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  • Activity
    • 10 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 11 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 hour, 27 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 23 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 24 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 25 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 27 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 35 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 41 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 42 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 43 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 1 minute ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 1 minute ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 1 minute ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 2 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 20 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 20 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 23 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 53 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 5 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 15 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
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    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!

    Home > LC Polls > If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!
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    58 Comments

    1. Annie Wall

      Years ago, an acquaintance reprimanded me for texting as we were sitting down to dinner. I looked sharply at her and told her I was giving myself insulin. That stopped her dead in her tracks. (She gets it now!)

      4
      8 months ago Log in to Reply
      1. William Bennett

        Even worse, I get accused of checking my watch in the middle of a conversation, which I am doing but how do you explain you’re checking your blood glucose not the time? Actually, same goes for the smartphone. It’s a medical device! I’m checking a medical device! For me, anyway….

        1
        8 months ago Log in to Reply
    2. Marty

      I’m not sure I’ve ever been through airport security without being told to remove my “cell phone.”

      1
      8 months ago Log in to Reply
    3. Mick Martin

      Although I selected Pager, I WAS also wearing a pager. This was to do with my position as a Social Worker … years ago now. šŸ˜‰

      8 months ago Log in to Reply
    4. Jana Wardian

      Someone started talking loudly and slowly to me thinking the pump was some sort of hearing aid. 🤣

      4
      8 months ago Log in to Reply
    5. Missy Kirchem

      I was asked if my CGM was for pain relief

      8 months ago Log in to Reply
    6. Mark Schweim

      No, but many HAVE asked me what the device I had was and I was happy to tell them.

      2
      8 months ago Log in to Reply
    7. Lawrence S.

      I worked in a management position for many years. During that time, I was asked twice by two separate employees if I was wearing a recording device. I might add that both of those employees were persons whom I felt were disgruntled staff members.

      8 months ago Log in to Reply
    8. William Bennett

      Pager. This came up just a couple of days ago. I was at a bar and needed to bolus for a glass of beer. A 20-something young woman next to me exclaimed delightedly “Is that a pager??? I’ve never seen one!” Being an older guy I guess it wasn’t a totally weird assumption that I might have some old-tech gadget like that. Not to mention it’s an old “pager-style” Medtronic Paradigm (I tried their AID pump and hated it), so there’s that. Kind of an awkward moment–mostly I rarely have anyone notice it at all.

      1
      8 months ago Log in to Reply
    9. Nevin Bowman

      I had someone ask me if I was wearing a bomb(I’m still assuming they were joking).

      8 months ago Log in to Reply
    10. Carolann Hunt

      Neulasta pod for cancer, poor you! No it’s just diabetes…

      8 months ago Log in to Reply
    11. HuskerKim

      I was asked if my CGM sensor was a tracking device used by my husband! I think the gentleman may have been joking but I didn’t find it very funny.

      8 months ago Log in to Reply
    12. AnitaS

      It is rare if anyone sees my devices as the cgm and pump are not usually on display.

      1
      8 months ago Log in to Reply
      1. Greg Felton

        Good point. My stuff is normally not on display, but that’s because I live in a cold climate. There’s not much chance for people to see my pump or CGM.

        8 months ago Log in to Reply
    13. persevereT1D52

      I use an overpatch with designs and people think it is a tattoo.

      1
      8 months ago Log in to Reply
    14. AimmcG

      I have only had a couple of people question what it is. People don’t usually say anything.

      1
      8 months ago Log in to Reply
    15. TEH

      Only when I fly. In addition I win bonus screening.
      Havent flown in 4 years now that I’m retired.

      8 months ago Log in to Reply
    16. GLORIA MILLER

      I was visiting my daughter-in-law in the hospital once and after I got home my son called to find out if I was on chemotherapy. They had noticed my Omnipod and thought it was for chemo. I have been asked several times what the Omnipod is since it is so large.

      8 months ago Log in to Reply
    17. Ahh Life

      Pump did get confused with a camera by a strict security lady in a NO PICTURES room of Windsor Castle. Naughty, naughty. But she backed off. And maintain her severe, stern draconian stuffiness. Hrmmmph! ᕦ(˵ Ķ”~ā˜ ͔°˵)į•„ā—(ā—Ė™ź’³Ė™ā—)ā—œ

      2
      8 months ago Log in to Reply
    18. Lena Selbrand

      Well, I get body searched every time I go through security at any airport. They also check with some paperstrip to make sure this 4’11” little lady isn’t carrying a bomb on her!! šŸ™‚

      8 months ago Log in to Reply
      1. Tina Roberts

        lol!!

