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  • Activity
    • 14 hours, 51 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 14 hours, 52 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 14 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 7 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 13 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 13 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 13 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 13 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 17 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 18 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 18 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 18 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 18 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 18 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 18 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 16 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 40 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 9 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 9 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 9 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 9 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 9 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 10 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 10 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    If you wear a T1D device, such as a CGM or insulin pump, do you order your device supplies from a durable medical equipment supplier?

    Home > LC Polls > If you wear a T1D device, such as a CGM or insulin pump, do you order your device supplies from a durable medical equipment supplier?
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    If you wear a CGM, how often do you notice your blood glucose levels are going low before your CGM alerts you?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    51 Comments

    1. Jeffrey Wiggs

      Not if I can help it. I try to use pharmacies.

      2 years ago Log in to Reply
    2. John Dowd

      I order all my medical supplies from the Veterans Administration. They’re very prompt.

      2 years ago Log in to Reply
    3. Stacey Rose

      I have to get my pump supplies through a distributor, but CGM supplies through pharmacy.

      2 years ago Log in to Reply
    4. Gary Taylor

      I use the Medtronic 770 pump and sensor system. I order all related supplies from Medtronic directly. They are usually prompt, but I order far enough in advance that promptness isn’t necessary.

      2 years ago Log in to Reply
    5. Anthony Harder

      I order my CGM supplies thru a distributor of Dexcom’s stuff. My distributor/supplier is TERRIBLE!

      2 years ago Log in to Reply
    6. Larry Martin

      Just starting Medicare so still experiencing that adventure. Medtronic is the maker and I can get everything but their sensors from them even though Medicare says all sensors are now covered. It seems that all the DME suppliers are being conned by them because everyone I have called says Medtronic will not even supply a 3rd party company with sensors for Medicare patients.

      2 years ago Log in to Reply
      1. Derek West

        I am on a Medicare advantage plan with Aetna and get all my Medtronic supplies direct from Medtronic

        2 years ago Log in to Reply
    7. Patricia Kilwein

      I am forced by my insurance to order from a different supplier other than Medtronics…… This company is not so reliable or convenient for me.

      2 years ago Log in to Reply
    8. connie ker

      I used US Med to order supplies for CGM. I used to order test strips from this company before I started wearing the Freestyle Libre.

      2 years ago Log in to Reply
    9. Scott Rudolph

      I started with Edgepark, what a nightmare! As soon as Walgreen’s started offering my Dexcom products, I switched to Walgreen’s. Now it’s as easy as any other prescription.

      2 years ago Log in to Reply
    10. Jneticdiabetic

      Order my device supplies directly from Medtronic

      2 years ago Log in to Reply
    11. Denise Lyons

      I’ve also paid for dexcom sensors out of pocket using Costco. I’m grateful that I have the means to do so because the same supplier I’m using didn’t notify of the need for an updated prescription. They sent the request to my doctor’s previous office and when they didn’t get a response, they just held my order.

      2 years ago Log in to Reply
    12. Nevin Bowman

      Yes, for “durable” supplies that last 3 days.

      2 years ago Log in to Reply
    13. Thomas Emge

      Dexcom is covered via pharmacy benefits and Medtronic supplies are DME. My son’s Omnipods are going through pharmacy.

      2 years ago Log in to Reply
    14. Carole Ludwig

      I became a T1D when I had my pancreas removed at age 78. I was able to get a Dexcom G5 about 6 months later. Arrangements were made by my endo to get supplies through Solara Medical Supplies, with Medicare covering costs. The first year service wasn’t the best but after about a year they were taken over by another company and service has been great after they got all the bugs worked out. I am now using a Tandem pump with Control IQ and Dexcom G6. I am reminded when I will need my supplied renewed. That is a big help and I am happy with my supplier.

      1
      2 years ago Log in to Reply
    15. dave hedeen

      not a simple Yes or No; if on Medicare, must use DME! mine charges Medicare $1,050 monthly : > (

      2 years ago Log in to Reply
    16. Sherolyn Newell

      I used to order from Dexcom and Omnipod. With Omnipod, I never had to order. I put it on auto refill and never had to think about it again. The new pods (Dash system) that I just started on a few months ago are categorized as pharmacy, so now I get them from a pharmacy. I used to order directly from Dexcom, but they stopped supplying that way, so now that’s pharmacy as well.

      2 years ago Log in to Reply
      1. Rebecca Lambert

        I get my CGM supplies through a durable medical goods supplier. I get my Omnipod direct from the company, but under durable medical goods benefit.

        2 years ago Log in to Reply
    17. Phyllis Biederman

      Used to order Dexcom supplies directly from the company but now get to try reordering through Byram- not looking forward to it.

