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    • 14 hours, 6 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 14 hours, 56 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 27 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 27 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 28 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 15 hours, 53 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 15 hours, 55 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 10 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 10 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 13 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 15 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Home > LC Polls > Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?
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    If you have never participated in a T1D research study that tested out a potential new device, drug, process, or other intervention, what stops you from participating? Select all that apply to you.

    Next

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    30 Comments

    1. Larry Martin

      Burnout is not the word!! Frustration, sure, but life isnt a bowl of cherries. Most frustration would be for everyone if non diabetics were looking at their glucose every 5 minutes. Someone whose not a diabetic does not have glucose at 120 all the time. They go up and down also. I know people who have only lived in the era of social media think that, but it is not human.

      4
      11 months ago Log in to Reply
      1. sweet charlie

        YES!!

        11 months ago Log in to Reply
    2. Mary Dexter

      None of these really describe me. I try to be as conscientious as I can, and when my blood sugar is erratic and I decide I might as well let my husband order pizza, I do what needs to be done to fix any problems. I do not feel one iota of guilt about my blood sugar. What is wearing me down is the continued ignorance and pig headedness, not the checking blood sugar and taking insulin. If I can accept that I will always have LADA, why can’t doctors and nurses? Why do they keep rewriting my chart to say T2? Why do I have to repeatedly fight to maintain access to insulin and CGM? 18 years and I am sick of this crap. I am spending this week fighting again to make sure an insulin prescription is on file.

      1
      11 months ago Log in to Reply
    3. Joan Fray

      I just get tired of the same old stuff, all the energy I have to put into it, every damn day. I am managing it quite well, , but some days the prospect of a long life -after 60 years of it already, seems pointless. So I go out and rake leaves, or play with the dog.

      8
      11 months ago Log in to Reply
      1. Megan Farrell

        Your sentiment about thinking of the prospect of living (& dealing!) with it forever really stood out to me. I often find myself thinking of that and feeling hopeless (then I just bring myself back and think “one day at a time”)—thanks for sharing!

        2
        11 months ago Log in to Reply
    4. Patricia Kilwein

      I have multiple health issues to deal with along with T1D. So the tiredness is something I deal with daily. I just have to decide what I’m going to spend my energy on daily. Burnout? I just take a nap! 😁

      3
      11 months ago Log in to Reply
    5. Jane Cerullo

      It’s a royal pain in the butt

      7
      11 months ago Log in to Reply
      1. sweet charlie

        so is brushing and flossing my 90 year old teeth!!

        11 months ago Log in to Reply
    6. Lawrence S.

      Every once in a while I get down about the daily grind of constant awareness of my diabetes. I can’t just drop everything, and go out and do something at a moment’s notice as a non-diabetic would. I have to consider blood sugar levels; do I have enough carbs and proteins in my system to do this activity?;
      Gastroparesis – how long will it take to get my blood sugar to the level I need it to be?;
      Celiac Disease – no sense in going out to eat … Does this item gluten in it?
      Asthma – Can I do this activity without struggling with my breathing?

      It’s just continuous, 24/7. No breaks.
      But, we all just push it to the back of our minds and keep moving on. I try not to think about everything and just keep pushing myself forward. It’s not bad if I don’t spend time thinking about it.

      LIFE IS GOOD. It beats the alternative.

      3
      11 months ago Log in to Reply
      1. sweet charlie

        YES !!

        11 months ago Log in to Reply
    7. Lyn McQuaid

      It’s been 30 years and I don’t remember life before it so it just seems like a part of my normal, everyday existence.

      2
      11 months ago Log in to Reply
      1. sweet charlie

        69 years for me and I feel the same as you..

        11 months ago Log in to Reply
    8. Karington Johnston

      When I experience burnout, I usually keep a handle on my management, I just also break down and cry because I can’t be perfect

      3
      11 months ago Log in to Reply
    9. Edward Geary

      My self-assessment comes after a prolonged period of frustration and disappointment. Frankly, CGM and Control IQ have finally allowed me to achieve A1Cs of <7.0 without the realistic fears of lows. I would add that this comes just in time, as the challenges of “aging” and surviving diabetes for over 48 years requires intensive health maintenance and medical interventions: eyes, kidneys, teeth and gums, neuropathy and more. To my fellow diabetics, never give up and push your care teams for creative remedies. We survive because we are tough and more importantly because we are smart. Best wishes.

      8
      11 months ago Log in to Reply
    10. Kim Murphy

      Right now I have a planter plate tear so moving is hard which definitely makes my diabetes hard because I can’t get the exercise I need to help with Blood Sugar control.

      11 months ago Log in to Reply
    11. Donal Conway

      I now have T1 Diabetes for fifty two years and I have been using the Freestyle Libre 1 for the last two years or so and it makes living with Diabetes a good bit easier with my BG Hba1c improving from 7.0 to 6.7 and I also have improved my intake of foods with a lot with a lot of antioxidant laden items included in the diet. I am very active also with many physical work exercises to do I plan ahead with gardening, walking and I am part of a harmony singing group that involes competition singing also. So with four grandchildren visiting me every so often my life i a happy one, I dont allow any negative thoughts or feelings to let or get ‘Diabetes Burnout’ in my life, I don’t have time on my hands to entertain that kind of thing.

