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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!

    Home > LC Polls > If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!
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    Based on your experiences with insurance companies, do you feel that they understand the needs of people with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    58 Comments

    1. Annie Wall

      Years ago, an acquaintance reprimanded me for texting as we were sitting down to dinner. I looked sharply at her and told her I was giving myself insulin. That stopped her dead in her tracks. (She gets it now!)

      4
      4 years ago Log in to Reply
      1. William Bennett

        Even worse, I get accused of checking my watch in the middle of a conversation, which I am doing but how do you explain you’re checking your blood glucose not the time? Actually, same goes for the smartphone. It’s a medical device! I’m checking a medical device! For me, anyway….

        1
        4 years ago Log in to Reply
    2. Marty

      I’m not sure I’ve ever been through airport security without being told to remove my “cell phone.”

      1
      4 years ago Log in to Reply
    3. Mick Martin

      Although I selected Pager, I WAS also wearing a pager. This was to do with my position as a Social Worker … years ago now. 😉

      4 years ago Log in to Reply
    4. Jana Wardian

      Someone started talking loudly and slowly to me thinking the pump was some sort of hearing aid. 🤣

      4
      4 years ago Log in to Reply
    5. Missy Kirchem

      I was asked if my CGM was for pain relief

      4 years ago Log in to Reply
    6. Mark Schweim

      No, but many HAVE asked me what the device I had was and I was happy to tell them.

      2
      4 years ago Log in to Reply
    7. Lawrence S.

      I worked in a management position for many years. During that time, I was asked twice by two separate employees if I was wearing a recording device. I might add that both of those employees were persons whom I felt were disgruntled staff members.

      4 years ago Log in to Reply
    8. William Bennett

      Pager. This came up just a couple of days ago. I was at a bar and needed to bolus for a glass of beer. A 20-something young woman next to me exclaimed delightedly “Is that a pager??? I’ve never seen one!” Being an older guy I guess it wasn’t a totally weird assumption that I might have some old-tech gadget like that. Not to mention it’s an old “pager-style” Medtronic Paradigm (I tried their AID pump and hated it), so there’s that. Kind of an awkward moment–mostly I rarely have anyone notice it at all.

      1
      4 years ago Log in to Reply
    9. Nevin Bowman

      I had someone ask me if I was wearing a bomb(I’m still assuming they were joking).

      4 years ago Log in to Reply
    10. Carolann Hunt

      Neulasta pod for cancer, poor you! No it’s just diabetes…

      4 years ago Log in to Reply
    11. HuskerKim

      I was asked if my CGM sensor was a tracking device used by my husband! I think the gentleman may have been joking but I didn’t find it very funny.

      4 years ago Log in to Reply
    12. AnitaS

      It is rare if anyone sees my devices as the cgm and pump are not usually on display.

      1
      4 years ago Log in to Reply
      1. Greg Felton

        Good point. My stuff is normally not on display, but that’s because I live in a cold climate. There’s not much chance for people to see my pump or CGM.

        4 years ago Log in to Reply
    13. persevereT1D52

      I use an overpatch with designs and people think it is a tattoo.

      1
      4 years ago Log in to Reply
    14. AimmcG

      I have only had a couple of people question what it is. People don’t usually say anything.

      1
      4 years ago Log in to Reply
    15. TEH

      Only when I fly. In addition I win bonus screening.
      Havent flown in 4 years now that I’m retired.

      4 years ago Log in to Reply
    16. GLORIA MILLER

      I was visiting my daughter-in-law in the hospital once and after I got home my son called to find out if I was on chemotherapy. They had noticed my Omnipod and thought it was for chemo. I have been asked several times what the Omnipod is since it is so large.

      4 years ago Log in to Reply
    17. Ahh Life

      Pump did get confused with a camera by a strict security lady in a NO PICTURES room of Windsor Castle. Naughty, naughty. But she backed off. And maintain her severe, stern draconian stuffiness. Hrmmmph! ᕦ(˵ ͡~⍘ ͡°˵)ᕥ◝(●˙꒳˙●)◜

      2
      4 years ago Log in to Reply
    18. Lena Selbrand

      Well, I get body searched every time I go through security at any airport. They also check with some paperstrip to make sure this 4’11” little lady isn’t carrying a bomb on her!! 🙂

      4 years ago Log in to Reply
      1. Tina Roberts

        lol!!