        8 months ago Log in to Reply
    19. George Lovelace

      Pumping 24 years and someone commented “that sure is a long antenna on your phone!”

      1
      8 months ago Log in to Reply
    20. Mary Dexter

      Gameboy

      8 months ago Log in to Reply
    21. Chrisanda

      When I first started wearing my pump in the late 90’s, I was teaching in a middle school, and was asked by several students if it was a pager. It was a “thing” back in the day! šŸ™‚

      8 months ago Log in to Reply
    22. Katie L

      Just last week someone said to me “Hey, you’ve got something stuck on the back of your arm.”

      4
      8 months ago Log in to Reply
      1. Bruce Schnitzler

        Katie, love your image! I once had an orange VW camper my kids called the pumpkin van.

        1
        8 months ago Log in to Reply
    23. Grey Gray

      Off topic but was once arrested while injecting insulin in a fast food bathroom. Unfortunately the label had come off my vial… nosey police officer and ignorance of T1D back then Fortunately someone at the jail had a diabetic sibling who stated ” this guy ain’t a junkie he’s sick”

      1
      8 months ago Log in to Reply
      1. Tina Roberts

        Oh my gosh!!!! People. Lol

        8 months ago Log in to Reply
      2. Sherolyn Newell

        I’m sure it wasn’t funny at the time, but great story now. Makes me think maybe I should stop using the phrase “shoot up”. Mom’s gone now, but it used to make her crazy when I said that. Now I say it because it makes me think of Mom and laugh.

        2
        8 months ago Log in to Reply
    24. Sue Martin

      I had someone mistake my receiver, before there were apps for cell phones, as a cell phone.

      8 months ago Log in to Reply
    25. Jim Cobbe

      To my surprise, I’ve been asked if it is a heart monitor or pacemaker, as well as being asked if the CGM sensor is an insulin diffuser.

      8 months ago Log in to Reply
    26. Jneticdiabetic

      Once someone who frequented a place I used to regularly hang out told me they thought it was a walkman (portable radio cassette player) 😁

      8 months ago Log in to Reply
    27. cynthia jaworski

      check out Ed Gamble, the British “diabetic comedian,” as he describes questions about his glucose meter. Very funny.

      8 months ago Log in to Reply
      1. KarenM6

        Oh my goodness! I just checked Ed Gamble on YouTube… He’s awesome! šŸ˜€
        “Diabetic comedy is not a thing. Diabetic comedy is not a genre that exists…” šŸ˜€
        Thank you!!! I needed a laugh. šŸ˜€

        8 months ago Log in to Reply
    28. Donald Cragun

      About 20 years ago my pump was misidentified as a pager. And, at that time, no-one ever commented that they had a pump too. Now I am frequently asked if I have the same model as the one they are wearing.

      1
      8 months ago Log in to Reply
    29. Tina Roberts

      Pager. The guy thought I was being rude by checking my alarm on the pump while he was talking to me. This was 6 or 7 years ago.

      8 months ago Log in to Reply
    30. Greg Felton

      The pump was once mistaken for a pager long ago. The CGM sensor on the back of my arm was mistaken for some sort of performance enhancing device by a competitive cyclist one day a few years back (not based on my performance or anything, just genuine curiosity.) I don’t think my pump has been mistaken for anything for 15 years or so now. Either they are more common or people are more polite. Security people at events and airports ask as required by their jobs but don’t guess wrong or seem surprised.

      8 months ago Log in to Reply
    31. Linda Zottoli

      Yes, also had a couple think it was a pager back in the 90s. In early 2000s, when my daughter and her family were living overseas and I hadn’t seen them in a while, she thought I was fiddling with my phone every time I sat down to eat with them — after all, her husband usually was. Didn’t mention it until after she realized it was the pump, polite daughter that she is. Had someone in a medical situation once refer to the tubing as my catheter. And, recently when my infusion set showed on my arm, a young neighbor assumed it had something to do with fitness, but was curious just what.

      8 months ago Log in to Reply
    32. Trisha Oldenkamp

      I’ve had people at the gym ask if my Omnipod pump was for chemo. Children will ask if it’s a bandage. My 2 year old granddaughter used to try to comfort me because of my “owie”

      8 months ago Log in to Reply
    33. Janis Senungetuk

      Before procedures, I’ve twice had RN’s ask, as they go to remove the CGM from my arm, if it’s a nicotine patch or fitness tracker. Before the pandemic limited travel the TSA agents made numerous guesses about my pump.

