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    • 10 hours, 19 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 12 hours, 18 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 16 hours, 52 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 16 hours, 52 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 18 hours, 42 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 18 hours, 47 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 19 hours, 24 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 13 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 16 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 17 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 9 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 4 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 17 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 18 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 19 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 19 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 19 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 6 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 15 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
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      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
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      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
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    How easy or difficult do you find the process of uploading diabetes device data, in preparation for a virtual visit with your diabetes care provider?

    Home > LC Polls > How easy or difficult do you find the process of uploading diabetes device data, in preparation for a virtual visit with your diabetes care provider?
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    When reviewing your diabetes data (pump, sensor, glucose meter, etc.) with your healthcare provider, do they involve you in a 2-way conversation about your data?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    40 Comments

    1. Miriam Gordon

      I don’t actually have to upload anything myself. My Dexcom and t:Slim pump upload themselves automatically.

      3
      5 years ago Log in to Reply
    2. Jodi Greenfield

      my Endo is a 2-hour drive away, so I really like the video visits. I can upload my data to my computer and print reports, but there is no way to email them to my doctor, so I drop them at the post office and hope for the best – Ha!

      1
      5 years ago Log in to Reply
      1. AnitaS

        Do you mind me asking what type of system (pump and cgm) you use. I am surprised you can’t download the info and have your doctor see it.

        1
        5 years ago Log in to Reply
    3. Ruth Chapman

      Uploading data from my Omnipod PDM requires a USB connection which I don’t have on my tablets/phone. I have a chrome book with USB ports, but can’t download the diasend drivers. As I work in the hospital I can take my PDM to the Diabetes Team office and upload via the diasend uploader in their office. Data fro libre2 uploads automatically to LibreView. Frustrating that they can’t be viewed as combined data.

      2
      5 years ago Log in to Reply
    4. StPetie

      I upload data from my t-slim weekly without difficulty but have never had a virtual visit.

      5 years ago Log in to Reply
    5. TomH

      I use the Dexcom Share app, so it gets uploaded/available all the time.

      2
      5 years ago Log in to Reply
      1. Sue Martin

        I also use an InPen which I have to email the reports since they don’t have a share feature.

        5 years ago Log in to Reply
    6. Sasha Wooldridge

      I have Dex and t:Slim, which are both connected to my phone via Bluetooth so the info is always available. But I also use Tidepool, which is very easy, although it does require a USB cable to upload the data.

      5 years ago Log in to Reply
    7. Steve Rumble

      My visits, virtual or in person, typically follow extensive lab work so I do not need to upload data.

      5 years ago Log in to Reply
    8. Annie Wall

      I answered
      “other” because I never need to upload a thing, whether it’s in person or virtual because my endo automatically gets my tandem/Dexcom automatically.

      5 years ago Log in to Reply
    9. Richard Vaughn

      I saw my endo virtually only two times. I could not download my data those times. I have had visits to her office since that time.

      5 years ago Log in to Reply
    10. John Williamson

      I have to call the Medtronic help line every time!

      2
      5 years ago Log in to Reply
    11. Sondra Mangan

      Both Dexcom G6 and Omnipod DASH upload daily to Glooko automatically—so my numbers are always available to my endo and me. Love the Glooko aggregated charts.

      5 years ago Log in to Reply
    12. Ernie Richmann

      All the data is available in the dexcom clarity app.

      5 years ago Log in to Reply
    13. Henry Renn

      My struggles have been technical but eventually I manage to get it done.

      2
      5 years ago Log in to Reply
    14. Stephen Woodward

      Missed an important option, data is uploaded but MD can’t or won’t access it for the pump. One endo kicked me out from his practice be cause I voiced concern over treatment advice w/o seeing the pump data. Next endo has g ad difficulties getting to the tandem data due to convoluted process and difficulties with Tandem professional site.

      2
      5 years ago Log in to Reply
      1. AnitaS

        I just have my endo look at my site instead of the professional site.

        5 years ago Log in to Reply
      2. Lucia Maya

        I have no problem uploading usually, but it’s only for my own use. I don’t consult with my Endo, or any doctor, for diabetes help. After 45 years I either figure things out on my own, or use type 1 forums when I’m having a problem. Other T1Ds much more knowledgeable than the drs in this area.

        5 years ago Log in to Reply
    15. Becky Hertz

      I don’t have issues uploading but sometimes there is an issue, I’m assuming, on the site.

      5 years ago Log in to Reply
    16. Sheldon Schwartz

      My provider has access to all my data. I do not need to download anything.

      5 years ago Log in to Reply
    17. kristina blake

      I upload my T-Slim/Dexcom data every month. I guess my Endo looks at them before phone appts (which I prefer). But I also will get a thank you note just about every month so I doubt they have tech issues at their end. I upload often so I can review and make changes. And of course with T.I.R now getting attention it is very helpful that the upload process (at both ends) is easy.

      5 years ago Log in to Reply
    18. Janis Senungetuk

      Once I purchased a newer iMac, allowing me to access Tandem’s t:connect, I’ve been able to send pump/CGM data to my Endo before each appointment.

      5 years ago Log in to Reply
    19. dave hedeen

      the G6 data is always uploaded automatically. I do upload my Clarity data every Sunday morning. 50% of time software stated no uploader found? apparently, I need to wait approx 5 min for process to begin. My Physician is soooo happy when my data is waiting for him prior to visit.

