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    • 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 5 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 41 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 52 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 hour, 4 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 hour, 5 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 2 hours, 20 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 4 hours, 17 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 4 hours, 17 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 19 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 20 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 4 hours, 28 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 34 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 4 hours, 35 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 37 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 53 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 53 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 55 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
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    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?

    Home > LC Polls > If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
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    47 Comments

    1. Mary Dexter

      Their heads are stuck firmly in the sand, believing none of this exists and could never come into their lives.

      1
      4 months ago Log in to Reply
    2. Mary Ann Sayers

      My two daughters have no interest in being screened. But I recently learned that my brother was diagnosed with type 2—
      at age 77! I was dx with T1D at 7!

      1
      4 months ago Log in to Reply
    3. Kristen Clifford

      There should be another option for my answer, which is no one in my family has been screened, and I’m not sure if they’re interested.

      6
      4 months ago Log in to Reply
      1. KCR

        I agree and am in the same situation.

        2
        4 months ago Log in to Reply
    4. Patricia Dalrymple

      My family is aware I have it and probably any time blood work is done when there is something wrong with them, that is something the doctors look at anyway. I was unaware that my grandfather had T2 until I was diagnosed wit T1. My father was hypoglycemic but not diabetic. One thing I will ask them, though, is do they report when asked that there is someone in the family with it. But, they would not want to know ahead of time probably. I think there probably has to be a trigger. I had the gene but it was during a very stressful time at work that I got very rundown and I knew I had it before the diagnosis.

      1
      4 months ago Log in to Reply
      1. Louise Robinson

        I, too, developed Type 1 during a stressful period in my life. I was in my late 20’s in 1976 when diagnosed. My Dad had been dx’d in 1953 but back then, there was no differentiation made about the different Types of diabetes. To my knowledge, Dad and I are the only ones in my very large extended family who were dx’d with diabetes.

        1
        4 months ago Log in to Reply
    5. Louise Robinson

      I am estranged from my only living sibling. To my knowledge, I am the only Type 1 in my currently living extended family. My father developed diabetes in the early 1950’s while he was in his early 60’s. That was before distinctions were made about type of diabetes. He used U-40 Protomine Zinc insulin as I believe no other diabetes treatment was available back then. I’m not certain whether my cousins (mostly maternal side of the family) would be interested in testing for T1D antibodies. I do genealogy and have found diabetes listed as a cause of death for several distant relatives on my father’s side of the family leading me to believe that any genetic predisposition to diabetes emanates from my Dad’s lineage. (Mom lived til she was 98. Neither she nor any of her 14 siblings nor their offspring nor her parents had/have diabetes.)

      2
      4 months ago Log in to Reply
    6. Robert Wilson

      I did not know this was an option. None of my healthcare team ever mentioned this.

      1
      4 months ago Log in to Reply
    7. Katrina Mundinger

      I’m another one with family members who’ve not been screened. We’ve never discussed them getting screened, so I have no idea whether they’d be interested.

      1
      4 months ago Log in to Reply
    8. dholl62@gmail.com

      Daughter was tested 30 yrs ago not sure if that was this test , showed she was prone to diabetes , fortunately no Diabetes. Going to suggest to her to get children tested .

      4 months ago Log in to Reply
    9. pru barry

      My three children were tested decades ago. Don’t think my parents, brother, or any other relatives ever were tested. Thankfully, there’s a lot more testing being done now.

      4 months ago Log in to Reply
    10. Kathleen Juzenas

      I don’t remember hearing the term before. I’ve had a C-peptide test. After 40 yrs of living with T1d, Medicare required a C-peptide test to prove that I had T1d!

      1
      4 months ago Log in to Reply
      1. Patricia Dalrymple

        I’ve never been given one either and go into Medicare next year. I’m grateful for it but am anxious.

        4 months ago Log in to Reply
    11. cynthia jaworski

      How useful is the knowledge that one has a positive screening test? I have always been alert for signs/symptoms of T1 in family members, especially my son, and I even noticed and advised a co-worker prior to his official diagnosis. But how effective and available are prevention protocols? I do not know the answer.

      1
      4 months ago Log in to Reply
      1. Ms Cris

        With low level antibodies, they can now provide some therapies that can delay full onset several years.

