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    • 4 hours, 30 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 5 hours, 10 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 19 hours, 53 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 19 hours, 53 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 19 hours, 54 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 3 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 4 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 5 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 4 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 4 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 4 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 5 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 5 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 16 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 17 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 4 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 4 days, 6 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Home > LC Polls > If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    In addition to T1D, how many other autoimmune diseases do you have?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    47 Comments

    1. Cheryl Seibert

      My paternal grandmother had Type 2 and was on insulin, but no T1Ds.

      4 years ago Log in to Reply
    2. LizB

      One of my sisters also has Type 1.

      4 years ago Log in to Reply
    3. Barbara Bubar

      One nephew and one great nephew.

      4 years ago Log in to Reply
    4. mojoseje

      My brother has T1 and several first and second cousins on my mother’s side.

      4 years ago Log in to Reply
      1. mojoseje

        And my nephew.

        4 years ago Log in to Reply
    5. Tom Caesar

      I’m the only lucky one it my family,relatives!!!

      4 years ago Log in to Reply
    6. Lyn McQuaid

      My dad had T1D so I was sent home with him immediately after diagnosis at age 19. My dad gave me all of my injections for several weeks before I learned to do it on my own. I often wonder if I would have learned more with the formal education most newly diagnosed people get but, 30 years later, I am doing well.

      4 years ago Log in to Reply
    7. Phyllis Biederman

      My aunt developed T1D later in life (I think her 40’s). She contacted me about it since I’d had it since I was 7 years old.

      4 years ago Log in to Reply
    8. KCR

      My dad was diagnosed in the 1990s as Type 2 but looking back at his symptoms and behavior, I do wonder if he might have had adult-onset Type 1.

      4 years ago Log in to Reply
    9. Nevin Bowman

      1 niece, 1 nephew, 1 son of a niece. No other relatives or siblings were diagnosed.

      4 years ago Log in to Reply
    10. Annie Wall

      No diabetes in my family going back on both sides as far back as my parents’ generation knew. Just me.

      By the time I answered and there were about 160 answers, just over 50% had no relatives with T1D.

      4 years ago Log in to Reply
    11. William Bennett

      One second cousin (my first cousin’s daughter). I have probably around 100 relatives at that degree of kin affiliation and afaik she’s the only one. No one else in her immediate family has it.

      4 years ago Log in to Reply
    12. Janice B

      1 great aunt

      4 years ago Log in to Reply
    13. Melinda Lipe

      I usually say None, but I had a great grandmother who died in 1941 at 60+ and reportedly took. Insulin injections.

      4 years ago Log in to Reply
    14. Mary Ann Sayers

      NONE with T1D. But my mother’s 80 yr old aunt (1 of 8) was dx with T2 7yrs AFTER I was diagnosed with T1D. No one else, so far.

      4 years ago Log in to Reply
    15. lis be

      One cousin on the paternal side

      4 years ago Log in to Reply
    16. Henry Renn

      1 younger sister; 1 maternal 1st cousin, 2 daughters of different maternal 1st cousin; 1 son of paternal 1st cousin.

      4 years ago Log in to Reply
    17. Janis Senungetuk

      My maternal grandfather was dx “diabetic” as an adult and took insulin injections before “type” was listed. Other extended family members on my maternal side were dx and died before insulin became available.

      4 years ago Log in to Reply
    18. Marty

      Two cousins, that know of, one each on my mother’s and father’s side.

      4 years ago Log in to Reply
    19. Marcia Pulleyblank

      I have two first cousins, one on either side. My parents were second cousins

      4 years ago Log in to Reply
    20. Lynn Smith

      I went ahead and put my sister down because she had Graves Disease, which is an autoimmune disorder. But, I never knew whether her diabetes was Type I or Type II. She started taking insulin as an adult so if she was Type I, it was adult onset Type I. I just know that she seemed to be very insulin resistant, which I associate with Type II. The last I knew she took close to 3 times as much insulin as I do. Having said that, I also know she did not take care of herself and was very resistant to getting on an insulin pump and CGM. She finally did, but by then it was too late. She already had so many other diabetic complications, her quality of life was severely affected. She died before her 70th birthday after having lived a very sad life for over 20 years. TMI, I know, but an explanation I felt needed to be shared. A case study in stubborn rebellion.

      1
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Thank you for sharing.

        1
        4 years ago Log in to Reply
      2. Lawrence S.

        Definitely not TMI. Thank you.

        1
        4 years ago Log in to Reply
    21. Mary Coleman

      My Mother had T1D, diagnosed in the 1930’s when she was a young girl. I have a first cousin who was diagnosed when he was 6. I was diagnosed in my 30’s.

      4 years ago Log in to Reply
    22. Bill Williams

      My maternal grandmother became insulin dependent at age 33 in 1932. We’ve always assumed that she was Type 1 but I don’t know for sure.

