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    • 59 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 hour, 5 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 1 hour, 41 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 19 hours, 35 minutes ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 1 day, 22 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 1 day, 23 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 2 days, 16 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 3 days, 11 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 3 days, 23 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 2 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 12 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 4 days, 22 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 22 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 4 days, 22 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days ago
      Marty likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      And TCOYD
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Diabetes Strong
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD AND DiaTribe are thoughtful information providers.
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    How much do you think your close friends know about T1D? Select all of the statements that you think are true for you.

    Home > LC Polls > How much do you think your close friends know about T1D? Select all of the statements that you think are true for you.
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    In what year were you (or your loved one) diagnosed with T1D?

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    If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    17 Comments

    1. ConnieT1D62

      I am very fortunate to have several close friends also have T1D, so that’s a no brainer. As for other close friends, they may know something but not much, and what they do know about T1D is from what I have taught them about T1D in collaborative dialogue conversations or discussions.

      Occasionally a thoughtful and caring close freind may ask what to do “in a diabetic emergency” with a question like “should I give you some insulin or some sugar?” That opens the door for me to ask, “Tell me what you understand about T1 diabetes and what you think you should do”, and “Are you interested in learning some basics about T1 diabetes and what to do if I need your help?”

      5
      3 years ago Log in to Reply
    2. Barbara Bubar

      I think lots of people know that I have diabetes but their actual knowledge about any of the details of diabetes is extremely limited. Unless you live with it why would you be aware of much about it except for the noticing that there is an abundance of TV ads for CGMs and medications for Type 2s. My best friend is conscious of me checking my CGM and understanding when I need to have something to eat.

      2
      3 years ago Log in to Reply
    3. Mary Dexter

      No close friends

      3 years ago Log in to Reply
    4. ELYSSE HELLER

      I woke up to an EMT starring down at me because I was on the floor. He gave me some glucose gel and I came around. I asked my housemate why he didn’t administer the Glucagon emergency injection and he responded “I only give that to you when your sugar is high, right?” UGH! I did train him numerous times about how to use the Glucagon emergency kit and when to use it.

      5
      3 years ago Log in to Reply
      1. sweetcharlie

        sorry !! I just thought that was funny…

        3 years ago Log in to Reply
    5. cynthia jaworski

      I am surprised at how few people can say that their close friends are knowledgeable. Maybe I am boring my friends? My T1d is always running in the background for me, as I check my cgm or nonchalantly give a quick injection. Usually this is without comment, often not noticed, but I am always ready with a quick explanation.

      1
      3 years ago Log in to Reply
    6. Ahh Life

      Knowledge of the T1D condition tends to be terra incognita to those not having it. Until you take off your shoes, feel the grass beneath your feet, the sand between your toes, and the sea slapping salt water between every digit do you realize the experience of what the experience is in reality.

      6
      3 years ago Log in to Reply
      1. sweetcharlie

        YUP !!

        2
        3 years ago Log in to Reply
    7. Marty

      Most of my closest friends are PhD level scientists but I’m frequently amazed by how little of what I’ve said about diabetes over the years has actually registered with them. Because they’re so smart though, they do believe they can explain it to me and give me helpful advice 🙂 I guess I shouldn’t be surprised when so many health care providers who don’t specialize in endocrinology behave exactly the same way.

      5
      3 years ago Log in to Reply
    8. Ernie Richmann

      Some of my friends have some knowledge of type one diabetes. My wife knows what to do if I am low. I’m not to hard on others who lack knowledge and I confess That I don’t have extensive knowledge of cancer, Parkinson’s disease, dementia, mental disorders and many other conditions.

      3
      3 years ago Log in to Reply
    9. Janis Senungetuk

      Unless you live the experience there is little understanding. My spouse of 40 years has forgotten much of what we learned together. I’m the one with the diagnosis.

      2
      3 years ago Log in to Reply
    10. RegMunro

      Over the past 57 years I have had several hypos where I pass out entirely. This has taught me to talk about and explain my T1D and I have usually been rescued by my acquaintances, often work colleagues rather than close friends.
      It sure helps when others pick up signs of hypo before I can!

      3
      3 years ago Log in to Reply
    11. Becky Hertz

      Considering some of my close friends are T1 as well.

      3 years ago Log in to Reply
    12. sweetcharlie

      It varies from a lot to a little… some of the “little ones” drive me Nuts because they think they know a lot!!!

      2
      3 years ago Log in to Reply
    13. Steven Gill

      Hearing someone discuss something and learning care are two different things. I’m not bashful of my diabetes, but in no way can I expect a non-diabetic to really understand my care. It’s not fair to expect others to know the nuances other than when to give or get help. I have two diabetic brothers (1 a TYPE 1, one a TYPE 2) who completely vary with their knowledge. Living alone I have to be prepared.

      2
      3 years ago Log in to Reply
    14. Sasha Wooldridge

      I like that the options were on the general side for this. I definitely don’t expect my friends to know how to take care of me. But I do think a general knowledge of what diabetes is, what insulin does, and what sugar does is reasonable to expect. I explain it to anyone that wants to know and most of my friends and acquaintances are curious so I answer a lot of questions. It’s pretty surprising and terrifying to me how many people think I need insulin when I’m low. 😳 So some of my friends know this basic stuff. My significant other of over 10 years knows more, but doesn’t have the level of knowledge I do since he’s not dealing with it day-to-day.

      2
      3 years ago Log in to Reply
    15. T1D4LongTime

      I caregive both my husband and my very elderly aunt, so I no longer have any friends of any kind. Several years ago, when I was working and close coworkers, they knew I was diabetic. Most knew what to do if I was low, but little else about the device management.

      3 years ago Log in to Reply

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