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    • 1 hour, 5 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 1 minute ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 2 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 3 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 5 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 13 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 19 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 20 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 21 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 38 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 38 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 38 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 58 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 58 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 1 minute ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 31 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 45 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 53 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 55 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 19 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
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    42 Comments

    1. Lawrence S.

      It’s difficult to remember, since I’m sleeping. I seem to remember about 3 this week. Maybe more, maybe less.

      4 months ago Log in to Reply
    2. sayounger@verizon.net

      My fault as I changed my Omnipod 5 and forgot to put it in Auto mode. Ugh

      4 months ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I put 4 but it’s typically less than that. I’ve had a slew of bad dexcoms, I’ve gotten 4 replacements in 3 days. Constant low alarms that were false kept me up all night and interrupted meetings all day.

      1
      4 months ago Log in to Reply
      1. Lawrence S.

        Me too. I’ve had the last three or four Dexcom G6 sensors go “—“. I just called for a replacement yesterday. Must be a bad batch, maybe?

        1
        4 months ago Log in to Reply
      2. karolinamalecki7@gmail.com

        Sorry to hear that! I have five replacements on the way, I made a little excel spreadsheet to keep track of them all! I made sure to use different lot numbers after the 3rd sucked but I’m now just chalking it up to bad luck & grateful for my current working one!

        2
        4 months ago Log in to Reply
      3. Jeanne McMillan-Olson

        Do you know what the lot number was so we can check to see if we have it too? Thanks

        4 months ago Log in to Reply
      4. Lawrence S.

        I don’t have the lot numbers for all of mine that went – – – , but the most recent one was lot number: 5311136, expiration date 10/31/23

        4 months ago Log in to Reply
      5. karolinamalecki7@gmail.com

        Lot #7310059 & #7310865

        3 months ago Log in to Reply
    4. john36m

      Hey. Better an interruption than not. Fix a low or a high. My disturbances are almost always due to user (me) error.

      1
      4 months ago Log in to Reply
    5. Annie Wall

      Every single night! I’m still trying to get back to normal after my 6th Covid shot. Although I’d rather get my sleep, I’m determined not to get Covid.

      2
      4 months ago Log in to Reply
      1. Rae999333

        My sugars went nuts too afyer tge Covid vaccine…took at least a full week to normalize….but I agree, haven’t gotten it yet and don’t plan on it! Hang in there, you’re not alone

        4 months ago Log in to Reply
    6. Ernie Richmann

      Not sure disturbed is the right word- I am glad to get the alert.

      3
      4 months ago Log in to Reply
    7. ELYSSE HELLER

      I’d rather get interrupted sleep than the alternative. I do, however, find that the Dexcom sensors do not last 10 days as claimed. The sensors seem to start having issues 3 to 5 days prior to the sensor’s expiration day. That does get annoying.

      1
      4 months ago Log in to Reply
      1. Annie Wall

        Dexcom was the game changer for me. I’ll never forget waking up in the middle of the night with several men standing around my bed, including my husband (who I called Dad!). My blood glucose was so low my husband couldn’t get it to rise as he usually could, so he had to call the ambulance. Those days are long gone with Dexcom.

        4 months ago Log in to Reply
    8. Mary Dexter

      Pain in my hips wakes me before the alarms. Some strange combination of scoliosis and LADA, my numbers wander out of range, too far up or down, and I am in pain. Crick, crack, click, clack.

      1
      4 months ago Log in to Reply
      1. Rae999333

        I Totally understand as my hands have all of a sudden been Severely in pain which causes me to wake up, plus my drops around 330am…ughhh…hope you feel better!

        4 months ago Log in to Reply
    9. Sherolyn Newell

      I put 0, but last week it would have been 5 or 6. I go through periods of BG going up around midnight. Last week was one of those.

      1
      4 months ago Log in to Reply
    10. Paul Madden

      My last HbA1c was 5.6. I do wish the disposable pens had 1/2 unit capabilities. It seems that less of them have this possibility compared to 15 years ago. OR maybe it is just the insulins that I use that do not have this capability. It would make blood sugar management easier and safer!

      2
      4 months ago Log in to Reply
      1. Annie Wall

        You could try the InPen. While I was on a pump vacation, I used the InPen for two years with Dexcom. It does shoot 1/2 units and has really good software reports. You have the one pen for a year at a time and you buy insulin cartridges for it.

        4 months ago Log in to Reply
    11. Joan Fray

      Zero for those reasons. Every night because my body gets so ā€œ twitchyā€. Don’t know what to do about it. It’s Not caffeine.

      2
      4 months ago Log in to Reply
    12. Rae999333

      About 4, I think I developed arthritis so tgat may account for it as well…seeing rheumatologist on Thursday

      4 months ago Log in to Reply
    13. Chrisanda

      It just happened I had a low alert once this past week. I can go many weeks, sometimes months, without a nighttime alarm.

      1
      4 months ago Log in to Reply
    14. Bruce Ross

      My upper and lower settings for my 770G pump are 175 and 90 respectively. I’m awakened nightly at about 3:00 am average. Very frustrating.

      4 months ago Log in to Reply
    15. Janis Senungetuk

      Over the weekend had very high numbers close to midnight that continued into early morning even after replacing my infusion set and injecting a correction dose. Must have been my choice of a new recipe for dinner.

      4 months ago Log in to Reply
    16. Thomas Cline

      I said 7 but that’s not entirely fair, since aging has caused me to get up one or more times during my sleep period to use the bathroom. The good news is that this allows me to use my CGM to check sugar levels in the night and correct as needed even before any alarms go off. On the other hand, my CGM does often disturb me even above and beyond this source of waking. Fortunately, I always drop back to sleep very rapidly. I’ve taken to putting my CGM receiver in a glove to muffle it a bit to avoid disturbing my wife’s sleep, since she has much more difficulty going back to sleep.

