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    • 10 hours, 16 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 15 hours, 17 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 15 hours, 18 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 15 hours, 19 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 12 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 12 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 15 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 13 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 15 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 7 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 7 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 4 days ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 4 days ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 7 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D?

    Home > LC Polls > At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D?
    Previous

    If you use an insulin pump, which of these options best describes when you most often change your pump site?

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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. Jane Cerullo

      I am a nurse. My co workers are aware of my T1D. I never make a secret of my diagnosis. It opens questions and also may save my life during a low BS.

      4
      3 months ago Log in to Reply
    2. Annie Wall

      I have always wanted both friends and colleagues to know because there were many times my blood glucose would suddenly drop and I needed help due to hypo unawareness. It’s much less a problem now with CGMs and Tandem CIQ but I’ve always been grateful when a knowledgeable friend or colleague knew when to get me some orange juice. They also learned a lot about diabetes!

      4
      3 months ago Log in to Reply
    3. Janice B

      All of my coworkers are aware and know where my supplies are in case of an emergency. Have never had said emergency in 30 years of T1D – but am prepared.

      4
      3 months ago Log in to Reply
    4. Kristen Clifford

      I don’t advertise my T1D, but I also don’t hide it. If I’m going to be working closely with people, they need to know in case something bad happens. No one deserves a nasty surprise.

      1
      3 months ago Log in to Reply
    5. Richard Wiener

      Retired

      3 months ago Log in to Reply
    6. T1D4LongTime

      I am now retired, but at all my places of employment, some but not all knew of my diabetes. I always share my condition with upper management and my immediate supervisor and functional work team members. Only at 1 employer did I have a close team member refuse to walk with me anywhere due to my diabetes. She ‘didn’t want to have to save me’. She had a bias against my first name and my condition (don’t ask! LOL!). It’s too bad, she was a talented person, but her prejudice made working with her very difficult.

      3
      3 months ago Log in to Reply
    7. Greg Felton

      Now working from home most of the time, there isn’t the need for coworkers to be aware. I think a few close work friends know.

      1
      3 months ago Log in to Reply
    8. Kevin McCue

      I do not wear my T1d like a badge but I do not hide it either, if it comes up or they ask I’ll fill in the blanks to their questions.

      1
      3 months ago Log in to Reply
    9. Tina Roberts

      All of them did. I wanted them to be able to help me if I got in trouble with my sugars.

      2
      3 months ago Log in to Reply
    10. Yaffa Steubinger

      I’m a fitness instructor so all of my students know and see the Dexcom CGM on my arm.

      2
      3 months ago Log in to Reply
    11. Carrolyn Barloco

      I’m retired now but when I was working I let everyone know I had diabetes.

      2
      3 months ago Log in to Reply
    12. Marty

      I don’t recall discussing it with my group after I told them about my initial diagnosis in 1992 to explain my dramatic weight loss and fatigue. I also used myself as an example of interactions among different hormones (dawn effect) when I was teaching. Even though I didn’t tell people individually, it seemed to be passed along from one group to the next. It mostly came up in the context of why I wasn’t joining them for recreational eating 🙂 Luckily, I never needed anyone to rescue me.

      3 months ago Log in to Reply
    13. Vicki Breckenridge

      I work prn in a diabetes research center. The owner recruited me after I had participated in a sensor study.

      3 months ago Log in to Reply
    14. RegMunro

      People know I have diabetes but I doubt many would know how to treat a hypo

      3 months ago Log in to Reply
    15. Ahh Life

      One colleague had T1D. She was a great worker and great diabetic. But she was not so good at moral and legal issues ending up spending six months in jail. Haven’t seen her since. Oh, well. 🥺

      3 months ago Log in to Reply
    16. Becky Hertz

      Everyone knew. I did necessarily appreciate some who tried to tell me what to do and not do, but I’d rather have people know just in case.

      1
      3 months ago Log in to Reply
    17. Lawrence S.

