the challenges that go with that responsibility. This stress has worsened my control. Up until then I had virtually no T1D burnout.

      7 months ago Log in to Reply

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you? Cancel reply

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