Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.

    Home > LC Polls > Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.
    Previous

    Have you participated in a diabetes-related advocacy effort (I.e., calling your elected officials, meeting with representatives, etc.)?  If you have, share your experience in the comments.

    Next

    If you had to pick one person, who is the person you turn to most for support with your diabetes?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 days ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    36 Comments

    1. Kristen Clifford

      I don’t remember the exact circumstances that led to it, but in 2014, I had a root canal. That’s probably the worst dental issue I’ve had since my T1D diagnosis in 2008.

      3 years ago Log in to Reply
    2. Nevin Bowman

      Trigger finger, frozen shoulder

      3
      3 years ago Log in to Reply
    3. Brent Perris

      Only oral problems I’ve had are a multitude of cavities

      3 years ago Log in to Reply
    4. Bob Durstenfeld

      I experienced receding gums and had to have a gum graft. It was one of the most barbaric medical expenses of my life.

      2
      3 years ago Log in to Reply
      1. mojoseje

        I think I’m going to need this. Is it truly horrible? I think I’d rather have the teeth pulled.

        3 years ago Log in to Reply
    5. Joan McGinnis

      two root canals after 30 yrs with T1D, but have always
      had cavities in my non- diabetic child life (no Floride in water then) After 38 yrs, osteoporosis which may contribute to having to have a couple teeth pulled which already had crowns for years.

      2
      3 years ago Log in to Reply
    6. Ken Raiche

      Not to sure if these issues were brought on due to my T1D. In the last 40 years 2 root canals, receding gums (brushing to hard or not using a soft bristle tooth brush), arthritis and recently misdiagnosed strept throat which was actually oral thrush (what a pain).

      1
      3 years ago Log in to Reply
    7. Mary Thrall

      Oral lichen planus – who ever heard of that?

      3 years ago Log in to Reply
    8. Eva

      I have had 2 root canals. One of which did not take and the molar needed to be pulled out. I have had a gum graft to correct receding gums from brushing to hard.

      1
      3 years ago Log in to Reply
    9. Rosemary Staszko

      I was diagnosed with oral lichen planus. Don’t know if it’s related to the diabetes or not but it’s an autoimmune disease. Anyone else out there have this condition too?

      3 years ago Log in to Reply
      1. AnitaS

        Mary Thrall, in a comment below, stated the same problem.

        3 years ago Log in to Reply
    10. mojoseje

      I have had good luck except for receding gums.

      2
      3 years ago Log in to Reply
    11. Edward Geary

      Inflamed gums

      1
      3 years ago Log in to Reply
    12. AnitaS

      My dentist never said I had a dry mouth, but he always reminded me to drink water.

      3 years ago Log in to Reply
    13. Tom Caesar

      Maybe receding gums is all?

      2
      3 years ago Log in to Reply
    14. Janis Senungetuk

      Of the issues listed: Oral thrush and Gingivitis. Over the years I’ve had 4 root canals and am now ‘recovering’ from recent periodontal deep cleaning to evaluate what can be saved.

      3 years ago Log in to Reply
    15. Joan Fray

      Just dry mouth. For about a year. But it went away. Who knows why…………..!

      3 years ago Log in to Reply
    16. HMW

      Gingival recession (from grinding) which required a graft.

      1
      3 years ago Log in to Reply
      1. KarenM6

        Hi HMW –
        I didn’t know gingival recession could be caused by grinding. This is definitely something for me to keep in mind!

        1
        3 years ago Log in to Reply
      2. KarenM6

        Oh! I forgot to say, my teeth have also shifted a lot because of the grinding.
        I wish I hadn’t _just_ seen my dentist so that I could ask him about this!!

        3 years ago Log in to Reply
      3. HMW

        @KarenM6 – it is not the only cause, of course, but my dentist immediately (when I first started seeing him) made me a mouth guard to wear at night and it has reduced my gingival recession progression significantly.

        3
        3 years ago Log in to Reply
      4. KarenM6

        Thank you, HMW!

        3 years ago Log in to Reply
    17. Donna Condi

      I have been diagnosed twice for receding gums.

