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  • Activity
    • 3 hours, 26 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 5 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 5 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 6 hours, 59 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 7 hours ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 7 hours, 1 minute ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 7 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 11 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 7 hours, 12 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 7 hours, 13 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 7 hours, 14 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 14 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 7 hours, 20 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 7 hours, 24 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 40 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 8 hours, 3 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 8 hours, 56 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 43 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 45 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 10 hours, 10 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 52 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 11 hours, 23 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 11 hours, 24 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 11 hours, 45 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    If you wear a CGM, how often do you notice your blood glucose levels are going low before your CGM alerts you?

    Home > LC Polls > If you wear a CGM, how often do you notice your blood glucose levels are going low before your CGM alerts you?
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    If you drink alcohol, do any of the following types of alcohol cause a noticeable drop in your blood glucose, even if you do not bolus? Select all that apply to you.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    20 Comments

    1. Molly Jones

      I go low at least daily. My CGM is latent or off probably twice a month.
      It can be difficult at times to decide when to do a sensor warmup as I know changing BG levels during warmup can make my sensor be off.

      1
      2 years ago Log in to Reply
    2. Sahran Holiday

      Too often. Fortunately I have symptoms though sometimes subtle.

      2 years ago Log in to Reply
    3. Britni

      I set mine to alarm at 85, so usually it alarms before I feel sick, but sometimes when it’s dropping really quickly I’ll feel it coming. The other day at work I scanned the sensor and got a reading of 90 but had a snack anyway because I was hungry. About 2 minutes later the low alarm went off.

      2
      2 years ago Log in to Reply
    4. Sherolyn Newell

      Mine goes off at 70, and I usually can’t feel a low until well below that.

      2
      2 years ago Log in to Reply
    5. AimmcG

      I actually know more often than not even when I’m sleeping. I often wake up. It’s nice to have the back up though.

      2 years ago Log in to Reply
    6. Lawrence Stearns

      I am constantly checking my CGM, by habit. So, I often see when it is going low. I have several small snacks each day to offset the lows.

      2 years ago Log in to Reply
    7. George O Hamilton

      I check it occasionally during the day, particularly when my activity level varies from routine or when meal schedules shift from normal. Often I find that my BG is trending down, so I drink or eat extra carbs. In those cases I frequently find that my action is about 10 minutes before a “low glucose” alert.

      ‘

      2 years ago Log in to Reply
    8. connie ker

      I do have a CGM, the 14 day freestyle libre, but it has no alerts or alarms. I think I appreciate that because I can scan constantly often day and night.

      2 years ago Log in to Reply
    9. Kristine Warmecke

      I have hypoglycemia unawareness. I recently got a service dog, mobility & DAD. She alerts me at 5 minutes – most times earlier – than my Dexcom G6. I feel much more confident now, traveling alone.

      3
      2 years ago Log in to Reply
    10. Natalie Daley

      I’ve set the alarm on my Freestyle Libre 2 for 64, but I often wake up a few minutes before and cannot go back to sleep. It’s an excellent warning system and why I have a CGM. When they installed the alarm system, I started to use a CGM.

      2 years ago Log in to Reply
    11. Tod Herman

      Perhaps the best thing about any CGM is that they allow you to constantly watch how YOUR body responds to various foods or routines and helps you anticipate changes (up or down) well ahead of any alarms. Of course in the middle of the night, that’s where the alarm comes in handy.

      2
      2 years ago Log in to Reply
    12. Janis Senungetuk

      Because of hypoglycemia unawareness I rarely catch going below 65 before a low alarm sounds. I’m very relieved that the Dex 6 is available for me to use.

      3
      2 years ago Log in to Reply
    13. M C

      My Freedom Libre (not the newest version) does not provide alerts – I have to purposely scan the sensor to see what’s going on…. If the BG is out of range, either high or low – then it alerts.

      2 years ago Log in to Reply
    14. William Bennett

      I’ve become considerably less hypo-aware in recent years, due to a combination of getting my BG in much tighter control* and maybe just getting older. I used feel it in the 70s, even physical symptoms like my knees locking and making me walk funny, but now I don’t usually feel anything unless I’m < 60, dropping very fast, or both.
      *Everyone knows that what feels "low" depends very much on your average level, right? For instance, if you are used to running in the 200s, the 120s can *feel* like a hypo even if technically it's above normal.

      1
      2 years ago Log in to Reply
    15. Mary Coleman

      I wear a Dexcom and have little hypoglycemia awareness these days. Thank goodness I have my Service Dog, who regularly alerts up to 20 minutes before a low shows up on my CGM. When we first got her I thought she was making mistakes because I’d look at my Dexcom after a “poke” from her and it would be steady/fine and then, sure enough, within 20 mins with amazing regularity my blood sugar would drop. So grateful for the extra layer of protection.

      1
      2 years ago Log in to Reply
    16. Becky Hertz

      I have mine in my watch so I see it often and can track trends.

      2 years ago Log in to Reply
    17. LizB

      I think I answered the question incorrectly, choosing “often”. I notice it only because I look at my pump or phone often so I can see if I’m trending down. As far as my body noticing if I’m low, never. I can no longer tell when I’m low.

      2 years ago Log in to Reply
    18. Jneticdiabetic

      Very rarely I’ll feel a low before the CGM if I’m dropping fast or if the sensor calibration is off .

      2 years ago Log in to Reply
    19. Cheryl Seibert

      I have hypoglycemic unawareness, but seem to notice lows more often now prior to the alerts. This has been a change in the last 3-4 months. Not sure why

      2 years ago Log in to Reply
    20. MikeeB.

      I have no faith in Tandem’s Control IQ. I have been on the Tandem X2 for almost a year and still have to anticipate/corrections before I get any reaction from the Tandem X2 Pump.

      2 years ago Log in to Reply

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