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    • 9 hours, 7 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 14 hours, 7 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 14 hours, 8 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 14 hours, 9 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 14 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 12 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 14 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 6 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 6 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 23 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 23 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 6 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?

    Home > LC Polls > If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    46 Comments

    1. LizB

      I have old pumps as a backup instead of long acting insulin.

      2
      4 months ago Log in to Reply
    2. Jordan Harshman

      I’m on MDI

      4 months ago Log in to Reply
    3. Lawrence S.

      No. I had long-acting backup insulin in my refrigerator for many years. I reordered backup insulin when my backup insulin expired. However, because of the cost of ordering backup insulin, I have decided to wait until I need it, and order it at that time. Otherwise, I could see if any of my old pumps still function, and use them for a short while.

      4 months ago Log in to Reply
    4. Franklin Rios

      I do not use an insuline pump.

      1
      4 months ago Log in to Reply
    5. Philip Clark

      I have both, an older model insulin pump and long acting insulin. I’ve used the back up pump before but not the insulin yet

      1
      4 months ago Log in to Reply
    6. Robin Melen

      I do have long-acting in my fridge, but wonder what happens when it expires… do I order more just in case?? Is it worth it?

      2
      4 months ago Log in to Reply
    7. lis be

      sounds like an expensive hobby

      2
      4 months ago Log in to Reply
    8. stillarobyn

      It is…definitely expired lol

      2
      4 months ago Log in to Reply
    9. Lindsey Whitnell

      Just got her on the pump a few months ago so long-acting hasn’t expired just yet. I’ll probably order more back-up long-acting insulin once the max out of pocket is met.

      4 months ago Log in to Reply
    10. Patricia Kilwein

      I do not have long acting insulin as a backup, I do however have Humalog and syringes just in case.

      4 months ago Log in to Reply
    11. Yerachmiel Altman

      Educator at Endo’s office gave me a lantus pen (and pen needles)) “just in case) last visit

      1
      4 months ago Log in to Reply
    12. Abigail Elias

      When I’ve had pump failures my endocrinologist has been ready to send an immediate Rx for long-acting insulin to my pharmacy.

      4 months ago Log in to Reply
    13. Mig Vascos

      Since I started
      On a pump 12 years ago I have always have unexpired lantus in my fridge.
      As it gets closer to expiration date I start giving it away to other people that may use it and order a new Bo’s of lantus pen. My doctor always make sure that I do that.
      When I travel I always bring it with me.

      4 months ago Log in to Reply
    14. JAZ-CO

      Currently I do have an unexpaired backup insulin. This is only because I remember to ask about it when I was at the doctor a couple of weeks. If you asked this a month ago the answer would be no.

      4 months ago Log in to Reply
    15. Lmiller

      I have a prescription for insulin I haven’t filled yet.

      4 months ago Log in to Reply
    16. Donna Condi

      My backup Lantus pen expired in 2020 as did my Humalog pen which I continue to use when I need a “belly shot”.—and it still works! I plan on requesting new backups when I visit my doctor in two weeks.

      4 months ago Log in to Reply
    17. Georgina Sokol

      If I need it, my doctor prescribes the pens immediately for me. Only happened once in 25 years.

      4 months ago Log in to Reply
    18. Janice Bohn

      Always have levemir in frig as backup. Never know when you have to be off pump – medical tests etc.

      4 months ago Log in to Reply
    19. kcatalino

      I do have a script for some that I can pick up if needed

      4 months ago Log in to Reply
    20. Henry Renn

      In the last 3 years, due to pump problems I’ve had 2x of needing to test bg every 4 hrs & take humalog for meal bolus & correction bolus. Inconvenient but not end of world. On call Endo did dosing calculations for me.

      4 months ago Log in to Reply
    21. AimmcG

      I try to keep it around but I never use it and it goes to waste. I was in Europe years ago and my pump broke two days before I was leaving. I couldn’t get a replacement before I left so for 48 hours I ate very little, pricked my fingers, and used the quick acting insulin. I now make sure I have long acting when I travel.

      4 months ago Log in to Reply
      1. KSannie

        You can also request a vacation pump to have as spare when traveling. If you do not use it, you return it unopened to the manufacturer. If you use it, they may need you to return the faulty pump to them. That is what I do for travel abroad.

        4 months ago Log in to Reply
    22. KSannie

      Insurance will not pay for backup lantus while using a pump (at least mine never would). And I have only once had a problem with a pump, which was not the actual pump, but the infusion set, and I always bring many spare infusion sets when traveling.

      4 months ago Log in to Reply
    23. Bob Durstenfeld

      Thank the Lord, in 20 plus years of pumping, have never needed long acting insulin as a replacement. I came close last year when my baggage was lost for 5 days on a trip to Madagascar.

      4 months ago Log in to Reply
    24. Janis Senungetuk

      No, my pen of backup long-acting insulin expired and since my insurance will no longer cover it, I didn’t get a replacement. I may ask for a new prescription at my next appointment in August.

      4 months ago Log in to Reply
    25. Thomas Brady

      1. When I travel, I order a “travel loaner” from Tandem for my X2. hey, it’s free! Only issue was at both Schiphol and Dublin they had a fit over the sealed Tandem box and insisted on opening it. I talked the Dutch out of it but the Irish insisted “either you do not board, you leave the box here for us to destroy or we open it. I came up with a solution, i.e you open the box but you sign on the box as opening it, the reason and your badge number. The agreed and Tandem was fine when I returned the opened box with an explanation letter and did not charge me.

