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    • 6 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 8 hours, 34 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 8 hours, 36 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 11 hours, 27 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 11 hours, 43 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 12 hours, 40 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 2 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 9 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 11 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 12 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments!

    Next

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2022?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    42 Comments

    1. Lawrence S.

      It’s difficult to remember, since I’m sleeping. I seem to remember about 3 this week. Maybe more, maybe less.

      12 months ago Log in to Reply
    2. sayounger@verizon.net

      My fault as I changed my Omnipod 5 and forgot to put it in Auto mode. Ugh

      12 months ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I put 4 but it’s typically less than that. I’ve had a slew of bad dexcoms, I’ve gotten 4 replacements in 3 days. Constant low alarms that were false kept me up all night and interrupted meetings all day.

      1
      12 months ago Log in to Reply
      1. Lawrence S.

        Me too. I’ve had the last three or four Dexcom G6 sensors go “—“. I just called for a replacement yesterday. Must be a bad batch, maybe?

        1
        12 months ago Log in to Reply
      2. karolinamalecki7@gmail.com

        Sorry to hear that! I have five replacements on the way, I made a little excel spreadsheet to keep track of them all! I made sure to use different lot numbers after the 3rd sucked but I’m now just chalking it up to bad luck & grateful for my current working one!

        2
        12 months ago Log in to Reply
      3. Jeanne McMillan-Olson

        Do you know what the lot number was so we can check to see if we have it too? Thanks

        12 months ago Log in to Reply
      4. Lawrence S.

        I don’t have the lot numbers for all of mine that went – – – , but the most recent one was lot number: 5311136, expiration date 10/31/23

        12 months ago Log in to Reply
      5. karolinamalecki7@gmail.com

        Lot #7310059 & #7310865

        11 months ago Log in to Reply
    4. john36m

      Hey. Better an interruption than not. Fix a low or a high. My disturbances are almost always due to user (me) error.

      1
      12 months ago Log in to Reply
    5. Annie Wall

      Every single night! I’m still trying to get back to normal after my 6th Covid shot. Although I’d rather get my sleep, I’m determined not to get Covid.

      2
      12 months ago Log in to Reply
      1. Rae999333

        My sugars went nuts too afyer tge Covid vaccine…took at least a full week to normalize….but I agree, haven’t gotten it yet and don’t plan on it! Hang in there, you’re not alone

        12 months ago Log in to Reply
    6. Ernie Richmann

      Not sure disturbed is the right word- I am glad to get the alert.

      3
      12 months ago Log in to Reply
    7. ELYSSE HELLER

      I’d rather get interrupted sleep than the alternative. I do, however, find that the Dexcom sensors do not last 10 days as claimed. The sensors seem to start having issues 3 to 5 days prior to the sensor’s expiration day. That does get annoying.

      1
      12 months ago Log in to Reply
      1. Annie Wall

        Dexcom was the game changer for me. I’ll never forget waking up in the middle of the night with several men standing around my bed, including my husband (who I called Dad!). My blood glucose was so low my husband couldn’t get it to rise as he usually could, so he had to call the ambulance. Those days are long gone with Dexcom.

        12 months ago Log in to Reply
    8. Mary Dexter

      Pain in my hips wakes me before the alarms. Some strange combination of scoliosis and LADA, my numbers wander out of range, too far up or down, and I am in pain. Crick, crack, click, clack.

      1
      12 months ago Log in to Reply
      1. Rae999333

        I Totally understand as my hands have all of a sudden been Severely in pain which causes me to wake up, plus my drops around 330am…ughhh…hope you feel better!

        12 months ago Log in to Reply
    9. Sherolyn Newell

      I put 0, but last week it would have been 5 or 6. I go through periods of BG going up around midnight. Last week was one of those.

      1
      12 months ago Log in to Reply
    10. Paul Madden

      My last HbA1c was 5.6. I do wish the disposable pens had 1/2 unit capabilities. It seems that less of them have this possibility compared to 15 years ago. OR maybe it is just the insulins that I use that do not have this capability. It would make blood sugar management easier and safer!

      2
      12 months ago Log in to Reply
      1. Annie Wall

        You could try the InPen. While I was on a pump vacation, I used the InPen for two years with Dexcom. It does shoot 1/2 units and has really good software reports. You have the one pen for a year at a time and you buy insulin cartridges for it.

        12 months ago Log in to Reply
    11. Joan Fray

      Zero for those reasons. Every night because my body gets so “ twitchy”. Don’t know what to do about it. It’s Not caffeine.

      2
      12 months ago Log in to Reply
    12. Rae999333

      About 4, I think I developed arthritis so tgat may account for it as well…seeing rheumatologist on Thursday

      12 months ago Log in to Reply
    13. Chrisanda

      It just happened I had a low alert once this past week. I can go many weeks, sometimes months, without a nighttime alarm.

      1
      12 months ago Log in to Reply
    14. Bruce Ross

      My upper and lower settings for my 770G pump are 175 and 90 respectively. I’m awakened nightly at about 3:00 am average. Very frustrating.

      12 months ago Log in to Reply
    15. Janis Senungetuk

      Over the weekend had very high numbers close to midnight that continued into early morning even after replacing my infusion set and injecting a correction dose. Must have been my choice of a new recipe for dinner.

      12 months ago Log in to Reply
    16. Thomas Cline

      I said 7 but that’s not entirely fair, since aging has caused me to get up one or more times during my sleep period to use the bathroom. The good news is that this allows me to use my CGM to check sugar levels in the night and correct as needed even before any alarms go off. On the other hand, my CGM does often disturb me even above and beyond this source of waking. Fortunately, I always drop back to sleep very rapidly. I’ve taken to putting my CGM receiver in a glove to muffle it a bit to avoid disturbing my wife’s sleep, since she has much more difficulty going back to sleep.

