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    • 15 hours, 45 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 18 hours, 20 minutes ago
      Lisa Sierra likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 18 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I had a problem with my infusion sets being on back order but I have met my deductible all ready.
    • 18 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 18 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 19 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
    • 1 day, 6 hours ago
      Bekki Weston likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I have used afrezza, the inhalable insulin
    • 1 day, 10 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
    • 1 day, 10 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
    • 1 day, 13 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      i have used metformin
    • 1 day, 13 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      metformin
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
    • 1 day, 17 hours ago
      Marty likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
    • 2 days, 15 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 15 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 17 hours ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 17 hours ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 18 hours ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 2 days, 18 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 2 days, 18 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 18 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 19 hours ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 3 days, 10 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 3 days, 10 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 3 days, 14 hours ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
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    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?

    Home > LC Polls > When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    41 Comments

    1. Becky Hertz

      It’s the preservative. My son even knows what it smells like – surprised me one day when he asked if I spilled my insulin.

      2 years ago Log in to Reply
      1. William Bennett

        It’s very handy for checking whether you’ve got a leak from a bent cannula or bad insertion at your infusion site!

        3
        2 years ago Log in to Reply
    2. Phyllis Biederman

      I barely notice the smell, though it has a distinctive. Metallic scent. My husband can’t stand the smell (so I make sure i don’t change my infusion sets near him. And I’ve had patients who can taste the insulin when they inject!

      2 years ago Log in to Reply
      1. LuckyPineapple

        Oh god. Taste it?! That sounds awful.
        My husband and I always joke that we’ll have to cut off our hand if we get insulin on it because the smell won’t wash off easily!

        2 years ago Log in to Reply
    3. Ahh Life

      No in 73 years of taking insulin.

      Aging brings olfactory degradation, visual degradation, audio degradation, and haptic degradation.

      But the really good news is I can still relish the umami, habaneros, red peppers, and horseradish flavors intensely with intensity. 🙂🙃🙂

      3
      2 years ago Log in to Reply
    4. LuckyPineapple

      Insulin smells like bandaids!!

      3
      2 years ago Log in to Reply
    5. Kristen Clifford

      Yes, and it stinks!

      2 years ago Log in to Reply
    6. Richard Vaughn

      I do not notice the odor of my insulin, but I have used insulin for 78 years. Maybe that is the reason I do not detect an odor.

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        Hey Richard. Fancy meeting you here :-).

        2 years ago Log in to Reply
    7. William Bennett

      Of course. Smells like bandaids, always has (I was dx’d in 1983). I’m told it’s the preservative. Guess they use the same chemical.

      2 years ago Log in to Reply
    8. Greg Felton

      I don’t think it is strong or aromatic so I barely notice it, but it does smell like Band Aids if I really try to take a whiff.

      2 years ago Log in to Reply
    9. Katherine Kettig

      I can smell it when I prime my pen before an injection. Bandaids was a good description of the smell to me!

      2 years ago Log in to Reply
    10. Ernie Richmann

      Are they running out of meaningful questions. Is there a hidden purpose to this question?

      2
      2 years ago Log in to Reply
    11. Patricia Kilwein

      I smell like it as well.

      2 years ago Log in to Reply
    12. Joan Benedetto

      Yes. It’s a strong bandaid smell!

      1
      2 years ago Log in to Reply
    13. JanP

      Yes and I hate it. I associate it with being diabetic and it just makes me hate it more. I do agree that the smell helps to alert me to a leak.

      2 years ago Log in to Reply
    14. Lawrence S.

      Yes. Insulin smells like a dentist office, or a doctor’s office, or a hospital. Something like that. I don’t mind the smell at all. It is the smell of life!

      3
      2 years ago Log in to Reply
    15. Jane Cerullo

      Really dislike the smell of insulin.

      2 years ago Log in to Reply
      1. George Lovelace

        Really? To me it’s like “Apocalypse Now”; “I Love The Smell Of Insulin in the Morning, It Smells Like Victory!!”

