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    • 1 hour, 51 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 14 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 37 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 34 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?

    Home > LC Polls > When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    41 Comments

    1. Becky Hertz

      It’s the preservative. My son even knows what it smells like – surprised me one day when he asked if I spilled my insulin.

      2 years ago Log in to Reply
      1. William Bennett

        It’s very handy for checking whether you’ve got a leak from a bent cannula or bad insertion at your infusion site!

        3
        2 years ago Log in to Reply
    2. Phyllis Biederman

      I barely notice the smell, though it has a distinctive. Metallic scent. My husband can’t stand the smell (so I make sure i don’t change my infusion sets near him. And I’ve had patients who can taste the insulin when they inject!

      2 years ago Log in to Reply
      1. LuckyPineapple

        Oh god. Taste it?! That sounds awful.
        My husband and I always joke that we’ll have to cut off our hand if we get insulin on it because the smell won’t wash off easily!

        2 years ago Log in to Reply
    3. Ahh Life

      No in 73 years of taking insulin.

      Aging brings olfactory degradation, visual degradation, audio degradation, and haptic degradation.

      But the really good news is I can still relish the umami, habaneros, red peppers, and horseradish flavors intensely with intensity. 🙂🙃🙂

      3
      2 years ago Log in to Reply
    4. LuckyPineapple

      Insulin smells like bandaids!!

      3
      2 years ago Log in to Reply
    5. Kristen Clifford

      Yes, and it stinks!

      2 years ago Log in to Reply
    6. Richard Vaughn

      I do not notice the odor of my insulin, but I have used insulin for 78 years. Maybe that is the reason I do not detect an odor.

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        Hey Richard. Fancy meeting you here :-).

        2 years ago Log in to Reply
    7. William Bennett

      Of course. Smells like bandaids, always has (I was dx’d in 1983). I’m told it’s the preservative. Guess they use the same chemical.

      2 years ago Log in to Reply
    8. Greg Felton

      I don’t think it is strong or aromatic so I barely notice it, but it does smell like Band Aids if I really try to take a whiff.

      2 years ago Log in to Reply
    9. Katherine Kettig

      I can smell it when I prime my pen before an injection. Bandaids was a good description of the smell to me!

      2 years ago Log in to Reply
    10. Ernie Richmann

      Are they running out of meaningful questions. Is there a hidden purpose to this question?

      2
      2 years ago Log in to Reply
    11. Patricia Kilwein

      I smell like it as well.

      2 years ago Log in to Reply
    12. Joan Benedetto

      Yes. It’s a strong bandaid smell!

      1
      2 years ago Log in to Reply
    13. JanP

      Yes and I hate it. I associate it with being diabetic and it just makes me hate it more. I do agree that the smell helps to alert me to a leak.

      2 years ago Log in to Reply
    14. Lawrence S.

      Yes. Insulin smells like a dentist office, or a doctor’s office, or a hospital. Something like that. I don’t mind the smell at all. It is the smell of life!

      3
      2 years ago Log in to Reply
    15. Jane Cerullo

      Really dislike the smell of insulin.

      2 years ago Log in to Reply
      1. George Lovelace

        Really? To me it’s like “Apocalypse Now”; “I Love The Smell Of Insulin in the Morning, It Smells Like Victory!!”

        7
        2 years ago Log in to Reply
    16. dholl62@gmail.com

      Not all the time do I get a smell when drawing up insulin . More time I get the smell when I replace my insulin pump sensor

      2 years ago Log in to Reply
    17. Sherolyn Newell

      I have never noticed a smell, but, of course, next time I will try to smell it.

      2 years ago Log in to Reply
    18. Tom Caesar

      The smell of life? Unfortunately my sense of smell left me about 10-15 years ago, wonder if a byproduct of my diabetes?

      2 years ago Log in to Reply
    19. Lyn McQuaid

      One of my cats *loves* the smell of insulin and likes to be around when I change my pump infusion set. I have to stop him from trying to lick it – yuck!

      3
      2 years ago Log in to Reply
      1. lis be

        I didn’t realize the smell was phenols until I read through this, then I googled “cats and phenol” and it says the smell is pretty bad for cats. I had no idea 🙁

        2 years ago Log in to Reply
    20. Gary Rind

      I notice the smell when the pen has gotten too warm and that is just the worst!

      2 years ago Log in to Reply
    21. Yaffa Steubinger

      I smell it when I shoot my 2 units in the air to be sure no air bubbles in the pen. My daughter walked by one time after I did that and asked, ‘What smells like bandaids?’ I thought that a good description of the smell – ha!

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        It does indeed smell like Bandaids. I ad a friend recently tell me it reminded him of the plastic they mold Barbie out of.

        2 years ago Log in to Reply
    22. TomH

      My understanding the smell comes from phenol which is used as preservative and sterility agent.

      2 years ago Log in to Reply
    23. Thomas Cline

      I understand that it is phenol, and I’ve always wondered why, if it is sufficiently concentrated for me to smell it AND for it to potentially kill bacteria, that it doesn’t sting more to inject. To me it smells like crayons — a good smell.

      2 years ago Log in to Reply
    24. Anneyun

      I never really paid any attention to the smell but once when my grown kids were home visiting and I was filling my pump, one of my daughters said “oh I like that smell. The smell reminds me of you mom, and so it is a comforting smell”, and my other daughters agreed.

      4
      2 years ago Log in to Reply
    25. Janis Senungetuk

      No, not anymore. After 68+ years of taking various kinds of insulin, the alcohol swab and insulin smell are so much a part of my daily life I’m no longer aware of it.

      2 years ago Log in to Reply
    26. Tim Moeslein

      Smells like life 🙂

      5
      2 years ago Log in to Reply
    27. mojoseje

      Of course. lol
      My cat loves how insulin smells.

      2 years ago Log in to Reply
    28. Amanda Barras

      Of course! Everyone in my house knows what insulin smells like. Sometimes if they smell it they ask me if I have a leaking site. One time they were right! Good catch!

      2
      2 years ago Log in to Reply
    29. Sandy Norman

      Funny all the different reactions to the smell. Like Anneyun’s comment my daughter also loves the smell as it reminds her of me and she also smells it on other diabetics in public.

      2
      2 years ago Log in to Reply
    30. Jeff Balbirnie

      An interesting question! Sometimes, yes… but not constantly enough that I can easily define it. Sometimes immediately after injection of the huma-log, I also get/got a brief flavor in my mouth, very rarely now, but initially, originally more so.

      2 years ago Log in to Reply
    31. Daniel Bestvater

      Yes I notice the smell, even after 45+ years of using insulin. In university I did some medical research where phenolic preservatives were used. My insulin smells much like the lab did.

      2 years ago Log in to Reply
    32. T1D4LongTime

      I marked “Unsure” because I do not smell the insulin unless I spill some out when filling the insulin cartridge or when preparing a manual injection. Insulin has a DISTINCT odor when exposed to air.

      2 years ago Log in to Reply
    33. ConnieT1D62

      Yes .. to me it just smells like insulin … it is what it is probably because I am so used to it.

      2 years ago Log in to Reply
    34. Velika Peterson

      Yes, I like the smell of insulin.

      2 years ago Log in to Reply
    35. PamK

      My husband hates the smell!

      2 years ago Log in to Reply

    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin? Cancel reply

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