      2
      11 months ago Log in to Reply
    12. Janis Senungetuk

      I used what little was left of my savings to pay for a Tandem pump in May, 2020 because I was so tired of the daily glucose roller coaster. The 2+ years of isolation because of the pandemic definitely added to the 24/7 burden, but Control IQ paired with the Dex G6 has prevented a full blown case of burnout. I’m living life, that includes 67 years of T1D, one day at a time.

      6
      11 months ago Log in to Reply
    13. Christina Trudo

      There should be an “other.” so I answered “somewhat”, I have never felt I have a really good handle on control and most of the time I live with that fine; don’t have what I would ever describe as “burnout”

      1
      11 months ago Log in to Reply
    14. Kathy Morison

      Everyday is a challenge for me trying to manage my diabetes. My body refuses to absorb insulin normally on many days and I must force it with sitting with a hot water bottle on the injection site or rubbing vigorously off and on through the 4 hours that it’s viable to make it work. But that being said, I do not allow burnout. I don’t see it as an option, not to be doing my best at all times to manage my sugar. The alternatives are just too scary and unwanted to ever allow myself to get to that point. I used to work in a hospital drawing blood and when I went to the diabetic floors, I saw all the horrors that can happen to people with uncontrolled sugars. I’ve been doing this for 45 years now and I will strive to do my best everyday until the day I die or I’m no longer able to do it myself.

      3
      11 months ago Log in to Reply
    15. Chris Albright

      Needless to say, diabetes management is a constant battle that never allows for a vacation from involvement. While it gets tiring to manage this disease day after day, right now the only option is stay focused on doing the best you can and to live a life that is not limited or diminished by T1D… Stay Strong.

      3
      11 months ago Log in to Reply
    16. persevereT1D52

      THERE WAS NO ANSWER FOR ME. I handle my T1 better than anytime in my 52 years of it due to the great tools available. BUT I have severe mental and emotional burnout. I carry on through it but everyday feel as if I don’t want to go through this one more day. Yes, I have depression and anxiety and complications.

      3
      11 months ago Log in to Reply
      1. persevereT1D52

        I notice there are several long term T1’s. I think there is a gap in care. The daily minute by minute challenge of T1 usually becomes more difficult with the aging process especially those of us who are not fortunate enough to have a partner. The gap lies in WHO IS GOING TO DO ALL OF THIS WHEN I CAN’T? Physically and financially. If you end up in a facility it’s basically 1 injection/day and good luck.

        2
        11 months ago Log in to Reply
    17. sweet charlie

      Started age 21 years… now age 90… NO T1D complications… Have AMD that started about 4 years ago, and that REALY bothers me !!! Takeing insulin and watching diet is NO problem for me!! Started CGM 16 months ago.. Just use syring… no other gadgetss etc.. I guess I am just one of the lucky unlucky T1D’s..

      2
      11 months ago Log in to Reply
      1. Melinda Lipe

        You are amazing!

        11 months ago Log in to Reply
    18. Natalie Daley

      It took over 11 days and 15 phone to the doctor, the insurance, and the only provider to work out the renewal of my CGM sensors that I have had for over a year and am now completely out of in spite of my best efforts and a lot of tears. Delivery will be another two days.

      1
      11 months ago Log in to Reply
    19. Molly Jones

      Burnout does not affect me, although depression in general does at times.
      It does not lead to managing my diabetes in any incomplete ways as I do not want to suffer the consequences of complications as that would only add to feeling worse.

      11 months ago Log in to Reply
    20. Sue Martin

      I usually have about one time a year when I just get overwhelmed with all of it and I don’t want to manage my T1D anymore. It usually lasts a few days up to a week. I then can go back to the low-level annoyance with all of it. The management assistance with technology and better medical staff over the years has helped a lot to make it more of a bother than a daily struggle.

      2
      11 months ago Log in to Reply
    21. Mary Ann Sayers

      After 68+years of T1D, burnout is a natural occurrence from time to time. My frustration usually comes from NOT UNDERSTANDING WHY my body changes its insulin needs so ABRUPTLY when I don’t alter my diet or exercise!
      I was told years ago that diabetes is a messy disease! Why do
      I always have to prove it!!!

      1
      11 months ago Log in to Reply
    22. Melinda Lipe

      I chose the first option, even though I do not feel a “Solid handle” on my diabetes. Most days are ok, and am not affected by burnout on a regular basis, despite having Type 1 for over 50 years.

      11 months ago Log in to Reply
    23. Cheryl Seibert

      My T1D burnout is due to the multiple alarms and the failure of a pump to handle my brittle diabetes stress rises in BG. My major burnout and lack of good control is due to caregiving an elderly relative (not my parent) and the challenges that go with that responsibility. This stress has worsened my control. Up until then I had virtually no T1D burnout.

      11 months ago Log in to Reply

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you? Cancel reply

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