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    • 1 hour, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 10 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 33 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 30 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 22 hours, 53 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 22 hours, 55 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 22 hours, 56 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 22 hours, 57 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 5 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.

    Home > LC Polls > Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.
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    Have you participated in a diabetes-related advocacy effort (I.e., calling your elected officials, meeting with representatives, etc.)?  If you have, share your experience in the comments.

    Next

    If you had to pick one person, who is the person you turn to most for support with your diabetes?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    36 Comments

    1. Kristen Clifford

      I don’t remember the exact circumstances that led to it, but in 2014, I had a root canal. That’s probably the worst dental issue I’ve had since my T1D diagnosis in 2008.

      3 years ago Log in to Reply
    2. Nevin Bowman

      Trigger finger, frozen shoulder

      3
      3 years ago Log in to Reply
    3. Brent Perris

      Only oral problems I’ve had are a multitude of cavities

      3 years ago Log in to Reply
    4. Bob Durstenfeld

      I experienced receding gums and had to have a gum graft. It was one of the most barbaric medical expenses of my life.

      2
      3 years ago Log in to Reply
      1. mojoseje

        I think I’m going to need this. Is it truly horrible? I think I’d rather have the teeth pulled.

        3 years ago Log in to Reply
    5. Joan McGinnis

      two root canals after 30 yrs with T1D, but have always
      had cavities in my non- diabetic child life (no Floride in water then) After 38 yrs, osteoporosis which may contribute to having to have a couple teeth pulled which already had crowns for years.

      2
      3 years ago Log in to Reply
    6. Ken Raiche

      Not to sure if these issues were brought on due to my T1D. In the last 40 years 2 root canals, receding gums (brushing to hard or not using a soft bristle tooth brush), arthritis and recently misdiagnosed strept throat which was actually oral thrush (what a pain).

      1
      3 years ago Log in to Reply
    7. Mary Thrall

      Oral lichen planus – who ever heard of that?

      3 years ago Log in to Reply
    8. Eva

      I have had 2 root canals. One of which did not take and the molar needed to be pulled out. I have had a gum graft to correct receding gums from brushing to hard.

      1
      3 years ago Log in to Reply
    9. Rosemary Staszko

      I was diagnosed with oral lichen planus. Don’t know if it’s related to the diabetes or not but it’s an autoimmune disease. Anyone else out there have this condition too?

      3 years ago Log in to Reply
      1. AnitaS

        Mary Thrall, in a comment below, stated the same problem.

        3 years ago Log in to Reply
    10. mojoseje

      I have had good luck except for receding gums.

      2
      3 years ago Log in to Reply
    11. Edward Geary

      Inflamed gums

      1
      3 years ago Log in to Reply
    12. AnitaS

      My dentist never said I had a dry mouth, but he always reminded me to drink water.

      3 years ago Log in to Reply
    13. Tom Caesar

      Maybe receding gums is all?

      2
      3 years ago Log in to Reply
    14. Janis Senungetuk

      Of the issues listed: Oral thrush and Gingivitis. Over the years I’ve had 4 root canals and am now ‘recovering’ from recent periodontal deep cleaning to evaluate what can be saved.

      3 years ago Log in to Reply
    15. Joan Fray

      Just dry mouth. For about a year. But it went away. Who knows why…………..!

      3 years ago Log in to Reply
    16. HMW

      Gingival recession (from grinding) which required a graft.

      1
      3 years ago Log in to Reply
      1. KarenM6

        Hi HMW –
        I didn’t know gingival recession could be caused by grinding. This is definitely something for me to keep in mind!

        1
        3 years ago Log in to Reply
      2. KarenM6

        Oh! I forgot to say, my teeth have also shifted a lot because of the grinding.
        I wish I hadn’t _just_ seen my dentist so that I could ask him about this!!

        3 years ago Log in to Reply
      3. HMW

        @KarenM6 – it is not the only cause, of course, but my dentist immediately (when I first started seeing him) made me a mouth guard to wear at night and it has reduced my gingival recession progression significantly.

        3
        3 years ago Log in to Reply
      4. KarenM6

        Thank you, HMW!

        3 years ago Log in to Reply
    17. Donna Condi

      I have been diagnosed twice for receding gums.

