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    • 1 hour, 59 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 1 hour, 59 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 hours, 28 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 10 hours, 50 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 20 hours, 23 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 20 hours, 24 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 20 hours, 24 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 20 hours, 24 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 6 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 10 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 11 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 8 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (5 = the most satisfied, 1 = the least satisfied)

    Home > LC Polls > On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (5 = the most satisfied, 1 = the least satisfied)
    Previous

    Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes?

    Next

    On average, how long do you have to travel to see your diabetes care provider? Please answer for the time it takes to get to the clinic from whichever location you most often leave for your appointments, whether that be your home, your workplace, or another location.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    36 Comments

    1. Ahh Life

      • I was going to answer 5, but I got to thinking of the expense of my time doing administrative and payment matters. Same goes for the expense of my time wasted pursuing diabetic gewgaws and fandangle. Great stuff, but is it worth the effort when priced out fully? 🧰

      6
      4 years ago Log in to Reply
    2. dave hedeen

      Most- only because of current 780g and ability to self correct during night : > )

      4 years ago Log in to Reply
    3. Linda Zottoli

      Was first going to put a low number, because of all the recent problems I’ve had while dealing with greatly fluctuating needs with a CIQ that uses timing that doesn’t quite match mine, particularly when gastroparesis is acting up. But, thinking of how those needs would have been met with my 2 shots of Regular and NPH insulin, not any home blood glucose monitoring of any kind, and that regimented diet of 1955, I moved the number way up.

      4
      4 years ago Log in to Reply
      1. sweet charlie

        1953 for me.. I do not have any so called T1D problems..{lucky ?? ]… The bigest pain was having to boil the syring and needle every day..
        On the CGM less than 2 years now and lately do not trust it!!

        4 years ago Log in to Reply
    4. Nevin Bowman

      I’m tired of better more expensive technology. We should have better options.

      2
      4 years ago Log in to Reply
      1. sweet charlie

        thats why I reject most of it !!

        4 years ago Log in to Reply
    5. KCR

      When the tech works the way it’s supposed to do and BG control is fairly smooth, I’d say 5. But when the CGM goes wonky or there are issues with the Pod, I’d say 2 (or maybe 3 ‘cos it’s still better than a zillion fingersticks and injections).

      1
      4 years ago Log in to Reply
      1. sweet charlie

        Lately my G6 has gone BIZERK !!

        4 years ago Log in to Reply
    6. Robin Melen

      It’s a lot easier than I thought it would be. Am only a year in, but have a good pump that understands me (and I understand it), and I am getting the hang of bolusing properly for meals and coffee, etc. It could be so much worse, so I choose to say it’s really fine!!

      2
      4 years ago Log in to Reply
    7. Eva

      Day-to-Day I am very satisfied. I know what to do and it is not burdensome. I wish I didn’t have to watch what I eat and how much. Other than that, I really can’t complain. My A1C is perfect and my blood sugar is very well controlled.

      3
      4 years ago Log in to Reply
    8. Toddrich

      Kaiser Permanente of Washington does a pretty good job taking care of me. Anything u need to talk with someone they are but a phone call away.

      4 years ago Log in to Reply
    9. Sue Martin

      I don’t stress about it too much. I probably should be more concerned. After 37 years I mostly know my routine. My Endo doesn’t seem to pay much attention to me.
      It would be nice if there were better refresher courses for us long-timers. I see others on Reddit who are stressed out about their BG and A1C. There should be a way to be more balanced and still achieve a good life.

      2
      4 years ago Log in to Reply
    10. kristina blake

      I answered 4 – and it is because I manage my T1D – not the Endo practice I have to use. My standards are higher than theirs (meaning tighter control – not higher bg’s) I aim for non-D labs and won’t settle for “an A1C of 7 is acceptable”. I actually take pride in my T1D mgt.