      Yes, I always made sure that all of my coworkers knew that I am a type 1 diabetic. I also explained to as many as possible what to do if I acted unusual.

      3 months ago Log in to Reply
    18. Georgina Sokol

      Got fired once when they found out.

      1
      3 months ago Log in to Reply
    19. rick phillips

      I should have said all of them. I don’t hide

      3 months ago Log in to Reply
    20. Steven Gill

      I’ve never been bashful of my diagnosis, teased as I tested (a police meth lab?), dosed at lunch (curing the zombie apocalypse…), and made a point to challenge younger employees to keep pace. Wear a bracelet that was kind of obvious, and while shrugged the diabetes off carried a sweetened drink into a crawlspace and have been known to crawl to it in a panic. Three companies recruited me knowing my diabetes, and have been introduced to contractors and adjustors newly diagnosed by others in the field (even had a manager at a competitive company to meet a new diagnosed employee at job they drove by).

      3 months ago Log in to Reply
    21. Janis Senungetuk

      I’ve been self-employed for many years. When I last worked with others I notified my supervisors and attempted to educate them on what to do if I was hypo. They were advised not to act because of “liability”. The position only lasted six months, but convinced me that I needed to be able to work on my own schedule.

      3 months ago Log in to Reply
    22. Virginia Barndollar

      Having worked in the CCU as a clinical Pharmacist the nurses and intensivists that I worked with all knew I had T1DM. They were a great bunch that would always check if my pump alarmed, would page me when pump patients were admitted, and were so receptive to learn the correct way to basal/bolus patients.

      3 months ago Log in to Reply
    23. Emily Pearson

      I mostly work remotely now. Almost everyone knew I had T1D when we were in-person but not now that we mostly interact over a screen.

      3 months ago Log in to Reply
    24. Wanacure

      Especially physical labor jobs, I usually did not tell employer, because I was warned by my endo that they would use it as an excuse not to hire me. “Prove that you can do the job first before letting anyone know.” That was my mantra. But volunteering for Jobs with Justice and other social activist work, I did the opposite. I let people know right off the bat. No regrets.

      1
      3 months ago Log in to Reply
    25. kilupx

      I got LADA at age 66, almost 2 years after retiring. I often wonder what office life would have been like if I had diabetes during my career.

      3 months ago Log in to Reply
    26. Cheryl Weaver

      I haven’t worked in years, but when I was working, my colleagues knew I had Type 1 diabetes.

      3 months ago Log in to Reply
    27. Jen Farley

      I let the people I work w

      3 months ago Log in to Reply
      1. Jen Farley

        Must have fat fingered that. Should say- anyone around me, Management, and those who may notice I might be having a low reaction I did not have notifications on. I had a job that in the early days of CGM did not let me Carry any device because they insisted it was a distraction from my job. I quit soon after.

        3 months ago Log in to Reply
    28. KIMBERELY SMITH

      I am only one

      3 months ago Log in to Reply
    29. PamK

      I have been working as a Guest Teacher, so I don’t always interact with the same teachers. As a result, some know and some are not aware, but the office staff and nursing staff at all of the schools are aware.

      3 months ago Log in to Reply
    30. Bruce Johnson

      I always try to have someone trusted around me or aware when I would be working remotely to check on me. These were my mothers’ orders since being diagnosed. Having work colleagues being aware of your disease was getting to be more popular as I was retiring, and it was a nice sometimes relaxing feeling. Over my entire career my diabetes was mostly kept secret , as it had to be, if you didn’t want to lose your job which would be very irresponsible as a main family income source. Having diabetes has changed today, be grateful.

      3 months ago Log in to Reply
    31. Jeff Balbirnie

      Not to my knowledge, no. I don’t want to know their sexual/dental/psychological health issues why on earth would I ever share with them, my intimate and personal health conditions/issues. There are people who knew but I did not tell them. Whom they may have told I do not know. I would love to learn those names. They are not entitled to my information.

      2 months ago Log in to Reply

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