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    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Home > LC Polls > If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
    Previous

    At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D?

    Next

    When did you last have your A1c measured?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Lawrence S.

      A cousin and her son.

      3 years ago Log in to Reply
    2. Nevin Bowman

      No parents, grandparents, cousins, or aunts and uncles have T1, but have a niece and nephew and a son of a niece that are T1.

      3 years ago Log in to Reply
    3. Ernie Richmann

      My mother and her mother. Was not sure who a non-first degree relative is.

      3 years ago Log in to Reply
    4. Jane Cerullo

      Years ago I had a first cousin with T1D. Did not manage well and had a lot of complications. He passed in his 50’s. I was diagnosed with LADA at 53.

      3 years ago Log in to Reply
    5. Kristine Warmecke

      Maternal Great Grandmother, brother, maternal uncle, myself, maternal second cousins grandson and then my oldest niece. All others with DM are T2D.

      3 years ago Log in to Reply
    6. William Bennett

      My second cousin–1st cousin’s daughter–is the only other relative I know of with T1D. At that degree of relationship it’s probably 50-80 people (big Catholic family!).

      The TUDiabetes website used to have a thread “Are you the lucky One?” for people who were the only person in their family singled out for T1. When I was dx’d (1983) I was told that this was one of the big differences vs T2, that it didn’t seem to track with families, though since then I’ve come to know that there are quite a few cases where it does. But definitely not in my case.

      3 years ago Log in to Reply
    7. Kristen Clifford

      This question or some variation of it has been asked multiple times before. Get new material!

      3 years ago Log in to Reply
    8. Katrina Mundinger

      Only person is my paternal grandmother’s brother. On my mom’s side, though, there is a history of autoimmune–my mom has RA and her dad had alopecia.

      3 years ago Log in to Reply
    9. Janice B

      The only known family member that had type 1 was my grandfather’s sister. She was diagnosed is the late 1920’s, and died in the early 1960’s.

      3 years ago Log in to Reply
    10. Keira Thurheimer

      None of my relatives have T1D but there are a lot of them with other autoimmune diseases.

      3 years ago Log in to Reply
      1. Molly Jones

        Same with my family.

        3 years ago Log in to Reply
    11. Tom Caesar

      I’m the only lucky one!

      3 years ago Log in to Reply
    12. Elizabeth Jones

      My third oldest brother got diagnosed while in high school. I got diagnosed with LADA when I was 29

      3 years ago Log in to Reply
    13. Yaffa Steubinger

      I have T1 and my son’s two sons have T1. What a thing to pass down to your grandkids. 🙁

      3 years ago Log in to Reply
    14. Eva

      Not. One. Other. Relative. As a first generation American, I was the first one ever to get vaccinated.

      1
      3 years ago Log in to Reply
    15. kim bullock

      I do have a uncle with type 2. I am the only type 1

      3 years ago Log in to Reply
    16. Janis Senungetuk

      My maternal grandfather and my first cousin’s daughter on my father’s side are two that were dx with T1. Before insulin was available and later, before there was knowledge of the various types of diabetes, there were relatives on both sides of my family who did not survive for long.

      3 years ago Log in to Reply
    17. lis be

      cousin on paternal side

      3 years ago Log in to Reply
    18. Edward Geary

      One nephew: y brother’s son.

      3 years ago Log in to Reply
      1. Donal Conway

        My Uncles two grandchildren one at ten years old and another three years ago at 25 years of age, both of course type 1. I was first in the blood line 54 years ago to be diagnosed and nobody knew when I was diagnosed which side of the family passed it on to me? So the later diagnosed cousins proved it came from my late Mothers family side and their granfather also got type 2 in his later years of life. But so far none of my eight siblings got any type of Diabetes.

        3 years ago Log in to Reply
    19. PamK

      When I was diagnosed, I had one uncle who had been diagnosed in his early twenties. Years later, after I had been living with T1D for over 25 years, my mother was diagnosed LADA.

      3 years ago Log in to Reply
    20. KCR

      My late dad was diagnosed as T2D but as I look back and think about my own experience with adult onset T1D and some of the similarities between us, I wonder if he was misdiagnosed.

      3 years ago Log in to Reply
    21. Pauline M Reynolds

      Closest relatives: one nephew and one uncle. But four of my five children have Type 2 !

      3 years ago Log in to Reply
    22. Gerald Oefelein

      My uncle had type 1.

      3 years ago Log in to Reply
    23. Annie Wall

      No one in my immediate family and none in either my mother’s or father’s side as far back as anyone can remember. No cousins on either side, no first, second, third, or fourth cousins. I’m a loner.

      1
      3 years ago Log in to Reply
    24. ConnieT1D62

      My father and his youngest sister were both diagnosed with LADA in their late 30’s, however back then in the mid to late 1960s it was called adult insulin deficient diabetes.
      A first cousin on my maternal side was diagnosed with T1 in her late 20s … she inherited it through her father’s lineage. There was never a diabetes diagnosis of either kind in my mom and her 6 siblings.

      3 years ago Log in to Reply
    25. Sherrie Johnson

      No one

      3 years ago Log in to Reply
    26. Wanacure

      My elder paternal cousin. My 3 years younger brother was diagnosed T1D 3 years after I was at same age: 15. My younger paternal cousin was recently told by a “mean doctor” she had the “eyes of a diabetic.” Her reaction? Changed doctors. Has to take daily Rx for chronic migraines. My mother blamed my father’s side for diabetes. Much later genealogical research seemed to point to her side as well. Many people on this site have reported being misdiagnosed. A hundred years ago, 200 years ago how many diabetics were misdiagnosed? How many deaths were attributed to strokes and heart attacks while the diabetes was overlooked?

      3 years ago Log in to Reply
    27. Mig Vascos

      My oldest sister and I only. No other relative before or after.
      Diabetes 2 has to do with life style and it has nothing to do with the immune system.
      My sister and I were diagnosed first as diabetes 2 because it all started in our 20’s during our pregnancies. We were later diagnosed as having diabetes 1. We were probably LADA but nothing was know about this at the time and the only treatment was insulin.

      1
      3 years ago Log in to Reply
    28. Jneticdiabetic

      I was diagnosed at age 18y. My mom was diagnosed in her mid-50s, 12 years after me.

      3 years ago Log in to Reply
    29. Jian

      my 2nd daughter developed T1D at age 13, my 1st daughter at age 49, 3 brothers with T1D, 1 with T2D
      1 cousin, and 1 niece. all with T1D. no parents with T1d

      3 years ago Log in to Reply
    30. Anthony Harder

      Paternal grandfather + maternal grandmother.

      3 years ago Log in to Reply

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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