      3
      4 years ago Log in to Reply
    11. Janis Senungetuk

      It’s difficult to separate the very frustrating time spent / wasted with administrated tasks from the improvement in the quality of my life that new technology has brought. When all the components work well together I’m definitely satisfied.

      3
      4 years ago Log in to Reply
    12. George Lovelace

      CIQ I rate a 5 since A1c is 5.4, Best since 1964

      2
      4 years ago Log in to Reply
    13. Stephen Woodward

      Currently I’m caring for my father, hours from my home, and getting him moved into a facility. The distractions and limited opportunities to live my own lifestyle that keeps me healthy is limited. At home I am able to exercise and eat my normal meal plan. Normally I would cruising at a 5-4 satisfaction for my T1D care and not have to constantly adjust treatment regimen. Looking forward to getting back on track.

      2
      4 years ago Log in to Reply
      1. Lawrence S.

        I sympathize with your situation. Years ago, I went through something similar with my father in the hospital and long term care. I was totally exhausted stopping in to see my dad almost every day, on top of working and commuting long hours. It affected all facets of my life. I hope you get through it okay, and I wish you well.

        2
        4 years ago Log in to Reply
    14. T1D4LongTime

      Overall, I am satisfied with my T1D care routine. The insulin pump and CGM are wonderful tools. However, the healthcare industry dictating what type of insulin, when you can reorder and quantity issues, T1D care routine is sometimes a challenge.

      4
      4 years ago Log in to Reply
    15. Steven Gill

      I see a general practitioner who listens and so far is agreeable (will see when I ask for some more testing?). Much of my diabetic education was from non-professionals (not doctors or educators). My a1C is dropping with nothing but adjustments in “dose and timing” and confidence in my CGM. I’m comfortable and confident in what’s going on, and things will get better.

      4 years ago Log in to Reply
    16. Mike S

      As others have commented, the day to day is generally fine thanks to pump and CGM. That said, the background struggle to get insurance to cover those is a constant struggle. I am again, for the 5th year in a row, still trying to get the proper paperwork from endo and third party supplier to the insurance so they’ll okay my Dexcom as necessary. This year has been the worst yet, and I’m currently looking at an 8000 dollar charge that I cannot cover without resorting to going into credit card debt. Mentally, I’m exhausted, having trouble focusing in general and sinking back into depression as I wonder how much longer I’ll be able to actually have a CGM that works in real time. (Health insurance VERY unhelpfully suggested I get a free meter from them for finger sticks. Great, as if I don’t already have a few of them thanks to same health insurance being weird about which test strips they’d cover in past years.) Allied Benefits – avoid at all costs.

      6
      4 years ago Log in to Reply
      1. Kim Murphy

        I hear you. Insurance companies in general are the worst when it comes to covering anything that has to do with TD1.

        3
        4 years ago Log in to Reply
    17. Becky Hertz

      Most satisfied would be a cure.

      4
      4 years ago Log in to Reply
    18. Kim Murphy

      I love my Omnipod 5 that works on my phone and with my CGM. I was 84% in range last week without my usual check my CGM every few minutes. It is awesome at preventing lows. Not so good at preventing highs. They could improve that technology. The only reason I didn’t give it 5 is because it is so expensive. I mean really too expensive for the average person.

      2
      4 years ago Log in to Reply
    19. Lawrence S.

      I answered 4, but thought about 3. Overall, things are a 10 compared to back in 1977. But, there are still many frustrations with the day-to-day regulation. I’m amazed that my A1C is 5.8, because my control still has more high BG ‘s than I would prefer.
      There are many other frustrations. I don’t want to go to the Endocrinologist office 4 times a year, but am required to by Medicare.
      I don’t care to make phone calls to my DME supplier, Edgepark every time I need supplies. I don’t like to make a special phone call every time I want overpatches for my sensor. I don’t like the many hours I spend on the phone with insurance companies and hospitals regarding coverage for office visits and specialists.
      It’s all time consuming and exhausting. Sometimes I just feel drained by it all. There has to be an easier way.
      Having said all that. I know that I have it far better than a lot of other people. At least, I have Medicare and a secondary insurance.
      So, as I said, I’m a “4”.

