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    • 3 hours, 20 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 20 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 17 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 43 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 32 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 35 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 16 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 17 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 19 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 26 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 26 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 27 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 3 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 14 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 26 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 27 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 42 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?

    Home > LC Polls > If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?
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    36 Comments

    1. Bob Durstenfeld

      I transfered providers when I left for college.

      5 months ago Log in to Reply
    2. Abigail Elias

      My pediatrician—not a specialist—took care of me for about 9 months, then I left for college at age 17 and saw an ā€œadultā€ endocrinologist. I didn’t shop around and have no idea if pediatric endocrinologists existed. As a college student I considered myself to be an adult.

      1
      5 months ago Log in to Reply
    3. Ahh Life

      The correct answer for me is non-numeric. Had a pediatrician until age 14. Then had no medical care / visits for probably 10-15 years. If you’re not sick, who needs a doc, right? Ķ”āšˆā€Æļøµ ͔⚈

      5 months ago Log in to Reply
    4. Lawrence S.

      I was an adult a 23 when I became a diabetic. But, did not see an Endocrinologist until 1998. Let’s see, I would have been 45 years old before I saw my first Endocrinologist. (I had to do the math twice, and shake my head). Oh, If I had only known to see an Endocrinologist sooner, how much better could my life had been.

      2
      5 months ago Log in to Reply
      1. Lawrence S.

        And, how much better my family’s life could have been.

        1
        5 months ago Log in to Reply
      2. LizB

        Other than one appointment right after my diagnosis at 19, I didn’t see an endocrinologist until 18 years later. I wish I had done it sooner instead of just seeing a PCP.

        5 months ago Log in to Reply
      3. KarenM6

        I know what you mean, Lawrence S!
        I had been diabetic for 25 years before I found out there was such a thing as endocrinology!

        5 months ago Log in to Reply
    5. Melinda Lipe

      Diagnosed at age 9 in 1966. My general pediatrician (who later specialized in pediatric gastroenterology) offered to take care of my diabetes because his office was closer and more convenient. At about 15, I started seeing an adult general practitioner and didn’t see an endo until age 29, other than being closely followed by my OB during 2 pregnancies in the ā€˜80s when fingersticks became available.
      Since 1989, I’ve seen my endos regularly.

      5 months ago Log in to Reply
    6. Mary Dexter

      https://diabetesjournals.org/care/article/44/11/2449/138477/Adult-Onset-Type-1-Diabetes-Current-Understanding
      We are the majority.

      The experiences of those diagnosed as adults differ from those diagnosed as children: Having to repeatedly prove that one isn’t T2 and does indeed require insulin. Being expected to suck it up, figure it out on our own, manage perfectly and in a way that doesn’t impinge on anyone else. Weight gain viewed as a character flaw, rather than a symptom of our body betraying us once again.

      2
      5 months ago Log in to Reply
      1. KarenM6

        Hi Mary!
        I hear ya! I have experienced all of those same things (except having to prove I wasn’t type 2) as a child, so I actually get it.
        Now that I’m older, I find myself having to add the “proving one isn’t type 2” every so often.
        I wish I could fix it for you!!! :/

        5 months ago Log in to Reply
    7. Joan Fray

      My dad had T1d so when I got it (age 12) I just went to him. Until I switched to Kaiser, age 23.

      5 months ago Log in to Reply
      1. Joan Fray

        I meant I went to his endocrinologist. Although my Dad was a pediatrician, so mostly didn’t have to go to ā€˜the doctor’.

        1
        5 months ago Log in to Reply
    8. Pam Taylor

      I was diagnosed at 16, 5 months before I turned 17. Our family doctor (after my second stay in the hospital some 4-5 months later) sent me to an Internist who specialized in diabetes.

      5 months ago Log in to Reply
    9. Jeff Balbirnie

      My primary died two weeks after I graduated high school. Had zero need or ever seen one before then…. My primary offered excellent care

      5 months ago Log in to Reply
    10. Don P

      those names mentioned above were NOT heard of when I was diagnosed …tooooo many years ago !!!

      1
      5 months ago Log in to Reply
    11. BOB FISK

      This happened back in 1966, when I was 17. I had been diabetic for 3 years. I had always had trouble with hypoglycemia in the late afternoon almost every day (I used a single injection of Reg and NPH) so my mom looked to find a solution. I had been in the care of a Pediatrician, and my mom found a diabetes specialist in the same city. I also think she was looking for a miracle cure, or at least the latest therapy. The endocrinologist put me on 3 injections a day, which immediately alleviated the hypoglycemia issue. Unfortunately, disposable syringes were not yet available, so I had to boil a glass syringe before each injection, which was a bit inconvenient.

