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    • 5 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 5 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 5 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 6 hours, 25 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 6 hours, 31 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 6 hours, 31 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 6 hours, 31 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 6 hours, 35 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 6 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 6 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 6 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 6 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 6 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 6 hours, 57 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 58 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 7 hours, 18 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 7 hours, 26 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 7 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 7 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 7 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 7 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 7 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 7 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    What is the symptom you most often notice first when you’re starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)

    Home > LC Polls > What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)
    Previous

    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)

    Next

    When you are beginning to experience hypoglycemia, do you consistently have a particular symptom or set of symptoms that signal the start of a low to you? (This is part 1 of a 3-day understanding hypoglycemia series – check back tomorrow and Monday for days 2 and 3!)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    33 Comments

    1. Becky Hertz

      I have some hypoglycemic unawareness so don’t always have any symptoms and if I do it’s more of a “hmmm…I feel weird” but nothing specific

      2
      1 year ago Log in to Reply
    2. Janice B

      I experience more than one symptom at a time.

      1 year ago Log in to Reply
    3. Leon Ullrich

      I have had “diabetes unawareness” for many years in my 75 years with Type One.

      2
      1 year ago Log in to Reply
      1. Joan Fray

        Amazing! 75 years! Do you know anyone who’s had it longer than you? My puny 60 years is nothing in comparison! congratulations and stay well .

        1
        1 year ago Log in to Reply
    4. Leon Ullrich

      My wife is the best monitor that I have.

      1
      1 year ago Log in to Reply
    5. Mick Martin

      Further to the response I offered yesterday, the first symptom that I USUALLY experience is when I’m ‘coming round’ after being given a Glucagen injection. I can usually feel where I’ve been injected.

      1 year ago Log in to Reply
    6. james zellerhoff

      Feeling the “low”
      Hard to explain

      4
      1 year ago Log in to Reply
    7. Chrisanda

      By the time I feel the clamminess, I’m pretty low-low 50s. Until then I don’t have any symptoms. I had good symptoms (shakiness, irritability) for the first 15 years, now, Nada. My pump /CGM alarm is my first alert.

      1 year ago Log in to Reply
    8. RegMunro

      I’m very slow to notice hypos and before CGM would quite often almost pass out, eg watching TV. My wife would get me going. I’ve been T1D since 1965 so am insensitive to symptoms

      1 year ago Log in to Reply
    9. Kevin McCue

      I put confusion but it’s more of an uneasiness like somethings wrong but I’m not able to put my finger on it. Usually it happens 10 minutes before my Dexcom reflects it. Finger stick is usually close to CGM so it doesn’t show there either. If I don’t pay attention to the uneasy then it transitions into inability to maintain focus.

      4
      1 year ago Log in to Reply
    10. Lawrence S.

      Sometimes it’s fatigue and weakness, Sometimes lightheadedness. Occasionally, when it’s a fast drop in BG, I get no warning. But, most of the time, I catch it by recognizing the symptoms. On a similar note, I went for a very long period, maybe 20-30 years without early symptoms. Then for no apparent reason, several years ago, I started getting warning as noted above. I think that for many years I was so busy at work and home, that I did not focus on my warning signs. Now that I am retired, I seem to pick up the warning signs, most of the time.

      1 year ago Log in to Reply
    11. ConnieT1D62

      Other symptom not listed above. As I noted in yesterday’s QoD answer I get a “sinking feeling” that is hard to precisely describe. I supposed it can include bits & pieces of many of the signs and symptoms listed above. However, the first symptom I tend to notice is a sinking sensation – as if my inner awareness is descending down an elevator shaft. I have hypoglycemia unawareness so the BG may be at 72 or 64 or 50 before I actually manifest any of the more overt physical symptoms.

      I am forever grateful and thank goodness for Dexcom!!! It has been a saving grace for several years!

      8
      1 year ago Log in to Reply
      1. Ahh Life

        I hate to over-exaggerate what you so carefully say, but I too experience the walls caving in. Sort of like that old Edgar Alan Poe movie where the walls move in. Only, as the walls get closer, they’re more like the marshmallow man softly enveloping me as I sink in. ( ͡> ⍨ ͡<)

        1 year ago Log in to Reply
      2. Tracy Jean

        I get this feeling too. Thanks for explaining it.

