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    • 10 hours, 53 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 11 hours, 33 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 9 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 10 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 11 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 6 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 11 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 12 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 12 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 7 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 10 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 11 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 12 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 12 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 23 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 23 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 7 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 11 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 4 days, 12 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
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    If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments!

    Home > LC Polls > If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments!
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    If you use an insulin pump, how many times in the past month have you had to change your pump site more than 24 hours before its session was over?

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    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    43 Comments

    1. Ahh Life

      The strategy that worked/didn’t work was to boil the test tube and watch it turn brown. Not recommended. This is an old timer’s inside joke. 😖

      4
      3 years ago Log in to Reply
    2. Britni

      I was a child with T1D who went trick-or-treating in the 90’s. When I was little I wasn’t allowed to eat any candy while trick-or-treating (unless we suspected my blood sugar was going low). When we got home I was allowed to save my favorites and then the rest my parents counted and traded for money (I think pennies or nickels; I can’t remember). The next weekend my dad would take me to the toy store so I could buy something with the money. I assume my parents ate the candy. Af for what I’d saved, I was generally allowed one piece per day, again unless my blood sugar went low. When I got older I was allowed to keep all my candy, but was still only allowed to eat a couple pieces per day.

      3 years ago Log in to Reply
    3. DiabetesC

      Increased temp basal, periodic correction boluses early as needed, encourage faster walking to help keep BG under control.

      3 years ago Log in to Reply
    4. GLORIA MILLER

      I lived in a small village with only 86 people so everyone knew I was diabetic. Everyone would either give me coins, gum or fruit when I would go trick or treating as a young child in the late 1950s.

      3
      3 years ago Log in to Reply
    5. Jana Venditte

      Don’t stop living; check blood glucose throughout the day and night. Correct the highs as needed.

      2
      3 years ago Log in to Reply
    6. Vivian Moon

      I did not have T1D as a child.

      3 years ago Log in to Reply
    7. Nevin Bowman

      I never ate candy as a kid, and today I’m extremely thankful my parents never allowed me to.

      3 years ago Log in to Reply
    8. Greg Felton

      I didn’t eat the candy. I don’t think that counts as a strategy.

      3 years ago Log in to Reply
    9. Beckett Nelson

      As a kid, I would trade some of my sugary treats for my sister’s trident gum. The treats left over would be eaten in moderation, so no crazy spikes

      3 years ago Log in to Reply
    10. Richard Vaughn

      I was diagnosed in 1945. There were no strategies back then because there were no guidelines for controlling blood sugar. Take your pig insulin and don’t eat sugar. Those were the only rules I had to follow.

      2
      3 years ago Log in to Reply
    11. mojoseje

      I went Trick-or-Treating but had to give all my candy to my brothers and sisters. It was terrible.

      1
      3 years ago Log in to Reply
      1. Bill Williams

        Same for me. I stopped going.

        3 years ago Log in to Reply
      2. AnitaS

        Sorry you had to give all of your candy away. My parents weren’t that strict so I never really felt deprived.

        3 years ago Log in to Reply
    12. Debra Nance

      As a chid I out to keep Al chips, apples an oranges. We didn’t count carbs in 1063 but calories. I also got a piece of candy. My neighbors who knew I was a diabetic gave me sugar free candy or gum.

      3 years ago Log in to Reply
    13. HMW

      I had diabetes as a child, and it has been over 20 years since I have gone trick-or-treating so the protocols were very different then. I would eat a fairly large dinner before going out. Our half-way point was a relative’s house 3 blocks away where I could have a snack if I felt my BG was dropping (no cgm, no checking glucose–yes, it was pretty inaccurate). My mom would offer to pay me for about half of my candy (5 cents a piece) to lessen the temptations. Then I was allowed 1 or 2 pieces as a treat after dinner daily, taking into account the Exchanges counting technique I used back then (instead of carb counting, I was supposed to eat a predetermined amount from certain food groups each meal, plus up to 5 “extras” = sugary things, diet soda pop, etc, while having the same amount of insulin twice daily).

