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    • 4 hours, 2 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 3 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 4 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 2 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 20 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 20 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    In what year were you (or your loved one) diagnosed with T1D?

    Home > LC Polls > In what year were you (or your loved one) diagnosed with T1D?
    Previous

    Do you dispose of used needles, syringes, lancets, and other sharps in a dedicated sharps container? For this question, "sharps container” includes heavy-duty plastic containers such as an empty laundry detergent bottle or plastic coffee container.

    Next

    How much do you think your close friends know about T1D? Select all of the statements that you think are true for you.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    50 Comments

    1. Jen Farley

      It was 1982, I was 13 years old. I was in 7th grade and weighed 70 pounds.

      7 months ago Log in to Reply
    2. Joan Benedetto

      My son was diagnosed Nov.2,2013. He was 18mos old.

      7 months ago Log in to Reply
      1. Patricia Dalrymple

        ❤️

        1
        7 months ago Log in to Reply
    3. Gary Rind

      in 2003 at age 43

      7 months ago Log in to Reply
    4. Elle Hamann

      I answered 2020 for my kid.
      His grandparents are 1970 and 2000.

      7 months ago Log in to Reply
    5. Lawrence S.

      1977, age 23. What is it about the 1960’s and 1970’s that so many were diagnosed during that period?

      3
      7 months ago Log in to Reply
      1. lis be

        I noticed the same thing! very curious now. They told my parents when I was diagnosed at age 8.. that it was a virus that stayed in my system and attacked my pancreas. A lot of people died before being diagnosed in the 60s and 70s because there just wasn’t as much information collection then. I wonder what the numbers would be in that time period if they counted deaths by type 1.. or maybe it was considered dehydration then?

        5
        7 months ago Log in to Reply
      2. cynthia jaworski

        This is a self-selected group — we don’t have statistics on the whole population.
        On the other hand, it seems that many of us were diagnosed shortly after one of the “childhood” diseases, like mumps. Today, kids are vaccinated against those. Without the childhood diseases, perhaps the auto-immune problems don’t get activated until later in life. ?

        1
        7 months ago Log in to Reply
    6. Gary Taylor

      The choices for answers are more like “what decade were you diagnosed?” For me, 1976 at age 18 while in college.

      3
      7 months ago Log in to Reply
      1. ConnieT1D62

        I agree decade would be more accurate.

        7 months ago Log in to Reply
    7. TEH

      1991 when I was 35

      1
      7 months ago Log in to Reply
    8. LuckyPineapple

      2003, was 17 years old

      1
      7 months ago Log in to Reply
    9. Mary Dexter

      2004, I was 48

      7 months ago Log in to Reply
    10. Albert Olmstead

      I was diagnosed in the spring of 1964, I was 8 years old back in the time you used large gauge needles and glass syringes, animal made insulin tested your b/s buy putting 5drops urine and 10 drops water in test tube and adding tablet and it boiled it and gave you results blue light blue and so on. Wow things have changed(for the better) yet sometime I would like to stop the world I want to get off.

      9
      7 months ago Log in to Reply
      1. lis be

        1980, we did have plastic syringes but a big gauge, the rest is the same. I remember my parents asking me if I wanted to use pig or cow hormones. I was 8. I guess there is some humor in it, I chose pig.

        2
        7 months ago Log in to Reply
      2. ConnieT1D62

        10 drops of water
        5 drops of pee
        Put in the tablet
        And what do you see?
        4+, 3+, 2+, Trace or Negative

        That was the little ditty I learned as a newly diagnosed 8 year old in 1962 to test my uirne with a Clinitest kit.

        Idk about you, but my urine “sugar” was usually 4+ orange or 3+ murky olive green. Sometimes it would be 2+ (brown mustard yellow) and very rarely Trace (blue green), The only time my urine was Negative (blue) was when I paid my brother a nickel to pee in the cup for me and I would test his urine instead so my mother would lay off criticizing and telling me I was “a bad diabetic” and must be “cheating” all the time.

        I did not cheat. I adapted and learned what I had to do take daily insulin shots and eat at meal times and snacks to prevent having “insulin reactions” or from getting a nauseous pukey feeling when sugar was too high.

        10
        7 months ago Log in to Reply
      3. Karen Taylor

        Albert, I have all the same memories. I was dx’d in 1960 right before my 4th birthday.

        1
        7 months ago Log in to Reply
    11. Annie Wall

      1980 at age 32. I was told that it was very rare for someone my age to develop type 1. Since then, I have met tons of people in their 30s and older who were diagnosed as such. So much for being considered “rare”!

      4
      7 months ago Log in to Reply
      1. Louise Robinson

        I was 27 when diagnosed. For 2 weeks preceding dx I had excessive thirst, frequent urination and lost 13 pounds (from 120 to 107). My Dad had been Dx’d 20 years earlier at age 63….but back then they didn’t differentiate among “types” of diabetes.

        1
        7 months ago Log in to Reply
      2. Trina Blake

        30 years old, 1982. “they” were still using the age criteria, so I was initially Dx’d with T2D. Didn’t have any of the risk factors – no family history of D (not any type) and had recently retired as a ballet dancer and my weight had gone form my working weight of 105-110 (I’m 5’6″) to 95 lbs. But still, I was an adult – so the Dx was “adult onset”.

        Took being found in a DKA coma by a neighbor to get the correct Dx. Actually, while I am grateful she found me, she wasn’t the sharpest tool in the shed. Like many in the performing arts, I had a day job so she called my work to say I wouldn’t be coming in. She mentioned she could notrouse me. Lucky for me I worked for a large city fire-rescue dept with EMS. They sussed the situation and dispatched from HQ. Saved my life having that day job.