      3 years ago Log in to Reply
    18. Mary Thomson

      Oral Lichen Planus

      3 years ago Log in to Reply
    19. KarenM6

      Recession
      Bruxism – in which I broke teeth and caused 4 or so crowns. Just had the grinding tested and the dentist said it was one of the worst she’d seen.
      I also did some laser therapy in my mouth for sleep apnea – the resulting tightening of the tissues should help open my airways.

      3 years ago Log in to Reply
    20. Becky Hertz

      Thrush a couple of times. Also pockets requiring occasional deep cleaning.

      3 years ago Log in to Reply
    21. Carol Meares

      Dry mouth and gum recession due to dry mouth

      1
      3 years ago Log in to Reply
    22. Ms Cris

      Once the dental issues started occuring, in the couple years after my T1D diagnosis, my ophthalmologist noted extremely dry eyes ..turned out I also have UCTD (undifferentiated connective tissue disease) leaning toward Sjogrens Syndrome. I now get 3 cleanings per year, plus floss/waterfloss 3X/day, brush 2X/day, rinse with biotene 4X/day, and chug water. I finally celebrated 1 full year of no gum or decay issues! (Dx T 1D 6 years ago, UCTD/SS 3 years ago)

      3
      3 years ago Log in to Reply
      1. Anna Kiff

        Interesting on the diagnosis – because I have no GP – I’m a lone ranger – but have the dry eyes – gum problems, etc. I was told my dry eyes has to do with ocular rosacea (which I have on my face – the joys of being from the British Isles / Danish background ). I’ll have to look into the UTCD condition you were diagnosed with. Doing my own research on health (thank goodness for the internet – has helped me self diagnose myself – and even helped GP’s learn about a new health condition they never heard of – and then referred me to a specialist).

        3 years ago Log in to Reply
      2. Ms Cris

        Anna, I have Rosacea, combo of types 1 and 2, since my teens (but I’m Portuguese). They now know it’s autoimmune, and those with rosacea are 3X more likely to develop T1D.
        Look into Sjogrens, especially if you have joint pain, with an ANA and then SSa and SSb blood tests. Get a tear test at the opthalmologist. Those are easiest tests as indicators for SS or UCTD. Good luck!

        1
        3 years ago Log in to Reply
    23. Anna Kiff

      Receding gums (had one gum repaired but then lost dental coverage – so other is semi-nakid ). It’s in my family genes to begin with – but diabetes doesn’t help of course. Even with paying out of pocket due to no insurance – I encourage everyone to get their teeth cleaned/examined at least once a year – it might save your life – as dental health is associated with heart health if you didn’t know (I work in the area of diabetes education so have learned so much researching for many companies that hire me to research for their authors who need credible links to their stories they share with you). Yeah – I’m the little behind the scenes person that makes big name writers look brilliant 🙂 Smile – you’re on Candid Camera !

      1
      3 years ago Log in to Reply
      1. Wanacure

        Anna, thanks. I agree. I’ve heard and read dental disease and heart problems are correlated. I also get yearly eye exams.

        3 years ago Log in to Reply
    24. Molly Jones

      The one I chose was dry mouth.
      The others I didn’t chose were oral ulcers because I had them way before dx of T1D, along with
      erosion of tooth enamel and receding gums.
      I have had problems with digestion my entire life and assume this has hurt my mouth in different ways. Regurgitation has always occurred if I eat too quickly or too much. My father, with no autoimmune conditions said he had similar digestion to a cow. I didn’t realize it was abnormal as a child.

      3 years ago Log in to Reply
    25. ConnieT1D62

      Was dx’d with T1D at age 8. Had to have a set of molars pulled at age 12 to create alignment space for crooked teeth and then 4 years of braces to guide teeth into place. A couple of root canals as a young adult, veneers and crown work done as middle aged and older adult, and periods of receding gums over the years.

      3 years ago Log in to Reply
    26. Wanacure

      I floss and brush at least 2x per day & now see dentist every six months for cleaning. Yes: dry mouth, a root canal, couple of crowns, receding gums.. Yes to bruxism, but could not get used to mouth guard. I’ll try it again. For dry mouth, I tried sugarless gum.

      3 years ago Log in to Reply
    27. Mary Ann Sayers

      I’ve been prone to abscesses in my gums, do you believe it! DDS was suprised that no root cause was apparent. I lost teeth because of it.

      3 years ago Log in to Reply

    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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