      2
      3 years ago Log in to Reply
    14. Kathryn Keller

      My daughter usually actually runs low during trick-or-treating from all the running around. We let her keep all the candy that she can as she also has celiac disease but only let her have a few pieces that night and just bolus for them as needed. Then they generally have one piece a day with a meal till they run out.

      3 years ago Log in to Reply
    15. Joan Benedetto

      My son goes low as he walks as much as three miles with his dad and friends. He eats a piece or two of fast acting, then, later a piece of chocolate. After he has fun sorting all the rest, most is donated to a dentist who sends to the troops. We keep some of the small fast acting pieces for occasional use for lows. Small chocolate bars, kisses, are good for stabilizing a ↘️. Peppermint Pattie’s are diced up and used on top of chocolate almond flour muffins (Simple Mills) which makes a nice “frosting “. Side note: just found candy from last Halloween, Valentines Day and Easter!

      3 years ago Log in to Reply
    16. Joan Fray

      Got it when i was 12. Trick or treated that year, then stopped. Did I eat the candy? No memory…..

      3 years ago Log in to Reply
    17. Aimee Martin

      Feed a low carb dinner right before, and we trade out traditional candy for low carb alternatives when he gets back. If he gets low during trick or treating, he can eat certain candies he got!

      3 years ago Log in to Reply
    18. Melissa Childers

      As a child with T1D, I did not like how candy made me feel, so I kept lifesavers, skittles and jolly ranchers as low treatmentsvand my parents and I worked out a “buy back” program for the rest.

      3 years ago Log in to Reply
    19. GiGi

      I was diagnosed when I was ten years old in 1972. All we had during my childhood was urine testing. It didn’t give an exact number to give correction boluses, and we didn’t have the technology to carb count, so for me, I did what my Dr advised and ate the candy during the day when I was active. I wasn’t put on a restricted diet because my Dr felt it would lead to rebellion and feelings of resentment towards my T1D, and my family.

      3
      3 years ago Log in to Reply
    20. Lisa Vaas

      As others have mentioned, there really wasn’t much of anything in the way of strategies to manage glucose before the past few decades. When I was diagnosed in 1965 at the age of 3, there was only urine testing, which was a feeble alternative to try to discern blood glucose levels. My mother was never strict with my diet, but I wasn’t allowed to drink sugary soft drinks. I remember eating quite a bit of candy growing up, and Halloween was similar to the highest of holy holidays in my world view. Lord knows what I would do now with a child during Halloween: Probably try to ration it a bit, at the very least. Parents of T1Ds, you have my sympathy. Good luck getting through the sugar bacchanalia!

      3 years ago Log in to Reply
    21. Janis Senungetuk

      Halloween was my favorite holiday because of the costumes/makeup I could design. I was 8 when dx in 1955 and allowed to go with neighborhood kids but couldn’t accept or eat any of the candy offered. My treat bag filled with pennies, nickels, apples and gum. By the next Halloween I had experienced a year + filled with “no you can’t do that because of your diabetes” and decided not to go. Thinking back all of those years the memory still stings. It was definitely not a good solution.

      1
      3 years ago Log in to Reply
    22. Marla Peaslee

      We gave legos in exchange for candy collected. Sugar free candy and gum are what our sweet neighbors gave our child. Also allowing a pick of one or two candies and adjusted insulin as needed.

      3 years ago Log in to Reply
    23. Becky Hertz

      Oops, I answered no, but was 14 when diagnosed so part trick-or-treating.

      3 years ago Log in to Reply
    24. Bruce Schnitzler

      I was diagnosed at 6 years of age, in 1951, lived in a rural area, and simply did not go trick-or-treating.

      3 years ago Log in to Reply
    25. Pauline M Reynolds

      Oops, answered other. Should have been I have no children with nor myself have T1 as a child. Over the years, though, I have given out individual packets of pretzels and pencils rather than candy. My problem was staying away from my children’s stash of chocolate!

      3 years ago Log in to Reply
    26. cynthia jaworski

      Halloween was more than candy. I loved the costumes and the fun we had running around at night. I was dx in 1962 at the age of 10, so there were few reliable tools. I ate a bit of candy, bu I was very choosy. Most of it was given away to a children’s center.