      12 months ago Log in to Reply
    17. lis be

      having sudden high spikes at night and it wakes me up several times a night, but not regularly enough to change my basal. Can’t figure out why. I have my alerts set at 70 for low and 160 for high. I cant wait until my insurance will cover a tandem IQ

      2
      12 months ago Log in to Reply
      1. Karen Taylor

        The Tandem t:slim X2 has been a real life changer for me. I love it. I changed because of the cost of omnipod through Medicare and really didn’t want to. But now I realize how beneficial it is along with the Dexcom. And I won’t have the cost of paying for the pods anymore

        12 months ago Log in to Reply
    18. Jeff Balbirnie

      I reject being that obsessive/compulsive about testing period. That amount of anxiety is severely problematic and IMHO is diagnosable regardless of our good intent.

      Night time is for sleeping not testing!

      1
      12 months ago Log in to Reply
    19. Kristine Warmecke

      My DAD woke me from a deep sleep once, and then 2 other times. When she woke me from the deep sleep, I thought she needed to go outside. She let me put her leash on but wouldn’t go out only to the fridge . So I got a piece of cheese thinking she wanted a treat, still wouldn’t go out, she jumped and got a juice from counter and stood by me until I took and drank it. She got lots of praise and the cheese. lol. My G6 never alerted until I was back in bed, and it kept alarming.

      2
      12 months ago Log in to Reply
      1. Patricia Dalrymple

        I assume you mean your DOG but that is awesome. Is your dog especially trained to do that?

        12 months ago Log in to Reply
      2. Kristine Warmecke

        @Patrica Dalrymple I mean DAD (Diabetic Alert Dog or service dog) Yes she is specially trained.

        12 months ago Log in to Reply
    20. Becky Hertz

      I said 3, but I really don’t know cause I don’t keep track. My sleep has been more disturbed by insomnia this past week. Not sure what that’s all about.

      12 months ago Log in to Reply
    21. Pauline M Reynolds

      My pet peeve is when the alarm wakes me up to tell me that I had a high reading two hours ago!

      4
      12 months ago Log in to Reply
    22. Patricia Dalrymple

      I don’t use a CGM so I said 0. My Endo helped me adjust my basal rate so I don’t go low while sleeping like I did. Usually I will wake up hot when I am low or have very strange dreams when high, so I guess I have a built in CGM.

      1
      12 months ago Log in to Reply
    23. mbulzomi@optonline.net

      I get warnings every time I do a set change. (Two in seven days) As I have sated many times before, when I change a set, I always have to make changes to my Basels. As you all know, site absorption problems. I’m starting into my 55th T1D year. Still much to active to use my thighs or rear. You may be able to put a sensor under your arms, but not a “Q” set.

      12 months ago Log in to Reply
    24. Mark Schweim

      It becomes difficult to honestly answer such questions since I work 12+ hour night shift so I’m awake literally all night long most nights anyway and even on my nights off work I do most of my sleeping during the daylight hours.

      12 months ago Log in to Reply
    25. Gustavo Avitabile

      I wake up at least twice per night because I need the bathroom or because of alarms. If I go to the bathroom, I also check, and correct if necessary, my blood glucose; if an alarm wakes me up, I also go to the bathroom. In no case this is disturbing: I fall asleep again as soon as I return to bed.

      12 months ago Log in to Reply
    26. Jan Masty

      It was at least 3 nights mostly due to dexcom issues. The dexcom is great WHEN it works right, I’ve had a few lately that tell me I have a crashing low when it absolutely is not and it has nothing to do with “ compression lows”.

      1
      12 months ago Log in to Reply
    27. Chip Brookes

      I am awakened by the alarm stating a lost CGM connection. I Have rolled onto my Tandem pump so that it is not receiving a signal. I rarely am awakened by low alerts. If I am, then it is usually accurate. It does seem that the Dexcom G6 does sometimes in the first 24 hours or so of a new installation the G6 will give false low alerts.

      12 months ago Log in to Reply
    28. Steven Gill

      Generally 3-4 nights a week I get woke up, my alarms are set for 70-125 which is pretty tight. I’m a super light sleeper (can hear my cat go out the doggy door) and can return to sleep as easily. Plan to tighten them up again after next doc’s visit.

      12 months ago Log in to Reply
    29. T1D4LongTime

      A few months ago, alarms at night were seldom. Now, my schedule and eating patterns have been chaotic, so I’m going low just as I go to bed…. having to remember to monitor my BG closer 30 mins prior to bedtime. I answered 5 times out of 7

      12 months ago Log in to Reply
    30. William Bennett

      COMPRESSION LOWS!!! AGGGH!

      Like karolinamalecki7@gmail.com, it seems like the recent formulation of Dexcom sensor filaments is way more susceptible to the compression-low phenom, and man if you’re a side-sleeper is it a PITA. Upper arms just aren’t an option for me any more unless I want to wake up multiple times in the night with breaking-glass Urgent LOW!!! alarms when my actual BG is like 90. Even belly locations, same thing, unless I place them way in next to my navel but even that’s not totally preventative. And it uses real estate I need for my infusion sets.

      This is definitely a new thing, within the last 6-9 months. For years I heard the expression “compression low” and only thought was “Gee, sure glad I don’t have that problem.” Oh, it’s a problem now.

      11 months ago Log in to Reply

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