      8 months ago Log in to Reply
    34. Bill Williams

      People have asked what both my Libre and Omnipod are. Neither is visible in the normal course – only when I’m swimming or walking around the dock shirtless.

      8 months ago Log in to Reply
    35. jo

      Yes, I was asked if it was a nicotine patch, a Thrive patch(some kind of diet thing I think), and if it was a port.

      8 months ago Log in to Reply
    36. PamK

      I included “other” in my choices because one person at work asked me what my infusion set was (it was in my upper arm at the time) and another co-worker shushed her. I think the latter thought it was contraceptive patch!

      2
      8 months ago Log in to Reply
      1. AnitaS

        LOL……..

        8 months ago Log in to Reply
    37. Karen Brady

      Someone asked if my omnipod was a patch to “give me energy”

      8 months ago Log in to Reply
    38. Kim J

      Tattoo

      8 months ago Log in to Reply
    39. Becky Hertz

      My uncle, a fertility specialist, said they used something similar to deliver hormones. He knew what it was though.

      8 months ago Log in to Reply
    40. mbulzomi@optonline.net

      They all ask if that’s an old pager (My Tandem pump) with a laugh.

      8 months ago Log in to Reply
    41. Sue Herflicker

      My son back in the late 90s at middle school was called out by a teacher for having a pager. I myself have never had anyone ask me if it was any of the listed above options, however I have had people ask me what it is.

      8 months ago Log in to Reply
    42. Chris Albright

      I answered pager, but that has not happened in a long time (since people just don’t carry pagers much any more). In that past, it was a common question.

      8 months ago Log in to Reply
    43. Susanne Bagley

      Prior to getting TSA Pre-Check, some airport TSA staff searched me thinking I was wearing a bomb. They insisted I totally remove it, which I could only undo at the tubing site. Now they just ask me to swipe the pump with my fingers & they swab my fingers through a device. Much easier!!

      8 months ago Log in to Reply
    44. Mary Berube

      Many years ago while standing in line, a person looked at the sensor on my arm and made a snide comment to their friend. It appears they thought I was wearing some type of device that communicated with my cell phone, and they did not approve of this.

      8 months ago Log in to Reply
    45. ConnieT1D62

      When I attended a spiritual retreat my pump/sensor combo beeped during a silent meditation sitting and afterwards a man complained out loud very angrily “Rude people shouldn’t participate in the meditation sessions if they can’t leave their cell phones and beepers in their cars.” After he calmed down, I gently went over to him and apologized for my pump & sensor alarm and briefly offered an explanation & educated him about T1 diabetes and the artificial beta cell technology that keeps a PWD with T1D alive. He was stunned and admitted he had no idea of what I was talking about, admitted he knew nothing about type 1 diabetes and apologized to me for being so judgmental, rude and angry about being disturbed in the meditation.

      3
      8 months ago Log in to Reply
    46. Maurine Bowser

      No one sees mine- it is in my abdomen

      8 months ago Log in to Reply
    47. mfantacci

      Airport security in France thought it was a DVD player šŸ˜‚

      8 months ago Log in to Reply
    48. Jenny Richardson

      People have only questioned what’s on my arm…sometimes I say it’s a gps device so my husband can keep track of me and I watch chins drop! Ha! Then I tell them the truth šŸ˜†

      1
      8 months ago Log in to Reply
    49. Madison Gordon

      In high school, I once had a substitute teacher get onto me for having a camera in class!

      In hindsight, she must’ve felt awful when I told her it was an insulin pump!

      7 months ago Log in to Reply
    50. Bruce Johnson

      Yes, the local Canadian regional hospital had a Certified Diabetes Educator confirm and identify my Dex G6 CGM and my Omnipod insulin pump. As I was an ambulatory patient the CGM was removed from my body at the Emergency Room and the Omnipod was removed after I was transferred to the ICU. All of my devices were seized by the hospital and never returned. I complained about this since my initial admission at Emergency but nothing ever happened. The Endo assigned to the ICU was there when my Omnipod was taken, but she also quit the health service immediately after her shift, After formal complaints to the hospital board and security I got a letter of apology that also stated they could not find any information about my diabetic devices or where they could be. This occurred in June 2020, right after Covid invaded our healthcare system

      7 months ago Log in to Reply

    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply! Cancel reply

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