        7
        2 years ago Log in to Reply
    16. dholl62@gmail.com

      Not all the time do I get a smell when drawing up insulin . More time I get the smell when I replace my insulin pump sensor

      2 years ago Log in to Reply
    17. Sherolyn Newell

      I have never noticed a smell, but, of course, next time I will try to smell it.

      2 years ago Log in to Reply
    18. Tom Caesar

      The smell of life? Unfortunately my sense of smell left me about 10-15 years ago, wonder if a byproduct of my diabetes?

      2 years ago Log in to Reply
    19. Lyn McQuaid

      One of my cats *loves* the smell of insulin and likes to be around when I change my pump infusion set. I have to stop him from trying to lick it – yuck!

      3
      2 years ago Log in to Reply
      1. lis be

        I didn’t realize the smell was phenols until I read through this, then I googled “cats and phenol” and it says the smell is pretty bad for cats. I had no idea 🙁

        2 years ago Log in to Reply
    20. Gary Rind

      I notice the smell when the pen has gotten too warm and that is just the worst!

      2 years ago Log in to Reply
    21. Yaffa Steubinger

      I smell it when I shoot my 2 units in the air to be sure no air bubbles in the pen. My daughter walked by one time after I did that and asked, ‘What smells like bandaids?’ I thought that a good description of the smell – ha!

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        It does indeed smell like Bandaids. I ad a friend recently tell me it reminded him of the plastic they mold Barbie out of.

        2 years ago Log in to Reply
    22. TomH

      My understanding the smell comes from phenol which is used as preservative and sterility agent.

      2 years ago Log in to Reply
    23. Thomas Cline

      I understand that it is phenol, and I’ve always wondered why, if it is sufficiently concentrated for me to smell it AND for it to potentially kill bacteria, that it doesn’t sting more to inject. To me it smells like crayons — a good smell.

      2 years ago Log in to Reply
    24. Anneyun

      I never really paid any attention to the smell but once when my grown kids were home visiting and I was filling my pump, one of my daughters said “oh I like that smell. The smell reminds me of you mom, and so it is a comforting smell”, and my other daughters agreed.

      4
      2 years ago Log in to Reply
    25. Janis Senungetuk

      No, not anymore. After 68+ years of taking various kinds of insulin, the alcohol swab and insulin smell are so much a part of my daily life I’m no longer aware of it.

      2 years ago Log in to Reply
    26. Tim Moeslein

      Smells like life 🙂

      5
      2 years ago Log in to Reply
    27. mojoseje

      Of course. lol
      My cat loves how insulin smells.

      2 years ago Log in to Reply
    28. Amanda Barras

      Of course! Everyone in my house knows what insulin smells like. Sometimes if they smell it they ask me if I have a leaking site. One time they were right! Good catch!

      2
      2 years ago Log in to Reply
    29. Sandy Norman

      Funny all the different reactions to the smell. Like Anneyun’s comment my daughter also loves the smell as it reminds her of me and she also smells it on other diabetics in public.

      2
      2 years ago Log in to Reply
    30. Jeff Balbirnie

      An interesting question! Sometimes, yes… but not constantly enough that I can easily define it. Sometimes immediately after injection of the huma-log, I also get/got a brief flavor in my mouth, very rarely now, but initially, originally more so.

      2 years ago Log in to Reply
    31. Daniel Bestvater

      Yes I notice the smell, even after 45+ years of using insulin. In university I did some medical research where phenolic preservatives were used. My insulin smells much like the lab did.

      2 years ago Log in to Reply
    32. T1D4LongTime

      I marked “Unsure” because I do not smell the insulin unless I spill some out when filling the insulin cartridge or when preparing a manual injection. Insulin has a DISTINCT odor when exposed to air.

      2 years ago Log in to Reply
    33. ConnieT1D62

      Yes .. to me it just smells like insulin … it is what it is probably because I am so used to it.

      2 years ago Log in to Reply
    34. Velika Peterson

      Yes, I like the smell of insulin.

      2 years ago Log in to Reply
    35. PamK

      My husband hates the smell!

      2 years ago Log in to Reply

    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin? Cancel reply

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