        1
        4 months ago Log in to Reply
      2. cynthia jaworski

        Ms Cris: I assumed there must be some kind of action to be taken, but WHAT IS IT? Broad spectrum immune suppression? Back to the idea of administering small amounts of insulin to the not-quite-yet T1d? I haven’t seen anything in the news recently……I was hoping someone here might know.

        4 months ago Log in to Reply
    12. Lawrence S.

      Honestly, I was not aware of T1D autoantibodies screening. I’m not sure that I have been tested. If so, I am unaware. Most of my siblings are in their 60’s and 70’s, and if they have had it done, I am not aware. If not, I doubt they would be inclined at their ages. My daughter is in her 40’s, and I have no awareness of her medical procedures.

      4 months ago Log in to Reply
    13. Patricia Kilwein

      I marked “other” because of the cost. Insurance may not cover it.

      4 months ago Log in to Reply
      1. Patricia Kilwein

        I should add that my Dr explained to me the need to be tested and why. The stickler was if it turned out to be negative my ins would not cover the hundreds of dollars it costs to get tested. If it’s positive there’s no cost, my ins would cover 100% of costs. It was positive. T1D diagnosis went into my chart.

        4 months ago Log in to Reply
      2. Lynn Smith

        Just an FYI, Patricia. You can order an at home T1D antibody screening test online. Go to Enable Biosciences at https://T1D.medi-stats.com/landing to order. The kits are $55 each. I used these to screen my 2 grandkids.

        2
        4 months ago Log in to Reply
    14. Ms Cris

      I’ve asked my kids’ pediatrician to screen them once/year. He won’t, saying they have no symptoms. I try to explain the science…
      Other family, such as my sibling and nieces/nephews believe it’s unhelpful.
      So I’m thinking to go to the Benaroya Institute, where they’ll even do genetic screening as part of their autoimmune research.

      1
      4 months ago Log in to Reply
    15. Kristin Rosner

      My husband and I were too old to participate in the trialnet study when our daughter was first diagnosed 7.5 years ago. We had our son participate. This Spring his annual screening detected the first stages of diabetes. He has progressed to a clinical diagnosis over the summer. If we hadn’t been in the study he would have likely had a traumatic experience at overnight camp. Instead he had a healthy and safe summer. So sign up if you can. It might save you or another family from a traumatic diagnosis experience.

      1
      4 months ago Log in to Reply
    16. Lauren Carey

      No, as my diabetes is not hereditary (I’m the only T1D as far back as anyone can remember) and I do not have nor plan to have any children.

      1
      4 months ago Log in to Reply
    17. Joan Benedetto

      We had only one sibling (half) who qualified for testing via TrialNet while attending an FFL conference. No antibodies present.

      4 months ago Log in to Reply
    18. Kristine Warmecke

      This testing wasn’t available in 1972 when my younger brother was diagnosed, I was just watched closely, then diagnosed in 1982.
      My brother’s oldest daughter was diagnosed at 23 months old in 2004. A cord blood test was done on my middle niece a couple weeks later when she was born and my youngest niece 2 years later. My youngest niece is in the study until she is diagnosed.

      4 months ago Log in to Reply
    19. Maureen Helinski

      I did not get T1D until an adult and they said my family was not part of group they wanted to screen. No one has gotten it, thank goodness, but grandchildren have asthma and food allergies.

      4 months ago Log in to Reply
    20. Janis Senungetuk

      There’s a history of diabetes and auto-immune disease on both sides of my family. I was dx at 8 my maternal grandfather in his late 20’s or 30’s . When I asked my daughter to be screened and have her three kids screened she firmly declined.

      4 months ago Log in to Reply
    21. Drina Nicole Jewell

      I’m the first in the family to have been diagnosed back in 2000. I didn’t actually know about the antibodies testing until 2 yrs ago. By then, my middle son had been diagnosed and my youngest son as well. We discussed it with my oldest and he has no interest. He told us, if it came back positive his anxiety would destroy him always waiting for the proverbial shoe to drop.

      4 months ago Log in to Reply
    22. Diana L.

      I have surgical diabetes due to a distal pancreatectomy neuroendocrine tumor , it is not necessary for my family to test.

      4 months ago Log in to Reply
    23. Donald Cragun

      My parents are no longer with us, I am an only child and I do not have any children. There is no one to test.

      4 months ago Log in to Reply
    24. Becky Hertz

      My sister hasn’t been screened. I’m sure she would in the interest of science, but she ages out for Trial Net.