        5
        7 months ago Log in to Reply
    12. Jeanne McMillan-Olson

      1955 at age 9

      2
      7 months ago Log in to Reply
    13. George Lovelace

      1964, I was 15 but I failed to answer for my Father who was 30 in 1940, yeah one of the first LADAs of the Modern Age. He lived until 1988 and was 78, seems I will “outlive” him

      2
      7 months ago Log in to Reply
    14. Carol Meares

      I didn’t have my glasses on. I think I put 1980-1989. I was diagnosed in the 1990-1999 decacade. Sorry about that. I just had cataract surgery 😎

      3
      7 months ago Log in to Reply
    15. Bruce Schnitzler

      1951 at age 6

      3
      7 months ago Log in to Reply
      1. Ahh Life

        1951. Age 4. (^o o^)

        3
        7 months ago Log in to Reply
    16. Kris Sykes-David

      Dx’d in 2013, at age 55. That year Thanksgiving and Hanukkah were back to back, so family was coming to celebrate. I refused hospitalization, I wasn’t in DKA anyway. Seven hours in the ER with the hospitalist trying to figure it out…type one or two? I am so thankful for today’s technology and my heart goes out to you folks that had to pee on a stick, etc. And, especially for the kiddos with T1D. ❤️

      4
      7 months ago Log in to Reply
      1. Wanacure

        Are Arabs, Jews, Palestinians more susceptible to diabetes? Why?

        7 months ago Log in to Reply
    17. Scott Doerner

      1978, I was 13, beginning of the teens. I was little guy, pure bones

      1
      7 months ago Log in to Reply
    18. ConnieT1D62

      Started showing the classic symptoms (polydipsia, polyuria, polyphagia) in late November 1962 at age 8, a few months after having the mumps. My brother and paternal cousins (we were all born in the 1950s) had the same mumps virus but I was the only one who developed T1D. When I went to sleep away camp in North Central Ohio for kids with diabetes there were about 20 of us aged 8 to 12 who were also newly diagnosed after having the mumps the previous fall and winter.

      4
      7 months ago Log in to Reply
      1. Douglas Holt

        Watching tv with my siblings my sister turned to me and said” that’s what you have”
        Next day refusing to go to school , I was at the dr by 9:00 AM by 10:00 AM I was in the hospital with T1D this was December 1962
        My tenth birthday
        Talk about the gift that keeps on giving.. easy to remember my anniversary though.

        2
        7 months ago Log in to Reply
    19. Jeff Marvel

      2021, age 26. Zero family history, but looking back I think I was probably pre-diabetic for a fairly long time, such as having trouble with hypoglycemia at soccer camp when i was a teenager.

      7 months ago Log in to Reply
    20. Jneticdiabetic

      In 1995 at age 18

      7 months ago Log in to Reply
    21. pru barry

      It was 1954, after a summer of riding my bike 7 miles to teach tennis to kids at a day camp. Do not know how I got through that, but in September, I got to go to Joslin to learn how to stab oranges. I feel very lucky, though, to have gotten some of my “training” from the doctor who started the clinic!
      Can’t really remember what it was like before all that happened. Must have been pretty carefree, but the following 70 years haven’t been all that bad. In fact, my three kids and becoming a certified Braillist remind me that it’s really a matter of choosing what’s important. And noticing all the beautiful things along the way! I love being here!

      8
      7 months ago Log in to Reply
    22. Steve Rumble

      June of 1970

      1
      7 months ago Log in to Reply
    23. Shannon Barnaby

      1990

      7 months ago Log in to Reply
    24. Mick Martin

      October 1980, at the age of 22.

      7 months ago Log in to Reply
    25. Andrew Stewart

      1990 a couple months after my 26th birthday
      #BeWell

      7 months ago Log in to Reply
    26. PamK

      1964!

      2
      7 months ago Log in to Reply
    27. Kent Robbins

      58 Years ago in November, 1965

      2
      7 months ago Log in to Reply
    28. Keith LeMar

      12/28/1966

      1
      7 months ago Log in to Reply
    29. Janis Senungetuk

      I was dx in April, 1955 , age 8, after measles, chickenpox and rubella, all within three months. A history of autoimmune disease on both sides of my family. My maternal grandfather dx with diabetes in his 30’s and very fortunate to have early insulin available.

      1
      7 months ago Log in to Reply
      1. Melinda Lipe

        I was 9 in 1966, and had mumps right after I was discharged from the hospital.

        1
        7 months ago Log in to Reply
    30. jenn velez

      1990

      1
      7 months ago Log in to Reply
    31. Melinda Lipe

      In the dark ages – before 1970 – zero technology. My mom is always happy as she learns about every new tech for T1D, because we navigated the unknown together and survived!

      4
      7 months ago Log in to Reply
    32. lynda meyer

      1953 at age 4

      1
      7 months ago Log in to Reply
    33. sweetcharlie

      About 1952, about age 20..

      1
      7 months ago Log in to Reply
    34. KarenM6

      Nov 1971

      7 months ago Log in to Reply
    35. Donna Condi

      I was diagnosed in February 1998 and six months later my sister was diagnosed with breast cancer. After she had gone through surgery and reconstructive surgery and then chemo she said to me that she felt bad that her cancer journey was over and I had to deal with Diabetes the rest of my life. But little did we know that 16 years later her breast cancer would come back and she would have to fight it again for four long years before it would take her life while I just celebrated my 25th year of living with Diabetes.

      7 months ago Log in to Reply
    36. LizB

      April 1987 at age 19. I had not been sick prior to my diagnosis which seemed to confuse the endo in the hospital.

      7 months ago Log in to Reply
    37. T1D4LongTime

      1966 – a year or so after having double-sided mumps and German measles

      6 months ago Log in to Reply

    In what year were you (or your loved one) diagnosed with T1D? Cancel reply

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