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  • Activity
    • 15 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 39 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 46 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 46 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 46 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 17 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 32 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 43 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    How easy or difficult do you find the process of uploading diabetes device data, in preparation for a virtual visit with your diabetes care provider?

    Home > LC Polls > How easy or difficult do you find the process of uploading diabetes device data, in preparation for a virtual visit with your diabetes care provider?
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    When reviewing your diabetes data (pump, sensor, glucose meter, etc.) with your healthcare provider, do they involve you in a 2-way conversation about your data?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    40 Comments

    1. Miriam Gordon

      I don’t actually have to upload anything myself. My Dexcom and t:Slim pump upload themselves automatically.

      3
      2 years ago Log in to Reply
    2. Jodi Greenfield

      my Endo is a 2-hour drive away, so I really like the video visits. I can upload my data to my computer and print reports, but there is no way to email them to my doctor, so I drop them at the post office and hope for the best – Ha!

      1
      2 years ago Log in to Reply
      1. AnitaS

        Do you mind me asking what type of system (pump and cgm) you use. I am surprised you can’t download the info and have your doctor see it.

        1
        2 years ago Log in to Reply
    3. Ruth Chapman

      Uploading data from my Omnipod PDM requires a USB connection which I don’t have on my tablets/phone. I have a chrome book with USB ports, but can’t download the diasend drivers. As I work in the hospital I can take my PDM to the Diabetes Team office and upload via the diasend uploader in their office. Data fro libre2 uploads automatically to LibreView. Frustrating that they can’t be viewed as combined data.

      2
      2 years ago Log in to Reply
    4. StPetie

      I upload data from my t-slim weekly without difficulty but have never had a virtual visit.

      2 years ago Log in to Reply
    5. TomH

      I use the Dexcom Share app, so it gets uploaded/available all the time.

      2
      2 years ago Log in to Reply
      1. Sue Martin

        I also use an InPen which I have to email the reports since they don’t have a share feature.

        2 years ago Log in to Reply
    6. Sasha Wooldridge

      I have Dex and t:Slim, which are both connected to my phone via Bluetooth so the info is always available. But I also use Tidepool, which is very easy, although it does require a USB cable to upload the data.

      2 years ago Log in to Reply
    7. Steve Rumble

      My visits, virtual or in person, typically follow extensive lab work so I do not need to upload data.

      2 years ago Log in to Reply
    8. Annie Wall

      I answered
      “other” because I never need to upload a thing, whether it’s in person or virtual because my endo automatically gets my tandem/Dexcom automatically.

      2 years ago Log in to Reply
    9. Richard Vaughn

      I saw my endo virtually only two times. I could not download my data those times. I have had visits to her office since that time.

      2 years ago Log in to Reply
    10. John Williamson

      I have to call the Medtronic help line every time!

      2
      2 years ago Log in to Reply
    11. Sondra Mangan

      Both Dexcom G6 and Omnipod DASH upload daily to Glooko automatically—so my numbers are always available to my endo and me. Love the Glooko aggregated charts.

      2 years ago Log in to Reply
    12. Ernie Richmann

      All the data is available in the dexcom clarity app.

      2 years ago Log in to Reply
    13. Henry Renn

      My struggles have been technical but eventually I manage to get it done.

      2
      2 years ago Log in to Reply
    14. Stephen Woodward

      Missed an important option, data is uploaded but MD can’t or won’t access it for the pump. One endo kicked me out from his practice be cause I voiced concern over treatment advice w/o seeing the pump data. Next endo has g ad difficulties getting to the tandem data due to convoluted process and difficulties with Tandem professional site.

      2
      2 years ago Log in to Reply
      1. AnitaS

        I just have my endo look at my site instead of the professional site.

        2 years ago Log in to Reply
      2. Lucia Maya

        I have no problem uploading usually, but it’s only for my own use. I don’t consult with my Endo, or any doctor, for diabetes help. After 45 years I either figure things out on my own, or use type 1 forums when I’m having a problem. Other T1Ds much more knowledgeable than the drs in this area.

        2 years ago Log in to Reply
    15. Becky Hertz

      I don’t have issues uploading but sometimes there is an issue, I’m assuming, on the site.

      2 years ago Log in to Reply
    16. Sheldon Schwartz

      My provider has access to all my data. I do not need to download anything.

      2 years ago Log in to Reply
    17. kristina blake

      I upload my T-Slim/Dexcom data every month. I guess my Endo looks at them before phone appts (which I prefer). But I also will get a thank you note just about every month so I doubt they have tech issues at their end. I upload often so I can review and make changes. And of course with T.I.R now getting attention it is very helpful that the upload process (at both ends) is easy.

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Once I purchased a newer iMac, allowing me to access Tandem’s t:connect, I’ve been able to send pump/CGM data to my Endo before each appointment.

      2 years ago Log in to Reply
    19. dave hedeen

      the G6 data is always uploaded automatically. I do upload my Clarity data every Sunday morning. 50% of time software stated no uploader found? apparently, I need to wait approx 5 min for process to begin. My Physician is soooo happy when my data is waiting for him prior to visit.

