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    • 50 minutes ago
      Kris Sykes-David likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 1 hour, 10 minutes ago
      beth nelson likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 1 hour, 57 minutes ago
      Mick Martin likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      Echo Mick Martin. Gastroparesis? Try ondonestron (sp?) one of the 10 best medicines ever invented. Also, "a forever learning curve" and "If in doubt, pull it out."
    • 17 hours, 54 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 18 hours, 1 minute ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 18 hours, 26 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 3 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 23 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 23 hours, 23 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 43 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 17 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 18 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
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    When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.

    Home > LC Polls > When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
    Previous

    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Next

    For how long did you experience symptoms of T1D before your diagnosis?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    57 Comments

    1. wyndare3

      I have yet to travel since being diagnosed in March of 2022.

      2
      5 months ago Log in to Reply
    2. Molly Jones

      I stopped checking in baggage quite a long time ago after losing my bags once. I have a long list of medications and medical supplies that can be difficult to access if time ran out or bags were lost.
      I have the largest carryon bag / purse possible and can fit everything needed for up to a month in there through yearly experience with international travel visiting family. If we were to go on holiday to a new location, I would possibly check in a bag of extra clothing.

      3
      5 months ago Log in to Reply
    3. Jneticdiabetic

      I usually carry on all diabetes supplies & meds with me in case of lost luggage. However, those darn Dexcom applicators are HUGE! For a longer trip, I might carry on just 1 back-up sensor, infusion set, pump charger, and always my insulin, syringes and meter.

      4
      5 months ago Log in to Reply
    4. Patricia Dalrymple

      After being promised my bags quickly on a cruise line and then waiting hours, I always do carry on.

      1
      5 months ago Log in to Reply
    5. Grey Gray

      I carry a kit that will keep me alive for 2 weeks. In my hand or on my person at all times when traveling. I keep the same supplies in my vehicle or on me all the time. Never know when a disaster may happen.

      4
      5 months ago Log in to Reply
      1. Marsha Miller

        Smart idea!

        1
        5 months ago Log in to Reply
    6. ELYSSE HELLER

      Traveling with T1D is a PIA! My carry on bag is just slightly smaller than my check in bag with my clothes. And now that I am on Dexcom nothing can go through the scanner. I always get patted down for security anyway because of my pump. Not traveling anymore these days anyway due to all of the viruses.

      2
      5 months ago Log in to Reply
    7. Lawrence S.

      I answered that I carry-on as much as I can. But, the TRUTH is, I refuse to fly, and haven’t since the early 1990’s. I have absolutely no (zero) confidence in the airline industry. I don’t feel safe flying, and I don’t like the way they run the airline industry. I drive across country to see family, and have no problem doing so.
      But, if there were a case where I had to fly, I would not let my diabetic supplies, or any medical supplies out of my sight.

      1
      5 months ago Log in to Reply
    8. AimmcG

      I always carry on as I have lost baggage before and trying to get pump supplies and insulin can be problematic. My pump broke while I was in Ireland many years ago and although it was supply related, I was unable to get a replacement which basically ruined the 2nd half of my trip. I only had short acting insulin and my glucose monitor so I ate very little and my fingers were raw by the end of the trip.

      2
      5 months ago Log in to Reply
      1. Marsha Miller

        I have learned that the pump companies will let us borrow a loaner to take with us when traveling overseas.

        5 months ago Log in to Reply
      2. Bea Anderson

        Sorry to hear about your Ireland trip! I take old extra Medtronic pump along, but use omnipod 5, so maybe not as important. Does your pump company offer a loaner program? We can’t deny t1 is a travel concern. I will add proper syringes for fast acting insulin now. I’ve never used!! I would have been a wreck. Good reminder to be mentally prepared to do what you have to do.

        5 months ago Log in to Reply
      3. Robert Brooks

        I always carry a Lantus pen in the carryon. Long acting insulin in case the pump fails.

        5 months ago Log in to Reply
    9. Ms Cris

      Medical bags are not counted as a carryon. I always pack everything I need in its own bag/case that has a large medical alert sticker, separate from my actual carryon. I use the TSA card, too. I’ve done this internationally with no problems, either.

      9
      5 months ago Log in to Reply
      1. Ernie Richmann

        Did not know. Thanks

        2
        5 months ago Log in to Reply
      2. Mary Halverson

        Ms Cris, from where can one get those medical alert stickers?

        1
        5 months ago Log in to Reply
      3. Ms Cris

        @Mary Halverson I’ve used various sources.

        On Etsy I love the vinyl decals by ISLArey shop for my car, phone, and hardcase. She customizes, too.

        I also use medical alert luggage tags, lots on Amazon. Get ones where you can insert contact info card on the back.

        Finally, TSA provides cards and notifications for your flight (u.s. side only) https://www.tsa.gov/travel/special-procedures

        2
        5 months ago Log in to Reply
      4. ConnieT1D62

        Thank you for sharing such great tips and useful information for travel with diabetes.

        2
        5 months ago Log in to Reply
      5. Bea Anderson

        Good to know!! And smart!

        1
        5 months ago Log in to Reply
      6. Marsha Miller

        Where did you get the medical alert sticker?