      2 years ago Log in to Reply
    18. Mike S

      Wish I could just get them through pharmacy, but insurance requires that Dex com through a DME supplier, which can be challenging. I still get old Omnipods direct from Insulet. BUT I cannot get the DASH because they can only come through the pharmacy and my insurance won’t allow it. SO frustrating.

      1
      2 years ago Log in to Reply
    19. Sahran Holiday

      Have to order from where insurance requires, Some of the suppliers are awful.

      1
      2 years ago Log in to Reply
    20. GLORIA MILLER

      Due to Medicare I have to order my CGM and Omnipod supplies through a durable medical provider and I hate it. They never send on time and they way overcharge the government for all supplies. Since they are so unreliable (Byram) I do get my endo to send a prescription to Walgreens so I can just pay a little for it and get my CGM supplies. Otherwise I would run out. I am down to only a few pods for my pump and I really don’t know what I will do when my extras run out since I can’t get those from a local pharmacy. I started with Byram with a three months extra supply but I am down to five pods as of today.

      1
      2 years ago Log in to Reply
      1. Miriam Gordon

        Just recently went on Medicare. I was due for a new pump and switched to CCS medical (recommended by Tandem) because Edgepark doesn’t do pump supplies for Medicare. Thank goodness CCS has been very easy to work with. A person actually answers the phone!! Getting supplies smoothly. I did have to call about last order and tell them the date of my last Endo visit.
        Edgepark, on the other hand, has been a horror for my Dexcom. They were supposed to ship a 3 mos. supply on July 5, but didn’t start processing Medicare until July 5. How does that work? They would not take my word about when I saw Dr. last but had to get in touch with Dr. office. I called my Endo and secretary said she hadn’t gotten anything from Edgepark.. Fortunately she was willing to call. Then I had to call Edgepark again (and wait) and speak to a supervisor to get shipment released. Next shipment for Dexcom will switch to CCS. Also, always lie when they ask how many days supply you have left. Sad that they make you do that.

        4
        2 years ago Log in to Reply
      2. Kristine Warmecke

        I was able to change to a different DME supplier , from Byram. After fighting for a year to receive the correct infusion sites in my orders. They refused to speak with Tandem, to try and fix the problem they had (they told me they were sending the correct ones but they didn’t go with my tSlim.) I ended up having to buy a box from Tandem, so I would have some. I was using the same site until it hurt to bad keep it in, sometimes 2 weeks or more.
        I had to go a week or more between my orders for Dexcom sensors & they never wanted to send a new transmitter on time.
        Since changing I’ve not had a issue.

        2 years ago Log in to Reply
      3. Kirsten Petty

        Make sure you are reporting issues/pods not lasting a full 3 days and they will send replacements, that would help me when I was running low

        2 years ago Log in to Reply
    21. betsy valian

      I am on Medicare, and wear a CGM. I anm FORCED by Medicare to purchase t6he supplies through Byrum Health… I have tired the alternatives, all bad and undependable. I wish I could go to my Pharmacy where I get my insulins and pick the supplies up? WHY does Medicare force people to use a ‘equipment supplier’? If it is just becuase of a ‘classification’ then they need to change that.

      2 years ago Log in to Reply
    22. Henry Renn

      I have used CCS since 2004 with varying degrees of satisfaction. In the last 2 years their service has been great. They remind me but email & phone when it is time to reorder pump or cgm supplies. I do appreciate the reminder. I just began ordering online so I will have to see how well that works.

      2 years ago Log in to Reply
    23. Patricia Dalrymple

      I wasn’t sure but my answer is Yes after looking at comments. I use Baycare Homecare out of FLA. Used to get them from Medtronic when I was on BCBS but when my company switched to Cigna, had to go through Baycare. They are good though and I get my supplies the days after I phone in my order. I’m grateful fir the comments and when I go on Medicare in 2 years, I will try to stay away from Bynam.

      2 years ago Log in to Reply
    24. Bill Williams

      I’ve used both Byram (terrible service) and Edgepark (even worse) for Libre supplies. I recently switched to Advanced Diabetes Supply and (so far) they have been reliable.

      1
      2 years ago Log in to Reply
      1. Kristine Warmecke

        I switched from Byram to Edgepark, and haven’t had any problems, thus far. I had used Edgepark before and not had good service; this time it is seamless, supplies on time and the correct ones. Unlike Bryam.

        2 years ago Log in to Reply
    25. Sondra Mangan

      My Dexcom supplies are covered as DME, but my Omnipod supplies are dispensed as Rx via Walgreens.

