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    • 5 hours, 8 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 43 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 44 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 6 hours, 45 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 6 hours, 46 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 28 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 29 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 12 hours, 19 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 13 hours, 7 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 14 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 16 hours, 15 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 34 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 34 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 47 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 13 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Home > LC Polls > Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?
    Previous

    If you have never participated in a T1D research study that tested out a potential new device, drug, process, or other intervention, what stops you from participating? Select all that apply to you.

    Next

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Larry Martin

      Burnout is not the word!! Frustration, sure, but life isnt a bowl of cherries. Most frustration would be for everyone if non diabetics were looking at their glucose every 5 minutes. Someone whose not a diabetic does not have glucose at 120 all the time. They go up and down also. I know people who have only lived in the era of social media think that, but it is not human.

      4
      3 years ago Log in to Reply
      1. sweet charlie

        YES!!

        3 years ago Log in to Reply
    2. Mary Dexter

      None of these really describe me. I try to be as conscientious as I can, and when my blood sugar is erratic and I decide I might as well let my husband order pizza, I do what needs to be done to fix any problems. I do not feel one iota of guilt about my blood sugar. What is wearing me down is the continued ignorance and pig headedness, not the checking blood sugar and taking insulin. If I can accept that I will always have LADA, why can’t doctors and nurses? Why do they keep rewriting my chart to say T2? Why do I have to repeatedly fight to maintain access to insulin and CGM? 18 years and I am sick of this crap. I am spending this week fighting again to make sure an insulin prescription is on file.

      1
      3 years ago Log in to Reply
    3. Joan Fray

      I just get tired of the same old stuff, all the energy I have to put into it, every damn day. I am managing it quite well, , but some days the prospect of a long life -after 60 years of it already, seems pointless. So I go out and rake leaves, or play with the dog.

      8
      3 years ago Log in to Reply
      1. Megan Farrell

        Your sentiment about thinking of the prospect of living (& dealing!) with it forever really stood out to me. I often find myself thinking of that and feeling hopeless (then I just bring myself back and think “one day at a time”)—thanks for sharing!

        2
        3 years ago Log in to Reply
    4. Patricia Kilwein

      I have multiple health issues to deal with along with T1D. So the tiredness is something I deal with daily. I just have to decide what I’m going to spend my energy on daily. Burnout? I just take a nap! 😁

      3
      3 years ago Log in to Reply
    5. Jane Cerullo

      It’s a royal pain in the butt

      7
      3 years ago Log in to Reply
      1. sweet charlie

        so is brushing and flossing my 90 year old teeth!!

        3 years ago Log in to Reply
    6. Lawrence S.

      Every once in a while I get down about the daily grind of constant awareness of my diabetes. I can’t just drop everything, and go out and do something at a moment’s notice as a non-diabetic would. I have to consider blood sugar levels; do I have enough carbs and proteins in my system to do this activity?;
      Gastroparesis – how long will it take to get my blood sugar to the level I need it to be?;
      Celiac Disease – no sense in going out to eat … Does this item gluten in it?
      Asthma – Can I do this activity without struggling with my breathing?

      It’s just continuous, 24/7. No breaks.
      But, we all just push it to the back of our minds and keep moving on. I try not to think about everything and just keep pushing myself forward. It’s not bad if I don’t spend time thinking about it.

      LIFE IS GOOD. It beats the alternative.

      3
      3 years ago Log in to Reply
      1. sweet charlie

        YES !!

        3 years ago Log in to Reply
    7. Lyn McQuaid

      It’s been 30 years and I don’t remember life before it so it just seems like a part of my normal, everyday existence.

      2
      3 years ago Log in to Reply
      1. sweet charlie

        69 years for me and I feel the same as you..

        3 years ago Log in to Reply
    8. Karington Johnston

      When I experience burnout, I usually keep a handle on my management, I just also break down and cry because I can’t be perfect

      3
      3 years ago Log in to Reply
    9. Edward Geary

      My self-assessment comes after a prolonged period of frustration and disappointment. Frankly, CGM and Control IQ have finally allowed me to achieve A1Cs of <7.0 without the realistic fears of lows. I would add that this comes just in time, as the challenges of “aging” and surviving diabetes for over 48 years requires intensive health maintenance and medical interventions: eyes, kidneys, teeth and gums, neuropathy and more. To my fellow diabetics, never give up and push your care teams for creative remedies. We survive because we are tough and more importantly because we are smart. Best wishes.

      8
      3 years ago Log in to Reply
    10. Kim Murphy

      Right now I have a planter plate tear so moving is hard which definitely makes my diabetes hard because I can’t get the exercise I need to help with Blood Sugar control.

      3 years ago Log in to Reply
    11. Donal Conway

      I now have T1 Diabetes for fifty two years and I have been using the Freestyle Libre 1 for the last two years or so and it makes living with Diabetes a good bit easier with my BG Hba1c improving from 7.0 to 6.7 and I also have improved my intake of foods with a lot with a lot of antioxidant laden items included in the diet. I am very active also with many physical work exercises to do I plan ahead with gardening, walking and I am part of a harmony singing group that involes competition singing also. So with four grandchildren visiting me every so often my life i a happy one, I dont allow any negative thoughts or feelings to let or get ‘Diabetes Burnout’ in my life, I don’t have time on my hands to entertain that kind of thing.

