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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
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    In what year were you (or your loved one) diagnosed with T1D?

    Home > LC Polls > In what year were you (or your loved one) diagnosed with T1D?
    Previous

    Do you dispose of used needles, syringes, lancets, and other sharps in a dedicated sharps container? For this question, "sharps container” includes heavy-duty plastic containers such as an empty laundry detergent bottle or plastic coffee container.

    Next

    How much do you think your close friends know about T1D? Select all of the statements that you think are true for you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    50 Comments

    1. Jen Farley

      It was 1982, I was 13 years old. I was in 7th grade and weighed 70 pounds.

      3 years ago Log in to Reply
    2. Joan Benedetto

      My son was diagnosed Nov.2,2013. He was 18mos old.

      3 years ago Log in to Reply
      1. Patricia Dalrymple

        ❤️

        1
        3 years ago Log in to Reply
    3. Gary Rind

      in 2003 at age 43

      3 years ago Log in to Reply
    4. Elle Hamann

      I answered 2020 for my kid.
      His grandparents are 1970 and 2000.

      3 years ago Log in to Reply
    5. Lawrence S.

      1977, age 23. What is it about the 1960’s and 1970’s that so many were diagnosed during that period?

      3
      3 years ago Log in to Reply
      1. lis be

        I noticed the same thing! very curious now. They told my parents when I was diagnosed at age 8.. that it was a virus that stayed in my system and attacked my pancreas. A lot of people died before being diagnosed in the 60s and 70s because there just wasn’t as much information collection then. I wonder what the numbers would be in that time period if they counted deaths by type 1.. or maybe it was considered dehydration then?

        5
        3 years ago Log in to Reply
      2. cynthia jaworski

        This is a self-selected group — we don’t have statistics on the whole population.
        On the other hand, it seems that many of us were diagnosed shortly after one of the “childhood” diseases, like mumps. Today, kids are vaccinated against those. Without the childhood diseases, perhaps the auto-immune problems don’t get activated until later in life. ?

        1
        3 years ago Log in to Reply
    6. Gary Taylor

      The choices for answers are more like “what decade were you diagnosed?” For me, 1976 at age 18 while in college.

      3
      3 years ago Log in to Reply
      1. ConnieT1D62

        I agree decade would be more accurate.

        3 years ago Log in to Reply
    7. TEH

      1991 when I was 35

      1
      3 years ago Log in to Reply
    8. LuckyPineapple

      2003, was 17 years old

      1
      3 years ago Log in to Reply
    9. Mary Dexter

      2004, I was 48

      3 years ago Log in to Reply
    10. Albert Olmstead

      I was diagnosed in the spring of 1964, I was 8 years old back in the time you used large gauge needles and glass syringes, animal made insulin tested your b/s buy putting 5drops urine and 10 drops water in test tube and adding tablet and it boiled it and gave you results blue light blue and so on. Wow things have changed(for the better) yet sometime I would like to stop the world I want to get off.

      9
      3 years ago Log in to Reply
      1. lis be

        1980, we did have plastic syringes but a big gauge, the rest is the same. I remember my parents asking me if I wanted to use pig or cow hormones. I was 8. I guess there is some humor in it, I chose pig.

        2
        3 years ago Log in to Reply
      2. ConnieT1D62

        10 drops of water
        5 drops of pee
        Put in the tablet
        And what do you see?
        4+, 3+, 2+, Trace or Negative

        That was the little ditty I learned as a newly diagnosed 8 year old in 1962 to test my uirne with a Clinitest kit.

        Idk about you, but my urine “sugar” was usually 4+ orange or 3+ murky olive green. Sometimes it would be 2+ (brown mustard yellow) and very rarely Trace (blue green), The only time my urine was Negative (blue) was when I paid my brother a nickel to pee in the cup for me and I would test his urine instead so my mother would lay off criticizing and telling me I was “a bad diabetic” and must be “cheating” all the time.

        I did not cheat. I adapted and learned what I had to do take daily insulin shots and eat at meal times and snacks to prevent having “insulin reactions” or from getting a nauseous pukey feeling when sugar was too high.

        10
        3 years ago Log in to Reply
      3. Karen Taylor

        Albert, I have all the same memories. I was dx’d in 1960 right before my 4th birthday.

        1
        3 years ago Log in to Reply
    11. Annie Wall

      1980 at age 32. I was told that it was very rare for someone my age to develop type 1. Since then, I have met tons of people in their 30s and older who were diagnosed as such. So much for being considered “rare”!

      4
      3 years ago Log in to Reply
      1. Louise Robinson

        I was 27 when diagnosed. For 2 weeks preceding dx I had excessive thirst, frequent urination and lost 13 pounds (from 120 to 107). My Dad had been Dx’d 20 years earlier at age 63….but back then they didn’t differentiate among “types” of diabetes.

        1
        3 years ago Log in to Reply
      2. Trina Blake

        30 years old, 1982. “they” were still using the age criteria, so I was initially Dx’d with T2D. Didn’t have any of the risk factors – no family history of D (not any type) and had recently retired as a ballet dancer and my weight had gone form my working weight of 105-110 (I’m 5’6″) to 95 lbs. But still, I was an adult – so the Dx was “adult onset”.

        Took being found in a DKA coma by a neighbor to get the correct Dx. Actually, while I am grateful she found me, she wasn’t the sharpest tool in the shed. Like many in the performing arts, I had a day job so she called my work to say I wouldn’t be coming in. She mentioned she could notrouse me. Lucky for me I worked for a large city fire-rescue dept with EMS. They sussed the situation and dispatched from HQ. Saved my life having that day job.

