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    • 6 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 hour, 21 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 1 hour, 22 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 hour, 22 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 hour, 23 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 hour, 24 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 hour, 25 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 hour, 25 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 1 hour, 25 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 3 hours, 27 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 48 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 5 hours, 10 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 5 hours, 34 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 5 hours, 34 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 5 hours, 34 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 5 hours, 49 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 50 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 6 hours, 51 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 21 hours, 51 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 21 hours, 51 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 21 hours, 52 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?

    Home > LC Polls > When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    41 Comments

    1. Becky Hertz

      It’s the preservative. My son even knows what it smells like – surprised me one day when he asked if I spilled my insulin.

      2 years ago Log in to Reply
      1. William Bennett

        It’s very handy for checking whether you’ve got a leak from a bent cannula or bad insertion at your infusion site!

        3
        2 years ago Log in to Reply
    2. Phyllis Biederman

      I barely notice the smell, though it has a distinctive. Metallic scent. My husband can’t stand the smell (so I make sure i don’t change my infusion sets near him. And I’ve had patients who can taste the insulin when they inject!

      2 years ago Log in to Reply
      1. LuckyPineapple

        Oh god. Taste it?! That sounds awful.
        My husband and I always joke that we’ll have to cut off our hand if we get insulin on it because the smell won’t wash off easily!

        2 years ago Log in to Reply
    3. Ahh Life

      No in 73 years of taking insulin.

      Aging brings olfactory degradation, visual degradation, audio degradation, and haptic degradation.

      But the really good news is I can still relish the umami, habaneros, red peppers, and horseradish flavors intensely with intensity. 🙂🙃🙂

      3
      2 years ago Log in to Reply
    4. LuckyPineapple

      Insulin smells like bandaids!!

      3
      2 years ago Log in to Reply
    5. Kristen Clifford

      Yes, and it stinks!

      2 years ago Log in to Reply
    6. Richard Vaughn

      I do not notice the odor of my insulin, but I have used insulin for 78 years. Maybe that is the reason I do not detect an odor.

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        Hey Richard. Fancy meeting you here :-).

        2 years ago Log in to Reply
    7. William Bennett

      Of course. Smells like bandaids, always has (I was dx’d in 1983). I’m told it’s the preservative. Guess they use the same chemical.

      2 years ago Log in to Reply
    8. Greg Felton

      I don’t think it is strong or aromatic so I barely notice it, but it does smell like Band Aids if I really try to take a whiff.

      2 years ago Log in to Reply
    9. Katherine Kettig

      I can smell it when I prime my pen before an injection. Bandaids was a good description of the smell to me!

      2 years ago Log in to Reply
    10. Ernie Richmann

      Are they running out of meaningful questions. Is there a hidden purpose to this question?

      2
      2 years ago Log in to Reply
    11. Patricia Kilwein

      I smell like it as well.

      2 years ago Log in to Reply
    12. Joan Benedetto

      Yes. It’s a strong bandaid smell!

      1
      2 years ago Log in to Reply
    13. JanP

      Yes and I hate it. I associate it with being diabetic and it just makes me hate it more. I do agree that the smell helps to alert me to a leak.

      2 years ago Log in to Reply
    14. Lawrence S.

      Yes. Insulin smells like a dentist office, or a doctor’s office, or a hospital. Something like that. I don’t mind the smell at all. It is the smell of life!

      3
      2 years ago Log in to Reply
    15. Jane Cerullo

      Really dislike the smell of insulin.

      2 years ago Log in to Reply
      1. George Lovelace

        Really? To me it’s like “Apocalypse Now”; “I Love The Smell Of Insulin in the Morning, It Smells Like Victory!!”

        7
        2 years ago Log in to Reply
    16. dholl62@gmail.com

      Not all the time do I get a smell when drawing up insulin . More time I get the smell when I replace my insulin pump sensor

      2 years ago Log in to Reply
    17. Sherolyn Newell

      I have never noticed a smell, but, of course, next time I will try to smell it.

