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    • 6 hours, 8 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 6 hours, 8 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
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      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
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      How well do you understand the details of your health insurance coverage?
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      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 6 hours, 9 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 10 hours, 24 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 16 hours, 42 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 17 hours, 34 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 20 hours, 35 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 20 hours, 36 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 20 hours, 44 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 20 hours, 46 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 20 hours, 58 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 20 hours, 58 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 20 hours, 59 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
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      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 20 hours, 59 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
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      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
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      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
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      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
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      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
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      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
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    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)

    Home > LC Polls > Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)
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    What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    42 Comments

    1. HMW

      One of my other symptoms that is not listed is anxious thoughts and paranoia.

      4 years ago Log in to Reply
    2. Marina Kurkov

      Uncomfortable feeling in the gut…I know what’s coming and must react before it gets worse.

      1
      4 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      I have a gut feeling and know it is hypoglycemia and usually being irritable goes with it.

      1
      4 years ago Log in to Reply
    4. Henry Renn

      65.5 yrs T1. Reviewing this list I realize that I experience more than one of the list as 1st sign. Primarily had shakiness/weakness as a child but primary sx multiplied as adult.

      4 years ago Log in to Reply
    5. Mick Martin

      Although I selected “I do not experience any symptoms of hypoglycemia”, as I have done over the last few days of this farce, that is not strictly true. I SOMETIMES feel when I’m about to collapse.

      4 years ago Log in to Reply
    6. Kathy Hanavan

      The feeling is hard to describe and I am not sure in our language we have an exact word, but it feels like something bad is impending and I am on alert along with some other vague symptoms to start.

      2
      4 years ago Log in to Reply
      1. Judy Hampton

        That is the way I feel. It is quite scary and I immediately treat the problem.

        2
        4 years ago Log in to Reply
      2. Ahh Life

        Our language may not, but staring at Picasso’s Guernica for 20-30 minutes certainly does! 😱

        2
        4 years ago Log in to Reply
    7. AnitaS

      I put “other”. I just feel uncomfortable. Not shaky, but just “uncomfortable”

      1
      4 years ago Log in to Reply
    8. Jane Cerullo

      Thankfully I have hypoglycemia awareness. I know if going low. Also have CGM and check my numbers a lot. Very few episodes of hypo or hyper. If I do I correct immediately

      1
      4 years ago Log in to Reply
    9. M Fedor

      I didn’t think of this before reading the other comments, but dread and anxiety are definitely part of the experience for me.

      3
      4 years ago Log in to Reply
    10. Gina Lucero

      Shortness of breath

      4 years ago Log in to Reply
    11. Trish Seidle

      I don’t always notice any symptoms until my B’s is extremely low. However, recently I have been noticing a new symptom. If I have an upset stomach, usually it means that my bs is dropping.

      4 years ago Log in to Reply
    12. Brett Jorgensen

      Tingling lips is one of my prominent signs

      1
      4 years ago Log in to Reply
      1. Miriam Gordon

        I used to have that decades ago. No more. Never saw that listed anywhere so thanks for the confirmation.

        4 years ago Log in to Reply
    13. Hieromonk Alexis

      I lost all of the usual physical symptoms years ago, other than an inability to stand up. There’s always confusion, an inability to figure things out, but I don’t recognize it as a symptom at the time.

      4 years ago Log in to Reply
    14. Patricia Kilwein

      After having a low and dealing with it, I am exhausted and need to sleep.

      3
      4 years ago Log in to Reply
    15. Lloyd Lowe

      I answered that I feel all of those symptoms plus others. However, because I am usually hypoglycemicly unaware, I know these only because others tell me so.

      4 years ago Log in to Reply
    16. M C

      As I, and others, responded to the last related question, there is an ‘odd’ feeling within, when the BG is getting lower, that is hard to describe otherwise. When the BG is below 50 (3 mmol/L), often my tongue and lips become numb. Overheating is one that pops up about 3 out of 5 times – so, not consistently. None of my ‘symptoms’ happen each and every time, thus the need to check the BG when any show up…. And sometimes they are for the opposite problem – a high BG. I used to only feel nauseated when my BG was high…. now it occurs when my BG is extremely low, making it next to impossible to chew and swallow glucose tabs (I have to fight not to throw up with those)…. I need to ensure I have either juice, soda, or fast dissolving candy at hand, as they seem more easily acceptable when feeling this way. Also, when my BG is below 30, my sight can seem to go to black out. I haven’t passed out, but my eyes aren’t seeing – it’s as if my eyes are closed, which they aren’t. [Perhaps it is because I have been dealing with these issues for almost 45 years that the body just throws any reaction my way these days to try and gain my attention!]

      4 years ago Log in to Reply
    17. CandyM

      I think my first indication and most common symptom of a low is a sinking feeling in my whole body. Almost as though I can feel the glucose draining out of my muscles and then I get clumsy. If it is very low I also notice that any light seems extremely bright (almost like snow-blindness) and therefore I can’t see things clearly. I am often hot or sweaty when it is low, but after I recover from a low that reached the 40s, I have a bone deep cold that makes me shake and shiver for some moments after BG is back in normal ranges.

      2
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Ohhh. I forgot about the blindness, because that happens to me only if I am in the 30-range which luckily is a rare occurrence.

        1
        4 years ago Log in to Reply
      2. ConnieT1D62

        Candy M – Pretty good description of what I experience too.

        1
        4 years ago Log in to Reply
      3. persevereT1D52

        CandyM It’s unusual that I have the same symptoms as someone else because they seem to be different that others. The extreme bright light is a circle in the center of my vision, and I had trouble describing the overall feeling but you did it perfectly “sinking” clumsy, weak and the cold comes as I recover.

