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    • 5 hours, 4 minutes ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 15 hours, 46 minutes ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 15 hours, 46 minutes ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 23 hours, 16 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 23 hours, 16 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 23 hours, 16 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 23 hours, 16 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 4 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 1 day, 6 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 19 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 21 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 2 days ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 2 days ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 2 days, 3 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 2 days, 3 hours ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
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    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)

    Home > LC Polls > Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)
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    What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. HMW

      One of my other symptoms that is not listed is anxious thoughts and paranoia.

      4 years ago Log in to Reply
    2. Marina Kurkov

      Uncomfortable feeling in the gut…I know what’s coming and must react before it gets worse.

      1
      4 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      I have a gut feeling and know it is hypoglycemia and usually being irritable goes with it.

      1
      4 years ago Log in to Reply
    4. Henry Renn

      65.5 yrs T1. Reviewing this list I realize that I experience more than one of the list as 1st sign. Primarily had shakiness/weakness as a child but primary sx multiplied as adult.

      4 years ago Log in to Reply
    5. Mick Martin

      Although I selected “I do not experience any symptoms of hypoglycemia”, as I have done over the last few days of this farce, that is not strictly true. I SOMETIMES feel when I’m about to collapse.

      4 years ago Log in to Reply
    6. Kathy Hanavan

      The feeling is hard to describe and I am not sure in our language we have an exact word, but it feels like something bad is impending and I am on alert along with some other vague symptoms to start.

      2
      4 years ago Log in to Reply
      1. Judy Hampton

        That is the way I feel. It is quite scary and I immediately treat the problem.

        2
        4 years ago Log in to Reply
      2. Ahh Life

        Our language may not, but staring at Picasso’s Guernica for 20-30 minutes certainly does! 😱

        2
        4 years ago Log in to Reply
    7. AnitaS

      I put “other”. I just feel uncomfortable. Not shaky, but just “uncomfortable”

      1
      4 years ago Log in to Reply
    8. Jane Cerullo

      Thankfully I have hypoglycemia awareness. I know if going low. Also have CGM and check my numbers a lot. Very few episodes of hypo or hyper. If I do I correct immediately

      1
      4 years ago Log in to Reply
    9. M Fedor

      I didn’t think of this before reading the other comments, but dread and anxiety are definitely part of the experience for me.

      3
      4 years ago Log in to Reply
    10. Gina Lucero

      Shortness of breath

      4 years ago Log in to Reply
    11. Trish Seidle

      I don’t always notice any symptoms until my B’s is extremely low. However, recently I have been noticing a new symptom. If I have an upset stomach, usually it means that my bs is dropping.

      4 years ago Log in to Reply
    12. Brett Jorgensen

      Tingling lips is one of my prominent signs

      1
      4 years ago Log in to Reply
      1. Miriam Gordon

        I used to have that decades ago. No more. Never saw that listed anywhere so thanks for the confirmation.

        4 years ago Log in to Reply
    13. Hieromonk Alexis

      I lost all of the usual physical symptoms years ago, other than an inability to stand up. There’s always confusion, an inability to figure things out, but I don’t recognize it as a symptom at the time.

      4 years ago Log in to Reply
    14. Patricia Kilwein

      After having a low and dealing with it, I am exhausted and need to sleep.

      3
      4 years ago Log in to Reply
    15. Lloyd Lowe

      I answered that I feel all of those symptoms plus others. However, because I am usually hypoglycemicly unaware, I know these only because others tell me so.

      4 years ago Log in to Reply
    16. M C

      As I, and others, responded to the last related question, there is an ‘odd’ feeling within, when the BG is getting lower, that is hard to describe otherwise. When the BG is below 50 (3 mmol/L), often my tongue and lips become numb. Overheating is one that pops up about 3 out of 5 times – so, not consistently. None of my ‘symptoms’ happen each and every time, thus the need to check the BG when any show up…. And sometimes they are for the opposite problem – a high BG. I used to only feel nauseated when my BG was high…. now it occurs when my BG is extremely low, making it next to impossible to chew and swallow glucose tabs (I have to fight not to throw up with those)…. I need to ensure I have either juice, soda, or fast dissolving candy at hand, as they seem more easily acceptable when feeling this way. Also, when my BG is below 30, my sight can seem to go to black out. I haven’t passed out, but my eyes aren’t seeing – it’s as if my eyes are closed, which they aren’t. [Perhaps it is because I have been dealing with these issues for almost 45 years that the body just throws any reaction my way these days to try and gain my attention!]

      4 years ago Log in to Reply
    17. CandyM

      I think my first indication and most common symptom of a low is a sinking feeling in my whole body. Almost as though I can feel the glucose draining out of my muscles and then I get clumsy. If it is very low I also notice that any light seems extremely bright (almost like snow-blindness) and therefore I can’t see things clearly. I am often hot or sweaty when it is low, but after I recover from a low that reached the 40s, I have a bone deep cold that makes me shake and shiver for some moments after BG is back in normal ranges.

      2
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Ohhh. I forgot about the blindness, because that happens to me only if I am in the 30-range which luckily is a rare occurrence.

        1
        4 years ago Log in to Reply
      2. ConnieT1D62

        Candy M – Pretty good description of what I experience too.

        1
        4 years ago Log in to Reply
      3. persevereT1D52

        CandyM It’s unusual that I have the same symptoms as someone else because they seem to be different that others. The extreme bright light is a circle in the center of my vision, and I had trouble describing the overall feeling but you did it perfectly “sinking” clumsy, weak and the cold comes as I recover.

        4 years ago Log in to Reply
    18. Lawrence S.