      3 years ago Log in to Reply
    18. Mary Thomson

      Oral Lichen Planus

      3 years ago Log in to Reply
    19. KarenM6

      Recession
      Bruxism – in which I broke teeth and caused 4 or so crowns. Just had the grinding tested and the dentist said it was one of the worst she’d seen.
      I also did some laser therapy in my mouth for sleep apnea – the resulting tightening of the tissues should help open my airways.

      3 years ago Log in to Reply
    20. Becky Hertz

      Thrush a couple of times. Also pockets requiring occasional deep cleaning.

      3 years ago Log in to Reply
    21. Carol Meares

      Dry mouth and gum recession due to dry mouth

      1
      3 years ago Log in to Reply
    22. Ms Cris

      Once the dental issues started occuring, in the couple years after my T1D diagnosis, my ophthalmologist noted extremely dry eyes ..turned out I also have UCTD (undifferentiated connective tissue disease) leaning toward Sjogrens Syndrome. I now get 3 cleanings per year, plus floss/waterfloss 3X/day, brush 2X/day, rinse with biotene 4X/day, and chug water. I finally celebrated 1 full year of no gum or decay issues! (Dx T 1D 6 years ago, UCTD/SS 3 years ago)

      3
      3 years ago Log in to Reply
      1. Anna Kiff

        Interesting on the diagnosis – because I have no GP – I’m a lone ranger – but have the dry eyes – gum problems, etc. I was told my dry eyes has to do with ocular rosacea (which I have on my face – the joys of being from the British Isles / Danish background ). I’ll have to look into the UTCD condition you were diagnosed with. Doing my own research on health (thank goodness for the internet – has helped me self diagnose myself – and even helped GP’s learn about a new health condition they never heard of – and then referred me to a specialist).

        3 years ago Log in to Reply
      2. Ms Cris

        Anna, I have Rosacea, combo of types 1 and 2, since my teens (but I’m Portuguese). They now know it’s autoimmune, and those with rosacea are 3X more likely to develop T1D.
        Look into Sjogrens, especially if you have joint pain, with an ANA and then SSa and SSb blood tests. Get a tear test at the opthalmologist. Those are easiest tests as indicators for SS or UCTD. Good luck!

        1
        3 years ago Log in to Reply
    23. Anna Kiff

      Receding gums (had one gum repaired but then lost dental coverage – so other is semi-nakid ). It’s in my family genes to begin with – but diabetes doesn’t help of course. Even with paying out of pocket due to no insurance – I encourage everyone to get their teeth cleaned/examined at least once a year – it might save your life – as dental health is associated with heart health if you didn’t know (I work in the area of diabetes education so have learned so much researching for many companies that hire me to research for their authors who need credible links to their stories they share with you). Yeah – I’m the little behind the scenes person that makes big name writers look brilliant 🙂 Smile – you’re on Candid Camera !

      1
      3 years ago Log in to Reply
      1. Wanacure

        Anna, thanks. I agree. I’ve heard and read dental disease and heart problems are correlated. I also get yearly eye exams.

        3 years ago Log in to Reply
    24. Molly Jones

      The one I chose was dry mouth.
      The others I didn’t chose were oral ulcers because I had them way before dx of T1D, along with
      erosion of tooth enamel and receding gums.
      I have had problems with digestion my entire life and assume this has hurt my mouth in different ways. Regurgitation has always occurred if I eat too quickly or too much. My father, with no autoimmune conditions said he had similar digestion to a cow. I didn’t realize it was abnormal as a child.

      3 years ago Log in to Reply
    25. ConnieT1D62

      Was dx’d with T1D at age 8. Had to have a set of molars pulled at age 12 to create alignment space for crooked teeth and then 4 years of braces to guide teeth into place. A couple of root canals as a young adult, veneers and crown work done as middle aged and older adult, and periods of receding gums over the years.

      3 years ago Log in to Reply
    26. Wanacure

      I floss and brush at least 2x per day & now see dentist every six months for cleaning. Yes: dry mouth, a root canal, couple of crowns, receding gums.. Yes to bruxism, but could not get used to mouth guard. I’ll try it again. For dry mouth, I tried sugarless gum.

      3 years ago Log in to Reply
    27. Mary Ann Sayers

      I’ve been prone to abscesses in my gums, do you believe it! DDS was suprised that no root cause was apparent. I lost teeth because of it.

      3 years ago Log in to Reply

    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]