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    • 1 hour, 7 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 1 hour, 7 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 2 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 3 hours, 2 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 3 hours, 38 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 21 hours, 32 minutes ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 1 hour ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 2 days, 18 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 3 days, 13 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 1 hour ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 2 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 3 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 3 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 4 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 14 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 5 days ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days, 2 hours ago
      Marty likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days, 19 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      And TCOYD
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    When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.

    Home > LC Polls > When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
    Previous

    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Next

    For how long did you experience symptoms of T1D before your diagnosis?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    57 Comments

    1. wyndare3

      I have yet to travel since being diagnosed in March of 2022.

      2
      3 years ago Log in to Reply
    2. Molly Jones

      I stopped checking in baggage quite a long time ago after losing my bags once. I have a long list of medications and medical supplies that can be difficult to access if time ran out or bags were lost.
      I have the largest carryon bag / purse possible and can fit everything needed for up to a month in there through yearly experience with international travel visiting family. If we were to go on holiday to a new location, I would possibly check in a bag of extra clothing.

      3
      3 years ago Log in to Reply
    3. Jneticdiabetic

      I usually carry on all diabetes supplies & meds with me in case of lost luggage. However, those darn Dexcom applicators are HUGE! For a longer trip, I might carry on just 1 back-up sensor, infusion set, pump charger, and always my insulin, syringes and meter.

      4
      3 years ago Log in to Reply
    4. Patricia Dalrymple

      After being promised my bags quickly on a cruise line and then waiting hours, I always do carry on.

      1
      3 years ago Log in to Reply
    5. Grey Gray

      I carry a kit that will keep me alive for 2 weeks. In my hand or on my person at all times when traveling. I keep the same supplies in my vehicle or on me all the time. Never know when a disaster may happen.

      4
      3 years ago Log in to Reply
      1. Marsha Miller

        Smart idea!

        1
        3 years ago Log in to Reply
    6. ELYSSE HELLER

      Traveling with T1D is a PIA! My carry on bag is just slightly smaller than my check in bag with my clothes. And now that I am on Dexcom nothing can go through the scanner. I always get patted down for security anyway because of my pump. Not traveling anymore these days anyway due to all of the viruses.

      2
      3 years ago Log in to Reply
    7. Lawrence S.

      I answered that I carry-on as much as I can. But, the TRUTH is, I refuse to fly, and haven’t since the early 1990’s. I have absolutely no (zero) confidence in the airline industry. I don’t feel safe flying, and I don’t like the way they run the airline industry. I drive across country to see family, and have no problem doing so.
      But, if there were a case where I had to fly, I would not let my diabetic supplies, or any medical supplies out of my sight.

      1
      3 years ago Log in to Reply
    8. AimmcG

      I always carry on as I have lost baggage before and trying to get pump supplies and insulin can be problematic. My pump broke while I was in Ireland many years ago and although it was supply related, I was unable to get a replacement which basically ruined the 2nd half of my trip. I only had short acting insulin and my glucose monitor so I ate very little and my fingers were raw by the end of the trip.

      2
      3 years ago Log in to Reply
      1. Marsha Miller

        I have learned that the pump companies will let us borrow a loaner to take with us when traveling overseas.

        3 years ago Log in to Reply
      2. Bea Anderson

        Sorry to hear about your Ireland trip! I take old extra Medtronic pump along, but use omnipod 5, so maybe not as important. Does your pump company offer a loaner program? We can’t deny t1 is a travel concern. I will add proper syringes for fast acting insulin now. I’ve never used!! I would have been a wreck. Good reminder to be mentally prepared to do what you have to do.

        3 years ago Log in to Reply
      3. Robert Brooks

        I always carry a Lantus pen in the carryon. Long acting insulin in case the pump fails.

        3 years ago Log in to Reply
    9. Ms Cris

      Medical bags are not counted as a carryon. I always pack everything I need in its own bag/case that has a large medical alert sticker, separate from my actual carryon. I use the TSA card, too. I’ve done this internationally with no problems, either.

      9
      3 years ago Log in to Reply
      1. Ernie Richmann

        Did not know. Thanks

        2
        3 years ago Log in to Reply
      2. Mary Halverson

        Ms Cris, from where can one get those medical alert stickers?

        1
        3 years ago Log in to Reply
      3. Ms Cris

        @Mary Halverson I’ve used various sources.

        On Etsy I love the vinyl decals by ISLArey shop for my car, phone, and hardcase. She customizes, too.

        I also use medical alert luggage tags, lots on Amazon. Get ones where you can insert contact info card on the back.

        Finally, TSA provides cards and notifications for your flight (u.s. side only) https://www.tsa.gov/travel/special-procedures

        2
        3 years ago Log in to Reply
      4. ConnieT1D62

        Thank you for sharing such great tips and useful information for travel with diabetes.

        2
        3 years ago Log in to Reply
      5. Bea Anderson

        Good to know!! And smart!

        1
        3 years ago Log in to Reply
      6. Marsha Miller

        Where did you get the medical alert sticker?

