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    • 11 hours, 25 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 11 hours, 25 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 11 hours, 26 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 17 hours, 13 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 17 hours, 13 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 18 hours, 12 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 18 hours, 23 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 18 hours, 32 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 18 hours, 51 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 18 hours, 54 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 7 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 14 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 14 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 14 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 16 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 17 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 17 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 18 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 18 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
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    When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.

    Home > LC Polls > When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
    Previous

    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Next

    If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Chris Albright

      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.

      2
      3 years ago Log in to Reply
    2. Carrolyn Barloco

      I get a notice of high glucose levels that occurred several hours ago!! WHY?

      7
      3 years ago Log in to Reply
    3. Mary Dexter

      Extreme cramping pain in legs and hips.

      3 years ago Log in to Reply
      1. Wanacure

        Mary, when I first started jogging, I had terrible leg cramps. Then I learned two simple stretches before and after aerobic exercise. Stretch the calf muscle of each leg for 10-12 seconds. Then stretch the thigh muscle of each leg for 10-12 seconds. Do these stretches twice. Also make sure you’re getting adequate potassium. Bananas are a good source of potassium. Hope this helps.😎

        1
        3 years ago Log in to Reply
    4. Janice Bohn

      My number 1 sleep interrupter is the OmniPod chance pod alert. The alert happens a couple of hours before pod shuts down. Since I change it around 5:25am before work – every 3 days I am awoken around 3am.

      3 years ago Log in to Reply
      1. Bill Kast

        I wear omnipod and this function is adjustable on my control for the Pod. I can select times of an hour, two hours etc and the one I use is No Alert. I use Dash. I do not use the Omnipod controller. I am on Loop. It is a do-it-yourself closed loop and it works great for me.

        3 years ago Log in to Reply
    5. Kelly Fleming

      Compression low (false low due to pressure on the CGM site) from DexCom! Ugh!

      1
      3 years ago Log in to Reply
    6. Lawrence S.

      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you’re listening, please remove this function from your pumps.

      3
      3 years ago Log in to Reply
    7. Patricia Kilwein

      My pump, “I need to BG! I need to BG!” Such a cry baby it is!

      1
      3 years ago Log in to Reply
    8. Jeremy Hanson

      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?

      5
      3 years ago Log in to Reply
      1. cynthia jaworski

        yes.

        3 years ago Log in to Reply
      2. Wanacure

        And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.

        1
        3 years ago Log in to Reply
    9. T1diabetic

      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.

      3
      3 years ago Log in to Reply
    10. Judy Sabol

      I use MDI’s and have been fairly successful managing my BS. Most often low alerts happen the night after I have changed my D6 sensor…

      3 years ago Log in to Reply
    11. Mark Schweim

      I can’t honestly remember a time when my sleep was disrupted because of T1D!!! Other illnesses disrupt my sleep more often than T1D does!!!

      3 years ago Log in to Reply
    12. Mick Martin

      I didn’t select any of the above as my sleep is disturbed by a combination of many of those listed.

      3 years ago Log in to Reply
    13. Maureen Helinski

      It is usually not a real low, but a compression low because I am sleeping on sensor.

      3 years ago Log in to Reply
      1. Lawrence S.

        For a long time, I did not understand what people were talking about when they said “compression low’s”. However, I put my current sensor in a slightly different location, and I’ve been getting lots of compression lows from sleeping on my sensor. Now, I understand.

        3 years ago Log in to Reply
    14. Lori COLLINS

      While middle-of-the-nght alerts are frustrating and irritating, I’m no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!

      1
      3 years ago Log in to Reply
    15. Pauline M Reynolds

      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!

      5
      3 years ago Log in to Reply
      1. TEH

        Yeah. Totally agree! This is totally unnecessary and extremely annoying.

        4
        3 years ago Log in to Reply
    16. Jane Cerullo

      Depend on Dexcom except when it’s a compression low. Haven’t found the right site on arm with the G7. I keep trying. Have thin arms. And sleep on side. Any suggestions? Didn’t have this problem with G6. Abdomen out. Too much scar tissue.

      1
      3 years ago Log in to Reply
    17. Steven Gill

      My range/alarms are set 70-130, on injections and unable to make small basal adjustments I get an alarm if high or low. Generally the way the dose is I generally get 5-6 hours sleep than an alarm: if I dose for overnight levels than they rise in the day. But I’ve lived on 4-5 hours sleep since a child, no big deal.

      3 years ago Log in to Reply
    18. Robert Wilson

      Why isn’t going to the bathroom not on this list?

      5
      3 years ago Log in to Reply
      1. sweetcharlie

        yes me also..

        3 years ago Log in to Reply
    19. Wanacure

      When I first started Dexcom 6 a year or so ago, I was frequently annoyed with false low alarms disrupting sleep. Thru comments on this site, I learned about compression lows. I learned not to place the CGM too far to the left or to the right of my navel. Each new sensor gets moved just an inch or so. Problem solved.

      2
      3 years ago Log in to Reply
    20. Sherrie Johnson

      Pump reminds me no insulin has been delivered in 12 hours. Then I have to restart the insulin kind of a pain at 4 AM.

      3 years ago Log in to Reply
    21. mbulzomi@optonline.net

      After wearing a Pump for over 40 years, everything except High and Low warnings are the only conditions I can’t control.

      3 years ago Log in to Reply
    22. Randy Molen

      The most common alert / warning for me using the medtronic 770g is the need to calibrate the sensor.

      3 years ago Log in to Reply
    23. T1D4LongTime

      I only marked alarms for lows. I set a sleep alarm schedule to silence the 180-250 alerts, so seldom do those wake me up. Seems to be some evenings at midnight, my BG plummets so I have to get up to treat a low. I think it’s because the stress during the day is gone once I get in bed. Stress is my true enemy, not T1D!

      3 years ago Log in to Reply

    When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you. Cancel reply

    You must be logged in to post a comment.




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