      6
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Lawrence, you articulated my feelings exactly. I don’t like to complain, and I get the need for labs every 4 months – I in fact like that if something is wrong with me, it will be caught. But if nothing much has changed, why don’t need to see my Endo? I guess so he can bill the insurance? Why do I have to have new scripts when this disease is not going away? I know things change, though, so the insurance company doesn’t want to give me a huge script for test strips only to have me go on a CGM and not need them. So I struggle between being grateful and being annoyed. More grateful I guess.

        2
        4 years ago Log in to Reply
      2. Ms Cris

        Time consuming and exhausting is spot on. We pay for Drs and insurance and pharmacies to coordinate, yet here I am frequently doing their jobs for them! I gotta know the ins and outs of 30day vs 90day, all the special discount cards, how to help resubmit claims with the proper codes to get the most coverage… All that in addition to keeping myself healthy and alive. It’s so broken.

        3
        4 years ago Log in to Reply
    20. Bob Durstenfeld

      I wish that there was a faster-acting insulin that was pump approved and paid for by Medicare.

      4
      4 years ago Log in to Reply
    21. mojoseje

      If Congress would enact some sort of cap on profits so that DME, pump supplies, and CGM suppliers weren’t raking in the billions from our misfortune, and insurance companies didn’t charge more for insurance because of those outrageous costs, I would say I am greatly satisfied.

      2
      4 years ago Log in to Reply
    22. Ms Cris

      On a worldwide scale, I should say a 5. I said 4 because while I get great care, it’s so damn expensive to keep me alive, in addition to all the 24/7 work it requires. I am so tired of explaining to insurance “that’s for a T2D, I have T1D and that does not apply to my care.” Our disease needs a new name altogether. Other diseases have been successful, let’s start a movement. Anyone with me? 🤣

      2
      4 years ago Log in to Reply
    23. Juha Kankaanpaa

      I’m satisfied with the overall care routine. My bg is within healthy range 90% of the time and a1c has been under 6% for the past 10 years. The only thing that could be better is the access to latest technology a bit quicker in Australia.

      1
      4 years ago Log in to Reply
    24. Jeff Balbirnie

      Satisfaction not in the least. Foundational , fundamental pieces are and always have been summarily missing! Lacking vast pieces/core aspects satisfaction is impossible.

      4 years ago Log in to Reply
    25. Jim Andrews

      Though I routinely have great A1Cs and typically run 80-90% time in range, I don’t think I’ll ever stop trying to do better.

      4 years ago Log in to Reply
    26. Mary Ann Sayers

      I get my care from Joslin Clinic in Boston,Ma and have received a bronze medal for having survived 50 years of T1D (that was 18yrs ago). Yes, I am very satisfied with the care I receive.

      1
      4 years ago Log in to Reply
      1. Lawrence S.

        I went to the Deaconess Hospital back in 1985 and took a one week course with the Joslin Clinic while I was there. That’s were I started using blood test kits. For years, I went to the Joslin Clinic in Syracuse. I like the idea of getting a medal for living 50 years with T1D. Although, I think you deserve a gold medal. Congratulations!

        4 years ago Log in to Reply
    27. Bea Anderson

      #4. Fairly satisfied. I have good doctors, the best equipment, but I would like someone to come to my house and make delicious keto meals with my favorite recipes. It’s the little things. Diet and portions are a challenge. Food is hard due to large numbers of non-diabetic visitors.

      1
      4 years ago Log in to Reply
    28. Iggy1066

      After years of mismanagement I’m getting back on track so its a bit crazy getting everything dialed back in.

      4 years ago Log in to Reply

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (5 = the most satisfied, 1 = the least satisfied) Cancel reply

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