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    • 4 hours, 44 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 45 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 5 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 21 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Home > LC Polls > Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?
    Previous

    If you have never participated in a T1D research study that tested out a potential new device, drug, process, or other intervention, what stops you from participating? Select all that apply to you.

    Next

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    30 Comments

    1. Larry Martin

      Burnout is not the word!! Frustration, sure, but life isnt a bowl of cherries. Most frustration would be for everyone if non diabetics were looking at their glucose every 5 minutes. Someone whose not a diabetic does not have glucose at 120 all the time. They go up and down also. I know people who have only lived in the era of social media think that, but it is not human.

      4
      1 year ago Log in to Reply
      1. sweet charlie

        YES!!

        1 year ago Log in to Reply
    2. Mary Dexter

      None of these really describe me. I try to be as conscientious as I can, and when my blood sugar is erratic and I decide I might as well let my husband order pizza, I do what needs to be done to fix any problems. I do not feel one iota of guilt about my blood sugar. What is wearing me down is the continued ignorance and pig headedness, not the checking blood sugar and taking insulin. If I can accept that I will always have LADA, why can’t doctors and nurses? Why do they keep rewriting my chart to say T2? Why do I have to repeatedly fight to maintain access to insulin and CGM? 18 years and I am sick of this crap. I am spending this week fighting again to make sure an insulin prescription is on file.

      1
      1 year ago Log in to Reply
    3. Joan Fray

      I just get tired of the same old stuff, all the energy I have to put into it, every damn day. I am managing it quite well, , but some days the prospect of a long life -after 60 years of it already, seems pointless. So I go out and rake leaves, or play with the dog.

      8
      1 year ago Log in to Reply
      1. Megan Farrell

        Your sentiment about thinking of the prospect of living (& dealing!) with it forever really stood out to me. I often find myself thinking of that and feeling hopeless (then I just bring myself back and think “one day at a time”)—thanks for sharing!

        2
        1 year ago Log in to Reply
    4. Patricia Kilwein

      I have multiple health issues to deal with along with T1D. So the tiredness is something I deal with daily. I just have to decide what I’m going to spend my energy on daily. Burnout? I just take a nap! 😁

      3
      1 year ago Log in to Reply
    5. Jane Cerullo

      It’s a royal pain in the butt

      7
      1 year ago Log in to Reply
      1. sweet charlie

        so is brushing and flossing my 90 year old teeth!!

        1 year ago Log in to Reply
    6. Lawrence S.

      Every once in a while I get down about the daily grind of constant awareness of my diabetes. I can’t just drop everything, and go out and do something at a moment’s notice as a non-diabetic would. I have to consider blood sugar levels; do I have enough carbs and proteins in my system to do this activity?;
      Gastroparesis – how long will it take to get my blood sugar to the level I need it to be?;
      Celiac Disease – no sense in going out to eat … Does this item gluten in it?
      Asthma – Can I do this activity without struggling with my breathing?

      It’s just continuous, 24/7. No breaks.
      But, we all just push it to the back of our minds and keep moving on. I try not to think about everything and just keep pushing myself forward. It’s not bad if I don’t spend time thinking about it.

      LIFE IS GOOD. It beats the alternative.

      3
      1 year ago Log in to Reply
      1. sweet charlie

        YES !!

        1 year ago Log in to Reply
    7. Lyn McQuaid

      It’s been 30 years and I don’t remember life before it so it just seems like a part of my normal, everyday existence.

      2
      1 year ago Log in to Reply
      1. sweet charlie

        69 years for me and I feel the same as you..

        1 year ago Log in to Reply
    8. Karington Johnston

      When I experience burnout, I usually keep a handle on my management, I just also break down and cry because I can’t be perfect

      3
      1 year ago Log in to Reply
    9. Edward Geary

      My self-assessment comes after a prolonged period of frustration and disappointment. Frankly, CGM and Control IQ have finally allowed me to achieve A1Cs of <7.0 without the realistic fears of lows. I would add that this comes just in time, as the challenges of “aging” and surviving diabetes for over 48 years requires intensive health maintenance and medical interventions: eyes, kidneys, teeth and gums, neuropathy and more. To my fellow diabetics, never give up and push your care teams for creative remedies. We survive because we are tough and more importantly because we are smart. Best wishes.

      8
      1 year ago Log in to Reply
    10. Kim Murphy

      Right now I have a planter plate tear so moving is hard which definitely makes my diabetes hard because I can’t get the exercise I need to help with Blood Sugar control.

      1 year ago Log in to Reply
    11. Donal Conway

      I now have T1 Diabetes for fifty two years and I have been using the Freestyle Libre 1 for the last two years or so and it makes living with Diabetes a good bit easier with my BG Hba1c improving from 7.0 to 6.7 and I also have improved my intake of foods with a lot with a lot of antioxidant laden items included in the diet. I am very active also with many physical work exercises to do I plan ahead with gardening, walking and I am part of a harmony singing group that involes competition singing also. So with four grandchildren visiting me every so often my life i a happy one, I dont allow any negative thoughts or feelings to let or get ‘Diabetes Burnout’ in my life, I don’t have time on my hands to entertain that kind of thing.

