BOB FISK – T1D Exchange

Activity
- 8 months ago
  
  KarenM6 has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Yes, indeed, sweetcharlie!! Thank you for your posts! :D
- 8 months ago
  
  Anna Kiff has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  So happy to see another glass syringe user! I went back to live in the UK in the early 80's .. and NHS had us using glass syringes! After having lived with plastic syringes in Canada for almost 30 years .. it was quite the shock. My Dad actually sent me ONE package of BD syringes as a Xmas gift the first year . ROFLMAO . I'm so happy we no longer use that system and the 4mm 33 gauge pen needles .. sweet! And yes, technology is awesome .. if you can afford it. Some of us can't get insurance coverage so it can be like standing in front of a candy shop window .. and drooling away.
- 8 months ago
  
  Anna Kiff has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I agree with you on all you said Ken .. I couldn't have put it any better!
- 8 months ago
  
  Anna Kiff likes your comment at
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I've had diabetes for almost 60 years now, and the fact that it has become easier has a direct relationship to the improvement of the technology. In 1980 things became a whole lot easier with Home Glucose Monitoring, even though it was pretty clunky then. But at least I could find out what my BG was. The latest tech is Continuous Glucose Monitoring, which makes it easier than ever.
- 8 months ago
  
  Anna Kiff has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I call the "early days" (I was diagnosed in the 1960's) the Ice Ages. In away, glad to know that we all made it to this point with grit and determination. From glass syringes, 18 gauge needles that you sharpen on a stone, plop plop fizz fizz for urine testing 😂.. all good in my little world of advocacy.
- 8 months ago
  
  Kathryn Britton has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Yesterday I made the mistake of taking 10 units of insulin instead of the right amount for 10 grams of carbohydrates. I managed to keep ahead of the insulin by eating and eating. But it reminded me that it's still necessary to pay attention!
- 8 months ago
  
  sweetcharlie has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  WOW!!!!! MMy answwer was "other".. In the past on this site I many times I used to say "we are not all the same, but we are not all different".... BUT, unless I missed it, I am different!!! T1D at age 20, age now almost 91.... In 1952 I mixed my own ratios of NPH and R made from Pigs and cows... Then came the DNA humin stuff along with the $$$ increase. So I tried MDI "not good for me".. Then 70/30 once a day and for a while twice a day [no advantage]. Then Lantus once a day.. Then Walmarts Novolin 70/30 because of price and it worked the same for me. Now going to start the Humalin Pen since it is under the $35 a month rule and I have trouble reading the syringe because of AMD [not T1D related]. Started using Dexcom G6 2 years ago... past 6 months it has been way off from finger and Lab tests.. In the early days and now T1D was just another part of life that I had to deal with.. Now I am dealing with Asbestos related Lung cancer..
- 8 months ago
  
  sweetcharlie has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Try $ 1.25 when I started 70 years ago !!!
- 8 months ago
  
  sweetcharlie has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Becky and Jan, see my answer..
- 8 months ago
  
  sweetcharlie has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Bob, I have used the CGM for the last 2 years out of 70 years T1D.. Please keep a check on the CGM with finger sticking and Lab tests !!!!
- 8 months ago
  
  sweetcharlie likes your comment at
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I've had diabetes for almost 60 years now, and the fact that it has become easier has a direct relationship to the improvement of the technology. In 1980 things became a whole lot easier with Home Glucose Monitoring, even though it was pretty clunky then. But at least I could find out what my BG was. The latest tech is Continuous Glucose Monitoring, which makes it easier than ever.
- 8 months ago
  
  Chris Maluski has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Tech has made things much more manageable for sure. Burnout still happens, and I think it is often overlooked when sighting how great the tech has gotten. Developing healthy coping strategies in my mid 20's saved my life and has been far more beneficial to my diabetes management than anything else. If you are young person with diabetes, an old person telling you how good you have it with your AID is not helpful. I have been T1 for 30 years now and even back when it was NPH and Regular the biggest barrier to care was myself.
- 8 months ago
  