        2
        3 years ago Log in to Reply
      7. Ms Cris

        @Marsha Miller and others, I’ll repost:

        I’ve used various sources.

        On Etsy I love the vinyl decals by ISLArey shop for my car, phone, and hardcase. She customizes, too.

        I also use medical alert luggage tags, lots on Amazon. Get ones where you can insert contact info card on the back.

        Finally, TSA provides cards and notifications for your flight (u.s. side only) https://www.tsa.gov/travel/special-procedures

        1
        3 years ago Log in to Reply
    10. George Lovelace

      I don’t Travel

      3 years ago Log in to Reply
    11. Marty

      When I regularly traveled for work, I carried 2 or 3x the supplies I could reasonably expect to use during my trip in my carryon along with a decent supply of cheese sticks and protein bars. I was in Boston during the Boston bombing when street travel was restricted and I’m old enough to remember 9/11 when planes were grounded so I’m a bit paranoid about running out of stuff.

      2
      3 years ago Log in to Reply
    12. Joan Fray

      My husband loves to travel, and since I normally go with him, I’ve been all over the world. Usually go for two to three weeks at a time. So I try to get as much as I can in the carryon, and put some clothes in his bag. Turns out you really don’t need that many clothes while traveling, but you have to have those supplies. Went to Greece for three weeks last year. But this year, he’s going for three weeks by himself. Dubai, Indonesia, Fiji. Just too much for me. I decided not to go overseas anymore. I;m 73, T1d for 60 years, and i just get tired!

      7
      3 years ago Log in to Reply
      1. PamK

        So sorry to hear that you “get tired” when travelling, Joan. I still love to travel, although I don’t get to as much as I would like. 58 years with T1D!

        3
        3 years ago Log in to Reply
      2. Becky Hertz

        Obvi, carryon, not carton 🤣

        1
        3 years ago Log in to Reply
    13. KSannie

      We have been traveling for decades, and we have had several missing checked bags or, worse, broken ones (from which supplies could escape). I always pack 50% extra supplies in case of cancelled flights or delays for other reasons, both of which we have experienced. And I pack all supplies in my carry on luggage. The only exception I made was when we were traveling abroad for 3.5 weeks, and I could not fit everything in my carry-on. I put the extra Dexcom sensor insertion devices in my checked bag and only carried on the ones I would need for the 3.5 weeks. And I changed sensors the day before we left, so that would last as long as possible. Things I can purchase abroad over the counter, I put in my checked suitcase, like hand sanitizer and glucose.

      1
      3 years ago Log in to Reply
    14. Robert Farley

      I always carry on at least 3 days of supplies and pack the rest

      3 years ago Log in to Reply
      1. Robert Brooks

        This sounds like my practice. I used to keep insulin coldwith a Frio pack or two, but for an upcoming trip I may keep uninsulated insulin in the carry-on and leave the Frio packs in the checked baggage. this avoids the hassle–sometimes extended–at TSA because they see the evaporative packs as possibly dangerous liquid.

        3 years ago Log in to Reply
    15. Chrisanda

      I carry all the supplies I would need for the trip in my carry on luggage, then carry “backup” supplies in my checked bag. All insulin goes into my carry on.

      2
      3 years ago Log in to Reply
      1. Jeremy Hanson

        I do this same thing.

        3 years ago Log in to Reply
    16. Mick Martin

      I haven’t flown since being diagnosed with Type 1 some 40+ years ago, but I do KNOW that T1D supplies SHOULD be carried in carryon baggage. I presume that you’ve all heard of “lost luggage” or “delayed luggage”, plus insulin, in particular, should NEVER be frozen, which is very likely if your luggage is carried in the hold of the plane. (It also makes sense to have blood glucose testing equipment available, especially if you need to change your insulin dose, or give a correction bolus.)

      2
      3 years ago Log in to Reply
    17. stillarobyn

      Insulin and syringes go in the carryon, pump and cgm supplies go in the checked bag. Sometimes I’ll keep one extra infusion set and maybe a reservoir in my carryon, if it’s an international flight for instance.

      1
      3 years ago Log in to Reply
    18. Mark Schweim

      Of course I have always packed everything in my carry-on. I don’t fly very often and the only time I ever had any checked luggage was the one time when I flew to Germany. All my other flights, literally 100% of what I took with me fit in my carry-on and I had no checked luggage to pack anything in.

      3 years ago Log in to Reply
    19. PamK

      I always pack my medications and equipment that cannot go through xray, including sensors and meter/test strips, in my carryon. I also put at least some of my other equipment, IE: infusion sets and reservoirs and syringes, in there. Anything else that does not fit goes into my checked bag, such as more infusion sets, reservoirs, extra alcohol swabs, etc.

      3 years ago Log in to Reply
    20. Janis Senungetuk

      All medical supplies go in carryon bag that I place beneath my seat. I try to avoid having to check any luggage if at all possible.

      3 years ago Log in to Reply
    21. Bea Anderson

      I said second choice. Perhaps the question should have specified packing for wk end, one week, or long vacation trip. Short trip medical supplies would fit in carryon. Long vacation or long flight insulin always with me, but some pump/cgm pkg is pretty bulky and will not fit. I feel confident placing extra supplies on any flight live animals are shipped. No extreme heat or cold.

