Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 6 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 57 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 3 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 3 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 5 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 6 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 14 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 20 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 22 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 23 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 41 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 41 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 2 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 32 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 46 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 55 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 57 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 20 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • Collaborative
      • Leadership
      • Committees
      • Clinics
      • Portal
      • HEAL
        • Heal Advisors
      • Join Us
    • Registry
      • Recruit for the Registry
    • Research
      • Publications
      • COVID-19 Research
      • Work with us
    • Partners
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
    • Join / Login
    • Donate

    When reviewing your diabetes data (pump, sensor, glucose meter, etc.) with your healthcare provider, do they involve you in a 2-way conversation about your data?

    Home > LC Polls > When reviewing your diabetes data (pump, sensor, glucose meter, etc.) with your healthcare provider, do they involve you in a 2-way conversation about your data?
    Previous

    How easy or difficult do you find the process of uploading diabetes device data, in preparation for a virtual visit with your diabetes care provider?

    Next

    Do you typically exercise more, less or the same amount during colder months of the year as you do during warmer months?

    Sarah Howard

    Related Stories

    Medications

    Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes 

    Ginger Vieira, 9 hours ago 15 min read  
    Questions of the Day

    Do You Ever Change Your Lancet? 

    Samantha Robinson, 1 day ago 4 min read  
    Devices & Technology

    Tidepool Loop FDA Clearance: Chatting with CEO Howard Look 

    Ginger Vieira, 2 days ago 7 min read  
    Insulin

    Mark Cuban’s Cost Plus Drugs Tests New Insulin Program 

    Ginger Vieira, 2 weeks ago 4 min read  
    Devices & Technology

    Connected Insulin Delivery Devices 

    Hope Warshaw, 2 weeks ago 7 min read  
    Devices & Technology

    Automated Insulin Delivery Systems 

    Hope Warshaw, 2 weeks ago 11 min read  

    18 Comments

    1. Mick Martin

      I answered “Often”, but that varies on who I see.

      My endocrinologist always involves me in a two-way conversation, but this is not always the case when I see one of the Diabetes Specialist Nurses.

      1 year ago Log in to Reply
    2. Sahran Holiday

      Always. I’m who decides. Can only have healthcare people that are willing to convince me and they have and they do. It’s a team.

      1 year ago Log in to Reply
    3. Annie Wall

      Whether I see my endo (who is my primary care provider) or the nurse practitioner, we go over all that data together. They help me to see a bigger picture than focusing on the odd up and downs of each 5 minutes!

      1
      1 year ago Log in to Reply
    4. Mary Dexter

      They ooh and aah at the time in range then give me their standard spiel about the dangers of hypoglycemia. Yadda yadda.

      3
      1 year ago Log in to Reply
    5. AnitaS

      I put always as I think that is what automatically happens when certain aspects of the trends are discussed. My numbers are good so they usually don’t have to do any serious looking over of the numbers, but they always ask me if there are any problems I have been having that I want to discuss.

      1 year ago Log in to Reply
    6. Joan McGinnis

      My endo for yes has always made suggestions and let’s me agree it disagree. Have a new one now who is just the same and young and expert on pumps and cgm data. I am so grateful.

      1
      1 year ago Log in to Reply
    7. Ahh Life

      When the endocrinologist says, ā€œThese are the best numbers I’ve seen all day.ā€, it has very little to do with me and everything to do with the difficulty and challenges that actually present themselves to the T1D person and the endocrinologist. Thank heavens they and we recognize this. ლ( Ķ”~ā€ÆĶœŹ– ͔°)ლ

      1 year ago Log in to Reply
    8. Patricia Dalrymple

      I answered rarely. He asks how I’m doing but I don’t feel he is seeing me. I don’t need a lot of care. What I really dislike is when he just says, give me your pump and does something based on some data he sees and hands it back to me. I usually go home and change it back. But a couple of times I have seen improvement in my TIR so I leave it. This time, he felt my neck, told me to get on the table, smeared goop on me, took a sonogram of my neck and told me I had a very large nodule and to come back next week for a biopsy and gave a script to the nurse. I know where the door is but he is so convenient and while I am working 55 hours a week, I need that. Just needs to improve the bedside manner. Probably won’t happen.

      1 year ago Log in to Reply
    9. TomH

      My insulin use is relatively low (24-28TDD), GMI, A1C, TIR are good, but I was dx’d late in life (65) and I think a certain level of knowledge is “assumed” vice “assured” by my Endo. I’d like more discussion of the why’s, wherefor’s, how’s, and possibilities of treatment. I think if my numbers were “bad,” there’d be more discussion from the Endo’s perspective.