      4 months ago Log in to Reply
    17. lis be

      having sudden high spikes at night and it wakes me up several times a night, but not regularly enough to change my basal. Can’t figure out why. I have my alerts set at 70 for low and 160 for high. I cant wait until my insurance will cover a tandem IQ

      2
      4 months ago Log in to Reply
      1. Karen Taylor

        The Tandem t:slim X2 has been a real life changer for me. I love it. I changed because of the cost of omnipod through Medicare and really didn’t want to. But now I realize how beneficial it is along with the Dexcom. And I won’t have the cost of paying for the pods anymore

        4 months ago Log in to Reply
    18. Jeff Balbirnie

      I reject being that obsessive/compulsive about testing period. That amount of anxiety is severely problematic and IMHO is diagnosable regardless of our good intent.

      Night time is for sleeping not testing!

      1
      4 months ago Log in to Reply
    19. Kristine Warmecke

      My DAD woke me from a deep sleep once, and then 2 other times. When she woke me from the deep sleep, I thought she needed to go outside. She let me put her leash on but wouldn’t go out only to the fridge . So I got a piece of cheese thinking she wanted a treat, still wouldn’t go out, she jumped and got a juice from counter and stood by me until I took and drank it. She got lots of praise and the cheese. lol. My G6 never alerted until I was back in bed, and it kept alarming.

      2
      4 months ago Log in to Reply
      1. Patricia Dalrymple

        I assume you mean your DOG but that is awesome. Is your dog especially trained to do that?

        4 months ago Log in to Reply
      2. Kristine Warmecke

        @Patrica Dalrymple I mean DAD (Diabetic Alert Dog or service dog) Yes she is specially trained.

        4 months ago Log in to Reply
    20. Becky Hertz

      I said 3, but I really don’t know cause I don’t keep track. My sleep has been more disturbed by insomnia this past week. Not sure what that’s all about.

      4 months ago Log in to Reply
    21. Pauline M Reynolds

      My pet peeve is when the alarm wakes me up to tell me that I had a high reading two hours ago!

      4
      4 months ago Log in to Reply
    22. Patricia Dalrymple

      I don’t use a CGM so I said 0. My Endo helped me adjust my basal rate so I don’t go low while sleeping like I did. Usually I will wake up hot when I am low or have very strange dreams when high, so I guess I have a built in CGM.

      1
      4 months ago Log in to Reply
    23. mbulzomi@optonline.net

      I get warnings every time I do a set change. (Two in seven days) As I have sated many times before, when I change a set, I always have to make changes to my Basels. As you all know, site absorption problems. I’m starting into my 55th T1D year. Still much to active to use my thighs or rear. You may be able to put a sensor under your arms, but not a “Q” set.

      4 months ago Log in to Reply
    24. Mark Schweim

      It becomes difficult to honestly answer such questions since I work 12+ hour night shift so I’m awake literally all night long most nights anyway and even on my nights off work I do most of my sleeping during the daylight hours.

      4 months ago Log in to Reply
    25. Gustavo Avitabile

      I wake up at least twice per night because I need the bathroom or because of alarms. If I go to the bathroom, I also check, and correct if necessary, my blood glucose; if an alarm wakes me up, I also go to the bathroom. In no case this is disturbing: I fall asleep again as soon as I return to bed.

      4 months ago Log in to Reply
    26. Jan Masty

      It was at least 3 nights mostly due to dexcom issues. The dexcom is great WHEN it works right, I’ve had a few lately that tell me I have a crashing low when it absolutely is not and it has nothing to do with ā€œ compression lowsā€.

      1
      4 months ago Log in to Reply
    27. Chip Brookes

      I am awakened by the alarm stating a lost CGM connection. I Have rolled onto my Tandem pump so that it is not receiving a signal. I rarely am awakened by low alerts. If I am, then it is usually accurate. It does seem that the Dexcom G6 does sometimes in the first 24 hours or so of a new installation the G6 will give false low alerts.

      4 months ago Log in to Reply
    28. Steven Gill

      Generally 3-4 nights a week I get woke up, my alarms are set for 70-125 which is pretty tight. I’m a super light sleeper (can hear my cat go out the doggy door) and can return to sleep as easily. Plan to tighten them up again after next doc’s visit.

      4 months ago Log in to Reply
    29. T1D4LongTime

      A few months ago, alarms at night were seldom. Now, my schedule and eating patterns have been chaotic, so I’m going low just as I go to bed…. having to remember to monitor my BG closer 30 mins prior to bedtime. I answered 5 times out of 7

      4 months ago Log in to Reply
    30. William Bennett

      COMPRESSION LOWS!!! AGGGH!

      Like karolinamalecki7@gmail.com, it seems like the recent formulation of Dexcom sensor filaments is way more susceptible to the compression-low phenom, and man if you’re a side-sleeper is it a PITA. Upper arms just aren’t an option for me any more unless I want to wake up multiple times in the night with breaking-glass Urgent LOW!!! alarms when my actual BG is like 90. Even belly locations, same thing, unless I place them way in next to my navel but even that’s not totally preventative. And it uses real estate I need for my infusion sets.

      This is definitely a new thing, within the last 6-9 months. For years I heard the expression “compression low” and only thought was “Gee, sure glad I don’t have that problem.” Oh, it’s a problem now.

      4 months ago Log in to Reply

    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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