      2
      3 years ago Log in to Reply
      1. Kelly Wilhelm

        Agree. It def depends on length of trip but generally I don’t check a bag BUT for long long trip I check bag with extra supplies if they don’t fit in carry on. Just depends on situation. I’ve been denied the extra medical bag and been required to combine bags while trying to board the plane.

        3 years ago Log in to Reply
    22. Becky Hertz

      Helps that you’re allowed an extra carton for medical supplies, just make sure it’s only medical supplies.

      3
      3 years ago Log in to Reply
      1. KarenM6

        Oh! I didn’t know that… very cool!

        3 years ago Log in to Reply
    23. Kristine Warmecke

      All medications and T1D supplies go in my carry on.

      3 years ago Log in to Reply
    24. Jane Cerullo

      Everything goes into an under seat carry on. Would never trust airline e not to lose luggage.

      3 years ago Log in to Reply
    25. MARIE

      We have travelled several times for periods of a month or two and are always able to fit all supplies for a tandem t-slim pump and dexcom CGM into a carry-on. For two months, it is one very full well-packed bag but it all fits.
      The bag is never the issue. It’s the pump that is always the problem because we have to fight to avoid going through the full body scanner. The TSA disabilities card does not help (at least not in Boston Logan.) They don’t know what it is and they ignore it. When we make a appointment ahead of time with TSA cares, they make us wait for a long time (15 min) for the agent and then often tell us that no one is available anyway.

      3 years ago Log in to Reply
      1. Ms Cris

        If an agent starts acting like this, I remind them they are in violation of the Americans with Disabilities Act, call their manager now, I’ll wait. That has worked every time.

        3
        3 years ago Log in to Reply
      2. MARIE

        Unfortunately, they simply remind you that disability status does not exempt one from “the rules.” Of course they all enforce “the rules” a bit differently. In airports with smart, compassionate agents, you don’t have to trot out the ADA. In the others (such as Boston Logan), it makes no difference.

        1
        3 years ago Log in to Reply
      3. Diana L.

        I fly frequently. I disconnect the pump and put it in my purse.
        I don’t like the full body scanners, i ask for a pat down. They are usually very polite.
        With TSA precheck, most of the times they only require you to go through the metal detector.
        There is no need to bypass therules.
        Safe travels!

        3 years ago Log in to Reply
    26. Sherrie Johnson

      Life with better care yet this question sometimes are well I don’t know what to say about them they’re not very smart

      3 years ago Log in to Reply
      1. Sherrie Johnson

        I dictated and that didn’t come out at all it was supposed to be it’s our life we better carry our medicine you never can rely on other people at least that’s what I’ve always done

        1
        3 years ago Log in to Reply
    27. mbulzomi@optonline.net

      May I clarify the question, a Carry-on is a bag put into the overhead compartment. I have travelled all around the world and carry a small case in my HAND with at least three days of supplies, including my Insulin in a FRIO, insulin cooler. It never leaves my sight!

      1
      3 years ago Log in to Reply
    28. Jen Farley

      I have never flown anywhere. I like the drive!

      1
      3 years ago Log in to Reply
    29. TEH

      I flew a lot for my employers when I worked. Like others, I carried on what I needed to cover the trip plus some reserves. I retired 4 years ago and stopped flying all together. My wife hates to fly so it’s not a problem for me. We take our RV.

      3 years ago Log in to Reply
    30. KC

      I put everything that I know I will definitely need and then some in my “personal bag” which is with me under the seat in front of me. If there are additional items, it will go in my carryon (the one going overhead). I pack lightly and tightly and may have checked my bag once maybe twice due to all the horror stories.

      3 years ago Log in to Reply
    31. Anthony Harder

      I learned this the hard way, years ago. I flew to Chicago and my bag flew to Pittsburgh. Ever since, I keep my supplies within reach when traveling.

      3 years ago Log in to Reply
    32. Kris van Bergen

      I actually pack all diabetes supplies in a SEPARATE carry on, because most airlines will allow a medical bag that is not counted as THE carry on typically allowed for passengers.

      3 years ago Log in to Reply
    33. Jeff Balbirnie

      Fanny pack always

      1
      3 years ago Log in to Reply
    34. T1D4LongTime

      Usually all T1D supplies and medications go with me on my carryon. Can’t risk freezing in cargo holds or lost luggage. Extra week of test strips, etc. sometimes I will pack in checked baggage, but seldom.

      3 years ago Log in to Reply
    35. Wanacure

      I no longer fly. But when I did i carried medical supplies and extra food as carry on. Today, whether running errands on foot or by bus or taxi, I ALWAYS carry Dexcom, One Touch meter, sugar cubes, prefilled insulin syringes with me in backpack, pockets of pants and/or backpack. Let recent SW Airlines lost luggage snafu be a warning.

      3 years ago Log in to Reply
    36. Sara Kvenvik

      I haven’t flown since my type 1 diabetes.

      3 years ago Log in to Reply

    When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying. Cancel reply

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