      4 months ago Log in to Reply
    25. Pauline M Reynolds

      My husband and children and I all have diabetes, except for one. That’s five of us with diabetes. As far as the next generation, it hasn’t popped up and the subject of getting tested has not come up, so I don’t know if they would be for it.

      4 months ago Log in to Reply
    26. ELYSSE HELLER

      I am adopted but do have a son. He has recently diagnosed with type 2 and am urging him to get screened. He does nothing but junk food though. I will keep persisting that he get screened.

      4 months ago Log in to Reply
    27. Mark Schweim

      If anybody else in my family has been tested or considered getting tested, I don’t know about it so am completely clueless when it comes to being able to give an honest answer to this question.

      4 months ago Log in to Reply
    28. M C

      My children are adopted, so not necessary for them to be tested. My sibling and his children (now adults also) have absolutely no interest in being tested.

      4 months ago Log in to Reply
    29. Yaffa Steubinger

      I have T1 so when one of my grandkids became a T1, the other 3 got screened. The brother of the one with T1 showed a likelihood of getting T1. Unfortunately, that test was accurate. Now my son has two T1 sons.

      4 months ago Log in to Reply
    30. Ben Weyhing

      My childfen snd grandchildren

      4 months ago Log in to Reply
    31. AnitaS

      My parents are in their 80’s so I doubt they would get screened. My sister and brother are in their 40-50s and I am sure they wouldn’t want to get screened. If type 1 symptoms arose, I would let them know to be tested for diabetes. I have tested my sister’s sugar before because she felt like she had low blood sugar. Her sugar level was in the mid 70’s. If my brother started showing symptoms, his wife and sister-in-law who are both in the medical field, would make him get tested for diabetes.

      4 months ago Log in to Reply
    32. ConnieT1D62

      No, none of my family members were ever screened for T1D autoantibodies. I was diagnosed in 1962, and my father, his younger sister and a 1st cousin on my maternal side were all diagnosed as adults in the mid-1960s with T1 LADA. Later my father and his sister died of Huntington’s disease in their early 50s. A maternal 1st cousin was diagnosed with T1 in her late 20s after having two children. Tragically she died at age 62 from a silent heart attack and severe hypoglycemia while she was swimming in a family pool.

      In my case, I am the last remaining member of my immediate family as I do not have children, nor grandchildren, nor nieces and nephews. I have several paternal cousins and second cousins who have died from, or currently have Huntington’s disease – two of whom have T2 diabetes. On my maternal side, three Baby Boomer second cousins have obesity driven insulin resistance or full blown T2D. None have expressed any interest in being screened for T1D autoantibodies for themselves or their extended family members.

      4 months ago Log in to Reply
    33. Milly Bassett

      I’m the first in my family to have T1. We went back as far as my great grandparents and no one had it. My father had 12 brothers and sisters, none had it. I don’t know about their children. My mother had 3 brothers and none had it. I don’t know about their children either. My grandparents on both sides, none had it. And my mom told me that her grandmother did not. My brother does not. My children do not and my grandchildren do not.

      4 months ago Log in to Reply
    34. Molly Jones

      I don’t think my immediate or extended family has been screened for T1D autoantibodies. I only have one sibling left in my immediate family. The maternal side of my family has variable autoimmune conditions and might be willing.

      4 months ago Log in to Reply
    35. Carolann Hunt

      Parents can’t be tested over age 45 😳

      4 months ago Log in to Reply
    36. Kim Murphy

      No one in my family has been screened and I don’t know if this screening is available where we live or if my grown children would want their kids screened.

      4 months ago Log in to Reply
    37. Wanacure

      Given that many T1D people here previously have answered that they were misdiagnosed, I wonder how many of our ancestors were unaware of their diabetes? I wonder how many of my distant relatives know that they are at risk? Someone’s cause of death might have been (or even today might be) listed as ā€œheart attackā€ or ā€œstrokeā€ while the actual underlying cause was undetected diabetes.

      4 months ago Log in to Reply
    38. PamK

      Only my children have been screened (2 total). I don’t think any of my siblings have been.

      4 months ago Log in to Reply
    39. Andrea Hultman

      Only my sister qualified to be screened, and she has been.

      4 months ago Log in to Reply
    40. Cheryl Seibert

      No and likely not willing. 1 out of 2 of my immediate living family members is a minor so would need parent’s permission.

      4 months ago Log in to Reply

    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies? Cancel reply

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