      2
      1 year ago Log in to Reply
    12. Janis Senungetuk

      I used what little was left of my savings to pay for a Tandem pump in May, 2020 because I was so tired of the daily glucose roller coaster. The 2+ years of isolation because of the pandemic definitely added to the 24/7 burden, but Control IQ paired with the Dex G6 has prevented a full blown case of burnout. I’m living life, that includes 67 years of T1D, one day at a time.

      6
      1 year ago Log in to Reply
    13. Christina Trudo

      There should be an “other.” so I answered “somewhat”, I have never felt I have a really good handle on control and most of the time I live with that fine; don’t have what I would ever describe as “burnout”

      1
      1 year ago Log in to Reply
    14. Kathy Morison

      Everyday is a challenge for me trying to manage my diabetes. My body refuses to absorb insulin normally on many days and I must force it with sitting with a hot water bottle on the injection site or rubbing vigorously off and on through the 4 hours that it’s viable to make it work. But that being said, I do not allow burnout. I don’t see it as an option, not to be doing my best at all times to manage my sugar. The alternatives are just too scary and unwanted to ever allow myself to get to that point. I used to work in a hospital drawing blood and when I went to the diabetic floors, I saw all the horrors that can happen to people with uncontrolled sugars. I’ve been doing this for 45 years now and I will strive to do my best everyday until the day I die or I’m no longer able to do it myself.

      3
      1 year ago Log in to Reply
    15. Chris Albright

      Needless to say, diabetes management is a constant battle that never allows for a vacation from involvement. While it gets tiring to manage this disease day after day, right now the only option is stay focused on doing the best you can and to live a life that is not limited or diminished by T1D… Stay Strong.

      3
      1 year ago Log in to Reply
    16. persevereT1D52

      THERE WAS NO ANSWER FOR ME. I handle my T1 better than anytime in my 52 years of it due to the great tools available. BUT I have severe mental and emotional burnout. I carry on through it but everyday feel as if I don’t want to go through this one more day. Yes, I have depression and anxiety and complications.

      3
      1 year ago Log in to Reply
      1. persevereT1D52

        I notice there are several long term T1’s. I think there is a gap in care. The daily minute by minute challenge of T1 usually becomes more difficult with the aging process especially those of us who are not fortunate enough to have a partner. The gap lies in WHO IS GOING TO DO ALL OF THIS WHEN I CAN’T? Physically and financially. If you end up in a facility it’s basically 1 injection/day and good luck.

        2
        1 year ago Log in to Reply
    17. sweet charlie

      Started age 21 years… now age 90… NO T1D complications… Have AMD that started about 4 years ago, and that REALY bothers me !!! Takeing insulin and watching diet is NO problem for me!! Started CGM 16 months ago.. Just use syring… no other gadgetss etc.. I guess I am just one of the lucky unlucky T1D’s..

      2
      1 year ago Log in to Reply
      1. Melinda Lipe

        You are amazing!

        1 year ago Log in to Reply
    18. Natalie Daley

      It took over 11 days and 15 phone to the doctor, the insurance, and the only provider to work out the renewal of my CGM sensors that I have had for over a year and am now completely out of in spite of my best efforts and a lot of tears. Delivery will be another two days.

      1
      1 year ago Log in to Reply
    19. Molly Jones

      Burnout does not affect me, although depression in general does at times.
      It does not lead to managing my diabetes in any incomplete ways as I do not want to suffer the consequences of complications as that would only add to feeling worse.

      1 year ago Log in to Reply
    20. Sue Martin

      I usually have about one time a year when I just get overwhelmed with all of it and I don’t want to manage my T1D anymore. It usually lasts a few days up to a week. I then can go back to the low-level annoyance with all of it. The management assistance with technology and better medical staff over the years has helped a lot to make it more of a bother than a daily struggle.

      2
      1 year ago Log in to Reply
    21. Mary Ann Sayers

      After 68+years of T1D, burnout is a natural occurrence from time to time. My frustration usually comes from NOT UNDERSTANDING WHY my body changes its insulin needs so ABRUPTLY when I don’t alter my diet or exercise!
      I was told years ago that diabetes is a messy disease! Why do
      I always have to prove it!!!

      1
      1 year ago Log in to Reply
    22. Melinda Lipe

      I chose the first option, even though I do not feel a “Solid handle” on my diabetes. Most days are ok, and am not affected by burnout on a regular basis, despite having Type 1 for over 50 years.

      1 year ago Log in to Reply
    23. Cheryl Seibert

      My T1D burnout is due to the multiple alarms and the failure of a pump to handle my brittle diabetes stress rises in BG. My major burnout and lack of good control is due to caregiving an elderly relative (not my parent) and the challenges that go with that responsibility. This stress has worsened my control. Up until then I had virtually no T1D burnout.

      1 year ago Log in to Reply

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you? Cancel reply

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