  George Lovelace has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  After 58+ years it still "waxes and wanes" but since Dexcom and Tandem it is like I've found my Cure!
- 8 months ago
  
  mbulzomi@optonline.net has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  After 55 years, 39 years on a pump and 11 years on a CGMS and at least 3,000 shots. There is no Vergin spots left. So, managing T1D just continues to get more intense. Especially every set change. With that, it normally requires Besel changes. As my old Endo. said, wait one day for the site to establish absorption, then make the changes. But that one-day sometime the glucose goes crazy. Tandem Control IQ helps, but it is slow to respond to high numbers.
- 8 months ago
  
  Lisa La Nasa has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  For me, the key is to keep learning new techniques to optimize blood sugar control. After struggling for 13 years with T1 and deteriorating health, I had to take matters into my own hands - not relying on technology (pumping made me lazy) - but really dialing into the correct basal rate, how to bolus precisely and predictably for food, how to correct to a set blood sugar target, etc. T1D is so much easier for me now because it's more predictable. There are always new techniques to learn, though. It's a fun and exciting process to learn more about hacking our own health to optimize outcomes!
- 8 months ago
  
  Karen Brady has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  "The difficulty of managing T1D waxes and wanes - some times are more difficult" It's a different world diabetes-wise than it was even ten years ago, and technology has made it sooo much easier to manage the disease. But really it still feels like a massive burden to me, even using an automated delivery system. I think I'll continue to feel very frustrated with the unpredictability of my bloodsugars until there's a cure or something closer to it than a closed-loop system.
- 8 months ago
  
  Jan Masty has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  You are another person I totally agree with. I’m amazed I have survived considering some of the things I did when I was younger. We were most definitely more resilient . I’m happy though that I’ve mostly led a very normal life apart from the diabetes.
- 8 months ago
  
  Jan Masty has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Well said. I agree with you!
- 8 months ago
  
  Jan Masty has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I soooo agree. The new stuff is great BUT none of it is perfect and can make things more complicated some days. Going on 63 years of “fun” .
- 8 months ago
  
  RegMunro has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  After more than fifty years I’m still learning! At times I manage well, then at other times I’m taken by surprise. But CGM use does massively assist. At least I can now see, much more quickly, when my bg goes off
- 8 months ago
  
  Steven Gill has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I'm still a baby in my almost 24 years. With a CGM and pump things are a little simpler but my goals are intensified. So compared to 20 years the care is easier, but with tighter goals still work. It's folks like Bob (Fisk) and Janis (Senungetuk) that makes me feel lucky never using archaic tools (started with disposable syringes and a meter) now with a CGM and pump I'd feel foolish not to try for closer to normal diabetic control. Thus control can be simpler the longer I'm diagnosed, but the goal post is moved.
- 8 months ago
  
  Andrew Stewart has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I feel that managing T1D has become easier the more time I've lived with it but largely due to improvements in the technology that has made managing my T1D simpler. My insulin is faster acting, my pump basal rate auto adjusts according to my CGM BG trends. My glucagon (baqsimi) is now in a nasal spray providing convenience and ease of use. Sure there are still those times when technology fails us but we're still here, still learning and still proving that perfection does not exist. Be kind to yourself. #BeWell
- 8 months ago
  
  Lena Selbrand has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  In Sweden I have never paid a penny for insulin, test material or anything else I have needed. No battle with insurance company like here.
- 8 months ago
  
  PamK has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I'm coming up on 49 years with T1D as well. We should talk!
- 8 months ago
  
  PamK has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I was diagnosed at age 2. When i was 18 years old, i started seeing a new endocrine who taught me how to take better control of my diabetes. Since then, I haven't thought of diabetes as difficult. Yes, there have been times when my control wasn't as good as I'd like it to be, but more often than not this has been because of my own neglect - - easily fixed! More to the point of this question, the most difficult time for me was when my hormones started changing due to menopause. I did not know what to do. My hormones were fluctuating as were my blood sugars. Everyday was a new adventure! I asked the endo I was seeing what to do (not the same one mentioned above - - I had moved) and he said I should ask my gynecologist. I asked and was told that the changes from menopause shouldn't have any effect on my blood sugars. Time to find new doctors!! Thankfully, my blood sugars seem to have leveled out (and my hormones?). It was a very trying time though, due to a lack of good medical care in my area.
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