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    • 16 hours, 57 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 17 hours, 3 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 17 hours, 10 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.

    Home > LC Polls > Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. Ahh Life

      Decreasing my stress is the wrong wording.

      Using a CGM (hopefully) keeps me from an immediate appointment with the grim reaper.

      4
      3 years ago Log in to Reply
    2. Steven Gill

      Definitely more at ease.

      2
      3 years ago Log in to Reply
    3. sweetcharlie

      I do not fully trust it , but it is a quick easy way to see how I am doing..

      3
      3 years ago Log in to Reply
    4. Lawrence S.

      Using a CGM makes my life easier. I don’t have to keep stopping to do blood tests. It automatically communicates with my insulin pump, and the pump makes adjustments, as needed. I used to have to do all of those things myself. Definitely less stressful.

      2
      3 years ago Log in to Reply
    5. cynthia jaworski

      Before blood testing existed, I simply ignored everyting and hoped for the best. CGM has gone beyond blood testing and makes it possible to do a decent job of managing. Of course, there is more worry than in the “ignore it” days because now there is responsibility coupled to having actual knowledge/data.
      I would probably not be here this long if it hadn’t come along.

      2
      3 years ago Log in to Reply
    6. Sue Herflicker

      It’s the arrows!! I raised 2 T1ds without the help of a CGM. They didn’t exist then. Being diagnosed myself at the age of 56, I find following the arrows can be stressful. It has so many good points don’t get me wrong. I do love it and don’t want to be without it, but being LADA, those 2 arrows down can be quite stressful. I can just imagine my poor boys, I can’t imagine following their arrows. However, at night time when they were sleeping or if they were sick, it would have been a gift.

      3 years ago Log in to Reply
    7. TEH

      I picked both. I am less stressed sleeping with CGM because it will catch lowes before they get too far. I get more stressed while driving. I can’t easily get to my pump with my seat belt on. I use a phone holder in one vehicle but checking SG is destracted driving hence more stressful. Still much better than pumping blind.

      1
      3 years ago Log in to Reply
    8. Jen Farley

      Using a CGM decreases my stress more by allowing me to see my low blood sugars coming on. It increases a slight bit because my husband can be on my case. -you going to take care of that-I did not see you eat anything-why is it to coming up.

      3 years ago Log in to Reply
    9. Kathleen Begbie

      Don’t have to carry my test kit everywhere

      1
      3 years ago Log in to Reply
    10. Jane Cerullo

      Makes T1D so much easier to manage. Prior to CGM I would be testing 10 times a day. Poor fingers. Only complaint I have with Dexcom G7 is that sometimes not accurate first day. Oh and the lousy adhesive. I use liquid SkinTac instead of patches. What’s the point of a smaller sensor if you have to add an over patch.

      1
      3 years ago Log in to Reply
      1. AnitaS

        I agree. I think the G7 should have a larger adhesive

        3 years ago Log in to Reply
    11. Kathy Hanavan

      Overall, I am more confident with CIQ, but the alarms can be stressful and annoying, especially the unnecessary ones that come repeatedly.

      1
      3 years ago Log in to Reply
    12. T1D4LongTime

      The CGM is one of the most beneficial devices for T1Ds. Knowing my glucose level in real-time decreases my stress in managing my brittle T1D. The downside is the alarms, but Dexcom app has adequate tools to eliminate alarm-overload.

      1
      3 years ago Log in to Reply
    13. Chris Albright

      Both. Enjoy the ability to see my bg at any time, but frustrated with frequent inaccurate values. With that said, it makes clossed loop pumping much easier and keeps me in my target A1c target range.

      1
      3 years ago Log in to Reply
    14. TomH

      Using a CGM is far and away better than finger sticks: better control, allows AID use with a pump, etc. It’s a life saver for those experiencing lows/severe lows. However, it can also be frustratingly stressful for unexplained highs and large swings if alarms go off if you’re not in the mindset of “Great! Now I can control it!” and more of “Damn! Now I have to control it!”