      4 years ago Log in to Reply
    23. Jane Cerullo

      I believe my father had LADA but was treated for dm2. First cousin had juvenile type 1 and died from complications. I have LADA

      4 years ago Log in to Reply
    24. Bob Durstenfeld

      With today’s DNA testing, I found out I have monogenic T1D. It is quite dominant in my family, Dad, 2 siblings, one of three sons and one granddaughter (first female to develop T1D).

      4 years ago Log in to Reply
    25. Pauline M Reynolds

      One uncle died within a year in 1929 because he refused to take injections. One nephew who was diagnosed three months before I was.

      4 years ago Log in to Reply
      1. Pauline M Reynolds

        However, many aunts, uncles, sons, daughters, husband have/had Type ii

        4 years ago Log in to Reply
    26. Yaffa Steubinger

      My son’s two boys, my grandsons, have T1

      4 years ago Log in to Reply
    27. Natalie Daley

      My brother at 23 becameT1D, but my grandmother was in her early 40s and they diagnosed her as Type 2 and gave her “sugar pills.” Because it was the 1930s and the Depression was impoverishing the family, she didn’t even get the pills that wouldn’t have helped anyway. She died of gangarine at 45.

      1
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Oh Natalie. So sorry. It goes to show how thankful many of us should be.

        1
        4 years ago Log in to Reply
    28. Ceolmhor

      Our oldest son (now 51) was diagnosed T1D at age 29. I (now 78) was diagnosed with T1D at age 72. I tell everyone I inherited it from him. 😉

      3
      4 years ago Log in to Reply
      1. AnitaS

        Cute! LOL

        4 years ago Log in to Reply
    29. Natalie Daley

      I was diagnosed Type 2 at 40 and full blown Type 1 by an endocrinologist at 45.

      4 years ago Log in to Reply
    30. PamK

      I chose “Other” because growing up I had one uncle with T1, and one uncle with T2. However, my mother was diagnosed with LADA 25 years after I was diagnosed. Not sure how you would count that on this question!

      4 years ago Log in to Reply
    31. M C

      I had been the only one with T1D for 40 years, until after my Dad had gone through cancer treatments and lost the love of his life, my Mom. Less than 6 weeks after her passing, he tested positive for T1D (Never had been T2D!). If it hadn’t been for that sequence of events for my Dad, I believe I would still be the only one on both sides of the family with T1D.

      4 years ago Log in to Reply
    32. Stuart Green

      I am Type 1 for 30 years. My nephew and 5 out of 9 first cousins on my fathers side all have Type 1. Except for myself, no one has diabetes in my immediate family (2 brothers and parents )

      4 years ago Log in to Reply
    33. Lawrence S.

      I had a cousin with Type 2 diabetes. But, her son had Type 1 diabetes. Otherwise, no other relatives had T1D.

      4 years ago Log in to Reply
    34. Jan Masty

      No parents, grandparents, aunts or uncles had t1d but I had a brother who was and I have a nephew who is.

      4 years ago Log in to Reply
    35. William Rone

      My father had 6 brothers, 2 of 7 brothers had T1D and 5 of 7 had T2D. I suppose I drew a bad hand with 53 years of T1D.

      4 years ago Log in to Reply
    36. sweet charlie

      My Grandpas sister and couisin may have had T2D..

      4 years ago Log in to Reply
    37. AnitaS

      I had one first cousin with type 1. No other type 1s.

      4 years ago Log in to Reply
    38. Wanacure

      I wonder how many of our past relatives living in rural areas were never correctly diagnosed? Many living now have expressed how they were misdiagnosed. How many more of our past generations were misdiagnosed or were too poor to even get medical care?

      4 years ago Log in to Reply
    39. Carol Standish

      My 2 sisters and I are all T1D; 2 brothers are not, although both suffer from other autoimmune diseases. Neither of our parents or any grandparents had T1D.

      4 years ago Log in to Reply
    40. Lenora Ventura

      In addition to my dad, his baby sister and older brother have T1D. My aunt was diagnosed at 5 within months of my dad being diagnosed at 9. There were many in the neighborhood who also were diagnosed within a 6 month time frame of my aunt & dad. My dad’s older brother was diagnosed when he was 33. That was over 35 years ago. 3 out of 4 kids in my dad’s immediate family were diagnosed with T1D. I am the only grandchild & there are no great grandchildren diagnosed as of yet. I hope and pray the buck stops with me and no one else in our family reaches the same fate. We’ve had more than our fair share to say the least

      4 years ago Log in to Reply
    41. Rex Franklin

      My Grandmother was the T1. I am the only other family member thats T1. I have asked other family, cousin….Just me and my Grandmother.

      4 years ago Log in to Reply

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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