On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

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- 7 seconds ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 1 minute ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
- 1 minute ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 7 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 1 hour, 19 minutes ago
  
  Flo Bachrach likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
- 1 hour, 38 minutes ago
  
  kim bullock has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  My experience having had diabetes for 29 years.
- 1 hour, 38 minutes ago
  
  kim bullock has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  My experience having had diabetes for 29 years.
- 1 hour, 38 minutes ago
  
  kim bullock has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  My experience having had diabetes for 29 years.
Clear All

On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

Sarah Howard

25 Comments

Molly Jones

4, as science always has observations to make that will seem so obvious in the future.

9 months ago Log in to Reply
Sherri Mason

Lyumjev has increased my Time In Range, improved my Std Deviation and CV greatly. It also allows me much less waiting time before eating. Game Changer for me.

1

9 months ago Log in to Reply
1. Lawrence S.
  
  Lyumjev? What is that?
  
  3
  
  9 months ago Log in to Reply
2. TEH
  
  Lumajev is a fast acting insulin. It reaches full strength in about half the time as Novalog or Humalog. I tried it and every bolis burned for me.
  I saw imrovement in TIR, but am trying Fiasp now. My Endo gave me samples of both.
  
  9 months ago Log in to Reply
ELYSSE HELLER

I started using Dexcom one week ago and I am liking it. I am, however, anxiously awaiting Insulet’s Omnipod 5 system to be released to the general public. That way the closed loop Pump will adjust itself, instead of being woken up at night due to the alarms.

1

9 months ago Log in to Reply
1. GLORIA MILLER
  
  I got an email a short time ago this morning saying Omnipod 5 is now available from several pharmacies. I am waiting on the Dexcom 7 before changing from Libre to 7. Hope it will be soon or they get the Omnipod 5 to work with Libre.
  
  9 months ago Log in to Reply
Jane Cerullo

I would say 5 only if I did t have diabetes. Took me awhile to go from pump to MDI. Had trouble figuring out basal. I settled on Tresiba twice a day. Works for me. My Endo ok with it. Does anyone use Lyumjev for bolus? Works so fast. I really like it.

9 months ago Log in to Reply
1. gary rind
  
  PBM is making me switch to Lyumjev from FIASP. good to hear that it works quickly. have to use up my remaining FIASP first
  
  9 months ago Log in to Reply
TEH

My current routine is the best I have ever had. But I see it could be better. A fast acting insulin and the better bolis response of the 780G pump and better sensors are also required.

9 months ago Log in to Reply
KCR

Ordinarily I manage pretty well with my CGM and the Omnipod but the last couple of weeks have been a roller coaster due to issues with insulin absorption and unusual post-prandial BG patterns. 🤪

1

9 months ago Log in to Reply
Chrisanda

I am pretty satisfied with my Tandem and Dexcom G-6 as it stands now. I would like: a “do not disturb” alarm button for those non-critical alerts which come at 3am, such as “your sensor expires in 24 hours” (I can wait until 7 am to hear that!) or even the threshold for low cartridge alert. And I am looking forward to the ability to bolus on my phone, so I’m not having to pull the pump out of pocket or out from under my shirt (or skirt!) to bolus.
But with the current technology, I’m very satisfied 🙂

1

9 months ago Log in to Reply
Vivian Moon

I am expecting my new Tandem pump any day now. This with my Dexcom will improve my control big time! Closed loop system after 50+ years T1D.

9 months ago Log in to Reply
Steve Rumble

I would give it a 5 if my insurance covered CGMs. But the rest of my coverage makes up for that lack!

9 months ago Log in to Reply
George Lovelace

T1 58 years and Dex G6 and Tandem CIQ have given me the Best Numbers since 1963

1

9 months ago Log in to Reply
Pauline M Reynolds

Up until recently, I was very satisfied. But I just spent two weeks trying to get meds (Humalog, Lantus, Test strips) shipped. The test strips finally came one day before I was completely out.

9 months ago Log in to Reply
Mig Vascos

As far as time in range I’m getting the best numbers ever. My issue has to do with the tandem infusion sets that I can only used in my abdomen since the clasp is impossible to get in and out without seeing it. After 50 years of using this area is sometimes hard to find the right spot. I have been talking to tandem about this issue for 5 years and no new development have been made on his issue.

9 months ago Log in to Reply
1. kristina blake
  
  Have you tried TruSteel? I can place the infusion part around towards my back, and the anchor/connection piece is within easy reach. I also use my thighs
  
  9 months ago Log in to Reply
Mig Vascos

A fast insulin would also be great for the stubborn highs and the after meal peaks. If my big goes higher than 200 it takes for hours to bring it down. Sometimes I just inject 1 unit of humalog to help it go down faster.

9 months ago Log in to Reply
Don P

because of Covid restrictions I haven’t seen an Endo in 3+ yrs …the question now is satisfied with which care … personal & or health care team ??

1

9 months ago Log in to Reply
lis be

wish i could afford tandam iq and dexcom combo!

9 months ago Log in to Reply
mbulzomi@optonline.net

I checked off number four (4) because, unless you are a person with T1D. You have never lived in our SHOES. Doctor, CDE etc.

9 months ago Log in to Reply
Karen Brady

Need more context / specifics for this one. (Is this asking about the “care” as in the care I receive from healthcare providers? “Routine” as in my own T1D management?)

9 months ago Log in to Reply
M C

I put ‘other’ as I have no idea how to answer this vague question – Are you referring to the care we provide to ourselves, or to the care we receive from others, such as Endo, Diabetic educator, Ophthalmologist, etc. etc.???

9 months ago Log in to Reply
Juha Kankaanpaa

I’m satisfied with my care routine and chose 4. There is always things to improve, therefore I couldn’t have 5.

9 months ago Log in to Reply
Cheryl Seibert

I chose “4”. The insulin pump/CGM combo has been excellent for maintaining control. I am frustrated with all pumps’ failure to deliver insulin in a manner that controls my brittle diabetes post-meal rise. If my site is ‘perfect’ and I can move around, then it works. Pre-bolusing does not help. Most of my dissatisfaction is due to my own stress level and my lack of adequate ways to cope with the stress.

9 months ago Log in to Reply