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    • 5 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 6 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 hour, 21 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 18 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 18 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 20 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 21 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 30 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 35 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 37 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 38 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 55 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 55 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 55 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 56 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 56 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 56 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 56 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 15 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 15 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 17 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 48 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 5 hours, 1 minute ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 10 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
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    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

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    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Sarah Howard

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    23 Comments

    1. Wanacure

      I only use CGM and MDI (glargine & lispro). “High” alert of Dexcom is 130 mg/dL. My doctors want me to change it to 150.

      9 months ago Log in to Reply
    2. mbulzomi@optonline.net

      Day time settings with my Tandem X2 is 90-160mgdl. Nighttime 90-180mgdl.

      1
      9 months ago Log in to Reply
    3. HMW

      My alert is set to 250 because I use the Medtronic 770G in auto mode, which should bring me back to target range. If it doesn’t then I would need to take a correction bolus when I get an above 250 alert.

      1
      9 months ago Log in to Reply
    4. Ernie Richmann

      Although 200 is my high alert, my Tandem pump will give a correction before that point.

      2
      9 months ago Log in to Reply
    5. karolinamalecki7@gmail.com

      Day is 140. I used to have 140 for both, now that I’m closed loop, I know it’ll take care of it so I moved it to 180 at night. If I get that high at night I know something is wrong, possibly a bad site before it gets worse.

      3
      9 months ago Log in to Reply
      1. ELYSSE HELLER

        Thanks for your comment. I just started on Dexcom and am anxiously awaiting Insulet’s Omnipod 5 release to the general public. Might I ask what closed loop pump that you use?

        9 months ago Log in to Reply
    6. Lawrence S.

      I’ve been set for a high alert of 180 for as long as I can remember.

      9 months ago Log in to Reply
    7. Jane Cerullo

      To me a number of 150 is high and I would get up and correct.

      1
      9 months ago Log in to Reply
    8. Karington Johnston

      I prefer to stay below 180, but I have my alert set at 200 so that it doesn’t wake me up at 181

      1
      9 months ago Log in to Reply
    9. Amy Jo

      I have my high alert off, but if I did have it, would be set at 160. I find the “rising quickly” alarms more useful and less annoying. Can definitely get “alert fatigue” if every alert available on the G6 is on.

      2
      9 months ago Log in to Reply
    10. Kristine Warmecke

      I had it at 180 however my endocrinologist and educator made me up it to 200. Some how I am in TIR greater than before without the ‘high’s’. I suppose they were correct. lol

      9 months ago Log in to Reply
      1. AnitaS

        Wow, I have no idea why that would work.

        9 months ago Log in to Reply
    11. AnitaS

      I use 150. Even though though I don’t actually want to get that high, it is not the end of the world. I can then decide if I need a correction, depending on insulin-on-board, or if I am ready to exercise or not.

      1
      9 months ago Log in to Reply
    12. Russell Buckbee

      I use 190 so. I can catch it before 200. However, I know that that my Dexcom G6 will begin to add a little before that. I can’t understand why I have to get an alert and add more. The system could do that or not as my CGM reports the BG level.

      9 months ago Log in to Reply
    13. LizB

      I have mine set at 160 so I can hopefully catch it before it hits the standard 180. I used to have it set for 140 but moved it to decrease any alarms. I don’t run high often so 160 is fine.

      9 months ago Log in to Reply
    14. Tod Herman

      While not recommended, I turn off ALL the alarms I can. I find I check my CGM readings very regularly, especially after I have eaten or had to guesstimate the carbs in some meal I didn’t cook. My CGM and pump both have way too many alarms and they go off constantly. It’s embarrassing and annoying for me when I am with others.

      1
      9 months ago Log in to Reply
    15. Hieromonk Alexis

      I keep a close watch over my readings, so I don’t really need an alarm to tell me that i’m going into the 200 range. I actually have mine set at 300 just to be on the safe side, but like Tod, I find them to be annoying and embarrassing, since they keep going even if measures have been taken. The situation is different with the low alarm, which is a life saver, especially at night.

      1
      9 months ago Log in to Reply
    16. Mig Vascos

      Usually at 180, but sometimes i set it for 160 to make sure i catch any rising blood sugars ahead of time.
      If it’s already high and I’ve treated I might move it to 200 hundreds as to avoid the annoing alarms.

      9 months ago Log in to Reply
    17. Lisa Miller

      My high glucose level is set at 130

      9 months ago Log in to Reply
    18. Lucia Maya

      I keep mine set to 150 all the time, but it’s only set as a “vibrate” setting on my pump so it’s not as loud, but I notice it! I almost always will do a correction if I’m at 150, and prefer to not get that high even.
      I use the sleep setting on my Tandem CIQ, and do manual correction boluses. More work but better numbers, and after 46 years with T1d, that feels worth it.

      1
      9 months ago Log in to Reply
    19. Juha Kankaanpaa

      I have my high alarm at 117

      9 months ago Log in to Reply
    20. JuJuB

      My daytime high is 120. If I could set it to 100 I would, but my understanding is that the FDA will not allow that (which makes me all kinds of mad). Nighttime is set to 150.

      9 months ago Log in to Reply
    21. Molly Jones

      I use control IQ with tandem and dexcom, so I assume my high alert is 180 all day.

      9 months ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone. Cancel reply

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