        4 years ago Log in to Reply
    18. Lawrence S.

      I’ve experience many of those listed and those written about by others here. One odd thing that happens to me sometimes is my vision becomes very narrow, like I lose peripheral vision. Also, I get a large black spot in the middle of my vision, as though there is a hole in the middle of my retina.

      4 years ago Log in to Reply
    19. Amy Jo

      Nausea is an interesting one – I did not include it in my answer because I don’t have it frequently, but I do usually experience nausea if I’m low while riding in a car.

      4 years ago Log in to Reply
    20. John Williamson

      With CGM I am able to deal with a low before I get shaking sweating and confusion that used to be common symptoms.

      4
      4 years ago Log in to Reply
    21. cynthia jaworski

      Along with shakiness, etc, I find I cannot process numbers. This happened to me in the middle of my GRE exam — I realized I had been on the same math question for 15 minutes. Language is slower to go, but I lose my articulateness in speech. And I am likely to burst into tears if I try to communicate.

      4
      4 years ago Log in to Reply
      1. Jneticdiabetic

        I’ve experienced all listed at some point, except nausea. However must I no longer sense. I marked the ones I most frequently experience now, but it’s not consistent. Headache is usually a post hypo symptom for me that can last a while afterwards.

        1
        4 years ago Log in to Reply
      2. Janis Senungetuk

        I’ve been unaware of any symptoms, lows or highs, for more than a decade. Cynthia Jaworski mentioned the inability to process numbers, experiencing a low in the middle of taking a GRE. I also had a low while taking that exam, a very frightening experience.

        2
        4 years ago Log in to Reply
    22. TEH

      As John W states, I can usually catch my BG dropping with CGM. I can avoid most symptoms other than Hunger. I had large hunger pangs and became “hangry” when I was a kid and pre-T1D

      4 years ago Log in to Reply
    23. Becky Hertz

      Once again, I have hypoglycemic unawareness so I don’t frequently experience any symptoms of hypoglycemia.

      4 years ago Log in to Reply
    24. Edward Geary

      When I feel anything, largely a symptomatic until BS drops below 70. Consequently, CGM is set to alarm at 85. When I do go low, the recovery time and rebound takes up to several hours.

      4 years ago Log in to Reply
      1. Shelly Smith

        I don’t understand the reason for delayed recovery, but I have found one of the foods that brings me up the fastest of all is plain ol’ grapes. That fruit seems to accomplish recovery for me even faster than glucose tabs. Best wishes and happy holidays to you!

        4 years ago Log in to Reply
    25. Karen Maffucci

      Sometimes after a very low event my mouth and lips feel numb and tingle. But that’s after I’ve treated the hypoglycemia

      4 years ago Log in to Reply
    26. Kim Murphy

      I usually do not know when my sugar is low until it gets to 20 and by then I usually an having convulsions. I am so thankful to have the dex com although occasionally it malfunctions and I don’t get an alert until it is too late and I need help from someone or the paramedics.

      4 years ago Log in to Reply
    27. Molly Jones

      My first feeling is hunger. If my blood sugar continues to drop, my head feels somehow cut off from the rest of my body, like I’m suffocating but different than dizzy. If it continues, some of the other symptoms come on besides irritation, nausea, fast heartbeat or sweating.

      4 years ago Log in to Reply
    28. Jillmarie61

      I don’t usually experience any before symptoms of a hypo, except maybe I’m extremely cold depending on how low I am. (I was diagnosed with autonomic neuropathy and have a hard time regulating my body temperature.) But as my bg rises I start sweating immensely. I haven’t really had many symptoms in years. But I also do tend to be extremely hungry when treating it and can easily overeat. Afterwards I usually jump into a very hot shower to bring up my body temperature back up.

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        I do that hot shower thing too to deal with the shivers from sweating and cold chills after a hypo episode.

        4 years ago Log in to Reply
    29. ConnieT1D62

      Several of the above in addition to that “sinking” feeling that others have mentioned.

      4 years ago Log in to Reply
    30. Cheryl Seibert

      I have nearly all the symptoms listed, except headache and nausea. Symptoms not listed that I experience are, 1) an ‘odd’ feeling just below/around my eyes… kind of a tingling, but more of a slight pressure. I normally talk very fast (type A personality), but during hypoglycemia, my speech speed doubles and my thoughts go very, very fast. I solve more complex problems when my BG is 50-70. I go into Energizer Bunny mode. Once below 50, then frustration, aggravation and confusion set in.

      4 years ago Log in to Reply
    31. persevereT1D52

      After 52 years it is interesting how the feelings change. I used to always get a cold nose first lol. During the pandemic I have had worsening depression and anxiety. And strangely, as my BS drops I have developed scary anxiety and dread and am flooded with very intense fear. It’s a huge relief when BS comes up and they calm down.

      4 years ago Log in to Reply
    32. Wanacure

      When I was on beef/pork insulin injections, the symptoms were more pronounced. Today on GMO insulin’s like lispro and glargine, symptoms are not so obvious. If bg test confirms going low, I take 3 sugar cubes (12 grams sugar). Wait 15’ and test again. If exercising, be prepared to lower insulin doses before and after. I used to eat one half.cinnamon bagel (1.5 oz) before jogging 3 miles or swimming laps for 40’. Then I’d eat the remaining 1.5 oz immediately after. Plus reduced insulin. Worked pretty well. You might try Luna Bars or similar bars. Convenient, don’t need refrigeration. Look for a bar with protein, with fat, and complex carbs with fiber. A bar with over 230 calories is too much for me.

      4 years ago Log in to Reply

    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series) Cancel reply

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