        2
        5 months ago Log in to Reply
      7. Ms Cris

        @Marsha Miller and others, I’ll repost:

        I’ve used various sources.

        On Etsy I love the vinyl decals by ISLArey shop for my car, phone, and hardcase. She customizes, too.

        I also use medical alert luggage tags, lots on Amazon. Get ones where you can insert contact info card on the back.

        Finally, TSA provides cards and notifications for your flight (u.s. side only) https://www.tsa.gov/travel/special-procedures

        1
        5 months ago Log in to Reply
    10. George Lovelace

      I don’t Travel

      5 months ago Log in to Reply
    11. Marty

      When I regularly traveled for work, I carried 2 or 3x the supplies I could reasonably expect to use during my trip in my carryon along with a decent supply of cheese sticks and protein bars. I was in Boston during the Boston bombing when street travel was restricted and I’m old enough to remember 9/11 when planes were grounded so I’m a bit paranoid about running out of stuff.

      2
      5 months ago Log in to Reply
    12. Joan Fray

      My husband loves to travel, and since I normally go with him, I’ve been all over the world. Usually go for two to three weeks at a time. So I try to get as much as I can in the carryon, and put some clothes in his bag. Turns out you really don’t need that many clothes while traveling, but you have to have those supplies. Went to Greece for three weeks last year. But this year, he’s going for three weeks by himself. Dubai, Indonesia, Fiji. Just too much for me. I decided not to go overseas anymore. I;m 73, T1d for 60 years, and i just get tired!

      7
      5 months ago Log in to Reply
      1. PamK

        So sorry to hear that you “get tired” when travelling, Joan. I still love to travel, although I don’t get to as much as I would like. 58 years with T1D!

        3
        5 months ago Log in to Reply
      2. Becky Hertz

        Obvi, carryon, not carton 🤣

        1
        5 months ago Log in to Reply
    13. KSannie

      We have been traveling for decades, and we have had several missing checked bags or, worse, broken ones (from which supplies could escape). I always pack 50% extra supplies in case of cancelled flights or delays for other reasons, both of which we have experienced. And I pack all supplies in my carry on luggage. The only exception I made was when we were traveling abroad for 3.5 weeks, and I could not fit everything in my carry-on. I put the extra Dexcom sensor insertion devices in my checked bag and only carried on the ones I would need for the 3.5 weeks. And I changed sensors the day before we left, so that would last as long as possible. Things I can purchase abroad over the counter, I put in my checked suitcase, like hand sanitizer and glucose.

      1
      5 months ago Log in to Reply
    14. Robert Farley

      I always carry on at least 3 days of supplies and pack the rest

      5 months ago Log in to Reply
      1. Robert Brooks

        This sounds like my practice. I used to keep insulin coldwith a Frio pack or two, but for an upcoming trip I may keep uninsulated insulin in the carry-on and leave the Frio packs in the checked baggage. this avoids the hassle–sometimes extended–at TSA because they see the evaporative packs as possibly dangerous liquid.

        5 months ago Log in to Reply
    15. Chrisanda

      I carry all the supplies I would need for the trip in my carry on luggage, then carry “backup” supplies in my checked bag. All insulin goes into my carry on.

      2
      5 months ago Log in to Reply
      1. Jeremy Hanson

        I do this same thing.

        5 months ago Log in to Reply
    16. Mick Martin

      I haven’t flown since being diagnosed with Type 1 some 40+ years ago, but I do KNOW that T1D supplies SHOULD be carried in carryon baggage. I presume that you’ve all heard of “lost luggage” or “delayed luggage”, plus insulin, in particular, should NEVER be frozen, which is very likely if your luggage is carried in the hold of the plane. (It also makes sense to have blood glucose testing equipment available, especially if you need to change your insulin dose, or give a correction bolus.)

      2
      5 months ago Log in to Reply
    17. stillarobyn

      Insulin and syringes go in the carryon, pump and cgm supplies go in the checked bag. Sometimes I’ll keep one extra infusion set and maybe a reservoir in my carryon, if it’s an international flight for instance.

      1
      5 months ago Log in to Reply
    18. Mark Schweim

      Of course I have always packed everything in my carry-on. I don’t fly very often and the only time I ever had any checked luggage was the one time when I flew to Germany. All my other flights, literally 100% of what I took with me fit in my carry-on and I had no checked luggage to pack anything in.

      5 months ago Log in to Reply
    19. PamK

      I always pack my medications and equipment that cannot go through xray, including sensors and meter/test strips, in my carryon. I also put at least some of my other equipment, IE: infusion sets and reservoirs and syringes, in there. Anything else that does not fit goes into my checked bag, such as more infusion sets, reservoirs, extra alcohol swabs, etc.

      5 months ago Log in to Reply
    20. Janis Senungetuk

      All medical supplies go in carryon bag that I place beneath my seat. I try to avoid having to check any luggage if at all possible.

      5 months ago Log in to Reply
    21. Bea Anderson

      I said second choice. Perhaps the question should have specified packing for wk end, one week, or long vacation trip. Short trip medical supplies would fit in carryon. Long vacation or long flight insulin always with me, but some pump/cgm pkg is pretty bulky and will not fit. I feel confident placing extra supplies on any flight live animals are shipped. No extreme heat or cold.

