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    • 3 hours, 21 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 3 hours, 23 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 3 hours, 24 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 3 hours, 25 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 3 hours, 33 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 5 hours, 25 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 5 hours, 26 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 5 hours, 28 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 28 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 11 hours, 31 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 12 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 16 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 12 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 12 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 12 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 12 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 49 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 50 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours, 2 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 15 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 31 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
    Previous

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Next

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. LizB

      I also have Hashimoto’s, which seems to be pretty common among those with Type 1.

      4
      3 years ago Log in to Reply
    2. Britni

      Hashimoto’s and celiac

      3 years ago Log in to Reply
    3. mbulzomi@optonline.net

      One is enough!

      3 years ago Log in to Reply
    4. Louise Robinson

      Thyroid disease—diagnosed about 10 years after 1976 Type 1 diagnosis. Have been taking levothyroxine ever since.

      3 years ago Log in to Reply
    5. Lori Lorsch

      4

      3 years ago Log in to Reply
    6. Don P

      65+ a few years T1 without any other issues.

      2
      3 years ago Log in to Reply
      1. sweet charlie

        70

        1
        3 years ago Log in to Reply
    7. Lawrence S.

      At least 4 autoimmune diseases, plus T1D. It’s good to be alive.

      1
      3 years ago Log in to Reply
    8. Trisha Oldenkamp

      I’m surprised others don’t tend to have more! I have had 4 autoimmune diseases but fortunately T1 is the only major one currently. Two could be treated successfully. I have Scandinavian heritage which I know is prone to autoimmune issues.

      3 years ago Log in to Reply
    9. Rob Smith

      Celiac

      3 years ago Log in to Reply
    10. Karen Newe

      0. But I test positive for 1 of 2 genes tested that are associated with celiac.

      1
      3 years ago Log in to Reply
    11. Karen DeVeaux

      Celiac

      3 years ago Log in to Reply
    12. Jane Cerullo

      Graves’ disease with TED
      Skin lupus

      3 years ago Log in to Reply
    13. jo

      I have Celiac Disease, Autoimmune Leukopenia, Alopecia, and the way my thyroid blood test are going I’m sure Hashimoto’s Disease soon. And of course the pièce de résistance Type 1

      3 years ago Log in to Reply
    14. Valentina Potempa

      Graves Disease

      3 years ago Log in to Reply
    15. Mark Schweim

      I said 0 because “How would I know” wasn’t an answer option.
      I was diagnosed with IBSDC (Irritable Bowel Syndrome with Diarrhea and Constipation) in 2017 and I have been told both that it IS another autoimmune disease and that it ISN’T anything autoimmune related, so I have been unable to get any definite answer whether my autoimmune disease count stands at 1 or if it should be increased to 2.

      3 years ago Log in to Reply
    16. pru barry

      One IS enough, but my second one, now that the thyroid has been removed, just means one pill a day, and no diet circus involved :*) ! Hard not to love Graves Disease!

      3 years ago Log in to Reply
    17. Kim Davis

      Fibromyalgia, autoimmune hepatitis, T1D, hypothyroid, IGA~, psoriasis, kidney disease.

      3 years ago Log in to Reply
    18. Lynn Green

      In addition to
      T1D, just dx with psoriatic arthritis and fibromyalgia.

      3 years ago Log in to Reply
    19. Janis Senungetuk

      No others that I’m aware of. The low thyroid I was dx with in 2005 was not considered autoimmune.

      3 years ago Log in to Reply
      1. Jneticdiabetic

        1 more = Hashimoto’s thyroiditis

        3 years ago Log in to Reply
    20. Pauline M Reynolds

      Hashimoto’s thyroiditis and enteropathic arthritis.

      3 years ago Log in to Reply
    21. AnitaS

      I have been on levothyroxine for about 47 years for my low thyroid which came on about 2-3 years after being diagnosed with T1. Not sure if I have ever heard of Hiroshimoto disease being mentioned for me though. I’ll have to check my medical records to see if my low thyroid is Hiroshimotos or not.

      3 years ago Log in to Reply
      1. AnitaS

        All my medical records say hypothyroidism, not Hashimoto disease

        3 years ago Log in to Reply
    22. sweet charlie

      Old age !!

      2
      3 years ago Log in to Reply
    23. Jan Masty

      Hypothyroid, rheumatoid arthritis, vitiligo. Doing fine

      1
      3 years ago Log in to Reply
    24. Ahh Life

      Dang! With so many mortality and comorbidities associated with the diabetic condition, I scored zero on this one. ╮(╯_╰)╭

      I feel like I just swung the sledge hammer and rang the bell. Whoo-hoo! c( O.O )ɔ

      5
      3 years ago Log in to Reply
    25. Bekki Weston

      I had a goiter removed when I was 15 or so (am 65 now), and been on thyroid pills ever since. Was Dx’d w/T1D when I was 58. Tried to get my goiter records, but learned they had been destroyed long ago. Might not have been called Hashimoto’s back then, but those are my symptoms.

      3 years ago Log in to Reply
    26. Molly Jones

      I have been diagnosed with Hashimoto’s, microscopic colitis, epilepsy due to extremely high GAD 65 antibodies. Autoimmune conditions run in my mother’s family, and I am grateful not to have more of them.

      3 years ago Log in to Reply
    27. Sherolyn Newell

      Rheumatoid arthritis.

      3 years ago Log in to Reply
    28. PamK

      Within the last 10 years I have been diagnosed with two other autoimmune diseases. First, Ulcerative Colitis and more recently, Psoriasis.

      3 years ago Log in to Reply
    29. Wanacure

      An endoscopy revealed I have gluten intolerance.

      3 years ago Log in to Reply
      1. Wanacure

        Gluten intolerance = celiac disease. And I forgot my minor arthritis is also auto-immune. If you count occasional pollen allergies as autoimmune, then I’ve got 3 autoimmune diseases in addition to T1D.

        3 years ago Log in to Reply
    30. Chiharu

      Graves’ disease
      I was diagnosed with Graves’disease and T1D almost at the same time in 1995 and now don’t need any medicine for Graves’disease.

      3 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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