      5 years ago Log in to Reply
    20. Pauline M Reynolds

      My Chromebook tells me I can’t do it, so I go to the office the day before so they can input the data before my virtual visit.

      5 years ago Log in to Reply
    21. LizB

      My Medtronic pump uploads automatically overnight each day. I still have to talk to my endo about access because they aren’t set up to get my data. I still had my old endo connected. So the last visit I had they still took my pump to upload. I have not have any virtual visits.

      5 years ago Log in to Reply
    22. KarenM6

      The first few times were a struggle, but I do well now.

      5 years ago Log in to Reply
    23. Carol Meares

      The PA helps me prior to connecting with the Endo. The TSlim is generally problematic in downloading but Dexcom downloads nicely in Share. My numbers are pretty much good enough that he doesn’t feel a need to look through the pump numbers. I do wish I could connect my pump info with the Dexcom info in one place automatically like in Dexcom Clarity for example. That would be awesome. I would also like to be able to add hand written notes to say what kind of foods or exercise or stress created an event or non event. This would help me understand my numbers and patterns. I know there must be other programs or apps to do this but I would like to have it in one place that would be easy to share with the Endo.

      1
      5 years ago Log in to Reply
    24. Lawrence Stearns

      I’m glad you asked this question. Also, I’m curious about the systems that upload automatically. I’ve never heard of them before.
      For years I’ve had great difficulty uploading my data to T:connect or Dexcom Clarity. It always required me to uninstall the program from my computer, then reinstall the program. Usually takes me 2 or 3 hours each time I try to upload my data. FINALLY, I discovered that I need to use the cable that came with my T Slim pump to upload data. When I used the T Slim cable, I had no problems at all the last time. I’ll keep my fingers crossed and hope that the T Slim cable resolves all the problems I’ve had over the years.

      5 years ago Log in to Reply
    25. Ahh Life

      The bitter pill of electronic communication is not simply difficult to swallow but also a burdensome demand.

      I, like many of you, use Dexcom and tSlim. Piece of cake, right?

      Wrong. Because I use secure browsers and also truncate and interfere with as many cookies as possible (as well as using numerous devices—phone, notebook, main frame, et al—communication is effectively blocked. That is my desire. Personal privacy is crucial to me. I am, I recognize, my own worst enemy. So be it.

      1
      5 years ago Log in to Reply
    26. KSannie

      I would find a virtual visit for diabetes a waste of time. I need to see my endo in person. As for uploading diabetes device data, I do not use an app, but I have tried in the past to upload data to my computer. That is no problem, but the graphs that result were absolutely useless. They said I would be able to see a trend, for example, high blood sugars after dinner every day. But I can tell that from my paper records, and that is easier to read and quicker to see. So I will not use a computer app for my device.

      5 years ago Log in to Reply
    27. Molly Jones

      I chose other as I do not have virtual visits. I find it easy to upload the data for my in person visits with Tandem and not necessary, but automatic, with Dexcom.

      1
      5 years ago Log in to Reply
    28. AnitaS

      I upload my device the day before I go into an in-person visit so the medical staff doesn’t have to do that when I get to the medical appointment. I use the T-connect on my computer.

      5 years ago Log in to Reply
    29. Sharon Gerdik

      I provided my Endo’s office staff with the link to run my reports. When I check-in I ask the front office staff to remind the MA to run the reports. When my Endo joins me in the exam room, he has the reports.

      5 years ago Log in to Reply
    30. Mig Vascos

      Dexcom automatically uploads itself anytime I’m at home thru WiFi. Tandem is very easy. Just by connecting the pump to my laptop and using the tandem
      Uploader. it just take a few minutes before any visit to the doctor.

      5 years ago Log in to Reply
    31. Britni

      When I first started out I struggled a little, but usually managed to figure it out eventually. The instructions for the Omnipod Dash were a little confusing and the Freestyle 10 and 14 day systems had 2 or 3 different apps that would open on my computer. But now I’ve just got a Freestyle 2 and it uploads automatically, so I don’t even think about it anymore.

      5 years ago Log in to Reply
    32. Antsy

      I don’t have a problem at all, my endocrinologist’s RN is the one who seems to struggle with it. No matter who downloads it, the office only looks at the last two weeks worth of data, and look at in black & white (not on the color monitor or from a color printer) so it’s not terribly helpful. I’ve offered to regularly upload my pump from home so my doc can make adjustments, but she shook her head and said “I’m afraid that’s never going to happen”.

      5 years ago Log in to Reply
    33. Kim Murphy

      My Doctor has never asked me to upload my data nor does she ask to see it during regular office visits.

      5 years ago Log in to Reply
    34. pchevillet

      Our endo office has access to follow both his dexcom and his Omnipod dash, so we don’t have to do anything.

      5 years ago Log in to Reply
    35. Brandon Denson

      In the past when I’ve always been able to upload the data without any problems to be seen and reviewed by my healthcare team.

      1
      5 years ago Log in to Reply
    36. Cheryl Seibert

      I only have in-person visits with my endo, but I prepare all my reports, print them and take them in with me. His previous diabetic educator downloaded and printed them for me when I emailed her, but the current CDE no longer provides that service.

      5 years ago Log in to Reply

    How easy or difficult do you find the process of uploading diabetes device data, in preparation for a virtual visit with your diabetes care provider? Cancel reply

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