      2 years ago Log in to Reply
    18. Tom Caesar

      The smell of life? Unfortunately my sense of smell left me about 10-15 years ago, wonder if a byproduct of my diabetes?

      2 years ago Log in to Reply
    19. Lyn McQuaid

      One of my cats *loves* the smell of insulin and likes to be around when I change my pump infusion set. I have to stop him from trying to lick it – yuck!

      3
      2 years ago Log in to Reply
      1. lis be

        I didn’t realize the smell was phenols until I read through this, then I googled “cats and phenol” and it says the smell is pretty bad for cats. I had no idea 🙁

        2 years ago Log in to Reply
    20. Gary Rind

      I notice the smell when the pen has gotten too warm and that is just the worst!

      2 years ago Log in to Reply
    21. Yaffa Steubinger

      I smell it when I shoot my 2 units in the air to be sure no air bubbles in the pen. My daughter walked by one time after I did that and asked, ‘What smells like bandaids?’ I thought that a good description of the smell – ha!

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        It does indeed smell like Bandaids. I ad a friend recently tell me it reminded him of the plastic they mold Barbie out of.

        2 years ago Log in to Reply
    22. TomH

      My understanding the smell comes from phenol which is used as preservative and sterility agent.

      2 years ago Log in to Reply
    23. Thomas Cline

      I understand that it is phenol, and I’ve always wondered why, if it is sufficiently concentrated for me to smell it AND for it to potentially kill bacteria, that it doesn’t sting more to inject. To me it smells like crayons — a good smell.

      2 years ago Log in to Reply
    24. Anneyun

      I never really paid any attention to the smell but once when my grown kids were home visiting and I was filling my pump, one of my daughters said “oh I like that smell. The smell reminds me of you mom, and so it is a comforting smell”, and my other daughters agreed.

      4
      2 years ago Log in to Reply
    25. Janis Senungetuk

      No, not anymore. After 68+ years of taking various kinds of insulin, the alcohol swab and insulin smell are so much a part of my daily life I’m no longer aware of it.

      2 years ago Log in to Reply
    26. Tim Moeslein

      Smells like life 🙂

      5
      2 years ago Log in to Reply
    27. mojoseje

      Of course. lol
      My cat loves how insulin smells.

      2 years ago Log in to Reply
    28. Amanda Barras

      Of course! Everyone in my house knows what insulin smells like. Sometimes if they smell it they ask me if I have a leaking site. One time they were right! Good catch!

      2
      2 years ago Log in to Reply
    29. Sandy Norman

      Funny all the different reactions to the smell. Like Anneyun’s comment my daughter also loves the smell as it reminds her of me and she also smells it on other diabetics in public.

      2
      2 years ago Log in to Reply
    30. Jeff Balbirnie

      An interesting question! Sometimes, yes… but not constantly enough that I can easily define it. Sometimes immediately after injection of the huma-log, I also get/got a brief flavor in my mouth, very rarely now, but initially, originally more so.

      2 years ago Log in to Reply
    31. Daniel Bestvater

      Yes I notice the smell, even after 45+ years of using insulin. In university I did some medical research where phenolic preservatives were used. My insulin smells much like the lab did.

      2 years ago Log in to Reply
    32. T1D4LongTime

      I marked “Unsure” because I do not smell the insulin unless I spill some out when filling the insulin cartridge or when preparing a manual injection. Insulin has a DISTINCT odor when exposed to air.

      2 years ago Log in to Reply
    33. ConnieT1D62

      Yes .. to me it just smells like insulin … it is what it is probably because I am so used to it.

      2 years ago Log in to Reply
    34. Velika Peterson

      Yes, I like the smell of insulin.

      2 years ago Log in to Reply
    35. PamK

      My husband hates the smell!

      2 years ago Log in to Reply

    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin? Cancel reply

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