      1
      3 years ago Log in to Reply
    27. Henry Renn

      I’m 71 but when I was a child my Dad would give me cash for my candy. I think he was generous to lessen the hurt of trick or treating for candy which I couldn’t eat. I would keep peanuts & any little boxes of pretzels.

      3
      3 years ago Log in to Reply
    28. Liz Johnson

      When our son came home after trick or treating we sorted the candy into pieces he could use to treat lows, those he could work into his meal plan and those that were problematic. We would buy the candy that was problematic and mete out the rest appropriately. He liked getting the money. In school also when he answered a question and won a treat he would auction it off to his classmates.

      3 years ago Log in to Reply
      1. Kristine Warmecke

        I like the auctioning off of his treats won in school. Wish I’d have thought of that.

        3 years ago Log in to Reply
    29. ConnieT1D62

      I went trick or treating as a child with T1D in the 1960s. Neighborhood kids got dressed up in homemade Halloween costumes, with or without character masks, and my younger brother and I went out as part of the gang. When I got home my mom would go through the trick or treat bag and allow me to keep the little boxes of raisins, bags of Fritos or chips, apples, peanuts, and popcorn that were given out. All the candy treats I collected were distributed to my brother and other kids in the neighborhood and I was given $5.00 for giving my candy away.

      1
      3 years ago Log in to Reply
      1. AnitaS

        It is sort of funny how many people even today think that raisins will raise your blood sugar less than candy (although I do consider them more healthful than candy). People offered me raisins too. Nowadays I use raisins to raise my blood sugar in case of hypoglycemia.

        3 years ago Log in to Reply
    30. Kristine Warmecke

      There was no blood glucose testing when I was young to go treat or treating. Our parent’s allowed us chose the candy we wanted to keep for low’s and they bought the rest from us. My Dad then took it to work to share. We also had neighbors that made homemade treats to hand out, got to love living in a very small town in the 70’s, who make special ones for us.

      3 years ago Log in to Reply
    31. AnitaS

      I had diabetes as a child but that was in the 1970’s. Only urine testing then, so what my blood sugar numbers were is just a presumption. I tried staying away from pixie sticks and candies that are basically pure sugar, but I know I did eat a few pieces of chocolate now and then.

      3 years ago Log in to Reply
    32. Jeff Perzan

      Two Strategies: 1. Give daughter ‘option’ of 1 or 2 pieces/day (make candy last, give decision-making ability and accountability, and forcing prioritization of options); and 2. purchasing candy from daughter – especially helpful for culling out stuff she didn’t like AND having her evaluate on a ‘business case’ basis priorities, saving, and long-term approach.

      3 years ago Log in to Reply
    33. Jeff Balbirnie

      Never learned to like candy, so it was not relevant for me.

      I traded my candy to my siblings for cards, games stickers and stamps. They were old games (: z

      3 years ago Log in to Reply
    34. Teri Morris

      As a child my mom drove me to the neighbours who had saved me an apple 🍎

      3 years ago Log in to Reply
    35. Amy Schneider

      When I was a child with T1D (40+ years ago), the neighbors all bought sugar-free candies for me.

      3 years ago Log in to Reply
    36. T1D4LongTime

      T1D since 1966 so majority of my childhood meant not eating a lot of the candy I was given trick-or-treating. I saved all the candy for when I had ‘insulin reactions’ (was we called them back in the day). Back in my childhood, I took one shot in the morning and had no clue what my current BG was, so no strategies other than lots of exercise so my urine sample wasn’t the dreaded bright orange 4+

      3 years ago Log in to Reply
    37. KarenM6

      When I was a kid, I trick-or-treated, but the candy was taken away and given to me piece-meal (one or two per day.)

      3 years ago Log in to Reply
    38. Mary Ann Sayers

      I loved dressing up for Halloween and trick or treating as a child, but I didn’t eat the candy. One house gave me apples, so I didn’t feel different.

      3 years ago Log in to Reply
    39. brettsmith115

      I was a lucky kid back in the 80s/90s. I used to bring a pillowcase full of candy home and trade it in with my parents for toys. It was way better, and more fun, than just a bunch of candy.

      3 years ago Log in to Reply

    If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments! Cancel reply

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