      2
      3 years ago Log in to Reply
    15. T1diabetic

      The convenience of being able to check blood sugar levels is so great!
      But the alerts that cannot be turned off is Not!

      4
      3 years ago Log in to Reply
    16. Jneticdiabetic

      Overall, CGM has made life much better. Reduces stress around worrying about unpredictable lows. The alarms and additional device management can also increase my stress at times. The last couple of days were associated with some CGM-stress. Sensor session ended just as I was getting into bed. Got up, replaced, comfortable that it would start reading in a couple of hours, but I failed to hit the last start CGM confirmation. Woke up in a rush for work with no readings. Started sensor, then about 1-2 later I get an alarm that my transmitter failed and needs to be replaced. Dang. Wasted a sensor. Then last night, with a brand new transmitter, I got multiple alarms of lost signal. I sleep so poorly as it is, such moments make me feel a little less appreciative. When it alarms that I’m heading down fast without symptoms, I quickly forgive it.

      2
      3 years ago Log in to Reply
    17. Nicholas Argento

      It has my back and protects me from severe hypoglycemia, a predator which has hunted me for 55 years. I know I can go to sleep and am extremely unlikely to be awakened by my wife frantically trying to revive me, or worse yet, a paramedic in my bedroom. I could be dead without CGM.

      2
      3 years ago Log in to Reply
    18. dave hedeen

      When CGM values are close to correct, stress disappears. Opposite, when values exceed acceptable variance, stress is magnified!

      1
      3 years ago Log in to Reply
      1. KCR

        Agree!

        3 years ago Log in to Reply
    19. Carol Meares

      On roller coaster days or on days when I have a stubborn high I watch my numbers too much and stress over them trying to stabilize but most of the time the CGM decreases stress. It would be extremely stressful to be without a CGM. I used to test 8-12 or more times per day before CGM and still unsure where my trend was going. I am so grateful for the CGM science and all it has done for my diabetes management.

      1
      3 years ago Log in to Reply
    20. NANCY NECIA

      Yes, the CGM is a major stress reducer. But I suffer from “alarm fatigue”. My biggest complaint is if my BG is going down but still above 180, the **** CGM keeps sending alarms. And it craves attention to actually tap “OK” to space out the alarm intervals. But still, the CGM is a major game changer for me and for so many other T1D! Therefore, a stress reducer across time.

      3
      3 years ago Log in to Reply
    21. Trina Blake

      Majlor decrease in the stress dept! Prior to CGM I was 15-0 fingersticks a day (why do many? Every time I got behind the steering wheel of my car I checked. I responded to too many accidents caused by impaired drivers to not check). I esp[ecially value the real time bg as well as the trend arrows and a day’s worth of flat-lining.

      I am very aggressive in my T1D mgt, I aim for normal labs, my settings reflect the range of non-D people. My CGM allows me to do that. It is also far more accurate than the meter covered by my health plan. The covered meter routinely read higher than actual (learned about that issue at an Endo CME). purchased the highest rated meter, ran my own experiment. The CGM and the highest-rated meter were very close. The covered meter often 100+ points higher than actual. That led me have an insulin correctio bolus when that was the last thing I needed. I am grateful for the alarms – and there are many since my range for alerts s 60-120.

      3 years ago Log in to Reply
    22. Janis Senungetuk

      Data overload and intermittent errors increase my stress while the ease of frequent use definitely decreases stress. Considering how often I experienced frequent, disabling lows in the past, use of a CGM now has reduced the burden of living with T1D.

      3
      3 years ago Log in to Reply
    23. AimmcG

      It’s the alarming that stresses me out

      2
      3 years ago Log in to Reply
    24. Stuart Pelcyger

      My stress decreases on days 2-7 of my G6 because it is pretty accurate then. My stress increases on the first and last 2-3 days of the session because at it time it proves totally inaccurate. Back to multiple finger sticks and eventually a call to Dexcom to replace the bad sensor.

