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    • 7 hours, 39 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 7 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 7 hours, 42 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 7 hours, 42 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 7 hours, 51 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 9 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 9 hours, 46 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 46 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 15 hours, 48 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 16 hours, 30 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 16 hours, 34 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 16 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 16 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 17 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 17 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 17 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 17 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 7 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 17 hours, 8 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 17 hours, 20 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 49 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

    Home > LC Polls > If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!
    Previous

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Next

    If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. karolinamalecki7@gmail.com

      I dont have children yet. I was diagnosed last year at 26 and my biggest fear is passing this on. Curious if youd do a question about parents with type 1 and how that impacts their children (ie mom with t1D vs dad with t1d and how many kids have it). Thanks for all you do!

      4 years ago Log in to Reply
      1. Jneticdiabetic

        First of all, good job getting through your first year with T1D! 🙂
        Hopefully the responses to this question (with most T1Ds not reporting passing it on to their kids) will be reassuring.
        Scientists are still learning, but this article provides some rough stats on the rates of T1D Moms & Dads passing on T1D to their kids:
        https://www.webmd.com/diabetes/diabetes-type-1-genetics

        4 years ago Log in to Reply
    2. Randi Niemer

      I have three kids in their mid twenties who do NOT have T1D.

      4 years ago Log in to Reply
    3. Dan Riggs

      I have 2 kids and they both have T1D. I only have one other family member on boths sides with T1D, a cousin on my Dad’s side of the family.

      4 years ago Log in to Reply
    4. GLORIA MILLER

      I have one son without diabetes. He is 50 years old. I have T1 but his father does not.

      4 years ago Log in to Reply
    5. Joan McGinnis

      I have one child with T1D. I have 5 siblings, 3 with type 1, and 1 with type 2. Only one of the children other than mine has developed type 1. And none of the grandchildren. No parent with Type 1

      4 years ago Log in to Reply
      1. Joan McGinnis

        None developed before age 18

        4 years ago Log in to Reply
    6. Mig Vascos

      Two children none with T1D. One has T2D bit because was overweight and not exercising. Once she lost 40 pounds , retired from computer work, and began exercising, the problem was resolved.

      4 years ago Log in to Reply
    7. Gary Taylor

      I have T1D, diagnosed at 18. My wife and I have 3 children. The oldest of the three was diagnosed with T1D at the age of 23. She now has two daughters and she will have them screened for T1D often as they grow. (I also have a friend with T1D. Both his father and his son have it. )

      1
      4 years ago Log in to Reply
      1. AnitaS

        I am a little surprised that your daughter has her kids screened for diabetes as I would think she could test their blood sugar occasionally with her blood glucose meter.

        4 years ago Log in to Reply
    8. Kristine Warmecke

      I’m the oldest of 3 sibling’s, the middle child was finally diagnosed at 7 months old with T1D, I was diagnosed at age 11 and the youngest was diagnosed with T2D in his early 20’s. Both my parent’s are now T2D, my Father was just diagnosed several months ago.
      My middle sibling has 3 daughters, the oldest of whom was diagnosed at 23 months old, the youngest is still in a study because her cord blood is antibody positive; she has not been diagnosed yet.

      4 years ago Log in to Reply
    9. Sue Herflicker

      I have 3 boys. My oldest and my youngest are both T1D’s. My middle child has hashimoto disease. I was diagnosed at age 57 LADA .

      4 years ago Log in to Reply
    10. Yaffa Steubinger

      My two kids have one of my autoimmune diseases but 2 of my grandkids got my T1. We’re fun when we all go out to eat together. Food arrives and 3 insulin pens come out. 😉

      4 years ago Log in to Reply
      1. AnitaS

        That is funny about the three insulin pens coming out. I had sort of a similar situation years ago at a Thanksgiving meal. My sister’s boyfriend, my cousin and myself, all of us type 1, brought our syringes at the same time too. LOL

        4 years ago Log in to Reply
    11. Pauline M Reynolds

      I have Type 1, but none of my children have it. However, three of my children have Type 2.