      5 months ago Log in to Reply
    12. Jneticdiabetic

      I was diagnosed at 18 y/o and seen by an adult endocrinologist from the start.

      5 months ago Log in to Reply
    13. LizB

      I was diagnosed at 19, but treated in the pediatric/adolescent ward in the hospital. The endo who treated me during the week I was hospitalized told me to make an appointment with her for 1 weeks after I was released. Her other patients were all younger teens and I felt a little out of place. I had no insurance (the hospital got me temporary Medicaid for 3 months and the state refused to extend it after that) so I only had that one appointment.

      5 months ago Log in to Reply
    14. Missy Kirchem

      I was diagnosed in 1964 and there wasn’t a pediatric diabetes specialist where we lived

      1
      5 months ago Log in to Reply
    15. Janis Senungetuk

      I was dx at the age of 8 in 1955. My pediatrician continued to be my primary healthcare provider until at 14 I started seeing an Internist who had previously been involved in the development of type 2 oral medication for adults. in addition, during those first years, I had an appointment with a diabetes specialist at a university research center. I don’t think he specifically treated children. Over my past 67 years living with T1 D, the option of receiving care from an endocrinologist has been very limited.

      1
      5 months ago Log in to Reply
    16. rick phillips

      There was no such thing as a pediatric endocrinologist in Indiana in 1974.

      1
      5 months ago Log in to Reply
      1. Kristine Warmecke

        Wow! My brother was diagnosed in 1972 by a pediatric endocrinologist in St. Louis, MO. I find it hard to believe there wasn’t ONE in the whole state of Indiana, in 1974.

        5 months ago Log in to Reply
    17. Cheryl Seibert

      Diagnosed at age 6 back in the mid-60’s. I only saw a general pediatrician once a year for a fasting blood sugar. My initial dose of insulin never changed from age 6 to age 13 when I went into ketoacidosis. We knew no one in the area that had expertise in diabetes in our city. At age 20, I married and moved to another city where one the best endocrinologists in the area had just started practice. His speciality is Type 1 diabetes. He has kept me complication-free for many decades.

      5 months ago Log in to Reply
    18. Sue Martin

      I was diagnosed at 18. I saw my first Endo at 19. When I came back to the States and got a full-time job I consistently saw an Endo from aga 22-23.

      5 months ago Log in to Reply
    19. Don (Lucky) Copps

      my care as a child was with internal medicine son providers. They both specialized in diabetes. In my mid 20s I went to a number of different Endocrinologist. still with them.

      5 months ago Log in to Reply
    20. Kristine Warmecke

      After my first year of college I was told I would be doing my “Diabetic Registry stay” at the adult registry clinic. Thus began my transfer from pediatric to adult endocrinologist , at age 19,

      5 months ago Log in to Reply
    21. Amanda Barras

      Saw a pediatrician till 18, regular doc till 22, then finally got to see my very first Endo at 23. Living 2 hours from a big city that had an Endo, that was never an option for me.

      5 months ago Log in to Reply
    22. KarenM6

      Diagnosed at 5 and I was never under the care of a pediatric endocrinologist. And, the doctors I did have were incredibly callous.
      But, I have great care now which I am very grateful for!!!

      5 months ago Log in to Reply
      1. KarenM6

        I would like to clarify that I was always under the care of an adult care doctor. The only time I went to a pediatrician was for vaccinations.

        5 months ago Log in to Reply
    23. Anthony Harder

      My first endocrinologist was very skilled. Pediatric endo was his specialty. He would refer female patients to adult endo doctors but kept me as a patient until he retired.

      5 months ago Log in to Reply
    24. cynthia jaworski

      Back in 1963, an endocrinologist was an endocrinologist. Period. There were no sub-classifications of diabetic patients, so I went to the same endo from the age of 10 until that wonderful doctor retired.

      5 months ago Log in to Reply
    25. PamK

      I could have stayed with my “child endocrine,” but chose to switch because I didn’t agree with his treatment plan. Turned out, I was right!

      5 months ago Log in to Reply
    26. AnitaS

      I had a regular primary care doctor doctor taking care of my diabetes from age 9 to 55. (1973 when diagnosed). I went to an endo one time in my 20’s but was told that since I was doing well I didn’t need to see her again and that my primary care doctor could take care of me as always. In 2019 when I was 55, my insurance changed and I was sent to an endocrinologist to manage my diabetes.

      5 months ago Log in to Reply
    27. Tim Kirchgessner

      I was diagnosed @ 34

      5 months ago Log in to Reply
    28. Cheryl Weaver

      I didn’t see a endocrinologist until I was in my late 30’s or early 40’s.

      5 months ago Log in to Reply
    29. Patricia H

      I was diagnosed in my 7th month of pregnancy at age 27.

      5 months ago Log in to Reply

    If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)? Cancel reply

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