        5
        3 years ago Log in to Reply
    12. Jeanne McMillan-Olson

      1955 at age 9

      2
      3 years ago Log in to Reply
    13. George Lovelace

      1964, I was 15 but I failed to answer for my Father who was 30 in 1940, yeah one of the first LADAs of the Modern Age. He lived until 1988 and was 78, seems I will “outlive” him

      2
      3 years ago Log in to Reply
    14. Carol Meares

      I didn’t have my glasses on. I think I put 1980-1989. I was diagnosed in the 1990-1999 decacade. Sorry about that. I just had cataract surgery 😎

      3
      3 years ago Log in to Reply
    15. Bruce Schnitzler

      1951 at age 6

      3
      3 years ago Log in to Reply
      1. Ahh Life

        1951. Age 4. (^o o^)

        3
        3 years ago Log in to Reply
    16. Kris Sykes-David

      Dx’d in 2013, at age 55. That year Thanksgiving and Hanukkah were back to back, so family was coming to celebrate. I refused hospitalization, I wasn’t in DKA anyway. Seven hours in the ER with the hospitalist trying to figure it out…type one or two? I am so thankful for today’s technology and my heart goes out to you folks that had to pee on a stick, etc. And, especially for the kiddos with T1D. ❤️

      4
      3 years ago Log in to Reply
      1. Wanacure

        Are Arabs, Jews, Palestinians more susceptible to diabetes? Why?

        3 years ago Log in to Reply
    17. Scott Doerner

      1978, I was 13, beginning of the teens. I was little guy, pure bones

      1
      3 years ago Log in to Reply
    18. ConnieT1D62

      Started showing the classic symptoms (polydipsia, polyuria, polyphagia) in late November 1962 at age 8, a few months after having the mumps. My brother and paternal cousins (we were all born in the 1950s) had the same mumps virus but I was the only one who developed T1D. When I went to sleep away camp in North Central Ohio for kids with diabetes there were about 20 of us aged 8 to 12 who were also newly diagnosed after having the mumps the previous fall and winter.

      4
      3 years ago Log in to Reply
      1. Douglas Holt

        Watching tv with my siblings my sister turned to me and said” that’s what you have”
        Next day refusing to go to school , I was at the dr by 9:00 AM by 10:00 AM I was in the hospital with T1D this was December 1962
        My tenth birthday
        Talk about the gift that keeps on giving.. easy to remember my anniversary though.

        2
        3 years ago Log in to Reply
    19. Jeff Marvel

      2021, age 26. Zero family history, but looking back I think I was probably pre-diabetic for a fairly long time, such as having trouble with hypoglycemia at soccer camp when i was a teenager.

      3 years ago Log in to Reply
    20. Jneticdiabetic

      In 1995 at age 18

      3 years ago Log in to Reply
    21. pru barry

      It was 1954, after a summer of riding my bike 7 miles to teach tennis to kids at a day camp. Do not know how I got through that, but in September, I got to go to Joslin to learn how to stab oranges. I feel very lucky, though, to have gotten some of my “training” from the doctor who started the clinic!
      Can’t really remember what it was like before all that happened. Must have been pretty carefree, but the following 70 years haven’t been all that bad. In fact, my three kids and becoming a certified Braillist remind me that it’s really a matter of choosing what’s important. And noticing all the beautiful things along the way! I love being here!

      8
      3 years ago Log in to Reply
    22. Steve Rumble

      June of 1970

      1
      3 years ago Log in to Reply
    23. Shannon Barnaby

      1990

      3 years ago Log in to Reply
    24. Mick Martin

      October 1980, at the age of 22.

      3 years ago Log in to Reply
    25. Andrew Stewart

      1990 a couple months after my 26th birthday
      #BeWell

      3 years ago Log in to Reply
    26. PamK

      1964!

      2
      3 years ago Log in to Reply
    27. Kent Robbins

      58 Years ago in November, 1965

      2
      3 years ago Log in to Reply
    28. Keith LeMar

      12/28/1966

      1
      3 years ago Log in to Reply
    29. Janis Senungetuk

      I was dx in April, 1955 , age 8, after measles, chickenpox and rubella, all within three months. A history of autoimmune disease on both sides of my family. My maternal grandfather dx with diabetes in his 30’s and very fortunate to have early insulin available.

      1
      3 years ago Log in to Reply
      1. Melinda Lipe

        I was 9 in 1966, and had mumps right after I was discharged from the hospital.

        1
        3 years ago Log in to Reply
    30. jenn velez

      1990

      1
      3 years ago Log in to Reply
    31. Melinda Lipe

      In the dark ages – before 1970 – zero technology. My mom is always happy as she learns about every new tech for T1D, because we navigated the unknown together and survived!

      4
      3 years ago Log in to Reply
    32. lynda meyer

      1953 at age 4

      1
      3 years ago Log in to Reply
    33. sweetcharlie

      About 1952, about age 20..

      1
      3 years ago Log in to Reply
    34. KarenM6

      Nov 1971

      3 years ago Log in to Reply
    35. Donna Condi

      I was diagnosed in February 1998 and six months later my sister was diagnosed with breast cancer. After she had gone through surgery and reconstructive surgery and then chemo she said to me that she felt bad that her cancer journey was over and I had to deal with Diabetes the rest of my life. But little did we know that 16 years later her breast cancer would come back and she would have to fight it again for four long years before it would take her life while I just celebrated my 25th year of living with Diabetes.

      3 years ago Log in to Reply
    36. LizB

      April 1987 at age 19. I had not been sick prior to my diagnosis which seemed to confuse the endo in the hospital.

      3 years ago Log in to Reply
    37. T1D4LongTime

      1966 – a year or so after having double-sided mumps and German measles

      3 years ago Log in to Reply

    In what year were you (or your loved one) diagnosed with T1D? Cancel reply

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