      4 years ago Log in to Reply
      1. Pauline M Reynolds

        That is, three of my five children.

        4 years ago Log in to Reply
    12. Mary Dexter

      My daughter has PCOS. I was diagnosed with LADA at age 48.

      4 years ago Log in to Reply
    13. mbulzomi@optonline.net

      I have two daughters and a son; however, none have T1D or T2D. They range in age 47-42 years old.

      4 years ago Log in to Reply
    14. Sherrie Johnson

      Our daughter developed gestational diabetes in her first pregnancy and then after she delivered it went away no future problems

      4 years ago Log in to Reply
    15. Becky Hertz

      I marked, have children, no diabetes, but my child is not biological so even if they did have diabetes it might skew the results. Biological would have been a good addition to this question.

      4 years ago Log in to Reply
    16. Lori COLLINS

      Type 1 since 1979, one non-diabetic daughter who is now 29. I maintained very tight control w/ multiple daily injections and was delighted to give birth to a healthy 7 pound baby! I think an insulin pump and CGM would make pregnancy very manageable for women today.

      1
      4 years ago Log in to Reply
    17. Kathleen Juzenas

      I have no children but I have 15 nieces and nephews, none of whom have T1d. Out of my 22 great-nieces and great-nephews, however, one has T1d.

      4 years ago Log in to Reply
    18. Steve Rumble

      My wife was also T1D and our daughter had gestational diabetes.

      4 years ago Log in to Reply
    19. Steve Rumble

      I have 2 children, neither has T1D, though one had gestational diabetes.

      4 years ago Log in to Reply
    20. Bob Durstenfeld

      I have 3 sons, the oldest has T1D and his oldest daughter has T1D. I have T1D and two out of three brothers have T1D. It is the normal in my family.

      4 years ago Log in to Reply
    21. Juha Kankaanpaa

      I have two children, one has T1D

      4 years ago Log in to Reply
    22. Lyn McQuaid

      My father had T1D and I have it but, thankfully, my children (ages 19 and 15) do not.

      4 years ago Log in to Reply
    23. Senait Isayas

      Both my kids are T1D…my son dx at 2yrs old and then nine months later my daughter got dx at 9month old. We don’t have any T1D or autoimmune disorders on both side of our family. Both are thriving, they’re on Omnipod 5 and Dexcom

      4 years ago Log in to Reply
    24. Carrolyn Barloco

      My father developed T1D in his 40s, I was 30, my sister’s son when he was 13.
      We have three grown children, none with T1D.

      4 years ago Log in to Reply
    25. kflying1@yahoo.com

      My 4 kids are have all been diagnosed as prediabetic, and none of the knuckleheads’ will try to take the steps from becoming a full fledged needle junkie like I am. It’s pretty discouraging.

      1
      4 years ago Log in to Reply
      1. Michelle Noll

        I’ve had T1D since age 5. I have two kids ages 10 and 5, neither have diabetes, yet.

        4 years ago Log in to Reply
    26. Wanacure

      Has any progress been made on finding specific genes that predispose for diabetes? Last I heard no one gene had been identified. With the rise in genealogical research and DNA home tests available, I suggest another question: Have you found ancestors with diabetes?

      4 years ago Log in to Reply
    27. marmcs@yahoo.com

      2 without, I was diagnosed at 30.

      4 years ago Log in to Reply
    28. Jneticdiabetic

      I was diagnosed with T1D at 18, had two children in my 30s (aged 12-13) with my non-diabetic husband. Neither have T1D. My oldest has Celiac. Both have been screened for T1D antibodies under the TrialNet study and were negative. I’ll admit, I still need worry about it. If they complain of thirst, I do a fingerstick BG to be sure.
      My mother has T1D, but was diagnosed many years after me in her 50s. We have several autoimmune conditions on my maternal side.

      4 years ago Log in to Reply

    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D! Cancel reply

    You must be logged in to post a comment.




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