      3 years ago Log in to Reply
    25. Sondra Mangan

      Dexcom user since 2007— less than a year after diagnosis. Before insurance covered Dex, I paid cash and made use of every bit of data I could get—charting what happened with different foods and modifying how I ate to minimize spikes. On MDI I had random overnight low lows and the Dexcom alarms kept me alive when I was awakened at 70 — not 38!

      3 years ago Log in to Reply
    26. Sue Martin

      Getting a CGM was also a great stress reducer for my husband. He didn’t have to wake me in the night to check my BG, he could just look at the CGM reader. The low alarm from DexCom really helped to wake me/us up if I really needed to make a correction.
      I had a couple of times that I didn’t get a new transmitter before the weekend and had to wait a couple of days. Being without it made me realize how much I depend on my CGM.

      1
      3 years ago Log in to Reply
    27. Amanda Barras

      Both.
      I’m more OCD about blood sugars and management but I also can live more carefree in terms of lows because I know I’ll be alerted before it becomes an issue.

      2
      3 years ago Log in to Reply
    28. KIMBERELY SMITH

      I feel much better

      3 years ago Log in to Reply
    29. Patricia Kilwein

      Using a CGM is great but it has definitely increased the stress levels. Lack of sleep is main factor. Fighting insurance and now medicare for supplies….. I could go on.

      2
      3 years ago Log in to Reply
    30. Maureen Helinski

      I love the CGM and wouldn’t do without it.

      3 years ago Log in to Reply
    31. ConnieT1D62

      The only time I stress using a CGM is when I have inserted the last one on hand from my diabetes supply closet and I await delivery of the next shipment from supplier. I am grateful and thank the powers of goodness that I have T1 diabetes sister friends nearby and we often borrow from one another to cover each other’s ass until the next shipment comes. Otherwise CGM makes T1D life so much better and less stress filled.

      3 years ago Log in to Reply
    32. Shelly Smith

      I love my CGM! I live with epilepsy as well, so knowing that my pump will take care of things on its own if I fall out is a real blessing.

      3 years ago Log in to Reply
      1. Wanacure

        I think my seizure disorder developed AFTER having severe hypoglycemic episodes with increasing frequency. No seizures since taking relatively new anti seizure oral med w/o side-effect of brain-fogging liver-taxing Dilantin.

        3 years ago Log in to Reply
    33. Wanacure

      After the initial stress of learning how to apply a CGM & then learning how to avoid “compression lows” from commentators on this website, it’s more time in range, better control, better understanding and much less stress than ever. Cherry on top: last week’s grand jury conspiracy indictment for a prominent US Mussolini/Franco wanabe.

      3 years ago Log in to Reply
    34. AnitaS

      I was hoping for a choice of not increasing or decreasing my stress. I do worry less about going low, but I don’t know if my worry was enough to be called stressful.

      3 years ago Log in to Reply
    35. mbulzomi@optonline.net

      I have been a person with Diabetes for 55 years, on an Insulin pump for over 40 years, along with using a CGM for over 11 (Medtronic and Dexcom) years. The best thing so far to maintain my overall health, including Diabetes.

      3 years ago Log in to Reply
    36. Jeff Balbirnie

      I do not NEED to know what is now available every waking second of every day. The approach induces severe hyper-vigilance, dangerous obsessiveness that has zero tangible improvement to the quality of our lives. Evert five minutes is excessive data… I was never afraid before the technology existed. Too many are now solely because of it. If you do not immediately (and instantly) know your BG soooo what! I will not be taught fear because of this technology. A good and positive life is very possible without dependance on any tech, much less this tech. Maintenance is never cure.

      3 years ago Log in to Reply
    37. lis be

      the arrow that says that my blood sugar is increasing or decreasing quickly often causes me to take a little too much insulin or too much glucose.

      3 years ago Log in to Reply

    Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question. Cancel reply

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