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    • 1 hour, 23 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 1 minute ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 2 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 2 hours, 44 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 3 hours, 7 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 3 hours, 30 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 31 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 31 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 46 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 4 hours, 47 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 4 hours, 47 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 48 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 19 hours, 48 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 19 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 2 hours ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 3 hours ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 22 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 22 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 22 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
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    If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?

    Home > LC Polls > If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?
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    How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Lawrence S.

      I answered “Always”. But, the truth is that I never have to inform the staff that I have T1D. They already know. The correct answer to the question is “Not Applicable.” All of the doctors that I see are within the same hospital network. They all share my health records via the hospital’s patient portal.

      4
      3 years ago Log in to Reply
    2. Amanda Barras

      Always! It’s absolutely relevant to make sure they know so they can avoid prescribing anything that may conflict with insulin, or cause bs fluctuations. As well, they could easily misdiagnose something that could be potentially linked back to diabetes.

      3
      3 years ago Log in to Reply
    3. Jane Cerullo

      Should always give your complete health history with all providers.

      2
      3 years ago Log in to Reply
    4. Melinda Lipe

      It’s on all my health records

      1
      3 years ago Log in to Reply
    5. Sherolyn Newell

      I put usually, but I can’t think of any doctors I haven’t told.

      1
      3 years ago Log in to Reply
    6. KIMBERELY SMITH

      Rarely

      3 years ago Log in to Reply
    7. cynthia jaworski

      Always. But I still find that they frequently classify me as a T2 in their reports.

      I complain when this happens, because then my insurance starts questioning my 6 decade long diagnosis of T1, asking for tests.

      4
      3 years ago Log in to Reply
      1. Trina Blake

        Oh yeah, they (other HCP’s and insurance) like to believe that we can outgrow it and then scold us because we haven’t.

        1
        3 years ago Log in to Reply
    8. Shelly Smith

      It is in my best interest if they are aware. That way I don’t get prescribed something that doesn’t work with insulin, etc.

      1
      3 years ago Log in to Reply
    9. Tracy Jean

      It is a question asked in the patient paperwork.

      3 years ago Log in to Reply
    10. Chris Albright

      They usually ask for health history so rarely have to tell them

      3 years ago Log in to Reply
    11. Bob Durstenfeld

      Though I always disclose my T1D, the understanding of the impact of having it is very misunderstood by most doctors, they are either out of date or completely ignorant.

      6
      3 years ago Log in to Reply
      1. Jen Farley

        I agree, if they are not an endocrinologist they seem lost on any knowledge on diabetes information.

        4
        3 years ago Log in to Reply
      2. Andrea Hultman

        Yep, or so many of us, because of age and weight, are assumed to have type 2, even though T1D is in our EHR or chart. I have had to underscore multiple times that I have type 1 diabetes and have had it since childhood. In my 20s, I didn’t have to do this. So frustrating! Look at the bloomin’ chart, yo!!

        3 years ago Log in to Reply
    12. kim bullock

      It is is the computer that I have type 1 diabetes. If I am at the Er I speak up even more.

      1
      3 years ago Log in to Reply
    13. Trisha Oldenkamp

      kI think my Type 1 diabetes my affect any other medical issue whether it is added risks, medicine interactions or affects, healing time etc. Since diabetes affects basically the entire human body I can’t think of a time when it is not pertinent to at least mention it.

      3
      3 years ago Log in to Reply
    14. Jen Farley

      Sometimes I hate that I always tell them I have diabetes due to the fact that some doctors can be not paying attention and blame everything on my diabetes.

      6
      3 years ago Log in to Reply
    15. Trina Blake

      I put “usually” although I would rather njot. Why not? My T1D gives “them” and easy out – whatever medical issue I have that led me to their office is obviously “due to my poor D mgt” or “that’s what happens with T1D”. I try to view these things a opportunities to 1) educate and 2) know who not to see in the future.

      2
      3 years ago Log in to Reply
    16. Becky Hertz

      Only if it comes up in conversation or a recommended treatment is contraindicated due to the T1D.

      3 years ago Log in to Reply
    17. Jeff Balbirnie

      What on earth is a health related appointment which is NOT diabetes related fundamentally? This question needs better explained & reworked kids….

      3
      3 years ago Log in to Reply
    18. AnitaS

      All of my doctors are in the same health system so my medical records are available to all of them in the computer system. Even though my medical records are in the computer system, most doctors offices have people fill out a medical form asking all kinds of questions, one of which is do you have diabetes.

      3 years ago Log in to Reply
    19. T1D4LongTime

      ALL my doctors know I have T1D. I request all non-diabetic physicians to send a report of my appointment to my endocrinologist.

      3 years ago Log in to Reply
    20. Andrea Hultman

      It’s in MyChart, but I often remind them, because they see a 47-year-old fat woman and assume type 2. In fact, a local ER just this summer incorrectly “diagnosed” me with type 2. Really pisses me off when HCPs don’t listen!!

      3 years ago Log in to Reply

    If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D? Cancel reply

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