      1 year ago Log in to Reply
    10. Ernie Richmann

      Yes and I always have questions prepared.

      1 year ago Log in to Reply
    11. Janis Senungetuk

      Always. Both Endo and Diabetes Educator committed to an equal partnership during our first appointment and have fulfilled that agreement over the past 6+ years.

      1 year ago Log in to Reply
    12. Kim Murphy

      My health care provider never looks at my data. She just does an A1C

      1 year ago Log in to Reply
    13. TEH

      More.so with my PA. She knows the pump settings a lot better than my Endo. My Endo rushes a bit more, also.

      1 year ago Log in to Reply
    14. tabatha wiley

      No

      1 year ago Log in to Reply
    15. Gina Lucero

      My doctor does not review my data

      1 year ago Log in to Reply
    16. Becky Hertz

      Other -yes. I’ve only seen my current endo once. Prior, it was a2-way discussion

      1 year ago Log in to Reply
    17. Molly Jones

      I see my Endo quarterly and we have been trying forever to figure out how to find the correct rates based on my data. The university hospital has changed my Endo a few times, but it has been a 2 way conversation with them all. My Neuro is sometimes involved.

      1 year ago Log in to Reply
    18. Brandon Denson

      Unfortunately, my last endocrinologist never reviewed my Medtronic cgm data or my Dexcom data… I know it’s pretty bad and doesn’t make any sense at all. Sometimes older doctors are set in their ways that are not best for the patient.

      1 year ago Log in to Reply

    When reviewing your diabetes data (pump, sensor, glucose meter, etc.) with your healthcare provider, do they involve you in a 2-way conversation about your data? Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    11 Avenue de Lafayette
    Boston, MA 02111
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    Ā© 2022 T1D Exchange.
    All Rights Reserved.

    Ā© 2022 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    9 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    6 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    22 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    ADA

    5 Stories Related

    ADCES

    0 Stories Related

    Adult

    0 Stories Related

    Adults & T1D

    38 Stories Related

    Advocacy

    11 Stories Related

    ATTD

    10 Stories Related

    Blood Sugar

    2 Stories Related

    Blood sugar management

    29 Stories Related

    Challenges & Complications

    30 Stories Related

    Continuous Glucose Monitor

    6 Stories Related

    COVID-19

    18 Stories Related

    Devices & Technology

    29 Stories Related

    DiabeteSpeaks

    20 Stories Related

    EASD

    0 Stories Related

    En EspaƱol

    0 Stories Related

    Exercise

    3 Stories Related

    General Publications

    74 Stories Related

    Get Involved

    39 Stories Related

    Glu Guide

    9 Stories Related

    Glu Insights

    16 Stories Related

    Health Equity

    0 Stories Related

    Healthcare & Insurance

    11 Stories Related

    Hypoglycemia

    4 Stories Related

    In Depth

    1 Stories Related

    Inspiration & Advocacy

    24 Stories Related

    Insulin

    6 Stories Related

    Insulin & Meds

    0 Stories Related

    Insulins & Non-insulins

    11 Stories Related

    ISPAD

    0 Stories Related

    Journal of Diabetes

    21 Stories Related

    Learning Session

    0 Stories Related

    Medications

    2 Stories Related

    Meet the Expert

    9 Stories Related

    Mental Health

    9 Stories Related

    New & Newsworthy

    52 Stories Related

    News

    26 Stories Related

    Nutrition & Exercise

    4 Stories Related

    Other

    0 Stories Related

    Our team

    32 Stories Related

    Parenting & Families

    3 Stories Related

    Partner Content

    10 Stories Related

    Pediatric

    0 Stories Related

    Personal Stories

    16 Stories Related

    Press Release

    6 Stories Related

    Prevention

    11 Stories Related

    Questions of the Day

    18 Stories Related

    Research & Studies

    54 Stories Related

    Review

    0 Stories Related

    T1D Exchange & Glu

    16 Stories Related

    T1D Exchange News

    5 Stories Related

    Tech

    25 Stories Related

    Test Category

    0 Stories Related

    Therapies & Management

    0 Stories Related

    Type 1 Diabetes

    0 Stories Related

    Type 2 Diabetes

    0 Stories Related

    Uncategorized

    43 Stories Related

    You Told Glu

    1 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category