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    • 17 hours, 32 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 17 hours, 38 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 17 hours, 44 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?

    Home > LC Polls > When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    41 Comments

    1. Becky Hertz

      It’s the preservative. My son even knows what it smells like – surprised me one day when he asked if I spilled my insulin.

      2 years ago Log in to Reply
      1. William Bennett

        It’s very handy for checking whether you’ve got a leak from a bent cannula or bad insertion at your infusion site!

        3
        2 years ago Log in to Reply
    2. Phyllis Biederman

      I barely notice the smell, though it has a distinctive. Metallic scent. My husband can’t stand the smell (so I make sure i don’t change my infusion sets near him. And I’ve had patients who can taste the insulin when they inject!

      2 years ago Log in to Reply
      1. LuckyPineapple

        Oh god. Taste it?! That sounds awful.
        My husband and I always joke that we’ll have to cut off our hand if we get insulin on it because the smell won’t wash off easily!

        2 years ago Log in to Reply
    3. Ahh Life

      No in 73 years of taking insulin.

      Aging brings olfactory degradation, visual degradation, audio degradation, and haptic degradation.

      But the really good news is I can still relish the umami, habaneros, red peppers, and horseradish flavors intensely with intensity. 🙂🙃🙂

      3
      2 years ago Log in to Reply
    4. LuckyPineapple

      Insulin smells like bandaids!!

      3
      2 years ago Log in to Reply
    5. Kristen Clifford

      Yes, and it stinks!

      2 years ago Log in to Reply
    6. Richard Vaughn

      I do not notice the odor of my insulin, but I have used insulin for 78 years. Maybe that is the reason I do not detect an odor.

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        Hey Richard. Fancy meeting you here :-).

        2 years ago Log in to Reply
    7. William Bennett

      Of course. Smells like bandaids, always has (I was dx’d in 1983). I’m told it’s the preservative. Guess they use the same chemical.

      2 years ago Log in to Reply
    8. Greg Felton

      I don’t think it is strong or aromatic so I barely notice it, but it does smell like Band Aids if I really try to take a whiff.

      2 years ago Log in to Reply
    9. Katherine Kettig

      I can smell it when I prime my pen before an injection. Bandaids was a good description of the smell to me!

      2 years ago Log in to Reply
    10. Ernie Richmann

      Are they running out of meaningful questions. Is there a hidden purpose to this question?

      2
      2 years ago Log in to Reply
    11. Patricia Kilwein

      I smell like it as well.

      2 years ago Log in to Reply
    12. Joan Benedetto

      Yes. It’s a strong bandaid smell!

      1
      2 years ago Log in to Reply
    13. JanP

      Yes and I hate it. I associate it with being diabetic and it just makes me hate it more. I do agree that the smell helps to alert me to a leak.

      2 years ago Log in to Reply
    14. Lawrence S.

      Yes. Insulin smells like a dentist office, or a doctor’s office, or a hospital. Something like that. I don’t mind the smell at all. It is the smell of life!

      3
      2 years ago Log in to Reply
    15. Jane Cerullo

      Really dislike the smell of insulin.

      2 years ago Log in to Reply
      1. George Lovelace

        Really? To me it’s like “Apocalypse Now”; “I Love The Smell Of Insulin in the Morning, It Smells Like Victory!!”

        7
        2 years ago Log in to Reply
    16. dholl62@gmail.com

      Not all the time do I get a smell when drawing up insulin . More time I get the smell when I replace my insulin pump sensor

      2 years ago Log in to Reply
    17. Sherolyn Newell

      I have never noticed a smell, but, of course, next time I will try to smell it.

      2 years ago Log in to Reply
    18. Tom Caesar

      The smell of life? Unfortunately my sense of smell left me about 10-15 years ago, wonder if a byproduct of my diabetes?

      2 years ago Log in to Reply
    19. Lyn McQuaid

      One of my cats *loves* the smell of insulin and likes to be around when I change my pump infusion set. I have to stop him from trying to lick it – yuck!

      3
      2 years ago Log in to Reply
      1. lis be

        I didn’t realize the smell was phenols until I read through this, then I googled “cats and phenol” and it says the smell is pretty bad for cats. I had no idea 🙁

        2 years ago Log in to Reply
    20. Gary Rind

      I notice the smell when the pen has gotten too warm and that is just the worst!

      2 years ago Log in to Reply
    21. Yaffa Steubinger

      I smell it when I shoot my 2 units in the air to be sure no air bubbles in the pen. My daughter walked by one time after I did that and asked, ‘What smells like bandaids?’ I thought that a good description of the smell – ha!

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        It does indeed smell like Bandaids. I ad a friend recently tell me it reminded him of the plastic they mold Barbie out of.

        2 years ago Log in to Reply
    22. TomH

      My understanding the smell comes from phenol which is used as preservative and sterility agent.

      2 years ago Log in to Reply
    23. Thomas Cline

      I understand that it is phenol, and I’ve always wondered why, if it is sufficiently concentrated for me to smell it AND for it to potentially kill bacteria, that it doesn’t sting more to inject. To me it smells like crayons — a good smell.

      2 years ago Log in to Reply
    24. Anneyun

      I never really paid any attention to the smell but once when my grown kids were home visiting and I was filling my pump, one of my daughters said “oh I like that smell. The smell reminds me of you mom, and so it is a comforting smell”, and my other daughters agreed.

      4
      2 years ago Log in to Reply
    25. Janis Senungetuk

      No, not anymore. After 68+ years of taking various kinds of insulin, the alcohol swab and insulin smell are so much a part of my daily life I’m no longer aware of it.

      2 years ago Log in to Reply
    26. Tim Moeslein

      Smells like life 🙂

      5
      2 years ago Log in to Reply
    27. mojoseje

      Of course. lol
      My cat loves how insulin smells.

      2 years ago Log in to Reply
    28. Amanda Barras

      Of course! Everyone in my house knows what insulin smells like. Sometimes if they smell it they ask me if I have a leaking site. One time they were right! Good catch!

      2
      2 years ago Log in to Reply
    29. Sandy Norman

      Funny all the different reactions to the smell. Like Anneyun’s comment my daughter also loves the smell as it reminds her of me and she also smells it on other diabetics in public.

      2
      2 years ago Log in to Reply
    30. Jeff Balbirnie

      An interesting question! Sometimes, yes… but not constantly enough that I can easily define it. Sometimes immediately after injection of the huma-log, I also get/got a brief flavor in my mouth, very rarely now, but initially, originally more so.

      2 years ago Log in to Reply
    31. Daniel Bestvater

      Yes I notice the smell, even after 45+ years of using insulin. In university I did some medical research where phenolic preservatives were used. My insulin smells much like the lab did.

      2 years ago Log in to Reply
    32. T1D4LongTime

      I marked “Unsure” because I do not smell the insulin unless I spill some out when filling the insulin cartridge or when preparing a manual injection. Insulin has a DISTINCT odor when exposed to air.

      2 years ago Log in to Reply
    33. ConnieT1D62

      Yes .. to me it just smells like insulin … it is what it is probably because I am so used to it.

      2 years ago Log in to Reply
    34. Velika Peterson

      Yes, I like the smell of insulin.

      2 years ago Log in to Reply
    35. PamK

      My husband hates the smell!

      2 years ago Log in to Reply

    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin? Cancel reply

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