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    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D?

    Home > LC Polls > At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D?
    Previous

    If you use an insulin pump, which of these options best describes when you most often change your pump site?

    Next

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Jane Cerullo

      I am a nurse. My co workers are aware of my T1D. I never make a secret of my diagnosis. It opens questions and also may save my life during a low BS.

      4
      3 years ago Log in to Reply
    2. Annie Wall

      I have always wanted both friends and colleagues to know because there were many times my blood glucose would suddenly drop and I needed help due to hypo unawareness. It’s much less a problem now with CGMs and Tandem CIQ but I’ve always been grateful when a knowledgeable friend or colleague knew when to get me some orange juice. They also learned a lot about diabetes!

      4
      3 years ago Log in to Reply
    3. Janice B

      All of my coworkers are aware and know where my supplies are in case of an emergency. Have never had said emergency in 30 years of T1D – but am prepared.

      4
      3 years ago Log in to Reply
    4. Kristen Clifford

      I don’t advertise my T1D, but I also don’t hide it. If I’m going to be working closely with people, they need to know in case something bad happens. No one deserves a nasty surprise.

      1
      3 years ago Log in to Reply
    5. Richard Wiener

      Retired

      3 years ago Log in to Reply
    6. T1D4LongTime

      I am now retired, but at all my places of employment, some but not all knew of my diabetes. I always share my condition with upper management and my immediate supervisor and functional work team members. Only at 1 employer did I have a close team member refuse to walk with me anywhere due to my diabetes. She ‘didn’t want to have to save me’. She had a bias against my first name and my condition (don’t ask! LOL!). It’s too bad, she was a talented person, but her prejudice made working with her very difficult.

      3
      3 years ago Log in to Reply
    7. Greg Felton

      Now working from home most of the time, there isn’t the need for coworkers to be aware. I think a few close work friends know.

      1
      3 years ago Log in to Reply
    8. Kevin McCue

      I do not wear my T1d like a badge but I do not hide it either, if it comes up or they ask I’ll fill in the blanks to their questions.

      1
      3 years ago Log in to Reply
    9. Tina Roberts

      All of them did. I wanted them to be able to help me if I got in trouble with my sugars.

      2
      3 years ago Log in to Reply
    10. Yaffa Steubinger

      I’m a fitness instructor so all of my students know and see the Dexcom CGM on my arm.

      2
      3 years ago Log in to Reply
    11. Carrolyn Barloco

      I’m retired now but when I was working I let everyone know I had diabetes.

      2
      3 years ago Log in to Reply
    12. Marty

      I don’t recall discussing it with my group after I told them about my initial diagnosis in 1992 to explain my dramatic weight loss and fatigue. I also used myself as an example of interactions among different hormones (dawn effect) when I was teaching. Even though I didn’t tell people individually, it seemed to be passed along from one group to the next. It mostly came up in the context of why I wasn’t joining them for recreational eating 🙂 Luckily, I never needed anyone to rescue me.

      3 years ago Log in to Reply
    13. Vicki Breckenridge

      I work prn in a diabetes research center. The owner recruited me after I had participated in a sensor study.

      3 years ago Log in to Reply
    14. RegMunro

      People know I have diabetes but I doubt many would know how to treat a hypo

      3 years ago Log in to Reply
    15. Ahh Life

      One colleague had T1D. She was a great worker and great diabetic. But she was not so good at moral and legal issues ending up spending six months in jail. Haven’t seen her since. Oh, well. 🥺

      3 years ago Log in to Reply
    16. Becky Hertz

      Everyone knew. I did necessarily appreciate some who tried to tell me what to do and not do, but I’d rather have people know just in case.

      1
      3 years ago Log in to Reply
    17. Lawrence S.

      Yes, I always made sure that all of my coworkers knew that I am a type 1 diabetic. I also explained to as many as possible what to do if I acted unusual.

      3 years ago Log in to Reply
    18. Georgina Sokol

      Got fired once when they found out.

      1
      3 years ago Log in to Reply
    19. rick phillips

      I should have said all of them. I don’t hide

      3 years ago Log in to Reply
    20. Steven Gill

      I’ve never been bashful of my diagnosis, teased as I tested (a police meth lab?), dosed at lunch (curing the zombie apocalypse…), and made a point to challenge younger employees to keep pace. Wear a bracelet that was kind of obvious, and while shrugged the diabetes off carried a sweetened drink into a crawlspace and have been known to crawl to it in a panic. Three companies recruited me knowing my diabetes, and have been introduced to contractors and adjustors newly diagnosed by others in the field (even had a manager at a competitive company to meet a new diagnosed employee at job they drove by).

      3 years ago Log in to Reply
    21. Janis Senungetuk

      I’ve been self-employed for many years. When I last worked with others I notified my supervisors and attempted to educate them on what to do if I was hypo. They were advised not to act because of “liability”. The position only lasted six months, but convinced me that I needed to be able to work on my own schedule.

      3 years ago Log in to Reply
    22. Virginia Barndollar

      Having worked in the CCU as a clinical Pharmacist the nurses and intensivists that I worked with all knew I had T1DM. They were a great bunch that would always check if my pump alarmed, would page me when pump patients were admitted, and were so receptive to learn the correct way to basal/bolus patients.

      3 years ago Log in to Reply
    23. Emily Pearson

      I mostly work remotely now. Almost everyone knew I had T1D when we were in-person but not now that we mostly interact over a screen.

      3 years ago Log in to Reply
    24. Wanacure

      Especially physical labor jobs, I usually did not tell employer, because I was warned by my endo that they would use it as an excuse not to hire me. “Prove that you can do the job first before letting anyone know.” That was my mantra. But volunteering for Jobs with Justice and other social activist work, I did the opposite. I let people know right off the bat. No regrets.

      1
      3 years ago Log in to Reply
    25. kilupx

      I got LADA at age 66, almost 2 years after retiring. I often wonder what office life would have been like if I had diabetes during my career.

      3 years ago Log in to Reply
    26. Cheryl Weaver

      I haven’t worked in years, but when I was working, my colleagues knew I had Type 1 diabetes.

      3 years ago Log in to Reply
    27. Jen Farley

      I let the people I work w

      3 years ago Log in to Reply
      1. Jen Farley

        Must have fat fingered that. Should say- anyone around me, Management, and those who may notice I might be having a low reaction I did not have notifications on. I had a job that in the early days of CGM did not let me Carry any device because they insisted it was a distraction from my job. I quit soon after.

        3 years ago Log in to Reply
    28. KIMBERELY SMITH

      I am only one

      3 years ago Log in to Reply
    29. PamK

      I have been working as a Guest Teacher, so I don’t always interact with the same teachers. As a result, some know and some are not aware, but the office staff and nursing staff at all of the schools are aware.

      3 years ago Log in to Reply
    30. Bruce Johnson

      I always try to have someone trusted around me or aware when I would be working remotely to check on me. These were my mothers’ orders since being diagnosed. Having work colleagues being aware of your disease was getting to be more popular as I was retiring, and it was a nice sometimes relaxing feeling. Over my entire career my diabetes was mostly kept secret , as it had to be, if you didn’t want to lose your job which would be very irresponsible as a main family income source. Having diabetes has changed today, be grateful.

      3 years ago Log in to Reply
    31. Jeff Balbirnie

      Not to my knowledge, no. I don’t want to know their sexual/dental/psychological health issues why on earth would I ever share with them, my intimate and personal health conditions/issues. There are people who knew but I did not tell them. Whom they may have told I do not know. I would love to learn those names. They are not entitled to my information.

      3 years ago Log in to Reply

    At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D? Cancel reply

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