      2
      5 months ago Log in to Reply
      1. Kelly Wilhelm

        Agree. It def depends on length of trip but generally I don’t check a bag BUT for long long trip I check bag with extra supplies if they don’t fit in carry on. Just depends on situation. I’ve been denied the extra medical bag and been required to combine bags while trying to board the plane.

        5 months ago Log in to Reply
    22. Becky Hertz

      Helps that you’re allowed an extra carton for medical supplies, just make sure it’s only medical supplies.

      3
      5 months ago Log in to Reply
      1. KarenM6

        Oh! I didn’t know that… very cool!

        5 months ago Log in to Reply
    23. Kristine Warmecke

      All medications and T1D supplies go in my carry on.

      5 months ago Log in to Reply
    24. Jane Cerullo

      Everything goes into an under seat carry on. Would never trust airline e not to lose luggage.

      5 months ago Log in to Reply
    25. MARIE

      We have travelled several times for periods of a month or two and are always able to fit all supplies for a tandem t-slim pump and dexcom CGM into a carry-on. For two months, it is one very full well-packed bag but it all fits.
      The bag is never the issue. It’s the pump that is always the problem because we have to fight to avoid going through the full body scanner. The TSA disabilities card does not help (at least not in Boston Logan.) They don’t know what it is and they ignore it. When we make a appointment ahead of time with TSA cares, they make us wait for a long time (15 min) for the agent and then often tell us that no one is available anyway.

      5 months ago Log in to Reply
      1. Ms Cris

        If an agent starts acting like this, I remind them they are in violation of the Americans with Disabilities Act, call their manager now, I’ll wait. That has worked every time.

        3
        5 months ago Log in to Reply
      2. MARIE

        Unfortunately, they simply remind you that disability status does not exempt one from “the rules.” Of course they all enforce “the rules” a bit differently. In airports with smart, compassionate agents, you don’t have to trot out the ADA. In the others (such as Boston Logan), it makes no difference.

        1
        5 months ago Log in to Reply
      3. Diana L.

        I fly frequently. I disconnect the pump and put it in my purse.
        I don’t like the full body scanners, i ask for a pat down. They are usually very polite.
        With TSA precheck, most of the times they only require you to go through the metal detector.
        There is no need to bypass therules.
        Safe travels!

        5 months ago Log in to Reply
    26. Sherrie Johnson

      Life with better care yet this question sometimes are well I don’t know what to say about them they’re not very smart

      5 months ago Log in to Reply
      1. Sherrie Johnson

        I dictated and that didn’t come out at all it was supposed to be it’s our life we better carry our medicine you never can rely on other people at least that’s what I’ve always done

        1
        5 months ago Log in to Reply
    27. mbulzomi@optonline.net

      May I clarify the question, a Carry-on is a bag put into the overhead compartment. I have travelled all around the world and carry a small case in my HAND with at least three days of supplies, including my Insulin in a FRIO, insulin cooler. It never leaves my sight!

      1
      5 months ago Log in to Reply
    28. Jen Farley

      I have never flown anywhere. I like the drive!

      1
      5 months ago Log in to Reply
    29. TEH

      I flew a lot for my employers when I worked. Like others, I carried on what I needed to cover the trip plus some reserves. I retired 4 years ago and stopped flying all together. My wife hates to fly so it’s not a problem for me. We take our RV.

      5 months ago Log in to Reply
    30. KC

      I put everything that I know I will definitely need and then some in my “personal bag” which is with me under the seat in front of me. If there are additional items, it will go in my carryon (the one going overhead). I pack lightly and tightly and may have checked my bag once maybe twice due to all the horror stories.

      5 months ago Log in to Reply
    31. Anthony Harder

      I learned this the hard way, years ago. I flew to Chicago and my bag flew to Pittsburgh. Ever since, I keep my supplies within reach when traveling.

      5 months ago Log in to Reply
    32. Kris van Bergen

      I actually pack all diabetes supplies in a SEPARATE carry on, because most airlines will allow a medical bag that is not counted as THE carry on typically allowed for passengers.

      5 months ago Log in to Reply
    33. Jeff Balbirnie

      Fanny pack always

      1
      5 months ago Log in to Reply
    34. T1D4LongTime

      Usually all T1D supplies and medications go with me on my carryon. Can’t risk freezing in cargo holds or lost luggage. Extra week of test strips, etc. sometimes I will pack in checked baggage, but seldom.

      5 months ago Log in to Reply
    35. Wanacure

      I no longer fly. But when I did i carried medical supplies and extra food as carry on. Today, whether running errands on foot or by bus or taxi, I ALWAYS carry Dexcom, One Touch meter, sugar cubes, prefilled insulin syringes with me in backpack, pockets of pants and/or backpack. Let recent SW Airlines lost luggage snafu be a warning.

      5 months ago Log in to Reply
    36. Sara Kvenvik

      I haven’t flown since my type 1 diabetes.

      4 months ago Log in to Reply

    When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying. Cancel reply

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