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    • 8 hours ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 9 hours, 49 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 9 hours, 49 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 9 hours, 49 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 15 hours, 42 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 15 hours, 43 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 19 hours, 40 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 19 hours, 40 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 19 hours, 41 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 19 hours, 41 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 19 hours, 56 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 20 hours, 16 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 20 hours, 22 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 20 hours, 23 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 21 hours, 20 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 22 hours, 9 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 22 hours, 10 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 22 hours, 10 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 22 hours, 10 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 22 hours, 13 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 22 hours, 14 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 22 hours, 14 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 22 hours, 15 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 22 hours, 16 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 22 hours, 16 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

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    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Wanacure

      I only use CGM and MDI (glargine & lispro). “High” alert of Dexcom is 130 mg/dL. My doctors want me to change it to 150.

      4 years ago Log in to Reply
    2. mbulzomi@optonline.net

      Day time settings with my Tandem X2 is 90-160mgdl. Nighttime 90-180mgdl.

      1
      4 years ago Log in to Reply
    3. HMW

      My alert is set to 250 because I use the Medtronic 770G in auto mode, which should bring me back to target range. If it doesn’t then I would need to take a correction bolus when I get an above 250 alert.

      1
      4 years ago Log in to Reply
    4. Ernie Richmann

      Although 200 is my high alert, my Tandem pump will give a correction before that point.

      2
      4 years ago Log in to Reply
    5. karolinamalecki7@gmail.com

      Day is 140. I used to have 140 for both, now that I’m closed loop, I know it’ll take care of it so I moved it to 180 at night. If I get that high at night I know something is wrong, possibly a bad site before it gets worse.

      3
      4 years ago Log in to Reply
      1. ELYSSE HELLER

        Thanks for your comment. I just started on Dexcom and am anxiously awaiting Insulet’s Omnipod 5 release to the general public. Might I ask what closed loop pump that you use?

        4 years ago Log in to Reply
    6. Lawrence S.

      I’ve been set for a high alert of 180 for as long as I can remember.

      4 years ago Log in to Reply
    7. Jane Cerullo

      To me a number of 150 is high and I would get up and correct.

      1
      4 years ago Log in to Reply
    8. Karington Johnston

      I prefer to stay below 180, but I have my alert set at 200 so that it doesn’t wake me up at 181

      1
      4 years ago Log in to Reply
    9. Amy Jo

      I have my high alert off, but if I did have it, would be set at 160. I find the “rising quickly” alarms more useful and less annoying. Can definitely get “alert fatigue” if every alert available on the G6 is on.

      2
      4 years ago Log in to Reply
    10. Kristine Warmecke

      I had it at 180 however my endocrinologist and educator made me up it to 200. Some how I am in TIR greater than before without the ‘high’s’. I suppose they were correct. lol

      4 years ago Log in to Reply
      1. AnitaS

        Wow, I have no idea why that would work.

        4 years ago Log in to Reply
    11. AnitaS

      I use 150. Even though though I don’t actually want to get that high, it is not the end of the world. I can then decide if I need a correction, depending on insulin-on-board, or if I am ready to exercise or not.

      1
      4 years ago Log in to Reply
    12. Russell Buckbee

      I use 190 so. I can catch it before 200. However, I know that that my Dexcom G6 will begin to add a little before that. I can’t understand why I have to get an alert and add more. The system could do that or not as my CGM reports the BG level.

      4 years ago Log in to Reply
    13. LizB

      I have mine set at 160 so I can hopefully catch it before it hits the standard 180. I used to have it set for 140 but moved it to decrease any alarms. I don’t run high often so 160 is fine.

      4 years ago Log in to Reply
    14. Tod Herman

      While not recommended, I turn off ALL the alarms I can. I find I check my CGM readings very regularly, especially after I have eaten or had to guesstimate the carbs in some meal I didn’t cook. My CGM and pump both have way too many alarms and they go off constantly. It’s embarrassing and annoying for me when I am with others.

      1
      4 years ago Log in to Reply
    15. Hieromonk Alexis

      I keep a close watch over my readings, so I don’t really need an alarm to tell me that i’m going into the 200 range. I actually have mine set at 300 just to be on the safe side, but like Tod, I find them to be annoying and embarrassing, since they keep going even if measures have been taken. The situation is different with the low alarm, which is a life saver, especially at night.

      1
      4 years ago Log in to Reply
    16. Mig Vascos

      Usually at 180, but sometimes i set it for 160 to make sure i catch any rising blood sugars ahead of time.
      If it’s already high and I’ve treated I might move it to 200 hundreds as to avoid the annoing alarms.

      4 years ago Log in to Reply
    17. Lisa Miller

      My high glucose level is set at 130

      4 years ago Log in to Reply
    18. Lucia Maya

      I keep mine set to 150 all the time, but it’s only set as a “vibrate” setting on my pump so it’s not as loud, but I notice it! I almost always will do a correction if I’m at 150, and prefer to not get that high even.
      I use the sleep setting on my Tandem CIQ, and do manual correction boluses. More work but better numbers, and after 46 years with T1d, that feels worth it.

      1
      4 years ago Log in to Reply
    19. Juha Kankaanpaa

      I have my high alarm at 117

      4 years ago Log in to Reply
    20. JuJuB

      My daytime high is 120. If I could set it to 100 I would, but my understanding is that the FDA will not allow that (which makes me all kinds of mad). Nighttime is set to 150.

      4 years ago Log in to Reply
    21. Molly Jones

      I use control IQ with tandem and dexcom, so I assume my high alert is 180 all day.

      4 years ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone. Cancel reply

    You must be logged in to post a comment.




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