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  • Activity
    • 1 hour, 30 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 12 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 2 hours, 28 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 29 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 2 hours, 45 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 2 hours, 45 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 2 hours, 46 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 2 hours, 47 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 4 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 8 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 4 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 4 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 4 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 4 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 7 hours, 9 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 7 hours, 9 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 7 hours, 10 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 7 hours, 10 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 7 hours, 57 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 8 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 8 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 8 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 8 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

    Home > LC Polls > On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)
    Previous

    If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

    Next

    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    25 Comments

    1. Molly Jones

      4, as science always has observations to make that will seem so obvious in the future.

      1 year ago Log in to Reply
    2. Sherri Mason

      Lyumjev has increased my Time In Range, improved my Std Deviation and CV greatly. It also allows me much less waiting time before eating. Game Changer for me.

      1
      1 year ago Log in to Reply
      1. Lawrence S.

        Lyumjev? What is that?

        3
        1 year ago Log in to Reply
      2. TEH

        Lumajev is a fast acting insulin. It reaches full strength in about half the time as Novalog or Humalog. I tried it and every bolis burned for me.
        I saw imrovement in TIR, but am trying Fiasp now. My Endo gave me samples of both.

        1 year ago Log in to Reply
    3. ELYSSE HELLER

      I started using Dexcom one week ago and I am liking it. I am, however, anxiously awaiting Insulet’s Omnipod 5 system to be released to the general public. That way the closed loop Pump will adjust itself, instead of being woken up at night due to the alarms.

      1
      1 year ago Log in to Reply
      1. GLORIA MILLER

        I got an email a short time ago this morning saying Omnipod 5 is now available from several pharmacies. I am waiting on the Dexcom 7 before changing from Libre to 7. Hope it will be soon or they get the Omnipod 5 to work with Libre.

        1 year ago Log in to Reply
    4. Jane Cerullo

      I would say 5 only if I did t have diabetes. Took me awhile to go from pump to MDI. Had trouble figuring out basal. I settled on Tresiba twice a day. Works for me. My Endo ok with it. Does anyone use Lyumjev for bolus? Works so fast. I really like it.

      1 year ago Log in to Reply
      1. gary rind

        PBM is making me switch to Lyumjev from FIASP. good to hear that it works quickly. have to use up my remaining FIASP first

        1 year ago Log in to Reply
    5. TEH

      My current routine is the best I have ever had. But I see it could be better. A fast acting insulin and the better bolis response of the 780G pump and better sensors are also required.

      1 year ago Log in to Reply
    6. KCR

      Ordinarily I manage pretty well with my CGM and the Omnipod but the last couple of weeks have been a roller coaster due to issues with insulin absorption and unusual post-prandial BG patterns. 🤪

      1
      1 year ago Log in to Reply
    7. Chrisanda

      I am pretty satisfied with my Tandem and Dexcom G-6 as it stands now. I would like: a “do not disturb” alarm button for those non-critical alerts which come at 3am, such as “your sensor expires in 24 hours” (I can wait until 7 am to hear that!) or even the threshold for low cartridge alert. And I am looking forward to the ability to bolus on my phone, so I’m not having to pull the pump out of pocket or out from under my shirt (or skirt!) to bolus.
      But with the current technology, I’m very satisfied 🙂

      1
      1 year ago Log in to Reply
    8. Vivian Moon

      I am expecting my new Tandem pump any day now. This with my Dexcom will improve my control big time! Closed loop system after 50+ years T1D.

      1 year ago Log in to Reply
    9. Steve Rumble

      I would give it a 5 if my insurance covered CGMs. But the rest of my coverage makes up for that lack!

      1 year ago Log in to Reply
    10. George Lovelace

      T1 58 years and Dex G6 and Tandem CIQ have given me the Best Numbers since 1963

      1
      1 year ago Log in to Reply
    11. Pauline M Reynolds

      Up until recently, I was very satisfied. But I just spent two weeks trying to get meds (Humalog, Lantus, Test strips) shipped. The test strips finally came one day before I was completely out.

      1 year ago Log in to Reply
    12. Mig Vascos

      As far as time in range I’m getting the best numbers ever. My issue has to do with the tandem infusion sets that I can only used in my abdomen since the clasp is impossible to get in and out without seeing it. After 50 years of using this area is sometimes hard to find the right spot. I have been talking to tandem about this issue for 5 years and no new development have been made on his issue.

      1 year ago Log in to Reply
      1. kristina blake

        Have you tried TruSteel? I can place the infusion part around towards my back, and the anchor/connection piece is within easy reach. I also use my thighs

        1 year ago Log in to Reply
    13. Mig Vascos

      A fast insulin would also be great for the stubborn highs and the after meal peaks. If my big goes higher than 200 it takes for hours to bring it down. Sometimes I just inject 1 unit of humalog to help it go down faster.

      1 year ago Log in to Reply
    14. Don P

      because of Covid restrictions I haven’t seen an Endo in 3+ yrs …the question now is satisfied with which care … personal & or health care team ??

      1
      1 year ago Log in to Reply
    15. lis be

      wish i could afford tandam iq and dexcom combo!

      1 year ago Log in to Reply
    16. mbulzomi@optonline.net

      I checked off number four (4) because, unless you are a person with T1D. You have never lived in our SHOES. Doctor, CDE etc.

      1 year ago Log in to Reply
    17. Karen Brady

      Need more context / specifics for this one. (Is this asking about the “care” as in the care I receive from healthcare providers? “Routine” as in my own T1D management?)

      1 year ago Log in to Reply
    18. M C

      I put ‘other’ as I have no idea how to answer this vague question – Are you referring to the care we provide to ourselves, or to the care we receive from others, such as Endo, Diabetic educator, Ophthalmologist, etc. etc.???

      1 year ago Log in to Reply
    19. Juha Kankaanpaa

      I’m satisfied with my care routine and chose 4. There is always things to improve, therefore I couldn’t have 5.

      1 year ago Log in to Reply
    20. Cheryl Seibert

      I chose “4”. The insulin pump/CGM combo has been excellent for maintaining control. I am frustrated with all pumps’ failure to deliver insulin in a manner that controls my brittle diabetes post-meal rise. If my site is ‘perfect’ and I can move around, then it works. Pre-bolusing does not help. Most of my dissatisfaction is due to my own stress level and my lack of adequate ways to cope with the stress.

      1 year ago Log in to Reply

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied) Cancel reply

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