      2. I also carry my older pre X2 pump fully charged, which still functions, as a back-up. This means exert strips, but it will give my basal so I do not have to deal with the hassle of long term insulin conversion and having it expire. My endo will give me a vial. but the backup pump iOS better since Medicare lives in an alternate reality where no spares are allowed and we are in a universe where everything goes 100% as it should.

      3. When I go through Paris, I go to a pharmacy and get a bottle of long duration insulin as a Rx is not required in France. It costs in the $20’s the last time I did it. CBP and TSA never care as my end’s letter covers a list of what I am prescribed to carry and what they cannot X-ray or scan. I carry so much for a month away in my backpack they are gold to get rid of me as they have to go through it all.

      4. When all else fails, I can go the 4 hour shot routine with Humalog and finger sticks if I have to.

      1
      4 months ago Log in to Reply
    26. Kim Davis

      No, my endocrinologist never prescribed it. In an emergency situation, I could use a new Lantus & new pen cap from my husband. He is a type 2 diabetic of 25 years& we go to same clinic, but, different MD. I am calling my endocrinologist now!

      4 months ago Log in to Reply
    27. Yaffa Steubinger

      You forgot the ‘I don’t use a pump’ response which would be mine.

      4 months ago Log in to Reply
    28. HMW

      Yes, but only because my pump failed in the middle of the night this past weekend and I had to have my endocrinologist paged on-call for a prescription.

      4 months ago Log in to Reply
    29. William Bennett

      I mean, I *think* it’s unexpired….

      2
      4 months ago Log in to Reply
    30. KCR

      I will put getting a new RX for basal insulin on my list for my next appointment. 😊

      1
      4 months ago Log in to Reply
    31. ConnieT1D62

      Yes. My endo provider gives me extra sample supplies of both short and long acting pens to use when off pump.

      4 months ago Log in to Reply
    32. Milly Bassett

      I do not use an insulin pump.

      4 months ago Log in to Reply
    33. Jneticdiabetic

      I do not have a long-acting insulin prescription. If my pump fails or my supply order is delayed, I cover with multiple daily injections of my normal Humalog fast acting insulin every few hours. A real pain overnight.

      4 months ago Log in to Reply
    34. GiGi

      I have long acting that is expired, but I also have two backup pumps!

      4 months ago Log in to Reply
    35. Joan Fray

      I don’t use long acting insulin. I do have 5 bottles of Humalog insulin in the fridge.

      4 months ago Log in to Reply
    36. Patricia Maddix

      I answered a definite, yes. I would be terrified not to have it on hand. I have had a pump stop working on at least three occasions, and had to switch to MDI for a day or two until my replacement pump could arrive. This has never happened while traveling, but I also take my back up supplies while traveling. I feel the same way about always having glucagon on hand.

      4 months ago Log in to Reply
    37. Jenny Richardson

      MDI for 39 yrs. No pump for me.

      4 months ago Log in to Reply
    38. Steven Gill

      Not using a pump but using Novalog pens expired last year.

      4 months ago Log in to Reply
    39. George Lovelace

      No, Pump only for 25 years, early in Pumping 20+ years ago I did use long-acting insulin but none in the 20+ years since

      4 months ago Log in to Reply
    40. mbulzomi@optonline.net

      It’s not easy to convert your insulin intake if you don’t use long-Acting Insulin. However, I believe you add up all your Basel numbers and add 20%. That should cover the Long-Acting dose.
      But I would just continue using my NovoLog U100 and a syringe.
      This is not a long-term condition and dose after testing.

      4 months ago Log in to Reply
    41. Bonnie Lundblom

      No but I’ll be asking for sample or Rx for one when I see my endocrinologist in August and the thought of having only Novolog to control my blood sugar is scary! I had one in the refrigerator which now is expired but if I had to I’d try it.

      4 months ago Log in to Reply
    42. T1D4LongTime

      I have an expired long-acting pen. Since we don’t travel at all anymore and I’m very seldom out of town due to caregiving, I’ve not seen the need for the long-acting insulin (never had it for 20+ years). My endo is here in town, so if my pump failed and I couldn’t get a replacement in 24 hours, my endo could call in long-acting.

      4 months ago Log in to Reply
    43. PamK

      I have 3 expired pens in the fridge from the last time I asked my endo about having some long-acting insulin on hand. I decided that the cost just isn’t worth it. If there comes a time when i need some long-acting, I can call my endo and have a script sent in.

      Back when I was on MDI, I ran out of my long-acting and just used my short-acting insulin for 24 hours. I took a small dose before I went to bed. Then got up @ midnight to check my blood sugar and took another small dose. One more small dose at @ 3 am got me through the night with no problems. So, I know that I could do this again, if needed.

      4 months ago Log in to Reply
    44. Savanna Vance

      I have lantus in case of pump malfunction, but it expired. As long as it’s not cloudy, I’ll use it.

      4 months ago Log in to Reply
    45. C B

      I take pump breaks often so I always have long acting on hand

      3 months ago Log in to Reply

    If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home? Cancel reply

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