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    • 19 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 3 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 26 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 23 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 46 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 48 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 49 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 49 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 58 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 50 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 51 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 53 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)

    Home > LC Polls > Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)
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    What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. HMW

      One of my other symptoms that is not listed is anxious thoughts and paranoia.

      4 years ago Log in to Reply
    2. Marina Kurkov

      Uncomfortable feeling in the gut…I know what’s coming and must react before it gets worse.

      1
      4 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      I have a gut feeling and know it is hypoglycemia and usually being irritable goes with it.

      1
      4 years ago Log in to Reply
    4. Henry Renn

      65.5 yrs T1. Reviewing this list I realize that I experience more than one of the list as 1st sign. Primarily had shakiness/weakness as a child but primary sx multiplied as adult.

      4 years ago Log in to Reply
    5. Mick Martin

      Although I selected “I do not experience any symptoms of hypoglycemia”, as I have done over the last few days of this farce, that is not strictly true. I SOMETIMES feel when I’m about to collapse.

      4 years ago Log in to Reply
    6. Kathy Hanavan

      The feeling is hard to describe and I am not sure in our language we have an exact word, but it feels like something bad is impending and I am on alert along with some other vague symptoms to start.

      2
      4 years ago Log in to Reply
      1. Judy Hampton

        That is the way I feel. It is quite scary and I immediately treat the problem.

        2
        4 years ago Log in to Reply
      2. Ahh Life

        Our language may not, but staring at Picasso’s Guernica for 20-30 minutes certainly does! 😱

        2
        4 years ago Log in to Reply
    7. AnitaS

      I put “other”. I just feel uncomfortable. Not shaky, but just “uncomfortable”

      1
      4 years ago Log in to Reply
    8. Jane Cerullo

      Thankfully I have hypoglycemia awareness. I know if going low. Also have CGM and check my numbers a lot. Very few episodes of hypo or hyper. If I do I correct immediately

      1
      4 years ago Log in to Reply
    9. M Fedor

      I didn’t think of this before reading the other comments, but dread and anxiety are definitely part of the experience for me.

      3
      4 years ago Log in to Reply
    10. Gina Lucero

      Shortness of breath

      4 years ago Log in to Reply
    11. Trish Seidle

      I don’t always notice any symptoms until my B’s is extremely low. However, recently I have been noticing a new symptom. If I have an upset stomach, usually it means that my bs is dropping.

      4 years ago Log in to Reply
    12. Brett Jorgensen

      Tingling lips is one of my prominent signs

      1
      4 years ago Log in to Reply
      1. Miriam Gordon

        I used to have that decades ago. No more. Never saw that listed anywhere so thanks for the confirmation.

        4 years ago Log in to Reply
    13. Hieromonk Alexis

      I lost all of the usual physical symptoms years ago, other than an inability to stand up. There’s always confusion, an inability to figure things out, but I don’t recognize it as a symptom at the time.

      4 years ago Log in to Reply
    14. Patricia Kilwein

      After having a low and dealing with it, I am exhausted and need to sleep.

      3
      4 years ago Log in to Reply
    15. Lloyd Lowe

      I answered that I feel all of those symptoms plus others. However, because I am usually hypoglycemicly unaware, I know these only because others tell me so.

      4 years ago Log in to Reply
    16. M C

      As I, and others, responded to the last related question, there is an ‘odd’ feeling within, when the BG is getting lower, that is hard to describe otherwise. When the BG is below 50 (3 mmol/L), often my tongue and lips become numb. Overheating is one that pops up about 3 out of 5 times – so, not consistently. None of my ‘symptoms’ happen each and every time, thus the need to check the BG when any show up…. And sometimes they are for the opposite problem – a high BG. I used to only feel nauseated when my BG was high…. now it occurs when my BG is extremely low, making it next to impossible to chew and swallow glucose tabs (I have to fight not to throw up with those)…. I need to ensure I have either juice, soda, or fast dissolving candy at hand, as they seem more easily acceptable when feeling this way. Also, when my BG is below 30, my sight can seem to go to black out. I haven’t passed out, but my eyes aren’t seeing – it’s as if my eyes are closed, which they aren’t. [Perhaps it is because I have been dealing with these issues for almost 45 years that the body just throws any reaction my way these days to try and gain my attention!]

      4 years ago Log in to Reply
    17. CandyM

      I think my first indication and most common symptom of a low is a sinking feeling in my whole body. Almost as though I can feel the glucose draining out of my muscles and then I get clumsy. If it is very low I also notice that any light seems extremely bright (almost like snow-blindness) and therefore I can’t see things clearly. I am often hot or sweaty when it is low, but after I recover from a low that reached the 40s, I have a bone deep cold that makes me shake and shiver for some moments after BG is back in normal ranges.

      2
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Ohhh. I forgot about the blindness, because that happens to me only if I am in the 30-range which luckily is a rare occurrence.

        1
        4 years ago Log in to Reply
      2. ConnieT1D62

        Candy M – Pretty good description of what I experience too.

        1
        4 years ago Log in to Reply
      3. persevereT1D52

        CandyM It’s unusual that I have the same symptoms as someone else because they seem to be different that others. The extreme bright light is a circle in the center of my vision, and I had trouble describing the overall feeling but you did it perfectly “sinking” clumsy, weak and the cold comes as I recover.

        4 years ago Log in to Reply
    18. Lawrence S.