      I’ve experience many of those listed and those written about by others here. One odd thing that happens to me sometimes is my vision becomes very narrow, like I lose peripheral vision. Also, I get a large black spot in the middle of my vision, as though there is a hole in the middle of my retina.

      4 years ago Log in to Reply
    19. Amy Jo

      Nausea is an interesting one – I did not include it in my answer because I don’t have it frequently, but I do usually experience nausea if I’m low while riding in a car.

      4 years ago Log in to Reply
    20. John Williamson

      With CGM I am able to deal with a low before I get shaking sweating and confusion that used to be common symptoms.

      4
      4 years ago Log in to Reply
    21. cynthia jaworski

      Along with shakiness, etc, I find I cannot process numbers. This happened to me in the middle of my GRE exam — I realized I had been on the same math question for 15 minutes. Language is slower to go, but I lose my articulateness in speech. And I am likely to burst into tears if I try to communicate.

      4
      4 years ago Log in to Reply
      1. Jneticdiabetic

        I’ve experienced all listed at some point, except nausea. However must I no longer sense. I marked the ones I most frequently experience now, but it’s not consistent. Headache is usually a post hypo symptom for me that can last a while afterwards.

        1
        4 years ago Log in to Reply
      2. Janis Senungetuk

        I’ve been unaware of any symptoms, lows or highs, for more than a decade. Cynthia Jaworski mentioned the inability to process numbers, experiencing a low in the middle of taking a GRE. I also had a low while taking that exam, a very frightening experience.

        2
        4 years ago Log in to Reply
    22. TEH

      As John W states, I can usually catch my BG dropping with CGM. I can avoid most symptoms other than Hunger. I had large hunger pangs and became “hangry” when I was a kid and pre-T1D

      4 years ago Log in to Reply
    23. Becky Hertz

      Once again, I have hypoglycemic unawareness so I don’t frequently experience any symptoms of hypoglycemia.

      4 years ago Log in to Reply
    24. Edward Geary

      When I feel anything, largely a symptomatic until BS drops below 70. Consequently, CGM is set to alarm at 85. When I do go low, the recovery time and rebound takes up to several hours.

      4 years ago Log in to Reply
      1. Shelly Smith

        I don’t understand the reason for delayed recovery, but I have found one of the foods that brings me up the fastest of all is plain ol’ grapes. That fruit seems to accomplish recovery for me even faster than glucose tabs. Best wishes and happy holidays to you!

        4 years ago Log in to Reply
    25. Karen Maffucci

      Sometimes after a very low event my mouth and lips feel numb and tingle. But that’s after I’ve treated the hypoglycemia

      4 years ago Log in to Reply
    26. Kim Murphy

      I usually do not know when my sugar is low until it gets to 20 and by then I usually an having convulsions. I am so thankful to have the dex com although occasionally it malfunctions and I don’t get an alert until it is too late and I need help from someone or the paramedics.

      4 years ago Log in to Reply
    27. Molly Jones

      My first feeling is hunger. If my blood sugar continues to drop, my head feels somehow cut off from the rest of my body, like I’m suffocating but different than dizzy. If it continues, some of the other symptoms come on besides irritation, nausea, fast heartbeat or sweating.

      4 years ago Log in to Reply
    28. Jillmarie61

      I don’t usually experience any before symptoms of a hypo, except maybe I’m extremely cold depending on how low I am. (I was diagnosed with autonomic neuropathy and have a hard time regulating my body temperature.) But as my bg rises I start sweating immensely. I haven’t really had many symptoms in years. But I also do tend to be extremely hungry when treating it and can easily overeat. Afterwards I usually jump into a very hot shower to bring up my body temperature back up.

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        I do that hot shower thing too to deal with the shivers from sweating and cold chills after a hypo episode.

        4 years ago Log in to Reply
    29. ConnieT1D62

      Several of the above in addition to that “sinking” feeling that others have mentioned.

      4 years ago Log in to Reply
    30. Cheryl Seibert

      I have nearly all the symptoms listed, except headache and nausea. Symptoms not listed that I experience are, 1) an ‘odd’ feeling just below/around my eyes… kind of a tingling, but more of a slight pressure. I normally talk very fast (type A personality), but during hypoglycemia, my speech speed doubles and my thoughts go very, very fast. I solve more complex problems when my BG is 50-70. I go into Energizer Bunny mode. Once below 50, then frustration, aggravation and confusion set in.

      4 years ago Log in to Reply
    31. persevereT1D52

      After 52 years it is interesting how the feelings change. I used to always get a cold nose first lol. During the pandemic I have had worsening depression and anxiety. And strangely, as my BS drops I have developed scary anxiety and dread and am flooded with very intense fear. It’s a huge relief when BS comes up and they calm down.

      4 years ago Log in to Reply
    32. Wanacure

      When I was on beef/pork insulin injections, the symptoms were more pronounced. Today on GMO insulin’s like lispro and glargine, symptoms are not so obvious. If bg test confirms going low, I take 3 sugar cubes (12 grams sugar). Wait 15’ and test again. If exercising, be prepared to lower insulin doses before and after. I used to eat one half.cinnamon bagel (1.5 oz) before jogging 3 miles or swimming laps for 40’. Then I’d eat the remaining 1.5 oz immediately after. Plus reduced insulin. Worked pretty well. You might try Luna Bars or similar bars. Convenient, don’t need refrigeration. Look for a bar with protein, with fat, and complex carbs with fiber. A bar with over 230 calories is too much for me.

      4 years ago Log in to Reply

    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series) Cancel reply

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