Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 22 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 3 hours, 22 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 4 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 4 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 41 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 41 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 4 hours, 41 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 43 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 21 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 21 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 4 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 26 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 50 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 50 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 51 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 9 hours, 6 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 7 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 10 hours, 7 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?

    Home > LC Polls > If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?
    Previous

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Next

    Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 week ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    14 Comments

    1. PamK

      When I was younger I went first to a day camp that was not specifically for children with T1D and then to an overnight camp that was specifically for children with T1D (run by the ADA).

      3 years ago Log in to Reply
    2. Britni

      I don’t have kids, so I answered N/A. When I was a kid I went to day camps. I was 17 when I went to my first (and only) sleep away camp and it wasn’t specifically for diabetics. My family and I did spend a weekend at the Clara Barton camp once; my parents were hoping I’d like it enough to go by myself the following the summer. I enjoyed the weekend, but I refused to go to the camp anyway.

      3 years ago Log in to Reply
    3. KIMBERELY SMITH

      My son isn’t DIABETIC

      1
      3 years ago Log in to Reply
    4. Velika Peterson

      My daughter is 12 and has never been able to wake up from her Dexcom alarms (even Omnipod alarms which can wake a dead man) or a phone call, so all sleepovers happen at our place and no overnight camp is in the cards for her yet.

      3 years ago Log in to Reply
    5. Karen Mielish-Clausell

      I was a child with type 1 and I went to diabetic camp it was call camp njeda in new jersey

      3 years ago Log in to Reply
    6. Bob Durstenfeld

      I went to 6th grade science camp with T1D. As did my son with T1D. I expect that my granddaughter with T1D will do the same.

      3 years ago Log in to Reply
    7. Anneyun

      When I was 14 I went to a sleep away camp for 2 weeks. I was not diagnosed as diabetic yet. While at the camp about 6 of us went away on a canoeing trip that involved canoeing all day, multiple portages (carrying the canoe and all supplies past rapids) and sleeping in tents. It was during this canoeing trip that I had my first diabetic experience, but I didn’t know what it was at the time, and I didn’t tell anyone about it. During a portage I felt extremely weak and tired and couldn’t carry the canoe. I know now it was a low blood sugar. After that we had a big snack of s’mores. And the next day while canoeing I was so thirsty I was secretly scooping handfuls of water from the lake to drink (a big no-no). I know now that was because of high blood sugar.
      I wasn’t diagnosed as diabetic for another 6 months.

      3 years ago Log in to Reply
    8. cynthia jaworski

      I had gone several years as a camper and later as a counselor to a diabetic 2 week overnight camp.

      I had gone on shorter overnight camping trips with Girl Scouts.

      No one had to worry about e hearing my dexcom because there were no dexcoms. Or blood tests either.

      3 years ago Log in to Reply
    9. Wanacure

      Side note: I always enjoy reading comments by other PERSONS WITH DIABETES (nod to Kimberly.) Now to the Q. Thanks to the eugenics movement’s influence on Mom, then me, one of the reasons I never had kids was because I worried they might “inherit” the “defect” of T1D. Mom abruptly gave up her eugenics ideology after I became T1D, but sort of blamed my Dad’s DNA. (And my Dad blamed himself!) After reading John Hersey’s book Hiroshima, and Rachel Carson’s Silent Spring, and remembering our living at Hanford for at least 4 years when U-238 was produced, our family became aware of radioactivity as a significant ENVIRONMENTAL factor affecting DNA. Assorted governments testing nuclear bombs in the atmosphere, “accidents” (Three Mile Island, Chernobyl, Fukushima, et al), and dumping of radioactive waste from nuclear reactors plus jet streams and ocean currents, guarantee the human genome has been altered. “Downwinders” from around the world have sued governments and corporations for decades. Helpful hint: make sure your salt has iodine. 🥴

      3 years ago Log in to Reply
    10. Samantha Hunter

      I dont have a kid, but when I was a kid with diabetes I would regularly go to non-diabetic sleep away camps.

      1
      3 years ago Log in to Reply
    11. KarenM6

      When I was a kid, I went to a couple of non-diabetic specific camps. I have never been to a diabetic one.

      3 years ago Log in to Reply
    12. Hadley Horton

      When I was a kid, I attended a diabetes camp for a week long session in the summer

      3 years ago Log in to Reply
    13. Kris van Bergen

      Yes, but only when I’ve gone with her because the camps in our area do not have nursing or health staff who are educated in diabtetes care.

      3 years ago Log in to Reply
    14. Anthony Harder

      Neither of my children have T1D. However, when I was a child, in the 1960’s I would attend a church camp in South Dakota by myself.

      3 years ago Log in to Reply

    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]