        1 year ago Log in to Reply
      3. Jneticdiabetic

        Yes, me too. This description stood out to me yesterday too. Good description of an imprecise symptom that it seems a number of us can relate to. Thanks for articulating it! 👍

        1 year ago Log in to Reply
      4. n6jax@scinternet.net

        Sweet Charlie says Me also…

        1 year ago Log in to Reply
    12. Tod Herman

      Almost all of those symptoms on the list I have experienced. But, like many others, after having T1D for over 40 years the lows have become less noticable. But after I recover, I usually just need a nap.

      3
      1 year ago Log in to Reply
    13. Amanda Barras

      Hunger and/or sleepiness. Those are my top 2.

      1 year ago Log in to Reply
    14. Mark Schweim

      Most common first symptom I used to notice was numbness and tingling around and in my mouth, but for the past decade, I only very rarely notice any symptoms and feel nearly identical whether my BG is in the 40s, 140s, or 300s.

      1
      1 year ago Log in to Reply
    15. Sue Martin

      I stopped having consistent symptoms years ago and was very glad to get a DGM. It has saved me many times when I can’t feel what is going on with my blood sugar levels. I love my DexCom.

      1 year ago Log in to Reply
    16. Patricia Dalrymple

      I just feel “off”, not how I usually feel. None of those symptoms. Just not right.

      1
      1 year ago Log in to Reply
      1. AnitaS

        That is probably how I feel, which I described as “uncomfortable”.

        1 year ago Log in to Reply
    17. Pauline M Reynolds

      Sometimes I feel a “sensation” come over my body; sometimes I suddenly feel “nervous”. Sometimes I start to feel sweaty, which means it went too far at that point and will be under 60.

      1 year ago Log in to Reply
    18. Marie Cardinell-Daldry

      I SAID COORDINATION OR CLUMSINESS BUT THIS CAN CHANGE EACH TIME. SOME TIMES I WON’T HAVE SYMPTOMS BUT MY DEXCOM WILL START BEEPING UNCONTROLLABLY AND I FIND THAT I’M DOWN TO 50 OR LOWER OR MY HUSBAND WILL BE MORE AWARE I NEED HELP

      1 year ago Log in to Reply
    19. Stephen Woodward

      Not sure why there not listed, but before any of these listed symptoms appear there are a few warning sings I mwartch out for. #1 is dexterity, I.e., fumble fingers, #2 I memory recall becomes obstructed. Both of these symptoms are talked o out when talking to others and subside quite rapidly as bg rises. These symptoms start before any of the hypo symptom listed as choices.

      1 year ago Log in to Reply
    20. Mig Vascos

      Light flashes but this is only if my sugar is dropping fast and below 45.

      1 year ago Log in to Reply
    21. Mary Ann Sayers

      I usually don’t have symptoms, but I’ve noticed a feeling of “ease” or lessening of bg if that makes sense to anyone? when having a reaction. Only a T1D can possibly understand what I’m saying!

      1
      1 year ago Log in to Reply
    22. Karen Maffucci

      My symptoms change quite frequently. It’s not a consistent one symptom or another.

      1 year ago Log in to Reply
    23. Jneticdiabetic

      It varies on the nature of low & rate of drop. I put fatigue/weakness because I think this (or a “sinking feeling” as someone aptly described it yesterday), is the symptom I most commonly detect. Often don’t notice until this point. However, sometimes it’s rapid heart rate. Sometimes hunger and irritability. Sometimes all of the above, others none at all.

      1 year ago Log in to Reply
    24. n6jax@scinternet.net

      confusion

      1 year ago Log in to Reply
    25. AnitaS

      I feel uncomfortable. Not shaky, but uncomfortable. I want to get rid of the feeling a.s.a.p.

      1 year ago Log in to Reply
    26. Cheryl Seibert

      First, I get that strange numb/tingling/slight pressure feeling below my eyes.

      1 year ago Log in to Reply
    27. Jen Smith

      I checked numerous symptoms but they aren’t all present every time. I don’t know what causes them to be different although some are obviously (to me) a result of more severe lows. The very subtle symptoms I get early on in the drop in BG is a major blessing to still have after almost 50 years of T1D and it’s very difficult to describe. But if I have to categorize it, it’s a mix of very subtle shakiness deep in my upper body.

      1 year ago Log in to Reply

    What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!) Cancel reply

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