18 Comments
When reviewing your diabetes data (pump, sensor, glucose meter, etc.) with your healthcare provider, do they involve you in a 2-way conversation about your data?
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I answered “Often”, but that varies on who I see.
My endocrinologist always involves me in a two-way conversation, but this is not always the case when I see one of the Diabetes Specialist Nurses.
Always. I’m who decides. Can only have healthcare people that are willing to convince me and they have and they do. It’s a team.
Whether I see my endo (who is my primary care provider) or the nurse practitioner, we go over all that data together. They help me to see a bigger picture than focusing on the odd up and downs of each 5 minutes!
They ooh and aah at the time in range then give me their standard spiel about the dangers of hypoglycemia. Yadda yadda.
I put always as I think that is what automatically happens when certain aspects of the trends are discussed. My numbers are good so they usually don’t have to do any serious looking over of the numbers, but they always ask me if there are any problems I have been having that I want to discuss.
My endo for yes has always made suggestions and let’s me agree it disagree. Have a new one now who is just the same and young and expert on pumps and cgm data. I am so grateful.
When the endocrinologist says, “These are the best numbers I’ve seen all day.”, it has very little to do with me and everything to do with the difficulty and challenges that actually present themselves to the T1D person and the endocrinologist. Thank heavens they and we recognize this. ლ( ͡~ ͜ʖ ͡°)ლ
I answered rarely. He asks how I’m doing but I don’t feel he is seeing me. I don’t need a lot of care. What I really dislike is when he just says, give me your pump and does something based on some data he sees and hands it back to me. I usually go home and change it back. But a couple of times I have seen improvement in my TIR so I leave it. This time, he felt my neck, told me to get on the table, smeared goop on me, took a sonogram of my neck and told me I had a very large nodule and to come back next week for a biopsy and gave a script to the nurse. I know where the door is but he is so convenient and while I am working 55 hours a week, I need that. Just needs to improve the bedside manner. Probably won’t happen.
My insulin use is relatively low (24-28TDD), GMI, A1C, TIR are good, but I was dx’d late in life (65) and I think a certain level of knowledge is “assumed” vice “assured” by my Endo. I’d like more discussion of the why’s, wherefor’s, how’s, and possibilities of treatment. I think if my numbers were “bad,” there’d be more discussion from the Endo’s perspective.
Yes and I always have questions prepared.
Always. Both Endo and Diabetes Educator committed to an equal partnership during our first appointment and have fulfilled that agreement over the past 6+ years.
My health care provider never looks at my data. She just does an A1C
More.so with my PA. She knows the pump settings a lot better than my Endo. My Endo rushes a bit more, also.
No
My doctor does not review my data
Other -yes. I’ve only seen my current endo once. Prior, it was a2-way discussion
I see my Endo quarterly and we have been trying forever to figure out how to find the correct rates based on my data. The university hospital has changed my Endo a few times, but it has been a 2 way conversation with them all. My Neuro is sometimes involved.
Unfortunately, my last endocrinologist never reviewed my Medtronic cgm data or my Dexcom data… I know it’s pretty bad and doesn’t make any sense at all. Sometimes older doctors are set in their ways that are not best for the patient.