      2
      3 years ago Log in to Reply
    12. Janis Senungetuk

      I used what little was left of my savings to pay for a Tandem pump in May, 2020 because I was so tired of the daily glucose roller coaster. The 2+ years of isolation because of the pandemic definitely added to the 24/7 burden, but Control IQ paired with the Dex G6 has prevented a full blown case of burnout. I’m living life, that includes 67 years of T1D, one day at a time.

      6
      3 years ago Log in to Reply
    13. Christina Trudo

      There should be an “other.” so I answered “somewhat”, I have never felt I have a really good handle on control and most of the time I live with that fine; don’t have what I would ever describe as “burnout”

      1
      3 years ago Log in to Reply
    14. Kathy Morison

      Everyday is a challenge for me trying to manage my diabetes. My body refuses to absorb insulin normally on many days and I must force it with sitting with a hot water bottle on the injection site or rubbing vigorously off and on through the 4 hours that it’s viable to make it work. But that being said, I do not allow burnout. I don’t see it as an option, not to be doing my best at all times to manage my sugar. The alternatives are just too scary and unwanted to ever allow myself to get to that point. I used to work in a hospital drawing blood and when I went to the diabetic floors, I saw all the horrors that can happen to people with uncontrolled sugars. I’ve been doing this for 45 years now and I will strive to do my best everyday until the day I die or I’m no longer able to do it myself.

      3
      3 years ago Log in to Reply
    15. Chris Albright

      Needless to say, diabetes management is a constant battle that never allows for a vacation from involvement. While it gets tiring to manage this disease day after day, right now the only option is stay focused on doing the best you can and to live a life that is not limited or diminished by T1D… Stay Strong.

      3
      3 years ago Log in to Reply
    16. persevereT1D52

      THERE WAS NO ANSWER FOR ME. I handle my T1 better than anytime in my 52 years of it due to the great tools available. BUT I have severe mental and emotional burnout. I carry on through it but everyday feel as if I don’t want to go through this one more day. Yes, I have depression and anxiety and complications.

      3
      3 years ago Log in to Reply
      1. persevereT1D52

        I notice there are several long term T1’s. I think there is a gap in care. The daily minute by minute challenge of T1 usually becomes more difficult with the aging process especially those of us who are not fortunate enough to have a partner. The gap lies in WHO IS GOING TO DO ALL OF THIS WHEN I CAN’T? Physically and financially. If you end up in a facility it’s basically 1 injection/day and good luck.

        2
        3 years ago Log in to Reply
    17. sweet charlie

      Started age 21 years… now age 90… NO T1D complications… Have AMD that started about 4 years ago, and that REALY bothers me !!! Takeing insulin and watching diet is NO problem for me!! Started CGM 16 months ago.. Just use syring… no other gadgetss etc.. I guess I am just one of the lucky unlucky T1D’s..

      2
      3 years ago Log in to Reply
      1. Melinda Lipe

        You are amazing!

        3 years ago Log in to Reply
    18. Natalie Daley

      It took over 11 days and 15 phone to the doctor, the insurance, and the only provider to work out the renewal of my CGM sensors that I have had for over a year and am now completely out of in spite of my best efforts and a lot of tears. Delivery will be another two days.

      1
      3 years ago Log in to Reply
    19. Molly Jones

      Burnout does not affect me, although depression in general does at times.
      It does not lead to managing my diabetes in any incomplete ways as I do not want to suffer the consequences of complications as that would only add to feeling worse.

      3 years ago Log in to Reply
    20. Sue Martin

      I usually have about one time a year when I just get overwhelmed with all of it and I don’t want to manage my T1D anymore. It usually lasts a few days up to a week. I then can go back to the low-level annoyance with all of it. The management assistance with technology and better medical staff over the years has helped a lot to make it more of a bother than a daily struggle.

      2
      3 years ago Log in to Reply
    21. Mary Ann Sayers

      After 68+years of T1D, burnout is a natural occurrence from time to time. My frustration usually comes from NOT UNDERSTANDING WHY my body changes its insulin needs so ABRUPTLY when I don’t alter my diet or exercise!
      I was told years ago that diabetes is a messy disease! Why do
      I always have to prove it!!!

      1
      3 years ago Log in to Reply
    22. Melinda Lipe

      I chose the first option, even though I do not feel a “Solid handle” on my diabetes. Most days are ok, and am not affected by burnout on a regular basis, despite having Type 1 for over 50 years.

      3 years ago Log in to Reply
    23. Cheryl Seibert

      My T1D burnout is due to the multiple alarms and the failure of a pump to handle my brittle diabetes stress rises in BG. My major burnout and lack of good control is due to caregiving an elderly relative (not my parent) and the challenges that go with that responsibility. This stress has worsened my control. Up until then I had virtually no T1D burnout.

      3 years ago Log in to Reply

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you? Cancel reply

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