        4 years ago Log in to Reply
    19. George Lovelace

      Pumping 24 years and someone commented “that sure is a long antenna on your phone!”

      1
      4 years ago Log in to Reply
    20. Mary Dexter

      Gameboy

      4 years ago Log in to Reply
    21. Chrisanda

      When I first started wearing my pump in the late 90’s, I was teaching in a middle school, and was asked by several students if it was a pager. It was a “thing” back in the day! 🙂

      4 years ago Log in to Reply
    22. Katie L

      Just last week someone said to me “Hey, you’ve got something stuck on the back of your arm.”

      4
      4 years ago Log in to Reply
      1. Bruce Schnitzler

        Katie, love your image! I once had an orange VW camper my kids called the pumpkin van.

        1
        4 years ago Log in to Reply
    23. Grey Gray

      Off topic but was once arrested while injecting insulin in a fast food bathroom. Unfortunately the label had come off my vial… nosey police officer and ignorance of T1D back then Fortunately someone at the jail had a diabetic sibling who stated ” this guy ain’t a junkie he’s sick”

      1
      4 years ago Log in to Reply
      1. Tina Roberts

        Oh my gosh!!!! People. Lol

        4 years ago Log in to Reply
      2. Sherolyn Newell

        I’m sure it wasn’t funny at the time, but great story now. Makes me think maybe I should stop using the phrase “shoot up”. Mom’s gone now, but it used to make her crazy when I said that. Now I say it because it makes me think of Mom and laugh.

        2
        4 years ago Log in to Reply
    24. Sue Martin

      I had someone mistake my receiver, before there were apps for cell phones, as a cell phone.

      4 years ago Log in to Reply
    25. Jim Cobbe

      To my surprise, I’ve been asked if it is a heart monitor or pacemaker, as well as being asked if the CGM sensor is an insulin diffuser.

      4 years ago Log in to Reply
    26. Jneticdiabetic

      Once someone who frequented a place I used to regularly hang out told me they thought it was a walkman (portable radio cassette player) 😁

      4 years ago Log in to Reply
    27. cynthia jaworski

      check out Ed Gamble, the British “diabetic comedian,” as he describes questions about his glucose meter. Very funny.

      4 years ago Log in to Reply
      1. KarenM6

        Oh my goodness! I just checked Ed Gamble on YouTube… He’s awesome! 😀
        “Diabetic comedy is not a thing. Diabetic comedy is not a genre that exists…” 😀
        Thank you!!! I needed a laugh. 😀

        4 years ago Log in to Reply
    28. Donald Cragun

      About 20 years ago my pump was misidentified as a pager. And, at that time, no-one ever commented that they had a pump too. Now I am frequently asked if I have the same model as the one they are wearing.

      1
      4 years ago Log in to Reply
    29. Tina Roberts

      Pager. The guy thought I was being rude by checking my alarm on the pump while he was talking to me. This was 6 or 7 years ago.

      4 years ago Log in to Reply
    30. Greg Felton

      The pump was once mistaken for a pager long ago. The CGM sensor on the back of my arm was mistaken for some sort of performance enhancing device by a competitive cyclist one day a few years back (not based on my performance or anything, just genuine curiosity.) I don’t think my pump has been mistaken for anything for 15 years or so now. Either they are more common or people are more polite. Security people at events and airports ask as required by their jobs but don’t guess wrong or seem surprised.

      4 years ago Log in to Reply
    31. Linda Zottoli

      Yes, also had a couple think it was a pager back in the 90s. In early 2000s, when my daughter and her family were living overseas and I hadn’t seen them in a while, she thought I was fiddling with my phone every time I sat down to eat with them — after all, her husband usually was. Didn’t mention it until after she realized it was the pump, polite daughter that she is. Had someone in a medical situation once refer to the tubing as my catheter. And, recently when my infusion set showed on my arm, a young neighbor assumed it had something to do with fitness, but was curious just what.

      4 years ago Log in to Reply
    32. Trisha Oldenkamp

      I’ve had people at the gym ask if my Omnipod pump was for chemo. Children will ask if it’s a bandage. My 2 year old granddaughter used to try to comfort me because of my “owie”

      4 years ago Log in to Reply
    33. Janis Senungetuk

      Before procedures, I’ve twice had RN’s ask, as they go to remove the CGM from my arm, if it’s a nicotine patch or fitness tracker. Before the pandemic limited travel the TSA agents made numerous guesses about my pump.