      2 years ago Log in to Reply
    26. Sue Martin

      I used to but my pharmacy now carries them so I can easily get them from there.

      2 years ago Log in to Reply
    27. Vicky Byram

      CGM is an RX
      Pump is DME

      1
      2 years ago Log in to Reply
    28. Bob Durstenfeld

      Byram is the WORST. They sent a bill to collection because they had posted different amounts on the phone service vs. the online systems and I paid via the phone system, it took months to clear up. Their billing/accounting was always screwed up. I have had better success with CCS for Tandem and US Med for Dexcom.

      1
      2 years ago Log in to Reply
    29. Janis Senungetuk

      Both my primary and secondary insurance require DME supplies thru a DME supplier. Would much prefer coverage thru local pharmacy.

      1
      2 years ago Log in to Reply
      1. KSannie

        Ditto. Same was true when I was on my company’s insurance.

        2 years ago Log in to Reply
    30. Bonnie Lundblom

      I’m covered my Medicare and receive both my Tandem Tslimx2 and Dexcom CGM supplies from CCS Medical. I’ve had good service from them and have always received my supplies on time.

      2 years ago Log in to Reply
    31. George Lovelace

      I’ve used multiple Suppliers over the years, both difficult and Edgypark is Impossible (never do business again) Byram was OK and Solara, right now using Diabetes Management & Supplies from New Orleans and they’ve been very reliable.

      2 years ago Log in to Reply
    32. LizB

      I am able to get my supplies directly from Medtronic.

      2 years ago Log in to Reply
    33. Donna Condi

      I get a three month supply of pump supplies from CCS mail order. But I get my 30 days of Dexcom supplies and insulin through Walgreens thinking that I wouldn’t have to wait on the mail for delivery. I travel back and forth to Florida so I knew I would always have a Walgreens around the corner.

      2 years ago Log in to Reply
    34. Molly Jones

      I receive my T1D supplies from my pharmacy and a company directly. In the past a medical supplier was used for T1D and I hope I will never need to use one again.
      For colostomy supplies, I’ve called my insurance company to see if there are any of these suppliers to simply drive to and pick up supplies from, but the answer is no. Communication and time can be very difficult with the supplier.

      1
      2 years ago Log in to Reply
    35. Eve Rabbiner

      Medicare advantage plan. All my supplies through Byram. Only good experiences with them so far. Order online, they send confirmation and things arrive when they should

      2 years ago Log in to Reply
    36. TEH

      I currently get my pump and CGM supplies from Minimed, but going on Medicare with Medigap G next month. Will be shopping around.

      2 years ago Log in to Reply
    37. Daniel Smith

      My dexcom G6 was hundreds less to do as a DME as opposed to pharmacy benefit. My pump supplies I get direct from insulet so I am not sure how they are billed.

      2 years ago Log in to Reply
    38. Dorian Dowell

      Get supplies from the Veteran’s Administration Health System

      2 years ago Log in to Reply
    39. David Smith

      Both. I get my pump supplies from a durable med equip supplier, my CGM supplies from Walgreens.

      1
      2 years ago Log in to Reply
    40. Stacia Wohlford

      Diabetes Supply is fantastic!! No problems at all in my first year of diagnosis.

      1
      2 years ago Log in to Reply
    41. Cheryl Seibert

      From Edgepark for Sensors and pump supplies

      2 years ago Log in to Reply
    42. Kirsten Petty

      I use ADS, it took me a while to get in the system even though I was considered “urgent” I had to do all the leg work calling my insurance, doctors office, and Advanced Diabetes Supplies every day on the phone for hours waiting for answers just to get a basic I don’t know answer. I kept pushing them after they were saying I couldn’t do anything to speed it up and was out of almost all supplies and finally got them to review my case and approve everything. They have been good for this first 3 months but they have to request medical records to make sure you’re actually using it every 3 months so now I’m waiting on that and my supplies are late

      2 years ago Log in to Reply
    43. Abraham Remson

      Yes I ware both Pump and CGM devices. I was getting them directly from the manufacturing company. However of late the companies stop doing that so now I receive them from a secondary distributor.

      2 years ago Log in to Reply
    44. T1D5/1971

      Have had pretty good experience with CCS as a DME supplier. Way fewer headaches than Edgepark/Byram. Not sorry that I don’t have to deal directly with Dexcom any more as they were horrible. Still end up having to get supplies from “other” sources at times. Can’t let the rules, regulations and ridiculous amounts of red tape ruin my health.

      2 years ago Log in to Reply

    If you wear a T1D device, such as a CGM or insulin pump, do you order your device supplies from a durable medical equipment supplier? Cancel reply

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