      I’ve experience many of those listed and those written about by others here. One odd thing that happens to me sometimes is my vision becomes very narrow, like I lose peripheral vision. Also, I get a large black spot in the middle of my vision, as though there is a hole in the middle of my retina.

      4 years ago Log in to Reply
    19. Amy Jo

      Nausea is an interesting one – I did not include it in my answer because I don’t have it frequently, but I do usually experience nausea if I’m low while riding in a car.

      4 years ago Log in to Reply
    20. John Williamson

      With CGM I am able to deal with a low before I get shaking sweating and confusion that used to be common symptoms.

      4
      4 years ago Log in to Reply
    21. cynthia jaworski

      Along with shakiness, etc, I find I cannot process numbers. This happened to me in the middle of my GRE exam — I realized I had been on the same math question for 15 minutes. Language is slower to go, but I lose my articulateness in speech. And I am likely to burst into tears if I try to communicate.

      4
      4 years ago Log in to Reply
      1. Jneticdiabetic

        I’ve experienced all listed at some point, except nausea. However must I no longer sense. I marked the ones I most frequently experience now, but it’s not consistent. Headache is usually a post hypo symptom for me that can last a while afterwards.

        1
        4 years ago Log in to Reply
      2. Janis Senungetuk

        I’ve been unaware of any symptoms, lows or highs, for more than a decade. Cynthia Jaworski mentioned the inability to process numbers, experiencing a low in the middle of taking a GRE. I also had a low while taking that exam, a very frightening experience.

        2
        4 years ago Log in to Reply
    22. TEH

      As John W states, I can usually catch my BG dropping with CGM. I can avoid most symptoms other than Hunger. I had large hunger pangs and became “hangry” when I was a kid and pre-T1D

      4 years ago Log in to Reply
    23. Becky Hertz

      Once again, I have hypoglycemic unawareness so I don’t frequently experience any symptoms of hypoglycemia.

      4 years ago Log in to Reply
    24. Edward Geary

      When I feel anything, largely a symptomatic until BS drops below 70. Consequently, CGM is set to alarm at 85. When I do go low, the recovery time and rebound takes up to several hours.

      4 years ago Log in to Reply
      1. Shelly Smith

        I don’t understand the reason for delayed recovery, but I have found one of the foods that brings me up the fastest of all is plain ol’ grapes. That fruit seems to accomplish recovery for me even faster than glucose tabs. Best wishes and happy holidays to you!

        4 years ago Log in to Reply
    25. Karen Maffucci

      Sometimes after a very low event my mouth and lips feel numb and tingle. But that’s after I’ve treated the hypoglycemia

      4 years ago Log in to Reply
    26. Kim Murphy

      I usually do not know when my sugar is low until it gets to 20 and by then I usually an having convulsions. I am so thankful to have the dex com although occasionally it malfunctions and I don’t get an alert until it is too late and I need help from someone or the paramedics.

      4 years ago Log in to Reply
    27. Molly Jones

      My first feeling is hunger. If my blood sugar continues to drop, my head feels somehow cut off from the rest of my body, like I’m suffocating but different than dizzy. If it continues, some of the other symptoms come on besides irritation, nausea, fast heartbeat or sweating.

      4 years ago Log in to Reply
    28. Jillmarie61

      I don’t usually experience any before symptoms of a hypo, except maybe I’m extremely cold depending on how low I am. (I was diagnosed with autonomic neuropathy and have a hard time regulating my body temperature.) But as my bg rises I start sweating immensely. I haven’t really had many symptoms in years. But I also do tend to be extremely hungry when treating it and can easily overeat. Afterwards I usually jump into a very hot shower to bring up my body temperature back up.

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        I do that hot shower thing too to deal with the shivers from sweating and cold chills after a hypo episode.

        4 years ago Log in to Reply
    29. ConnieT1D62

      Several of the above in addition to that “sinking” feeling that others have mentioned.

      4 years ago Log in to Reply
    30. Cheryl Seibert

      I have nearly all the symptoms listed, except headache and nausea. Symptoms not listed that I experience are, 1) an ‘odd’ feeling just below/around my eyes… kind of a tingling, but more of a slight pressure. I normally talk very fast (type A personality), but during hypoglycemia, my speech speed doubles and my thoughts go very, very fast. I solve more complex problems when my BG is 50-70. I go into Energizer Bunny mode. Once below 50, then frustration, aggravation and confusion set in.

      4 years ago Log in to Reply
    31. persevereT1D52

      After 52 years it is interesting how the feelings change. I used to always get a cold nose first lol. During the pandemic I have had worsening depression and anxiety. And strangely, as my BS drops I have developed scary anxiety and dread and am flooded with very intense fear. It’s a huge relief when BS comes up and they calm down.

      4 years ago Log in to Reply
    32. Wanacure

      When I was on beef/pork insulin injections, the symptoms were more pronounced. Today on GMO insulin’s like lispro and glargine, symptoms are not so obvious. If bg test confirms going low, I take 3 sugar cubes (12 grams sugar). Wait 15’ and test again. If exercising, be prepared to lower insulin doses before and after. I used to eat one half.cinnamon bagel (1.5 oz) before jogging 3 miles or swimming laps for 40’. Then I’d eat the remaining 1.5 oz immediately after. Plus reduced insulin. Worked pretty well. You might try Luna Bars or similar bars. Convenient, don’t need refrigeration. Look for a bar with protein, with fat, and complex carbs with fiber. A bar with over 230 calories is too much for me.

      4 years ago Log in to Reply

    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series) Cancel reply

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