      4 years ago Log in to Reply
    34. Bill Williams

      People have asked what both my Libre and Omnipod are. Neither is visible in the normal course – only when I’m swimming or walking around the dock shirtless.

      4 years ago Log in to Reply
    35. jo

      Yes, I was asked if it was a nicotine patch, a Thrive patch(some kind of diet thing I think), and if it was a port.

      4 years ago Log in to Reply
    36. PamK

      I included “other” in my choices because one person at work asked me what my infusion set was (it was in my upper arm at the time) and another co-worker shushed her. I think the latter thought it was contraceptive patch!

      2
      4 years ago Log in to Reply
      1. AnitaS

        LOL……..

        4 years ago Log in to Reply
    37. Karen Brady

      Someone asked if my omnipod was a patch to “give me energy”

      4 years ago Log in to Reply
    38. Kim J

      Tattoo

      4 years ago Log in to Reply
    39. Becky Hertz

      My uncle, a fertility specialist, said they used something similar to deliver hormones. He knew what it was though.

      4 years ago Log in to Reply
    40. mbulzomi@optonline.net

      They all ask if that’s an old pager (My Tandem pump) with a laugh.

      4 years ago Log in to Reply
    41. Sue Herflicker

      My son back in the late 90s at middle school was called out by a teacher for having a pager. I myself have never had anyone ask me if it was any of the listed above options, however I have had people ask me what it is.

      4 years ago Log in to Reply
    42. Chris Albright

      I answered pager, but that has not happened in a long time (since people just don’t carry pagers much any more). In that past, it was a common question.

      4 years ago Log in to Reply
    43. Susanne Bagley

      Prior to getting TSA Pre-Check, some airport TSA staff searched me thinking I was wearing a bomb. They insisted I totally remove it, which I could only undo at the tubing site. Now they just ask me to swipe the pump with my fingers & they swab my fingers through a device. Much easier!!

      4 years ago Log in to Reply
    44. Mary Berube

      Many years ago while standing in line, a person looked at the sensor on my arm and made a snide comment to their friend. It appears they thought I was wearing some type of device that communicated with my cell phone, and they did not approve of this.

      4 years ago Log in to Reply
    45. ConnieT1D62

      When I attended a spiritual retreat my pump/sensor combo beeped during a silent meditation sitting and afterwards a man complained out loud very angrily “Rude people shouldn’t participate in the meditation sessions if they can’t leave their cell phones and beepers in their cars.” After he calmed down, I gently went over to him and apologized for my pump & sensor alarm and briefly offered an explanation & educated him about T1 diabetes and the artificial beta cell technology that keeps a PWD with T1D alive. He was stunned and admitted he had no idea of what I was talking about, admitted he knew nothing about type 1 diabetes and apologized to me for being so judgmental, rude and angry about being disturbed in the meditation.

      3
      4 years ago Log in to Reply
    46. Maurine Bowser

      No one sees mine- it is in my abdomen

      4 years ago Log in to Reply
    47. mfantacci

      Airport security in France thought it was a DVD player 😂

      4 years ago Log in to Reply
    48. Jenny Richardson

      People have only questioned what’s on my arm…sometimes I say it’s a gps device so my husband can keep track of me and I watch chins drop! Ha! Then I tell them the truth 😆

      1
      4 years ago Log in to Reply
    49. Madison Gordon

      In high school, I once had a substitute teacher get onto me for having a camera in class!

      In hindsight, she must’ve felt awful when I told her it was an insulin pump!

      4 years ago Log in to Reply
    50. Bruce Johnson

      Yes, the local Canadian regional hospital had a Certified Diabetes Educator confirm and identify my Dex G6 CGM and my Omnipod insulin pump. As I was an ambulatory patient the CGM was removed from my body at the Emergency Room and the Omnipod was removed after I was transferred to the ICU. All of my devices were seized by the hospital and never returned. I complained about this since my initial admission at Emergency but nothing ever happened. The Endo assigned to the ICU was there when my Omnipod was taken, but she also quit the health service immediately after her shift, After formal complaints to the hospital board and security I got a letter of apology that also stated they could not find any information about my diabetic devices or where they could be. This occurred in June 2020, right after Covid invaded our healthcare system

      4 years ago Log in to Reply

    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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