      2 years ago Log in to Reply
    20. Pauline M Reynolds

      My Chromebook tells me I can’t do it, so I go to the office the day before so they can input the data before my virtual visit.

      2 years ago Log in to Reply
    21. LizB

      My Medtronic pump uploads automatically overnight each day. I still have to talk to my endo about access because they aren’t set up to get my data. I still had my old endo connected. So the last visit I had they still took my pump to upload. I have not have any virtual visits.

      2 years ago Log in to Reply
    22. KarenM6

      The first few times were a struggle, but I do well now.

      2 years ago Log in to Reply
    23. Carol Meares

      The PA helps me prior to connecting with the Endo. The TSlim is generally problematic in downloading but Dexcom downloads nicely in Share. My numbers are pretty much good enough that he doesn’t feel a need to look through the pump numbers. I do wish I could connect my pump info with the Dexcom info in one place automatically like in Dexcom Clarity for example. That would be awesome. I would also like to be able to add hand written notes to say what kind of foods or exercise or stress created an event or non event. This would help me understand my numbers and patterns. I know there must be other programs or apps to do this but I would like to have it in one place that would be easy to share with the Endo.

      1
      2 years ago Log in to Reply
    24. Lawrence Stearns

      I’m glad you asked this question. Also, I’m curious about the systems that upload automatically. I’ve never heard of them before.
      For years I’ve had great difficulty uploading my data to T:connect or Dexcom Clarity. It always required me to uninstall the program from my computer, then reinstall the program. Usually takes me 2 or 3 hours each time I try to upload my data. FINALLY, I discovered that I need to use the cable that came with my T Slim pump to upload data. When I used the T Slim cable, I had no problems at all the last time. I’ll keep my fingers crossed and hope that the T Slim cable resolves all the problems I’ve had over the years.

      2 years ago Log in to Reply
    25. Ahh Life

      The bitter pill of electronic communication is not simply difficult to swallow but also a burdensome demand.

      I, like many of you, use Dexcom and tSlim. Piece of cake, right?

      Wrong. Because I use secure browsers and also truncate and interfere with as many cookies as possible (as well as using numerous devices—phone, notebook, main frame, et al—communication is effectively blocked. That is my desire. Personal privacy is crucial to me. I am, I recognize, my own worst enemy. So be it.

      1
      2 years ago Log in to Reply
    26. KSannie

      I would find a virtual visit for diabetes a waste of time. I need to see my endo in person. As for uploading diabetes device data, I do not use an app, but I have tried in the past to upload data to my computer. That is no problem, but the graphs that result were absolutely useless. They said I would be able to see a trend, for example, high blood sugars after dinner every day. But I can tell that from my paper records, and that is easier to read and quicker to see. So I will not use a computer app for my device.

      2 years ago Log in to Reply
    27. Molly Jones

      I chose other as I do not have virtual visits. I find it easy to upload the data for my in person visits with Tandem and not necessary, but automatic, with Dexcom.

      1
      2 years ago Log in to Reply
    28. AnitaS

      I upload my device the day before I go into an in-person visit so the medical staff doesn’t have to do that when I get to the medical appointment. I use the T-connect on my computer.

      2 years ago Log in to Reply
    29. Sharon Gerdik

      I provided my Endo’s office staff with the link to run my reports. When I check-in I ask the front office staff to remind the MA to run the reports. When my Endo joins me in the exam room, he has the reports.

      2 years ago Log in to Reply
    30. Mig Vascos

      Dexcom automatically uploads itself anytime I’m at home thru WiFi. Tandem is very easy. Just by connecting the pump to my laptop and using the tandem
      Uploader. it just take a few minutes before any visit to the doctor.

      2 years ago Log in to Reply
    31. Britni

      When I first started out I struggled a little, but usually managed to figure it out eventually. The instructions for the Omnipod Dash were a little confusing and the Freestyle 10 and 14 day systems had 2 or 3 different apps that would open on my computer. But now I’ve just got a Freestyle 2 and it uploads automatically, so I don’t even think about it anymore.

      2 years ago Log in to Reply
    32. Antsy

      I don’t have a problem at all, my endocrinologist’s RN is the one who seems to struggle with it. No matter who downloads it, the office only looks at the last two weeks worth of data, and look at in black & white (not on the color monitor or from a color printer) so it’s not terribly helpful. I’ve offered to regularly upload my pump from home so my doc can make adjustments, but she shook her head and said “I’m afraid that’s never going to happen”.

      2 years ago Log in to Reply
    33. Kim Murphy

      My Doctor has never asked me to upload my data nor does she ask to see it during regular office visits.

      2 years ago Log in to Reply
    34. pchevillet

      Our endo office has access to follow both his dexcom and his Omnipod dash, so we don’t have to do anything.

      2 years ago Log in to Reply
    35. Brandon Denson

      In the past when I’ve always been able to upload the data without any problems to be seen and reviewed by my healthcare team.

      1
      2 years ago Log in to Reply
    36. Cheryl Seibert

      I only have in-person visits with my endo, but I prepare all my reports, print them and take them in with me. His previous diabetic educator downloaded and printed them for me when I emailed her, but the current CDE no longer provides that service.

      2 years ago Log in to Reply

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