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    • 1 hour, 31 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
    Previous

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Next

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. LizB

      I also have Hashimoto’s, which seems to be pretty common among those with Type 1.

      4
      4 years ago Log in to Reply
    2. Britni

      Hashimoto’s and celiac

      4 years ago Log in to Reply
    3. mbulzomi@optonline.net

      One is enough!

      4 years ago Log in to Reply
    4. Louise Robinson

      Thyroid disease—diagnosed about 10 years after 1976 Type 1 diagnosis. Have been taking levothyroxine ever since.

      4 years ago Log in to Reply
    5. Lori Lorsch

      4

      4 years ago Log in to Reply
    6. Don P

      65+ a few years T1 without any other issues.

      2
      4 years ago Log in to Reply
      1. sweet charlie

        70

        1
        4 years ago Log in to Reply
    7. Lawrence S.

      At least 4 autoimmune diseases, plus T1D. It’s good to be alive.

      1
      4 years ago Log in to Reply
    8. Trisha Oldenkamp

      I’m surprised others don’t tend to have more! I have had 4 autoimmune diseases but fortunately T1 is the only major one currently. Two could be treated successfully. I have Scandinavian heritage which I know is prone to autoimmune issues.

      4 years ago Log in to Reply
    9. Rob Smith

      Celiac

      4 years ago Log in to Reply
    10. Karen Newe

      0. But I test positive for 1 of 2 genes tested that are associated with celiac.

      1
      4 years ago Log in to Reply
    11. Karen DeVeaux

      Celiac

      4 years ago Log in to Reply
    12. Jane Cerullo

      Graves’ disease with TED
      Skin lupus

      4 years ago Log in to Reply
    13. jo

      I have Celiac Disease, Autoimmune Leukopenia, Alopecia, and the way my thyroid blood test are going I’m sure Hashimoto’s Disease soon. And of course the pièce de résistance Type 1

      4 years ago Log in to Reply
    14. Valentina Potempa

      Graves Disease

      4 years ago Log in to Reply
    15. Mark Schweim

      I said 0 because “How would I know” wasn’t an answer option.
      I was diagnosed with IBSDC (Irritable Bowel Syndrome with Diarrhea and Constipation) in 2017 and I have been told both that it IS another autoimmune disease and that it ISN’T anything autoimmune related, so I have been unable to get any definite answer whether my autoimmune disease count stands at 1 or if it should be increased to 2.

      4 years ago Log in to Reply
    16. pru barry

      One IS enough, but my second one, now that the thyroid has been removed, just means one pill a day, and no diet circus involved :*) ! Hard not to love Graves Disease!

      4 years ago Log in to Reply
    17. Kim Davis

      Fibromyalgia, autoimmune hepatitis, T1D, hypothyroid, IGA~, psoriasis, kidney disease.

      4 years ago Log in to Reply
    18. Lynn Green

      In addition to
      T1D, just dx with psoriatic arthritis and fibromyalgia.

      4 years ago Log in to Reply
    19. Janis Senungetuk

      No others that I’m aware of. The low thyroid I was dx with in 2005 was not considered autoimmune.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        1 more = Hashimoto’s thyroiditis

        4 years ago Log in to Reply
    20. Pauline M Reynolds

      Hashimoto’s thyroiditis and enteropathic arthritis.

      4 years ago Log in to Reply
    21. AnitaS

      I have been on levothyroxine for about 47 years for my low thyroid which came on about 2-3 years after being diagnosed with T1. Not sure if I have ever heard of Hiroshimoto disease being mentioned for me though. I’ll have to check my medical records to see if my low thyroid is Hiroshimotos or not.

      4 years ago Log in to Reply
      1. AnitaS

        All my medical records say hypothyroidism, not Hashimoto disease

        4 years ago Log in to Reply
    22. sweet charlie

      Old age !!

      2
      4 years ago Log in to Reply
    23. Jan Masty

      Hypothyroid, rheumatoid arthritis, vitiligo. Doing fine

      1
      4 years ago Log in to Reply
    24. Ahh Life

      Dang! With so many mortality and comorbidities associated with the diabetic condition, I scored zero on this one. ╮(╯_╰)╭

      I feel like I just swung the sledge hammer and rang the bell. Whoo-hoo! c( O.O )ɔ

      5
      4 years ago Log in to Reply
    25. Bekki Weston

      I had a goiter removed when I was 15 or so (am 65 now), and been on thyroid pills ever since. Was Dx’d w/T1D when I was 58. Tried to get my goiter records, but learned they had been destroyed long ago. Might not have been called Hashimoto’s back then, but those are my symptoms.

      4 years ago Log in to Reply
    26. Molly Jones

      I have been diagnosed with Hashimoto’s, microscopic colitis, epilepsy due to extremely high GAD 65 antibodies. Autoimmune conditions run in my mother’s family, and I am grateful not to have more of them.

      4 years ago Log in to Reply
    27. Sherolyn Newell

      Rheumatoid arthritis.

      4 years ago Log in to Reply
    28. PamK

      Within the last 10 years I have been diagnosed with two other autoimmune diseases. First, Ulcerative Colitis and more recently, Psoriasis.

      4 years ago Log in to Reply
    29. Wanacure

      An endoscopy revealed I have gluten intolerance.

      4 years ago Log in to Reply
      1. Wanacure

        Gluten intolerance = celiac disease. And I forgot my minor arthritis is also auto-immune. If you count occasional pollen allergies as autoimmune, then I’ve got 3 autoimmune diseases in addition to T1D.

        4 years ago Log in to Reply
    30. Chiharu

      Graves’ disease
      I was diagnosed with Graves’disease and T1D almost at the same time in 1995 and now don’t need any medicine for Graves’disease.

      4 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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